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Transition to adult care in cystic fibrosis: The challenges and the structure.
Singh, Jagdev; Towns, Susan; Jayasuriya, Geshani; Hunt, Sharon; Simonds, Sharon; Boyton, Christie; Middleton, Anna; Kench, Andrea; Pandit, Chetan; Keatley, Lucy R; Chien, Jimmy; Bishop, Jennifer; Song, Yang; Robinson, Paul; Selvadurai, Hiran; Middleton, Peter G; Fitzgerald, Dominic A.
Afiliação
  • Singh J; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia; Discipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Sydney, NSW, Australia. Electronic address: Jagdev.singh@health.nsw.gov.au.
  • Towns S; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia; Discipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Sydney, NSW, Australia; Department of Adolescent Medicine, Sydney Children's Hospital Network, Australia.
  • Jayasuriya G; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia; Discipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Sydney, NSW, Australia; The Woolcock Institute of Medical Research, Sydney, NSW, Australia; Department of Adolescen
  • Hunt S; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia.
  • Simonds S; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia.
  • Boyton C; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia.
  • Middleton A; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia.
  • Kench A; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia.
  • Pandit C; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia; Discipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Sydney, NSW, Australia; The Woolcock Institute of Medical Research, Sydney, NSW, Australia.
  • Keatley LR; Department of Respiratory and Sleep Medicine, Westmead Hospital, Westmead, Sydney, NSW, Australia.
  • Chien J; Department of Respiratory and Sleep Medicine, Westmead Hospital, Westmead, Sydney, NSW, Australia; Westmead Clinical School, University of Sydney, NSW, Australia.
  • Bishop J; Department of Respiratory and Sleep Medicine, Westmead Hospital, Westmead, Sydney, NSW, Australia.
  • Song Y; Department of Respiratory and Sleep Medicine, Westmead Hospital, Westmead, Sydney, NSW, Australia; Westmead Clinical School, University of Sydney, NSW, Australia.
  • Robinson P; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia; Discipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Sydney, NSW, Australia; The Woolcock Institute of Medical Research, Sydney, NSW, Australia.
  • Selvadurai H; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia; Discipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Sydney, NSW, Australia.
  • Middleton PG; Department of Adolescent Medicine, Sydney Children's Hospital Network, Australia; Department of Respiratory and Sleep Medicine, Westmead Hospital, Westmead, Sydney, NSW, Australia.
  • Fitzgerald DA; Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia; Discipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Sydney, NSW, Australia.
Paediatr Respir Rev ; 41: 23-29, 2022 Mar.
Article em En | MEDLINE | ID: mdl-32917516
In developed countries, it is projected that there will be a 70% increase in the number of adults living with Cystic Fibrosis (CF) between 2010 and 2025. This shift in demographics highlights the importance of high-quality transition programmes with developmentally appropriate integrated health care services as the individual moves through adolescence to adulthood. Adolescents living with CF face additional and unique challenges that may have long-term impacts on their health, quality of life and life-expectancy. CF specific issues around socially challenging symptoms, body image, reproductive health and treatment burden differentiate people with CF from their peers and require clinicians to identify and address these issues during the transition process. This review provides an overview of the health, developmental and psychosocial challenges faced by individuals with CF, their guardians and health care teams considering the fundamental components and tools that are required to build a transition programme that can be tailored to suit individual CF clinics.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Fibrose Cística / Transição para Assistência do Adulto Limite: Adolescent / Adult / Humans Idioma: En Ano de publicação: 2022 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Fibrose Cística / Transição para Assistência do Adulto Limite: Adolescent / Adult / Humans Idioma: En Ano de publicação: 2022 Tipo de documento: Article