Your browser doesn't support javascript.
loading
Mostrar: 20 | 50 | 100
Resultados 1 - 20 de 51
Filtrar
1.
Pediatr Phys Ther ; 36(2): 285-293, 2024 Apr 01.
Artigo em Inglês | MEDLINE | ID: mdl-38349640

RESUMO

PURPOSE: To describe the implementation of an exoskeleton program in a rehabilitation setting using a Design Thinking framework. METHODS: This is a retrospective case series of 3 randomly selected children who participated in skilled physical therapy using a pediatric exoskeleton that occurred on our journey to walking 1 000 000 steps in the exoskeleton devices. Participants ranged in age from 3 to 5 years, and all had neurologic disorders. RESULTS: All participants improved toward achieving their therapy goals, tolerated the exoskeleton well, and had an increased number of steps taken over time. CONCLUSION: The implementation of new technology into pediatric care and an established outpatient therapy clinic is described. The Design Thinking process applies to health care professionals and improves clinical care. Exoskeletons are effective tools for use in pediatric physical therapy.


Assuntos
Exoesqueleto Energizado , Transtornos Neurológicos da Marcha , Procedimentos Cirúrgicos Robóticos , Humanos , Criança , Pré-Escolar , Estudos Retrospectivos , Pacientes Ambulatoriais , Terapia por Exercício , Caminhada , Transtornos Neurológicos da Marcha/reabilitação , Marcha
2.
Medicina (Kaunas) ; 57(8)2021 Jul 31.
Artigo em Inglês | MEDLINE | ID: mdl-34440995

RESUMO

Background and Objectives: There is strong evidence in the literature that women experience psychological disorders at significantly higher rates than men. The higher rates of psychological disorders in women may partly be attributable to gender differences in response to stressors and coping styles. The objective of this study was to contribute to the growing body of literature investigating gender differences in mental health outcomes and coping styles during the coronavirus disease 2019 pandemic in a large sample of individuals from 59 countries with variable demographic and socio-cultural characteristics. Materials and Methods: Survey data were collected from the general population following a snowball sampling method, and the survey was promoted through social media platforms and mailing lists. Participants included 6882 individuals from the general population from 59 countries around the world. A combination of both standardized and adapted measures was used to create a survey, originally in English and then translated to Spanish, Italian, French, German, and Turkish. Results: Compared with men, women presented with higher levels of trauma-related distress; had a harder time decompressing; were more depressed, anxious and stressed; showed decreased frustration tolerance and reported lower quality of sleep and an increased likelihood of taking sleep medication or other natural sleep remedies. Overall, women tended to be more vulnerable during the pandemic in developing symptoms consistent with various forms of mental disorders such as depression, anxiety and post-traumatic distress. However, they also were more likely than men to use a variety of adaptive coping strategies, including concentrating on doing something about the situation and getting emotional support from others. Conclusions: A high prevalence of mood symptoms was noted among women. In addition to meeting the physical health needs of the population, emphasis needs to be given to mental health and the prevention of psychiatric disorders, particularly in women.


Assuntos
COVID-19 , Quarentena , Ansiedade , Depressão/epidemiologia , Feminino , Humanos , Masculino , Pandemias , SARS-CoV-2 , Fatores Sexuais , Estresse Psicológico/epidemiologia
3.
Arch Phys Med Rehabil ; 101(12): 2253-2255, 2020 12.
Artigo em Inglês | MEDLINE | ID: mdl-32891634

RESUMO

Worldwide, the rehabilitation community has been affected by coronavirus disease 2019 (COVID-19). The effect of COVID-19 has been disproportionately devastating for individuals with disabilities, particularly those with acquired brain injury (ABI) owing to injury-related cognitive or sensory and physical difficulties. Many physical and psychological symptoms of COVID-19 are already well-known issues for individuals with ABI. Even in a fully functional social and health care system, post-ABI deficits can pose greater challenges to women and other marginalized groups, such as lesbian, gay, bisexual, transgender, gender-nonconforming, and queer or questioning-identified individuals. The restrictions and changes brought about by COVID-19 have the potential to broaden the existing disparities and limitations. This commentary highlights 3 key areas to attend to during this pandemic to help assuage such disparities and limitations.


Assuntos
Lesões Encefálicas/epidemiologia , COVID-19/epidemiologia , COVID-19/reabilitação , Assistência Integral à Saúde/organização & administração , Minorias Sexuais e de Gênero/estatística & dados numéricos , COVID-19/psicologia , Acessibilidade aos Serviços de Saúde , Humanos , Pandemias , Aceitação pelo Paciente de Cuidados de Saúde , SARS-CoV-2
4.
Spinal Cord ; 58(5): 553-559, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31822807

RESUMO

STUDY DESIGN: Prospective, single-blinded study. OBJECTIVE: To design and evaluate the use of an interview based version of the anorectal portion of the International Standards for Neurological Classification of Spinal Cord Injury (ISNCSCI) exam in the acute inpatient rehabilitation (AIR) setting. SETTING: AIR unit. METHODS: Participants admitted to AIR underwent standard ISNCSCI exams (S-ISNCSCI) as part of routine inpatient care within 3 days of being administered an interview version of the anorectal portion of the ISNCSCI (I-A-ISNCSCI). Agreement between the anorectal portion of the S-ISNCSCI (S-A-ISNCSCI) and the I-A-ISNCSCI was evaluated. RESULTS: Forty of forty-five enrolled participants completed the assessments. Agreement between the I-A-ISNCSCI and S-A-ISNCSCI was substantial for anorectal sensation to light touch (k = 0.71, 95% CI 0.52-0.90, N = 36), pin prick (k = 0.68, 95% CI 0.48-0.87, N = 38), deep anal pressure (k = 0.77, 95% CI 0.53-1.00, N = 37), and completeness of injury based on combined sacral sensory criteria (k = 0.72, 95% CI 0.47-0.97, N = 40); and fair for voluntary anal contraction (k = 0.29, 95% CI -0.01 to 0.59, N = 36). Responses of "I don't know" were excluded from agreement analyses. CONCLUSIONS: This pilot study was a first step in developing interview based tools such as the I-A-ISNCSCI in an AIR setting providing convenient access to individuals with SCI and their direct feedback. The study design introduces potential recall bias and may not match true clinical situations such as remote follow-up of neurological changes for chronic patients. The use of interview based tools for assessing individuals with SCI remains worthy of further study.


Assuntos
Canal Anal/fisiopatologia , Psicometria/instrumentação , Psicometria/normas , Reto/fisiopatologia , Transtornos de Sensação/diagnóstico , Traumatismos da Medula Espinal/diagnóstico , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Canal Anal/inervação , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estudos Prospectivos , Psicometria/métodos , Reto/inervação , Transtornos de Sensação/etiologia , Transtornos de Sensação/fisiopatologia , Método Simples-Cego , Traumatismos da Medula Espinal/complicações , Traumatismos da Medula Espinal/fisiopatologia , Adulto Jovem
5.
Brain Inj ; 34(2): 187-194, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-31640430

RESUMO

Objective: To examine the factors associated with the remission of insomnia by examining a sample of individuals who had insomnia within the first two years after traumatic brain injury (TBI) and assessing their status at a secondary time point.Design and Methods: Secondary data analysis from a multicenter longitudinal cohort study. A sample of 40 individuals meeting inclusion criteria completed a number of self-report scales measuring sleep/wake characteristics (Pittsburgh Sleep Quality Index, Epworth Sleepiness Scale, Insomnia Severity Index, Sleep Hygiene Index), fatigue and depression (Multidimensional Assessment of Fatigue, Patient Health Questionnaire-9), and community participation (Participation Assessment with Recombined Tools-Objective). One cohort was followed at 1 and 2 years post-injury (n = 19) while a second cohort was followed at 2 and 5 years post-injury (n = 21).Results: Remission of insomnia was noted in 60% of the sample. Those with persistent insomnia had significantly higher levels of fatigue and depression at their final follow-up and poorer sleep hygiene across both follow-up time-points. A trend toward reduced community participation among those with persistent insomnia was also found.Conclusion: Individuals with persistent post-TBI insomnia had poorer psychosocial outcomes. The chronicity of post-TBI insomnia may be associated with sleep-related behaviors that serve as perpetuating factors.


Assuntos
Lesões Encefálicas Traumáticas , Distúrbios do Início e da Manutenção do Sono , Transtornos do Sono-Vigília , Lesões Encefálicas Traumáticas/complicações , Fadiga , Humanos , Estudos Longitudinais , Autorrelato , Distúrbios do Início e da Manutenção do Sono/etiologia
6.
Arch Phys Med Rehabil ; 100(12): 2260-2266, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-31351077

RESUMO

OBJECTIVE: To investigate the association between insurance provider and reported assistive technology (AT) use to access computers and electronic devices 1 year after sustaining tetraplegia. DESIGN: Multicenter cross-sectional study. SETTING: Participants enrolled in the Spinal Cord Injury Model Systems (SCIMS) National Database. INTERVENTIONS: Not applicable. PARTICIPANTS: Men and women with tetraplegia (N=498) enrolled in the SCIMS National Database were included in the analysis. MAIN OUTCOME MEASURES: The primary study outcome was the use of AT when operating a computer or other mobile electronic device. The primary predictor was the subject's principal health insurance provider, which was grouped into the 3 categories: government (Medicare, Medicaid, and other government), private (private insurance, private funds, and other), and workers' compensation. RESULTS: Overall, 34.7% of participants reported using AT to access computers and electronic devices. Results of logistic regression analysis revealed sex, injury level, injury completeness, self-perceived health status, and 12-month history of pressure ulcer were all significantly associated with AT use. After adjusting for these factors, participants with workers' compensation were more likely to report AT use than individuals with either government or private insurance. CONCLUSIONS: Despite significant technological advances, AT is not readily available to the people who might benefit most from its use. Findings from the present study are the first to shed light on AT funding sources and reveal that individuals with workers' compensation are more likely use AT than individuals with either government or private insurance. Additional work focused on AT use and functional outcomes is needed to assess the effect of barriers to use. Collectively, this work may inform insurers of the importance of having AT available for this unique population to potentially improve quality of life and participation.


Assuntos
Computadores/estatística & dados numéricos , Seguro Saúde/estatística & dados numéricos , Quadriplegia/reabilitação , Tecnologia Assistiva/estatística & dados numéricos , Traumatismos da Medula Espinal/reabilitação , Adolescente , Adulto , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , Estudos Transversais , Bases de Dados Factuais , Feminino , Humanos , Seguro Saúde/classificação , Masculino , Assistência Médica/estatística & dados numéricos , Pessoa de Meia-Idade , Quadriplegia/etiologia , Qualidade de Vida , Fatores Sexuais , Traumatismos da Medula Espinal/complicações , Índices de Gravidade do Trauma , Estados Unidos , Indenização aos Trabalhadores/estatística & dados numéricos , Adulto Jovem
7.
J Head Trauma Rehabil ; 34(5): 289-297, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31498228

RESUMO

OBJECTIVE: To develop a traumatic brain injury (TBI)-specific, item response theory (IRT)-calibrated Fatigue item bank, short form, and computer adaptive test (CAT) as part of the Traumatic Brain Injury-Quality of Life (TBI-QOL) measurement system. SETTING: Five TBI Model Systems rehabilitation centers in the US PARTICIPANTS:: Adults with complicated mild, moderate, or severe TBI confirmed by medical record review. DESIGN: Cross-sectional field testing via phone or in-person interview. MAIN MEASURES: TBI-QOL Fatigue item bank, short form, and CAT. RESULTS: A total of 590 adults with TBI completed 95 preliminary fatigue items, including 86 items from the Patient-Reported Outcomes Measurement Information System (PROMIS) and 9 items from the Quality of Life in Neurological Disorders (Neuro-QOL) system. Through 4 iterations of factor analysis, 22 items were deleted for reasons such as local item dependence, misfit, and low item-total correlations. Graded response model IRT analyses were conducted on the 73-item set, and Stocking-Lord equating was used to transform the item parameters to the PROMIS (general population) metric. A short form and CAT, which demonstrate similar reliability to the full item bank, were developed. Test-retest reliability of the CAT was established in an independent sample (Pearson's r and intraclass correlation coefficient = 0.82 [95% confidence interval: 0.72-0.88]). CONCLUSIONS: The TBI-QOL Fatigue item bank, short form, and CAT provide rehabilitation researchers and clinicians with TBI-optimized tools for assessment of the patient-reported experience and impact of fatigue on individuals with TBI.


Assuntos
Lesões Encefálicas Traumáticas/fisiopatologia , Fadiga/fisiopatologia , Medidas de Resultados Relatados pelo Paciente , Inquéritos e Questionários , Adulto , Estudos Transversais , Análise Fatorial , Fadiga/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Psicometria , Reprodutibilidade dos Testes
8.
Neuropsychol Rehabil ; 27(7): 1002-1018, 2017 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-27733079

RESUMO

Fatigue is one of the most commonly reported sequelae after traumatic brain injury (TBI). This study evaluated the impact of a graduated physical activity programme on fatigue after TBI. Using a prospective randomised single-blind crossover design, 123 individuals with TBI, over the age of 18, were enrolled. Interventions included a home-based walking programme utilising a pedometer to track daily number of steps at increasing increments accompanied by tapered coaching calls over a 12-week period. Nutritional counselling with the same schedule of coaching calls served as the control condition. Main outcome measures included: the Global Fatigue Index (GFI), the Barrow Neurological Institute (BNI) Fatigue Scale Overall Severity Index Score, and the Multidimensional Fatigue Inventory (MFI). Step counts improved over time regardless of group assignment. The walking intervention led to a decrease in GFI, BNI Total, and MFI General scores. Participants reported less fatigue at the end of the active part of the intervention (24 weeks) and after a wash out period (36 weeks) as measured by the BNI Overall. The study suggests that walking can be used as an efficient and cost-effective tool to improve fatigue in persons who have sustained a TBI.


Assuntos
Lesões Encefálicas Traumáticas/reabilitação , Terapia por Exercício/métodos , Fadiga/reabilitação , Avaliação de Resultados em Cuidados de Saúde , Caminhada/fisiologia , Adulto , Lesões Encefálicas Traumáticas/complicações , Estudos Cross-Over , Fadiga/etiologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estudos Prospectivos , Método Simples-Cego
9.
Neuropsychol Rehabil ; 27(7): 1019-1030, 2017 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-27633955

RESUMO

Post-traumatic brain injury fatigue (PTBIF) is a major problem in the years after traumatic brain injury (TBI), yet little is known about its persistence and resolution. The objective of the study was to identify factors related to PTBIF remission and resolution. TBI Model System registrants at five centres participated in interviews at either one and two years post-injury (Y1-2 Cohort), or two and five years post-injury (Y2-5 Cohort). Characteristics of participants with PTBIF remission were compared to those with PTBIF persistence. Variables studied included the presence of and changes in disability, sleep dysfunction, mood, and community participation. The Functional Independence Measure did not differ significantly between groups or over time. In the Y1-2 Cohort the Fatigue Resolved group scored significantly better on the Disability Rating Scale and Pittsburgh Sleep Quality Index. In the Y2-5 Cohort the Fatigue Resolved group scored significantly higher on a measure of community participation. It was concluded that fewer than half of the sample in each cohort experienced a remission of PTBIF between time points. Persistence of PTBIF 1-2 years post-injury is associated with disability, sleep disturbance, and depression while persistence of fatigue beyond 2 years post-injury appears to be related to participation level, underscoring the potential impact of effective surveillance, assessment, and treatment of this condition in optimising life after TBI. Differences in fatigue progression may point to the presence of different types of PTBIF.


Assuntos
Lesões Encefálicas Traumáticas/reabilitação , Fadiga/reabilitação , Modelos Neurológicos , Reabilitação Neurológica/métodos , Adulto , Lesões Encefálicas Traumáticas/complicações , Participação da Comunidade , Depressão/etiologia , Fadiga/etiologia , Feminino , Seguimentos , Humanos , Masculino , Pessoa de Meia-Idade , Indução de Remissão , Transtornos do Sono-Vigília/etiologia , Adulto Jovem
10.
J Head Trauma Rehabil ; 31(3): 167-79, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-25699619

RESUMO

OBJECTIVE: This study investigated the influence of race, gender, functional ability, and an array of preinjury, injury-related, and sociodemographic variables on life satisfaction trajectories over 10 years following moderate to severe traumatic brain injury (TBI). SETTING/PARTICIPANTS: A sample of 3157 individuals with TBI from the TBI Model Systems database was included in this study. DESIGN: Hierarchical linear modeling (HLM) analyses were conducted to examine the trajectories of life satisfaction. MAIN MEASURES: The Functional Independence Measure, Glasgow Coma Scale, and the Satisfaction With Life Scale were utilized. RESULTS: Initial models suggested that life satisfaction trajectories increased over the 10-year period and Asian/Pacific Islander participants experienced an increase in life satisfaction over time. In a comprehensive model, time was no longer a significant predictor of increased life satisfaction. Black race, however, was associated with lower life satisfaction, and significant interactions revealed that black participants' life satisfaction trajectory decreased over time while white participants' trajectory increased over the same time period. Life satisfaction trajectories did not significantly differ by gender, and greater motor and cognitive functioning were associated with increasingly positive life satisfaction trajectories over the 10 years. CONCLUSION: Individuals with more functional impairments are at risk for decreases in life satisfaction over time. Further research is needed to identify the mechanisms and factors that contribute to the lower levels of life satisfaction observed among black individuals post-TBI. This work is needed to determine strategic ways to promote optimal adjustment for these individuals.


Assuntos
Lesões Encefálicas/fisiopatologia , Satisfação Pessoal , Atividades Cotidianas , Adulto , Feminino , Escala de Coma de Glasgow , Humanos , Modelos Lineares , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Qualidade de Vida , Grupos Raciais , Adulto Jovem
11.
Arch Phys Med Rehabil ; 96(12): 2128-36, 2015 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-26278493

RESUMO

OBJECTIVE: To describe the 10-year patterns of employment for individuals of working age discharged from a Traumatic Brain Injury Model Systems (TBIMS) center between 1989 and 2009. DESIGN: Secondary data analysis. SETTING: Inpatient rehabilitation centers. PARTICIPANTS: Patients aged 16 to 55 years (N=3618) who were not retired at injury, received inpatient rehabilitation at a TBIMS center, were discharged alive between 1989 and 2009, and had at least 3 completed follow-up interviews at postinjury years 1, 2, 5, and 10. INTERVENTIONS: Not applicable. MAIN OUTCOMES MEASURE: Employment. RESULTS: Patterns of employment were generated using a generalized linear mixed model, where these patterns were transformed into temporal trajectories of probability of employment via random effects modeling. Covariates demonstrating significant relations to growth parameters that govern the trajectory patterns were similar to those noted in previous cross-sectional research and included age, sex, race/ethnicity, education, preinjury substance misuse, preinjury vocational status, and days of posttraumatic amnesia. The calendar year in which the injury occurred also greatly influenced trajectories. An interactive tool was developed to provide visualization of all postemployment trajectories, with many showing decreasing probabilities of employment between 5 and 10 years postinjury. CONCLUSIONS: These results highlight that postinjury employment after moderate to severe traumatic brain injury (TBI) is a dynamic process, with varied patterns of employment for individuals with specific characteristics. The overall decline in trajectories of probability of employment between 5 and 10 years postinjury suggests that moderate to severe TBI may have unfavorable chronic effects and that employment outcome is highly influenced by national labor market forces. Additional research targeting the underlying drivers of the decline between 5 and 10 years postinjury is recommended, as are interventions that target influencing factors.


Assuntos
Lesões Encefálicas/reabilitação , Pessoas com Deficiência/estatística & dados numéricos , Emprego/estatística & dados numéricos , Adolescente , Adulto , Fatores Etários , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Recuperação de Função Fisiológica , Centros de Reabilitação , Pesquisa de Reabilitação , Fatores Sexuais , Fatores Socioeconômicos , Índices de Gravidade do Trauma , Adulto Jovem
12.
J Head Trauma Rehabil ; 30(4): 231-40, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-25931183

RESUMO

BACKGROUND: If and how much dural penetration influences long-term outcome after traumatic brain injury (TBI) is understudied, especially within the civilian population. OBJECTIVES: Using the large TBI Model Systems cohort, this study assessed and compared penetrating TBI (PTBI) and closed TBI with respect to global outcome and late seizures 2 years after injury. METHODS: After performing unadjusted PTBI versus closed TBI comparisons, multivariate regression models were built and analyzed for both outcomes by including the following additional predictors: length of unconsciousness, posttraumatic amnesia duration, hospital length of stay, age, gender, race, marital status, education level, problem substance abuse, and preinjury employment status. RESULTS: The collapsed Glasgow Outcome Scale model (n = 6111) showed significant secondary effects of PTBI with employment status. When employed before injury, individuals with PTBI were 2.62 times more likely (95% confidence interval, 1.92-3.57) to have a lower Glasgow Outcome Scale category. The final model for late seizures (n = 6737) showed a significant main effect for PTBI. Adjusting for other predictors, individuals with PTBI were 2.78 times more likely (95% confidence interval, 1.93-3.99) than those with closed TBI to be rehospitalized for a seizure. CONCLUSION: This study empirically demonstrates that penetrating injury mechanism has important prognostic implications.


Assuntos
Lesões Encefálicas/complicações , Traumatismos Cranianos Fechados/complicações , Traumatismos Cranianos Penetrantes/complicações , Convulsões/epidemiologia , Adulto , Estudos de Coortes , Feminino , Escala de Resultado de Glasgow , Hospitalização , Humanos , Masculino , Pessoa de Meia-Idade , Avaliação de Resultados em Cuidados de Saúde , Fatores Socioeconômicos , Estados Unidos , Adulto Jovem
14.
Arch Phys Med Rehabil ; 95(4): 633-41, 2014 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-24211496

RESUMO

OBJECTIVE: To identify baseline participant variables in the domains of demographics, medical/psychosocial history, injury characteristics, and postinjury functional status associated with longitudinal follow-up completeness in persons with traumatic brain injury (TBI) using the TBI Model Systems (TBIMS) National Database (NDB). DESIGN: Exhaustive chi-square automatic interaction detection was used to identify factors that classified participants according to level of follow-up completeness. SETTING: Retrospective analysis of a multi-center longitudinal database. PARTICIPANTS: Individuals (N=8249) enrolled in the TBIMS NDB between 1989 and 2009 who were eligible for at least the first (year 1) follow-up up to the fifth (year 15) follow-up. INTERVENTIONS: None. MAIN OUTCOME MEASURES: Follow-up completeness as defined by 6 different longitudinal response patterns (LRPs): completing all follow-ups, wave nonresponse, dropping out, completing no follow-ups without formally withdrawing, formally withdrawing before completing any follow-ups, and formally withdrawing after completing some follow-ups. RESULTS: Completing all follow-ups was associated with higher levels of education, living with parents or others, and having acute care payer data entered in the NDB. Subgroups more vulnerable to loss to follow-up (LTFU) included those with less education, racial/ethnic minority backgrounds, those with better motor functioning on rehabilitation discharge, and those for whom baseline data on education, employment, and acute care payer were not collected. No subgroups were found to be more likely to have the LRPs of dropping out or formal withdrawal. CONCLUSIONS: These data identify subgroups in which retention strategies beyond those most commonly used might reduce LTFU in longitudinal studies of persons with TBI, such as the TBIMS, and suggest future investigations into factors associated with missing baseline data.


Assuntos
Lesões Encefálicas/epidemiologia , Coleta de Dados/estatística & dados numéricos , Bases de Dados Factuais , Perda de Seguimento , Árvores de Decisões , Avaliação da Deficiência , Escolaridade , Humanos , Estudos Longitudinais , Grupos Minoritários/estatística & dados numéricos , National Institutes of Health (U.S.) , Pacientes Desistentes do Tratamento/estatística & dados numéricos , Características de Residência , Estudos Retrospectivos , Estados Unidos
15.
Arch Phys Med Rehabil ; 95(12): 2288-95, 2014 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-25128715

RESUMO

OBJECTIVE: To determine whether racial/ethnic disparities occur in depression, anxiety, and satisfaction with life at 1 and 2 years postdischarge. DESIGN: A prospective, longitudinal, multicenter study of individuals with traumatic brain injury (TBI) participating in the National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems project. Medical, demographic, and outcome data were obtained from the Model Systems database at baseline, as well as 1 and 2 years postdischarge. SETTING: A total of 16 TBI Model Systems hospitals in the United States. PARTICIPANTS: Individuals with moderate or severe TBI (N=1662) aged 16 years or older consecutively discharged between January 2008 and June 2011 from acute care and comprehensive inpatient rehabilitation at a Model Systems hospital. INTERVENTION: Not applicable. MAIN OUTCOME MEASURES: The Patient Health Questionnaire-9, Generalized Anxiety Disorder 7-item scale, and Satisfaction with Life Scale assessed depression, anxiety, and satisfaction with life at 1 and 2-year follow-ups. RESULTS: After controlling for all possible covariates, hierarchal linear models found that black individuals had elevated depression across the 2 time points relative to white individuals. Asian/Pacific Islanders' depression increased over time in comparison to the decreasing depression in those of Hispanic origin, which was a greater decrease than in white individuals. Black individuals had lower life satisfaction than did white and Hispanic individuals, but only marginally greater anxiety over time than did white individuals and similar levels of anxiety as did Asian/Pacific Islanders and Hispanic individuals. CONCLUSIONS: Mental health trajectories of individuals with TBI differed as a function of race/ethnicity across the first 2 years postdischarge, providing the first longitudinal evidence of racial/ethnic disparities in mental health after TBI during this time period. Further research will be required to understand the complex factors underlying these differences.


Assuntos
Ansiedade/etnologia , Lesões Encefálicas/psicologia , Depressão/etnologia , Disparidades nos Níveis de Saúde , Saúde Mental/etnologia , Satisfação Pessoal , Adulto , Negro ou Afro-Americano/psicologia , Negro ou Afro-Americano/estatística & dados numéricos , Asiático/psicologia , Asiático/estatística & dados numéricos , Lesões Encefálicas/etnologia , Feminino , Hispânico ou Latino/psicologia , Hispânico ou Latino/estatística & dados numéricos , Humanos , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Havaiano Nativo ou Outro Ilhéu do Pacífico/psicologia , Havaiano Nativo ou Outro Ilhéu do Pacífico/estatística & dados numéricos , Estudos Prospectivos , Fatores de Tempo , Estados Unidos/epidemiologia , População Branca/psicologia , População Branca/estatística & dados numéricos , Adulto Jovem
16.
JMIR Res Protoc ; 13: e57699, 2024 Jun 28.
Artigo em Inglês | MEDLINE | ID: mdl-38941145

RESUMO

BACKGROUND: The lack of regular physical activity (PA) in individuals with spinal cord injury (SCI) in the United States is an ongoing health crisis. Regular PA and exercise-based interventions have been linked with improved outcomes and healthier lifestyles among those with SCI. Providing people with an accurate estimate of their everyday PA level can promote PA. Furthermore, PA tracking can be combined with mobile health technology such as smartphones and smartwatches to provide a just-in-time adaptive intervention (JITAI) for individuals with SCI as they go about everyday life. A JITAI can prompt an individual to set a PA goal or provide feedback about their PA levels. OBJECTIVE: The primary aim of this study is to investigate whether minutes of moderate-intensity PA among individuals with SCI can be increased by integrating a JITAI with a web-based PA intervention (WI) program. The WI program is a 14-week web-based PA program widely recommended for individuals with disabilities. A secondary aim is to investigate the benefit of a JITAI on proximal PA, defined as minutes of moderate-intensity PA within 120 minutes of a PA feedback prompt. METHODS: Individuals with SCI (N=196) will be randomized to a WI arm or a WI+JITAI arm. Within the WI+JITAI arm, a microrandomized trial will be used to randomize participants several times a day to different tailored feedback and PA recommendations. Participants will take part in the 24-week study from their home environment in the community. The study has three phases: (1) baseline, (2) WI program with or without JITAI, and (3) PA sustainability. Participants will provide survey-based information at the initial meeting and at the end of weeks 2, 8, 16, and 24. Participants will be asked to wear a smartwatch every day for ≥12 hours for the duration of the study. RESULTS: Recruitment and enrollment began in May 2023. Data analysis is expected to be completed within 6 months of finishing participant data collection. CONCLUSIONS: The JITAI has the potential to achieve long-term PA performance by delivering tailored, just-in-time feedback based on the person's actual PA behavior rather than a generic PA recommendation. New insights from this study may guide intervention designers to develop engaging PA interventions for individuals with disability. TRIAL REGISTRATION: ClinicalTrials.gov NCT05317832; https://clinicaltrials.gov/study/NCT05317832. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/57699.


Assuntos
Exercício Físico , Traumatismos da Medula Espinal , Telemedicina , Humanos , Traumatismos da Medula Espinal/reabilitação , Traumatismos da Medula Espinal/psicologia , Traumatismos da Medula Espinal/terapia , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Terapia por Exercício/métodos , Ensaios Clínicos Controlados Aleatórios como Assunto
17.
J Head Trauma Rehabil ; 28(4): 337-9, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-23835854

RESUMO

The Participation Assessment with Recombined Tools-Objective (PART-O) is an outcome scale measuring participation in the community. The PART-O consolidates questions from 3 commonly used instruments, and measures 3 domains of community participation postrehabilitation: Productivity, Out and About, and Social Relations. Information on administration and psychometrics are provided.


Assuntos
Atividades Cotidianas , Lesões Encefálicas/reabilitação , Avaliação da Deficiência , Avaliação de Resultados em Cuidados de Saúde , Psicometria/instrumentação , Lesões Encefálicas/diagnóstico , Participação da Comunidade , Feminino , Humanos , Escala de Gravidade do Ferimento , Relações Interpessoais , Masculino , Ajustamento Social , Inquéritos e Questionários
18.
Brain Inj ; 27(5): 578-86, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-23472705

RESUMO

PRIMARY OBJECTIVE: To better characterize, describe and highlight issues that individuals with TBI and active LPTS may face in their daily lives. DESIGN: Prospective multi-centre mixed method qualitative and quantitative interview. PARTICIPANTS: Twenty-five individuals, 5-13 years post-injury, who had reported having LPTS and TBI. MEASURES: Disability Rating Scale (DRS); Supervision Rating Scale (SRS); Glasgow Outcome Scale-Extended (GOS-E); Perceived Stress Scale (PSS); Craig Handicap Assessment Reporting Technique-Short Form (CHART-SF) sub-scales: Physical Independence, Cognitive Independence, Mobility, Occupation, Social Integration; and Craig Hospital Inventory of Environmental Factors (CHIEF); and qualitative interview questions pertaining to management of the seizure disorder and its effect on the individual's health, function, community integration and participation. RESULTS: Data are presented regarding seizure activity and management; return to driving post-seizure; coping and participation; and standardized outcome measures. CONCLUSIONS: Individuals with TBI and LPTS are at a double-barrelled disadvantage regarding ongoing physical, cognitive, psychosocial and reintegration issues following brain injury and epilepsy. Clearer clinical guidelines and treatment strategies need to be developed to help ameliorate these ongoing issues. Additional research is needed to identify what the rehabilitation community can do to continue to facilitate people living safely and independently.


Assuntos
Atividades Cotidianas/psicologia , Condução de Veículo/psicologia , Lesões Encefálicas/psicologia , Integração Comunitária/psicologia , Epilepsia Pós-Traumática/psicologia , Adulto , Lesões Encefálicas/fisiopatologia , Lesões Encefálicas/reabilitação , Avaliação da Deficiência , Epilepsia Pós-Traumática/fisiopatologia , Epilepsia Pós-Traumática/reabilitação , Feminino , Seguimentos , Escala de Resultado de Glasgow , Humanos , Masculino , Pessoa de Meia-Idade , Estudos Prospectivos , Qualidade de Vida , Recuperação de Função Fisiológica , Inquéritos e Questionários , Estados Unidos
19.
Top Spinal Cord Inj Rehabil ; 19(1): 25-30, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-23678282

RESUMO

A spinal cord injury (SCI) not only causes paralysis, but also has long-term impact on physical and mental health. There are between 236,000 to 327,000 individuals living with the consequences of SCI in the United States, and the economic burden on the individuals sustaining the injury, their support network, and society as a whole is significant. The consequences of SCI require that health care professionals begin thinking about primary prevention. Efforts are often focused on care and cure, but evidence-based prevention should have a greater role. Primary prevention efforts can offer significant cost benefits, and efforts to change behavior and improve safety can and should be emphasized. Primary prevention can be applied to various etiologies of injury, including motor vehicle crashes, sports injuries, and firearm misuse, with a clear goal of eliminating unnecessary injury and its life-changing impact.

20.
Front Rehabil Sci ; 4: 1173558, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37255738

RESUMO

The rapidly evolving COVID-19 public health emergency has disrupted and challenged traditional healthcare, rehabilitation services, and treatment delivery worldwide. This perspective paper aimed to unite experiences and perspectives from an international group of rehabilitation providers while reflecting on the lessons learned from the challenges and opportunities raised during the COVID-19 pandemic. We discuss the global appreciation for rehabilitation services and changes in access to healthcare, including virtual, home-based rehabilitation, and long-term care rehabilitation. We illustrate lessons learned by highlighting successful rehabilitation approaches from the US, Belgium, and Japan.

SELEÇÃO DE REFERÊNCIAS
DETALHE DA PESQUISA