Detalhe da pesquisa
1.
Enhancing Care Partnerships Using a Rheumatology Dashboard: Bringing Together What Matters Most to Both Patients and Clinicians.
ACR Open Rheumatol
; 5(4): 190-200, 2023 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-36852527
2.
Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks.
Patient Relat Outcome Meas
; 14: 171-180, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-37333063
3.
Patient Engagement in Pediatric Rheumatology Research.
Rheum Dis Clin North Am
; 48(1): 1-13, 2022 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-34798941
4.
Co-design of an Electronic Dashboard to Support the Coproduction of Care in Pediatric Rheumatic Disease: Human-Centered Design and Usability Testing.
J Particip Med
; 14(1): e34735, 2022 Apr 22.
Artigo
em Inglês
| MEDLINE | ID: mdl-35133283
5.
First-line options for systemic juvenile idiopathic arthritis treatment: an observational study of Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans.
Pediatr Rheumatol Online J
; 20(1): 113, 2022 Dec 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-36482434
6.
Translating research into practice-implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat.
Pediatr Rheumatol Online J
; 20(1): 10, 2022 Feb 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-35130904
7.
Optimizing the Start Time of Biologics in Polyarticular Juvenile Idiopathic Arthritis: A Comparative Effectiveness Study of Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans.
Arthritis Rheumatol
; 73(10): 1898-1909, 2021 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-34105312
8.
Toward Accelerated Authorization and Access to New Medicines for Juvenile Idiopathic Arthritis.
Arthritis Rheumatol
; 71(12): 1976-1984, 2019 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-31313532
9.
The importance of rigorous methods in observational comparative effectiveness studies of rare diseases: comment on the article by Ruperto et al.
Arthritis Rheumatol
; 74(5): 912-913, 2022 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-34905294
10.
Using registries to identify adverse events in rheumatic diseases.
Pediatrics
; 132(5): e1384-94, 2013 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-24144710