Consent and Inclusion of People Living with Dementia (PLWD) in Research: Establishing a Canadian Agenda for Inclusive Rights-Based Practices.
Can J Aging
; : 1-8, 2024 May 20.
Article
em En
| MEDLINE
| ID: mdl-38764147
ABSTRACT
BACKGROUND:
People living with dementia (PLWD) may want to participate in research, but the guidelines and processes enacted across various contexts may prohibit this from happening.OBJECTIVE:
Understanding the experiences of people with lived experiences of dementia requires meaningful inclusion in research, as is consistent with rights-based perspectives. Currently, the inclusion of PLWD in Canadian research is complex, and guidelines and conceptual frameworks have not been fully developed.METHODS:
This research note outlines a three-year proof-of-concept grant on the inclusion and consent of PLWD in research.FINDINGS:
It presents a brief report on some of the contradictions and challenges that exist in legislation, research guidelines, and research practices and raises a series of questions as part of an agenda on rights and inclusion of PLWD in research.DISCUSSION:
It suggests conceptual, legal, and policy issues that need to be addressed and invites Canadian researchers to re-envision research practices and to advocate for law and policy reform that enables dementia research to align and respect the rights and personhood of PLWD.
Texto completo:
1
Bases de dados:
MEDLINE
Idioma:
En
Revista:
Can J Aging
Assunto da revista:
GERIATRIA
Ano de publicação:
2024
Tipo de documento:
Article
País de afiliação:
Canadá