RESUMO
In March 2012 the Institute of Medicine (IOM) released the report, Epilepsy Across The Spectrum: Promoting Health and Understanding. This report examined the public health dimensions of the epilepsies with a focus on the following four areas: public health surveillance and data collection and integration; population and public health research; health policy, health care, and human services; and education for providers, people with epilepsy and their families, and the public. The report provided recommendations and research priorities for future work in the field of epilepsy that relate to increasing the power of data on epilepsy; prevention of epilepsy; improving health care for people with epilepsy; improving health professional education about epilepsy; improving quality of life for people with epilepsy; improving education about epilepsy for people with epilepsy and families; and raising public awareness about epilepsy. For this article, the authors selected one research priority from each of the major chapter themes in the IOM report: expanding and improving the quality of epidemiologic surveillance in epilepsy; developing improved interventions for people with epilepsy and depression; expanding early identification/screening for learning impairments in children with epilepsy; evaluating and promoting effective innovative teaching strategies; accelerating research on the identification of risk factors and interventions that increase employment and improve quality of life for people with epilepsy and their families; assessing the information needs of people with epilepsy and their families associated with epilepsy-related risks, specifically sudden unexpected death in epilepsy; and developing and conducting surveys to capture trends in knowledge, awareness, attitudes, and beliefs about epilepsy over time and in specific population subgroups. For each research priority selected, examples of research are provided that will advance the field of epilepsy and improve the lives of people with epilepsy. The IOM report has many other research priorities for researchers to consider developing to advance the field of epilepsy and better the lives of people with epilepsy.
Assuntos
Epilepsia/terapia , Promoção da Saúde/métodos , Interpretação Estatística de Dados , Atenção à Saúde , Educação Médica , Epilepsia/prevenção & controle , Família , Educação em Saúde , Humanos , National Academies of Science, Engineering, and Medicine, U.S., Health and Medicine Division , Melhoria de Qualidade , Qualidade de Vida , Pesquisa , Estados UnidosRESUMO
BACKGROUND: Substance use disorder (SUD) is a complex disabling condition that is not often well understood. Despite decades of SUD research and intervention, prevalence rates remain stable and many traditional treatment options are largely ineffective in helping individuals with SUDs attain long-term abstinence and recovery. One avenue that shows promise in facilitating higher recovery and quality of life (QoL) outcomes in people with SUD is employment that occurs alongside traditional treatment. OBJECTIVE: This study sought to understand the role that meaningful and satisfying employment has in SUD outcomes for treatment completers. METHODS: Employing a quasi-experimental, cross-sectional, nonequivalent group design, this study examined 197 individuals with SUDs who completed treatment to explore how their employment status during treatment, employment status change from their treatment to the time of the survey, and job satisfaction influenced their recovery and QOL. RESULTS: Analyses of covariance (ANCOVAs) revealed that those who made the transition from unemployed at treatment to employed at time of survey and those who were employed in "very satisfying" jobs had higher rates of recovery and QOL than those who were in "very dissatisfying" jobs or made the transition from employed during treatment to unemployed at time of survey. CONCLUSION: The results of this study are promising in that employment and job satisfaction seem to be facilitative of recovery and QOL outcomes for this population of SUD treatment completers.
Assuntos
Qualidade de Vida , Transtornos Relacionados ao Uso de Substâncias , Humanos , Estudos Transversais , Emprego , Transtornos Relacionados ao Uso de Substâncias/epidemiologia , Satisfação PessoalRESUMO
BACKGROUND: People with diabetes mellitus constitute an emerging vocational rehabilitation (VR) consumer population. OBJECTIVE: The objective of this article is to (a) describe the characteristics and needs of Americans with diabetes mellitus, (b) examine the often devastating effects that this highly prevalent disease of the endocrine system has on employment and career development, and (c) suggest strategies that rehabilitation professionals can use to improve VR services and outcomes. METHOD: Following an overview of the etiology, incidence, prevalence, and impact of this high incidence endocrinological disease, the authors present strategies to meet the service and support needs of Americans with diabetes mellitus across the phases of the VR process. RESULTS: The importance of individualized case planning, employer consultation, workplace accommodations, interface with medical and mental health professionals, and adherence to self-care and symptom management regimens is emphasized throughout the article. CONCLUSION: Diabetes mellitus is an emerging disability that can affect people of any age, one that disproportionally affects people of color and people who live in poverty. Rehabilitation professionals must be prepared to meet the service needs of this growing clientele.
Assuntos
Diabetes Mellitus , Pessoas com Deficiência , Humanos , Reabilitação Vocacional , Emprego , Pessoas com Deficiência/reabilitação , Local de TrabalhoRESUMO
This article presents the results of a survey of the Epilepsy Foundation affiliates in the United States and Puerto Rico, regarding the employment-related questions and concerns of people with epilepsy. The survey also explored how Epilepsy Foundation affiliates advise people with epilepsy about disclosing epilepsy status in the employment-seeking process. Some of the major employment-related questions and concerns reported by the affiliates included identifying resources to help in finding a job, questions about disclosure of epilepsy status in job applications, questions about job-related discrimination or Americans with Disabilities Act (ADA) violations, questions about the ADA, and questions about how to deal with co-workers or supervisors. Implications and design limitations are discussed.