Consensus on a conversation aid for shared decision making with people with intellectual disabilities in the palliative phase.
J Appl Res Intellect Disabil
; 34(6): 1538-1548, 2021 Nov.
Article
em En
| MEDLINE
| ID: mdl-34060161
ABSTRACT
BACKGROUND:
Little is known about how to involve people with intellectual disabilities in making decisions about treatment and care in their palliative phase. We aimed to reach a consensus about a shared decision-making (SDM) conversation aid for people with intellectual disabilities, relatives, and healthcare professionals.METHODS:
In a Delphi process, an expert panel of 11 people with intellectual disabilities, 14 relatives, and 65 healthcare professionals completed online questionnaires about the relevance and feasibility of a draft conversation aid.RESULTS:
In Round 1, components were rated as (very) relevant by 70-98% of participants (M = 87%). In Round 2, after amending the aid in response to feedback, relevance ratings were 67-97% (M = 90%) and feasibility ratings 66-86% (M = 77%). The final version consists of four themes who are you; illness/end-of-life; making decisions; and evaluating the decision.CONCLUSION:
The consensus-based conversation aid is considered sufficiently relevant and feasible to be implemented in practice.Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Deficiência Intelectual
Tipo de estudo:
Guideline
Limite:
Humans
Idioma:
En
Ano de publicação:
2021
Tipo de documento:
Article