Résumé
Introduction: The impact of thalassemia major and thalassemia intermedia and their associated complications on quality of life is largely unknown. Determining the degree of health impairment as perceived by the patient is essential information needed to recommend suitable therapy. The impact of thalassemia and its complications on the quality of life of these patients and families perspective has been little studied. The aim of this study was to Comparison of quality of life in adolescence with thalassemia and their families
Method: In this descriptive-analytical study, the quality of life of 90 adolescences upper than 18 years with thalassemia who returned to Shafa hospital of Ahwaz in 2007-2008 was studied using a demographic and quality of life questionnaire [SF36]. The participants were chosen based on a non-randomized sampling. The data was analyzed using descriptive analysis and t-test
Results: The mean quality of life in patients was 70.25 +/- 17.17 and in their parents was 67.44 +/- 16.59. Significant difference has shown between social activities of two groups [P<0.012]. There was no difference between other points of views
Conclusion: Presented data suggest that thalassemia patients and family members in social functioning, which were most affected, will be the special focus in the interventions