Detalhe da pesquisa
1.
Bereaved parents' perspectives on their child's end-of-life care: connecting a self-report questionnaire and interview data from the nationwide Paediatric End-of-LIfe CAre Needs in Switzerland (PELICAN) study.
BMC Palliat Care
; 21(1): 66, 2022 May 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-35509046
2.
Specialised Paediatric PAlliativE CaRe: Assessing family, healthcare professionals and health system outcomes in a multi-site context of various care settings: SPhAERA study protocol.
BMC Palliat Care
; 21(1): 188, 2022 Nov 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-36324132
3.
Comparison of End-of-Life Care Practices Between Children With Complex Chronic Conditions and Neonates Dying in an ICU Versus Non-ICUs: A Substudy of the Pediatric End-of-LIfe CAre Needs in Switzerland (PELICAN) Project.
Pediatr Crit Care Med
; 21(5): e236-e246, 2020 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-32091504
4.
Differing needs of mothers and fathers during their child's end-of-life care: secondary analysis of the "Paediatric end-of-life care needs" (PELICAN) study.
BMC Palliat Care
; 19(1): 118, 2020 Aug 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-32753031
5.
Communicating "cure" to pediatric oncology patients: A mixed-methods study.
Pediatr Blood Cancer
; 66(6): e27661, 2019 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-30729685
6.
Patterns of paediatric end-of-life care: a chart review across different care settings in Switzerland.
BMC Pediatr
; 18(1): 67, 2018 02 16.
Artigo
em Inglês
| MEDLINE | ID: mdl-29452600
7.
Correction: Specialised Paediatric PAlliativE CaRe: Assessing family, healthcare professionals and health system outcomes in a multi-site context of various care settings: SPhAERA study protocol.
BMC Palliat Care
; 22(1): 13, 2023 Feb 22.
Artigo
em Inglês
| MEDLINE | ID: mdl-36810037
8.
Maintaining family life balance while facing a child's imminent death-A mixed methods study.
J Adv Nurs
; 73(10): 2462-2472, 2017 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-28329430
9.
Follow-up care of young childhood cancer survivors: attendance and parental involvement.
Support Care Cancer
; 24(7): 3127-38, 2016 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-26922584
10.
When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child's end-of life care.
BMC Palliat Care
; 15: 30, 2016 Mar 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-26956995
11.
Criteria for evaluating response and outcome in clinical trials for children with juvenile myelomonocytic leukemia.
Haematologica
; 100(1): 17-22, 2015 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-25552679
12.
Paediatric end-of-life care in the home care setting (PELICAN HOME)--a mixed methods study protocol.
J Adv Nurs
; 71(1): 204-13, 2015 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-24909918
13.
Paediatric end-of-life care needs in Switzerland: current practices, and perspectives from parents and professionals. A study protocol.
J Adv Nurs
; 71(8): 1940-7, 2015 Aug.
Artigo
em Inglês
| MEDLINE | ID: mdl-25740472
14.
Development and initial validation of the Parental PELICAN Questionnaire (PaPEQu)--an instrument to assess parental experiences and needs during their child's end-of-life care.
J Adv Nurs
; 71(12): 3006-17, 2015 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-26265326
15.
Spliceosomal gene aberrations are rare, coexist with oncogenic mutations, and are unlikely to exert a driver effect in childhood MDS and JMML.
Blood
; 119(11): e96-9, 2012 Mar 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-22238327
16.
The Paediatric Palliative Screening Scale: Further validity testing.
Palliat Med
; 28(6): 530-533, 2014 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-24280277
17.
Validation of self-reported cardiovascular problems in childhood cancer survivors by contacting general practitioners: feasibility and results.
BMC Prim Care
; 25(1): 81, 2024 Mar 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-38459512
18.
Aberrant DNA methylation characterizes juvenile myelomonocytic leukemia with poor outcome.
Blood
; 117(18): 4871-80, 2011 May 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-21406719
19.
Posttraumatic stress in infants and preschoolers with cancer.
Psychooncology
; 22(7): 1543-8, 2013 Jul.
Artigo
em Inglês
| MEDLINE | ID: mdl-22911462
20.
Adolescent survivors of childhood cancer: are they vulnerable for psychological distress?
Psychooncology
; 22(9): 2051-8, 2013 Sep.
Artigo
em Inglês
| MEDLINE | ID: mdl-23401292