Detalhe da pesquisa
1.
Secondary (additional) findings from the 100,000 Genomes Project: Disease manifestation, health care outcomes, and costs of disclosure.
Genet Med
; 26(3): 101051, 2024 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-38131308
2.
Mixed-methods evaluation of the NHS Genomic Medicine Service for paediatric rare diseases: study protocol.
NIHR Open Res
; 1: 23, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-35098132
3.
Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation.
Wellcome Open Res
; 6: 311, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-35592835
4.
Health data: when children reach the age of consent.
Nat Med
; 28(2): 225, 2022 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-34992262
5.
Research participants: critical friends, agents for change.
Eur J Hum Genet
; 30(12): 1309-1313, 2022 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-36195706