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Biol Blood Marrow Transplant ; 25(7): 1416-1423, 2019 07.
Artigo em Inglês | MEDLINE | ID: mdl-30796997

RESUMO

Patient, caregiver, and family education and support was 1 of 6 key areas of interest identified by the National Marrow Donor Program/Be The Match 2-year project to prioritize patient-centered outcomes research (PCOR) goals for the blood and marrow transplantation (BMT) community. PCOR focuses on research to help patients and their caregivers make informed decisions about health care. Therefore, each area of interest was assigned to a working group with broad representation, including patients, caregivers, and clinicians. Each working group was charged with identifying gaps in knowledge and making priority recommendations for critical research to fill those gaps. The report from this working group presents a conceptual framework to address gaps in knowledge regarding patient and caregiver education in BMT and recommendations for priority research questions on this topic.


Assuntos
Transplante de Medula Óssea , Medula Óssea , Cuidadores , Família , Educação de Pacientes como Assunto , Avaliação de Resultados da Assistência ao Paciente , Feminino , Humanos , Masculino
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