Spousal support, parent-nurse partnership and caregiver burden among parents of children with chronic diseases: A cross-sectional study.

AIM: To examine the effects of spousal support and parent-nurse partnership on caregiver burden of parents of children with chronic disease. BACKGROUND: With the trend of increasing the global number of children with chronic diseases, the parental caregiver burden has become increasingly prevalent. DESIGN: Cross-sectional study. METHODS: The study participants included 115 parents of children diagnosed with chronic disease at a general hospital in South Korea. The study duration was 4 June 2021-30 April 2022. Self-reported measures included the parent-nurse partnership scale, the Korean version of the Parenting Alliance Inventory and the family caregiver burden scale. T-tests, ANOVA, Pearson's correlation coefficients and hierarchical linear multiple regression were conducted using IBM SPSS version 26.0. This study followed STROBE guideline. RESULTS: Parental caregiver burden was significantly negatively associated with spousal support and parent-nurse partnership. Factors significantly influencing caregiver burden were parental alcohol consumption; child's inherited metabolic disease, cardiovascular disease, disease relating to haematological tumours or kidney disease diagnosis; child's health perceived as poor by parents; child's dependency perceived as high by parents; hospitalization recency; and low spousal support. These factors accounted for 65% of caregiver burden. CONCLUSION: Parental caregiver burden was related to spousal support and parent-nurse partnership, but the primary factor affecting caregiver burden was spousal support. RELEVANCE TO CLINICAL PRACTICE: The results highlighted the role of healthcare professionals in educating parents of children with chronic diseases to facilitate spousal support and have implications for nursing and community-based interventions to reduce parental caregiver burden. Furthermore, they underlined that policymakers and other stakeholders should pay attention to the parental caregiver burden through government-based, family-centered strategies. PATIENT OR PUBLIC CONTRIBUTION: Parents of children with chronic disease were recruited to perform the self-administered survey in the phase of data collection.

O cuidado de enfermagem nas relações sorodiferentes: uma análise à luz de Imogene King / Cuidados de enfermería en las relaciones serias: un análisis a la luz de Imagen King / Nursing care in serodifferent relationships: an analysis in the light of Imogene King

Resumo Objetivo refletir sobre a possibilidade de utilização dos pressupostos de Imogene King como fundamentação teórica para os cuidados de enfermagem a parceiros sexuais sorodiferentes ao HIV. Método estudo descritivo de caráter reflexivo, com o aporte teórico da Teoria do Alcance de Metas de Imogene King. Resultados as reflexões deram origem a dois eixos de análise: no primeiro, cumpre-se detalhar os pressupostos conceituais de Imogene King e o alcance de metas, e no segundo, explora-se a convergência da teoria de King no cuidado às relações sorodiferentes no que concerne aos seus limites, possibilidades e desdobramentos nos sistemas pessoal, interpessoal e social. Conceitos como percepção, interação e organização formam os eixos centrais dos sistemas e possibilitam a compreensão ampliada das demandas dos parceiros sorodiferentes com vistas ao equilíbrio dos fatores estressores à manutenção da saúde. Considerações finais e implicações para a prática o entendimento dos sistemas abertos aplicados à pessoa que vive com HIV individualmente e na díade com seu parceiro, ambos inseridos em grupos na sociedade, resulta em uma melhor compreensão de suas necessidades e, assim, contribuem com o planejamento de metas direcionadas.

Resumen Objetivo reflexionar sobre la posibilidad de utilizar los supuestos de Imogene King como base teórica para el cuidado de enfermería en parejas VIH-serodiferentes. Método estudio descriptivo de carácter reflexivo, con el aporte teórico de la Teoría del Logro de Metas de Imogene King. Resultados las reflexiones dieron lugar a dos ejes de análisis: en el primero, es necesario detallar los supuestos conceptuales de Imogene King y el logro de objetivos, y en el segundo, se explora la convergencia de la teoría de King en el cuidado de las relaciones serodiferentes en cuanto a sus límites, posibilidades y desarrollos en los sistemas personal, interpersonal y social. Conceptos como percepción, interacción y organización forman los ejes centrales de los sistemas y permiten una comprensión más amplia de las demandas de las parejas serodiferentes con vistas a equilibrar los factores de estrés para mantener la salud. Consideraciones finales e implicaciones para la práctica la comprensión de los sistemas abiertos aplicados a personas que viven con VIH individualmente y en pareja con su pareja, ambas insertadas en grupos de la sociedad, resulta en una mejor comprensión de sus necesidades y, así, contribuye a la planificación de objetivos específicos.

Abstract Objective to reflect on the possibility of using Imogene King's assumptions as a theoretical basis for nursing care in HIV-serodifferent partnerships. Method a descriptive study of a reflective nature, with the theoretical contribution of Imogene King's Goal Attainment Theory. Results the reflections gave rise to two axes of analysis: in the first, it is necessary to detail Imogene King's conceptual assumptions and goal attainment, and in the second, the convergence of King's theory in caring for serodifferent relationships is explored with regard to their limits, possibilities and developments in the personal, interpersonal and social systems. Concepts such as perception, interaction and organization form the central axes of the systems and enable a broader understanding of serodifferent partners' demands with a view to balancing stress factors for maintaining health. Final considerations and implications for practice the understanding of open systems applied to people living with HIV individually and in a dyad with their partner, both inserted in groups in society, results in a better understanding of their needs and thus contributes to planning targeted goals.