[Towards informed choice: design and results of projects on (cancer) screening funded by the Federal Ministry of Health]. / Auf dem Weg zur informierten Entscheidungsfindung : Design und Ergebnisse der vom BMG geförderten Forschungsprojekte zur (Krebs-)Früherkennung.

There has been a gradual paradigm shift in the area of screening and early detection of diseases. For many years, the sole focus of public health policies was increasing the uptake rates in screening programs. However, today there is an increasing awareness of the importance of informed decision making -- particularly in the area of screening. The provision of high-quality, evidence-based, and comprehensive information on benefit and harm is an important approach in achieving this objective. The current paper presents a project that was funded by the Federal Ministry of Health. It examines whether existing information material is appropriate to support informed decision making. In the first phase of the project, different screening procedures were assessed systematically and compared using several indicators. Based on the results of an expert workshop, the subsequent research activities focused on colorectal cancer (CRC) screening as one example. Phase II included the systematic search and assessment of print media, e.g., flyers and brochures, while phase III applied the same methods to websites on CRC screening. The information material was analyzed with a mix of methods, involving both experts and users. Finally, the results were presented and discussed with the authors/providers of the information material. Based on the results of this project, the Federal Center for Health Education developed a module on CRC screening for an Internet platform on women's health that is currently being evaluated. In sum, this research project contributes to the development of evidence-based and balanced information as well as informed decision making.

[Information on early detection of colorectal cancer: development of an information module for the women's health portal of the Federal Center for Health Education (BZgA)]. / Informationen zur Darmkrebsfrüherkennung : Aufbau eines Themenmoduls für das Frauengesundheitsportal der Bundeszentrale für gesundheitliche Aufklärung (BZgA).

Colorectal cancer is the second most prevalent cancer in Germany. The governmental program for early detection of colorectal cancer intends to increase the chances of recovery by identifying colorectal cancer in an early, more treatable stage. Citizens need quality-assured, balanced, and target-group-specific information to be able to make an informed decision. On the basis of the current state of research, of extensive studies, and of expert and user interviews, the Federal Center for Health Education (BZgA) developed an information module on"early detection of colorectal cancer" for the women's health portal of the BZgA. The information module contains information on colorectal cancer, on the governmental program for early detection, as well as on the program's benefits and risks. The information offered is intended to be up to date and is approved by experts. The BZgA approves the quality of this information using methods of process and outcome evaluation.

[Leaflets and websites on colorectal cancer screening and their quality assessment from experts' views]. / Printmedien- und Internetangebote mit Informationen zur Darmkrebsfrüherkennung und ihre kriteriengestützte Bewertung aus Expertensicht.

In Germany, individuals who have statutory health insurance have free access to colorectal cancer (CRC) screening tests, and can choose between a fecal occult blood test and a screening colonoscopy. Evidence-based health information may support informed choices regarding whether or not to undergo CRC screening. The aim of this study was to assess whether the available German information materials on CRC screening meet evidence-based health information standards. A systematic search was made for print media and websites on CRC screening addressed to German people with average CRC risk (search period for print media August 2010, for websites January-March 2012). The identified information was assessed with a newly developed comprehensive list of criteria. In all, 41 print media, including 28 flyers and 13 brochures, and 36 websites were identified and assessed. These materials reported more often the benefits than the risks of CRC screening, and quantified presentations of benefits and risks were less frequently given. Most of the materials called for participation and did not indicate the option to decide whether or not to attend CRC screening. This bias in favor of screening was increased by fear-provoking or downplayed wording. Most materials included false and misleading information. The requirements for evidence-based patient information were currently not met by most of the leaflets and websites in Germany. Feedback was given to the producers of the leaflets including a discussion of the findings. The results may be used to revise existing leaflets or to develop new health information on CRC screening.

[Mammography and cervical cancer screening--a systematic review about women's knowledge, attitudes and participation in Germany]. / Früherkennung von Brust- und Gebärmutterhalskrebs--ein systematischer Review zu Wissen, Einstellungen und Inanspruchnahmeverhalten der Frauen in Deutschland.

INTRODUCTION: In the German statutory health insurance system, women can take part in free mammography and cervical cancer screening. The aim of this study is to investigate women's knowledge of, attitudes to and participation in these screening measures as well as the determinants of eligible women living in Germany. METHODS: We conducted a systematic literature search, supplemented by an Internet search, of Medline and other German and English databases for the period 2000-2010. Data extraction and quality assessment were carried out by 2 independent reviewers. Data synthesis was qualitative. RESULTS: We identified 12 studies on mammography and cervical cancer screening. Most women were found to be aware of the option of free screening. The majority of women were able to name risk factors for breast cancer correctly. This was not the case in cervical cancer, where women said they were insufficiently informed. To a significant extent, they were also uninformed about the benefits of screening and incidence of false-positive and false-negative test results in mammography. In 2007, 54% of the invited women took part in the organised mammography screening program with large variations in participation rate among the Federal states. It appears that better educated women or those with a private health insurance participate in the programme less frequently. However, one third of the non-participants attend a mammography outside the screening program. Data for participation in cervical cancer screening are inconsistent. There is some evidence that younger women, married women and those with higher education are more likely to participate in the screening. CONCLUSIONS: The interviewees' substantial lack of knowledge underscores the need for optimising communication on the aims, benefits and risks of screening tests to enable women to make an informed decision. It is desirable to continuously monitor women's knowledge about and participation in screening and determinants thereof with a view to laying the foundations for target group-specific information strategies.

[Memorandum - research funding of prevention]. / Memorandum - Forschungsförderung Prävention.

The memorandum of the research funding of prevention has been devised within the framework of the Prevention Research Funding Programme of the Federal Ministry of Education and Research. It consists not only of the obtained findings of the research-practice co-operation but also of recommendations for the implementation of prospective, innovational, effective, practice-oriented and sustainable research. The respective knowledge has been acquired from quantitative surveys on the experiences of scientists and practice partners within the prevention research funding project as well as from extensive qualitative methods of structured group evaluation. A participatory co-operation between research and practice based on mutual respect, trust and recognition is seen as mandatory for the further development of both prevention and health promotion research. Research and practice partners are required to engage in an ab initio collaboration starting from the conception phase, whereby it is advisable to encourage and fortify the communication between research, practice and funding partners by systematic surveillance in form of a meta-project. In addition, the inclusion of the target population from the outset and on a collaborative basis is considered as beneficial in order to ensure the practical application of the research findings. Furthermore, innovatory research designs which are able to provide a framework for internal flexibility, continuous re-assessment and adjustment are fundamental for the implementation of practice-oriented research. Moreover, a dynamic co-operation between different groups of interest not only depends on sharing responsibility but also on sufficient funding for both research and practice, which is particularly important for the transfer and communication of the attained findings. With regard to the evaluation of both effectiveness and sustainability of interventions, a research funding project is required which makes long-term results possible through the utilization of regulated monitoring and guarantees quality and continuous effectiveness. Furthermore, in order to stimulate progress within the basic theories of prevention and health promotion, it is also essential for a funding project to focus on elementary concepts. Additionally, for the efficient and sustainable development of health within a population it is advisable to apply both self-contained research and the involvement of primary prevention and health promotion to research projects concerning health, social affairs, education, work and environment.

[Memorandum prevention research - research areas and methods]. / Memorandum zur Präventionsforschung - Themenfelder und Methoden (Langfassung).

From 2004 to 2012, the German Ministry of Education and Research (BMBF) established its first funding programme for the promotion of prevention research. 60 projects on primary prevention and health promotion and the meta-project entitled "Cooperation for Sustainable Prevention Research" (KNP) received BMBF grants under this programme during this period. The experience and knowledge gained and recommendations arising from the research funded under this programme are compiled in memorandum format. The "Memorandum on Prevention Research - Research Areas and Methods" highlights 5 research areas that are considered to be especially relevant from the perspective of the involved scientists and practice partners.The promotion of structural development and sustainability enhancement in disease prevention and health promotion are central areas that should branch out from existing nuclei of crystallization. Improving the health competence of the population and of specific subpopulations is another major area. Research in these areas should contribute to the development of theoretical concepts and to the empirical testing of these concepts. The transfer of knowledge for effective use of developed disease prevention and health promotion programmes and measures is still a scarcely researched area. Among other things, studies of the transfer of programmes from one context to another, analyses of the coop-eration between politics and science, and the continued theoretical and conceptual development of transfer research are needed. Long-term data on the effects of intervention studies are also needed for proper evaluation of sustainability. The latter dem-onstrates the importance of method development in disease prevention and health promotion research as an area that should receive separate funding and support. This research should include, in particular, studies of the efficacy of complex interventions, health economic analyses, and participative health research.

[Monitoring and quality assurance of prevention and health promotion at the federal level]. / Monitoring und Qualitätssicherung von Prävention und Gesundheitsförderung auf Bundesebene.

Monitoring and quality assurance are gaining in importance for the identification of needs and the effectiveness of prevention and health promotion activities. This paper presents examples of activities of monitoring and quality assurance at the federal level, carried out by the Federal Centre for Health Education and the Robert Koch Institute. Examples include the prevention issues "HIV/AIDS", "nutrition and physical activity" and "child health". They illustrate the roles of epidemiological surveillance, health monitoring, evaluation, and intervention reporting. The Robert Koch Institute and the Federal Centre for Health Education provide complementary information on health and intervention reporting at the federal level. With their reports, they provide essential information for health policy to formulate, to implement and to evaluate evidence-based national health goals and action plans.

[Changes in knowledge, attitudes, and smoking behavior among young people in Germany. Results of repeated, representative surveys by the BZgA]. / Veränderungen von Wissen, Einstellungen und Rauchverhalten bei Jugendlichen in Deutschland. Ergebnisse wiederholter Repräsentativbefragungen der Bundeszentrale für gesundheitliche Aufklärung.

Following an increase in tobacco consumption among 12 to 17 year olds between 1993 and 1997, a policy mix comprising various structural and behavioral prevention measures was implemented in Germany. One element of this policy mix is the "rauchfrei" ("smoke-free") youth campaign of the BZgA (Federal Centre for Health Education), a combination of media that reaches a large number of youth, personal communication, and setting-based interventions. The aim is to prevent young people from starting to smoke and to promote the cessation of smoking at an early stage. Based on a multistage intervention model, wide coverage of the measures should be achieved among young people, as well as changes in knowledge, attitudes, social norms, and behavioral intentions. Based on the intervention model, repeated, representative cross-sectional surveys were conducted to examine the development of these indicators and of tobacco consumption. Five studies were conducted during the period from 2003 to 2008, each comprising between 1,220 and 2,780 computer-assisted telephone interviews with randomly selected young people between the ages of 12 and 17. The percentage of young people reached by information offered on the subject of not smoking rose between 2003 and 2008. Participation in school-based prevention measures also rose. There was an increase in knowledge regarding the harmful substances contained in cigarette smoke, and in the percentage of young people who rated active and passive smoking as being harmful to health. In addition, the attitude towards smoking of young people who have never smoked became more critical, as did that perceived in the social environment. The proportion of young people who smoke declined substantially, from 27.5% (2001) to 15.4% (2008), and there was been a major rise in the number who have never smoked, from 40.5% (2001) to 60.6% (2008). The change in knowledge-based risk assessments, attitudes, and social norms should be further promoted by mass media and personal communication measures, as well as by setting-based and behavioral prevention measures. In order to encourage them to quit smoking, young smokers must be motivated and convinced by means of suitable behavioral prevention interventions.

[Communication of health risks: the example of HIV/AIDS prevention]. / Gesundheitliche Aufklärung als Risikokommunikation: Erfahrungsbericht aus der AIDS-Prävention.

Those seeking to educate the public about health need to communicate health risks effectively. This involves providing evidence-based information about factors and behaviors that are dangerous to people's health and making recommendations regarding how risks can be avoided or minimized. This communication usually aims to motivate people to act in a way that promotes health or prevents disease. Organized 'health education' that seeks to communicate risks is always embedded in a contextual framework that in turn influences the issues and content to be communicated and the form of communication that is chosen. The scope of available scientific knowledge is an important part of this framework as is the extent to which risks are presented in the media as being dangerous. The media's message has a strong influence on how the public and specific subgroups within it react. The article describes conditions that contribute to successful risk communication based on the example of HIV/AIDS prevention. We chose this particular case because it can serve as an example of how to deal with future epidemics that may potentially generate substantial media coverage. This field report shows how risk communication about HIV/AIDS in the mass media in Germany in the mid-1980s elicited a risk consciousness among the general public that in itself was in danger of becoming a health risk, especially for people affected by the disease, and how 'health education' responded to this challenge. It concludes by describing how these experiences with risk communication can be applied to similar types of risk communication today.

[The development of evidence-based prevention. Health promotion and education as an approach to continuous quality improvement of health care]. / Evidenzbasierte Prävention und Gesundheitsförderung. Probleme und Lösungsansätze zur kontinuierlichen Qualitätsverbesserung der Versorgung.

Evidence-based health promotion and education relies on the systematic and critical discussion of the best available research on the effectiveness of interventions. In the last decade, evidence-based reviews provided decisive proof for the effectiveness of health promotion and education. The approach is also capable of identifying high-quality interventions and deficiencies. Nevertheless, there is an ongoing dispute concerning the transfer of evidence-based medicine to health promotion and education. Arguments concern databases, research strategies, validity and practical applicability of results. A discussion of these issues suggests that the methodology of evidence-based medicine is pertinent and informative. Some adaptations for health promotion and education would make sense, though: contexts and characteristics of interventions should be documented and published in rather more detail in order to reach better causal models. Pre-post studies which are of particular importance for health promotion and education should be elaborated according to the psychological multi-trait multi-method strategy (multiple measurements, modelling of process levels, multidimensional operationalization of complex outcomes). All relevant knowledge including qualitative studies should be integrated into cycles of theory formulation and evidence testing. Finally, a reappraisal of expert opinion is proposed relying on specific criteria for the transparency and plurality of consensus procedures ruling out conflicts of interest.

[Evaluation of the health target "tobacco control"]. / Evaluation des Gesundheitsziels "Tabakkonsum reduzieren".

UNLABELLED: "Tobacco control" is one of six health targets of the forum gesundheitsziele.de (health targets). Key stakeholders from health policy and from the health system are involved in the process of defining and deciding about health targets. The goal of gesundheitsziele.de is the improvement of the health of the population through integrated action. Goals are supplemented with recommendations for intervention measures, and indicators to mea sure whether goals had been achieved. The evaluation board of gesundheitsziele.de is committed to assess the availability and appropriateness of German data bases for the evaluation of the health target "tobacco control", and to submit a concept for the evaluation. In particular, the German health monitoring system, and the evaluation and quality assurance of the Federal Center for Health Education provide a good data base for the evaluation of the health target. Lack of data exists regarding outcome and impact evaluation of structural (policy, legal) interventions. RECOMMENDATIONS: Evaluation of health targets requires continuing conduction of representative population surveys. The evaluation of national intervention campaigns and the extension of the topic "tobacco control" within the German health report system are necessary. The collection and documentation of information about intervention measures, programs, and evaluation results is recommended. The evaluation board favors follow-up studies, and the coordination of existing data resources; the creation of new evaluation systems is not required.

[Not Available]. / Qualitätssicherung in der Gesundheitsförderung und Prävention.

Quality assurance is a crucial factor in legitimizing decisions about investments in sectors of the health care system such as disease prevention and health promotion. Conditions necessary for effective and efficient health promotion are presented, and ways to improve these conditions are discussed. To show how national campaigns can successfully initiate societal learning processes, the authors describe the case of aids education in Germany. Was it just a special case, or was it an example of how effective disease prevention can be? Can it be a model for other prevention campaigns?

[Assessing the quality of structures, concepts, and processes in prevention, health promotion, and education. Requirements and solutions]. / Die Beurteilung der Struktur-, Konzept- und Prozessqualität von Prävention und Gesundheitsförderung. Anforderungen und Lösungen.

The effectiveness of health promotion is determined by the foundation of evidence, the targeting of health problems, and the adaptation of interventions to specific social and organizational contexts. Methods for the implementation of these objectives must be able to balance interacting intervention goals, to account for the suitability of interventions for specific target groups and settings, and to integrate complex and divergent data. The core methodology underlying these conditions is peer review assessment. A quality assurance system based on this approach is presented: Two inventories elicit detailed self-descriptions characterizing either actors or activities within health promotion and education. Two assessment instruments instruct experts in reviewing these data according to primary and partial dimensions of quality. Thus, systematically structured and quantifiable quality profiles of organizational units or specific activities are produced. On this basis, comparative indicators for benchmarking purposes can be calculated. Quality profiles containing the strengths and weaknesses of organizations or activities, including indicators, benchmarks, and reviewers' recommendations, are communicated to participating organizations in order to stimulate continuous quality improvement by feedback. Moreover, the system offers a database of comparative indicators for monitoring and optimizing health promotion and education.