Exploration of ethical issues in neuroimaging data sharing / 中国医学伦理学

ABSTRACT

In recent years， countries around the world have invested a lot of resources in neuroimaging research on brain function and diseases. The abundant and more easily accessible neuroimaging data will have a profound impact on the research of cognitive neuroscience and psychiatry， thereby assisting the development of the diagnosis and treatment of brain diseases. At present， neuroimaging data sharing is gradually becoming a trend， but it is also worth considering of some unique ethical issues that come with it. Therefore， from the four shared entities of the public， researchers， users， and data centers， this paper sorted out the ethical issues in neuroimaging data sharing， and deeply analyzed the reasons for these issues. Based on the responsibility ethics and combined with the guidance of the Belmont principles， governance responses were proposed， including strengthening the construction of neuroethics committees， improving informed consent models， building data sharing infrastructure， establishing data privacy protection mechanisms， and introducing regulatory protections， to provide a certain reference for promoting the neuroimaging data sharing and maximizing the contribution of participants.