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1.
Patient Experience Journal ; 9(2):62-70, 2022.
Artigo em Inglês | Scopus | ID: covidwho-2156204

RESUMO

The COVID-19 pandemic prompted the rapid uptake of Virtual Care (VC). Positive patient outcomes with VC are previously reported but little is known about the experiences of patients and providers using VC during the pandemic. We aimed to describe patient and primary care provider experiences, satisfaction, perceptions, and attitudes to VC during the COVID-19 pandemic that might explain adoption of VC across the continuum of care and inform sustained uptake. We conducted a sequential explanatory mixed methods study using online surveys and virtual interviews with a convenience sample of primary care providers and patients in a Canadian province (July – December 2020). Eligible participants included patients and primary care providers using VC during the COVID-19 pandemic. Survey responses and interviews were analyzed using descriptive statistics and thematic analysis, respectively. Overall satisfaction was compared using the Mann-Whitney U test. Eighty-five patients and 94 primary care providers responded to the surveys. Patients reported higher overall satisfaction with VC than primary care providers (median [interquartile range]: 4.4 [4.0-4.7] and 3.7 [3.4-3.9] p < 0.001). Ten patients and 11 primary care providers were interviewed. Both groups strongly appreciated VC’s increased access and convenience, identified the lack of compensation as a pre-pandemic barrier to providing VC, and reported willingness to continue VC post-COVID-19 pandemic. The COVID-19 pandemic provided an opportunity for patients and primary care providers to rapidly adopt VC with high satisfaction. Patients and primary care providers viewed VC positively due to its convenience and accessibility;both intend to continue using VC post-pandemic. © The Author(s), 2022.

2.
Patient Experience Journal ; 9(3):191-208, 2022.
Artigo em Inglês | Scopus | ID: covidwho-2156203

RESUMO

NHS England started the work described in this article with the ambition of using insight and feedback from the adult National Cancer Patient Experience Survey to grow coproduced service improvements leading to improved patient centred quality outcomes in experience for cancer patients. Based on the Institute for Healthcare Improvement’s Breakthrough Collaborative Series, the approach of the Cancer Experience of Care Improvement Collaboratives (CIC) in the English healthcare system was developed, initially with 19 NHS provider organisation teams in 2019 as a face-to-face model, then developing into two collaboratives with an additional 15 NHS provider organisation teams in Cohort 2 and 8 teams in Rare & Less Common Cancers in a virtual framework. Each cohort has reported improvements in patient experience, staff experience and team working, but more fundamentally, have been able to describe a cultural shift in the way they work, together with people, leaving a lasting impact and legacy of this work. Key learning has been recognised with the increasing emphasis on involving people with relevant lived experience as partners and colleagues in the collaborative, alongside flexibility, responsiveness and adaptability as key to enabling project teams to continue where COVID-19 pressures allowed to participate. © The Author(s), 2022.

3.
Patient Experience Journal ; 9(1):62-71, 2022.
Artigo em Inglês | Scopus | ID: covidwho-2156202

RESUMO

This mixed-methods study investigated the effects of the COVID-19 pandemic on Patient and Family Advisory Councils (PFACs) within children’s hospitals in the United States. Specifically, the study sought to understand how PFACs adapted operations as a result of the COVID-19 pandemic, how patient and family advisors (PFAs) were engaged in the response to COVID-19, and the intersection of the COVID-19 pandemic with PFAC diversity, equity, and inclusion. The study consisted of a survey distributed to 228 children’s hospitals, with a 73% response rate, and in-depth interviews with selected survey respondents (n=12). While COVID-19 temporarily disrupted PFAC operations and forced rapid adaptations, most children’s hospital PFACs transitioned successfully to virtual meetings, with 86% reporting that their PFAC met at least once from March to December 2020 and 84% indicating that their PFAC planned to meet as frequently or more frequently than before the pandemic. The majority of respondents (72%) reported that attendance at virtual PFAC meetings was the same as or better than with in-person meetings. Interview participants reported benefits associated with virtual meetings, including the potential ability to recruit and engage PFAs who better reflected the diversity of the patients and families served by the hospitals. Children’s hospitals are well-positioned to be leaders in the field, contributing to the development of new approaches, lessons learned, and best practices moving forward. This is especially true as hospitals continue to navigate the evolving realities of the COVID-19 pandemic, and as PFACs address challenges associated with maintaining diverse, equitable, and inclusive councils. © The Author(s), 2022.

4.
Patient Experience Journal ; 9(1):95-102, 2022.
Artigo em Inglês | Scopus | ID: covidwho-2156198

RESUMO

The COVID-19 pandemic prompted the immediate widespread implementation of virtual care appointments in Cancer Care Alberta (CCA). This study aimed to compare patient experiences and satisfaction with in-person care provided prior to the pandemic and virtual care provided after the COVID-19 outbreak. Surveys were conducted to compare patient satisfaction, using the Your Voice Matters (YVM) experience survey, between patients in the pre-pandemic in-person (baseline) and post-outbreak (virtual) cohorts. Generalized Linear Models (GLMs) with an ordinal logistic link were used, adjusting for self-reported health status and other covariates, to investigate the association between cohort type and patient satisfaction. Despite having higher overall health status, the virtual cohort reported statistically significantly lower satisfaction than the baseline with emotional concerns, referrals and resources, and friend/family involvement in their care. Patients in the virtual cohort were much less likely to have completed a routinely used symptom-based Patient Reported Outcomes (PROs) questionnaire, which may help explain satisfaction differences. The additional stressors brought about by the pandemic, as well as the mode of virtual care delivery, both likely contributed to the lower satisfaction of the virtual cohort as well. Understanding the key differences in experience between the two cohorts will inform the development of a larger virtual care strategy within CCA in the future. © The Author(s), 2022.

5.
Patient Experience Journal ; 9(1):205-211, 2022.
Artigo em Inglês | Scopus | ID: covidwho-2156196

RESUMO

Cardiac rehabilitation is an integral part of recovery from a critical cardiac life event. This preventative strategy involves exercise rehabilitation, education, lifestyle modification, and self-management coaching – preparing patients for lifelong changes. Prior to the COVID-19 pandemic, these activities were supervised by clinicians in-person, on hospital grounds, and in large groups. However, due to pandemic regulations in Canada imposed in March 2020, all in-person group activities were restricted. Within the first two months of the pandemic, almost half of cardiac rehabilitation services in Canada closed and half of their employees were deployed to other areas. To continue to provide patient care and ensure high-quality patient experience and recovery, cardiac rehabilitation services in Fraser Health, British Columbia rapidly transitioned to exclusively virtual methods of care delivery. Two years later, we are still providing this virtual model of care. This case study reflects on the experience of virtual care delivery of cardiac rehabilitation by participants and health providers. It outlines the process, the challenges, and the outcomes experienced with shifting to a new standard of care. The virtual participation rates showed a slight increase, with a significant reduction in time to access care, and increased adherence to the rehabilitation program. Overall patient satisfaction and provider experience continue to be positive. The consensus is that cardiac rehabilitation should not be optional, even during a global crisis. © The Author(s), 2022.

6.
Front Psychol ; 13: 1042234, 2022.
Artigo em Inglês | MEDLINE | ID: covidwho-2142266

RESUMO

Background: Co-creation allows to develop tailored interventions in chronicity and to increase patients' engagement. Considering the interacting nature of physical, psychological, and social domains in multiple sclerosis (MS), a biopsychosocial approach to care is crucial. Aims: This paper aims to present (i) an example of a co-creation process in the context of chronic diseases (ii) preferences and perspectives of young adults with multiple sclerosis (YawMS; aged 18-45) and healthcare professionals (HCPs) on the relevance, objectives, and modalities of a biopsychosocial intervention (named ESPRIMO) and on strategies/barriers to participation. Methods: A participatory mixed-method approach in three consecutive steps was implemented: online surveys with YawMS (n = 121) and HCPs (n = 43), online focus groups (FGs) with YawMS, consultation with an advisory board (AB) composed by YawMS, HCPs and researchers. For the survey, descriptive statistics and inductive content analysis have been used for quantitative and qualitative analysis, respectively. FGs and AB were used to deepen the understanding of the survey's results. Results: An integrated intervention is extremely relevant according to the perspectives of the main stakeholders. Helping disease acceptance, providing stress management strategies, and supporting emotional expression emerged as the most relevant psychological objectives according to participants. Having tangible benefits, being tailored, and fostering interpersonal relationships emerged as the main preferred characteristics of physical activity. Preferences emerged on the modalities and timing of the intervention, with a venue unrelated to the disease strongly supported. Both HCPs and YawMS highlighted as the most valuable advantages of conducting the intervention online the increased accessibility, while the main limit was the restriction to social interaction (recognized as already limited during the COVID-19 pandemic). Accessibility and lack of time resulted as the main barriers to participation. Conclusion: The co-creation process gave valuable information on preferences and perspectives of main stakeholders on objectives, modalities, and strategies to improve participation which has been used in the design of the ESPRIMO biopsychosocial intervention. Those results might inform future intervention development in the field of chronicity. The current paper outlined a co-creation methodology which might be replicated in future research on other conditions of vulnerability.

8.
Journal of Clinical and Translational Science ; 2022.
Artigo em Inglês | EMBASE | ID: covidwho-2114760

RESUMO

In addition to facing numerous healthcare disparities, rural America is chronically underrepresented in clinical research. This gap was made more evident during the COVID-19 pandemic. St. Lawrence Health, located in rural Upstate New York, established its Clinical and Rural Health Research Department in 2015 to help close this gap. The research department then launched the DISRUPTS (Developing InfraStructure for Research to Utilize Patient-centered Techniques at St. Lawrence Health System) program to build the infrastructure to conduct Patient-Centered Outcomes Research (PCOR). Together with a diverse committee, the team used proven methods and frameworks to develop a model for engagement, content creation and education delivery that was successfully used to create educational programs on PCOR and COVID-19. The resulting DISRUPTS webinars had a combined total of over 450 live attendees and over 1,110 views on recordings. Furthermore, nearly a third of those who participated in the COVID-19 vaccines webinar indicated they were more likely to receive a COVID-19 vaccine after taking part. DISRUPTS can serve as an important model for other rural communities that aim to increase access to and engagement in PCOR, and which hope to improve outreach and education efforts in their communities. Copyright © Journal of Clinical and Translational Science. All rights reserved.

9.
Pharmacoepidemiol Drug Saf ; 2022 Nov 05.
Artigo em Inglês | MEDLINE | ID: covidwho-2103683

RESUMO

BACKGROUND: Patients use social media forums to discuss their medical history and healthcare experiences, providing early insight into real-world patient experiences. We analyzed COVID-19 patient experiences from Reddit social media posts. METHODS: We extracted Reddit Application Programming Interface data for the subreddit/COVID-19 positive from March to August 2020 and selected users tagged as "Tested Positive" or "Tested Positive- Me" flair and who posted at least thirty times in any calendar month, excluding users who explicitly stated location outside of the U.S. For tested-positive patients (users), we created and reviewed individual case profiles summarizing their COVID-19 symptoms, testing, and medications or treatments. Data were imported to Nvivo qualitative analysis software and qualitative coding was conducted. FINDING: There were 31 759 posts and comments from 720 users in March to May 2020 (Q1) and 40 446 posts and comments from 1649 users from June to August 2020 (Q2). Final count of "Tested Positive" was 1296 users (280 in Q1 and 1016 in Q2). Across both quarters, frequently reported symptoms included sore throat, headaches, fevers, or chills. Loss of sense of smell or taste were reported by users in early March, prior to the inclusion of this symptom to the CDC list in April and GI-related symptoms and fatigue were reported in the March to May data, before they were added as a COVID-19 associated symptom in July 2020. Users also reported in-depth descriptions of their symptoms, motivations for testing, and long-term impacts such as post-viral fatigue. INTERPRETATION: Social media data can potentially serve as an early surveillance data source in a pandemic and offer preliminary insights into patient disease experiences.

10.
Pharmaceutical Journal ; 309(7964), 2022.
Artigo em Inglês | EMBASE | ID: covidwho-2065049
11.
Obstetric Medicine ; 15(1 Supplement):15, 2022.
Artigo em Inglês | EMBASE | ID: covidwho-2064391

RESUMO

Covid 19 has accelerated the use of digital technology for healthcare in Australia and Worldwide. This has created benefits and opportunities for changing the way we provide access, management and care for our patients, including telehealth, remote monitoring of glucose and provision of education. This has also created challenges with technology, patient engagement, resources and confusing nutritional messages in the media and social media. Common themes of over-restriction and overconsumption of food groups and carbohydrates are observed. What lessons have we learnt, and how can we best use technology for both the patient and clinician?.

12.
10th IEEE International Conference on Healthcare Informatics, ICHI 2022 ; : 384-392, 2022.
Artigo em Inglês | Scopus | ID: covidwho-2063252

RESUMO

Patient portals have been around for decades, but only became widely available to patients in the last 10 years as cultural shifts (i.e., patient-centered care) and policies (e.g., HITECH Act) encouraged healthcare organizations to offer patients electronic access to their medical records, as well as digital health services such as secure messaging with their healthcare team. Unfortunately, despite high interest among patients, research has documented generally slow uptake and low levels of use. However, the COVID-19 pandemic has brought new incentives to adopt and use portals (e.g., to access video visits, COVID-19 test results). While evidence from some healthcare organizations suggests that this has translated to higher patient engagement with portals, there have not been national-level studies to investigate this. Our cross-sectional survey addresses that gap by assessing a sample of U.S. adults' use, perceptions of, and satisfaction with patient portals at the end of 2021. We found high levels of portal awareness, adoption, and use, as well as satisfaction among survey participants that, in many cases, exceeds what has been found in past surveys of U.S. adults. In addition, while we did find some evidence of some disparities in portal adoption and use (e.g., lower adoption among those with lower levels of education completed), many of the factors that have been found in previous literature such as race were not associated with portal engagement in this study. Our results provide early evidence that there may finally be some progress in portal adoption and use, but more research is needed to understand what is driving this and whether and how this progress can be maintained post-pandemic. Addressing common patient concerns and suggestions may be one path forward. © 2022 IEEE.

13.
Epilepsy Behav ; 130: 108673, 2022 05.
Artigo em Inglês | MEDLINE | ID: covidwho-2061987

RESUMO

BACKGROUND: Health research agendas are often set by researchers or by industry and may not reflect the needs and priorities of end users. This priority-setting partnership (PSP) for epilepsy was undertaken to identify the most pressing unanswered questions about epilepsy and seizures from the perspective of people with epilepsy (PWE) and their care providers. METHODS: Using the methodology developed by the James Lind Alliance (JLA), evidence uncertainties were gathered via online surveys from stakeholders across Canada. Submissions were formed into summary questions and checked against existing evidence to determine if they were true uncertainties. Verified uncertainties were then ranked by patients, caregivers, and healthcare providers and a final workshop was held to reach a consensus on the top 10 priorities. RESULTS: The final top 10 list reflects the priority areas of focus for research as identified by the Canadian epilepsy community, including genetic markers for diagnosis and treatment, concerns about living with the long-term effects of epilepsy, and addressing knowledge gaps in etiology and treatment approaches. CONCLUSION: This project represents the first systematic evidence of patient- and clinician-centered research priorities for epilepsy. The results of this priority-setting exercise provide an opportunity for researchers and funding agencies to align their agendas with the values and needs of the epilepsy community in order to improve clinical outcomes and quality of life (QOL) for PWE.


Assuntos
Epilepsia , Qualidade de Vida , Canadá , Cuidadores , Epilepsia/diagnóstico , Epilepsia/terapia , Humanos , Inquéritos e Questionários
14.
Anaesthesia ; 77:12, 2022.
Artigo em Inglês | EMBASE | ID: covidwho-2032346

RESUMO

The Enhanced Recovery After Surgery (ERAS) Society issued specific guidance on peri-operative care in cardiac surgery in 2019, with 22 recommendations known to reduce morbidity and mortality. We sought to assess the baseline compliance with these guidelines at our centre, to inform targeted quality improvement. Methods Thirty consecutive patients undergoing coronary artery bypass graft (CABG) surgery at Nottingham University Hospitals NHS Trust between August and September 2021 were identified from a prospectively populated database, with additional information collected from electronic case records. The primary outcome was adherence to the individual ERAS recommendations, reported as relative frequency. Analysis was performed in Stata IC v17. Results Thirty patients (83% male, n = 25;age 67.1 ± 7.28 years) were included, with 63.3% (n = 19) urgent procedures. Median postoperative hospital stay was 7 days (range 5-22 days). Overall compliance for all patients (adjusted for non-applicability) was 51.7%, with adherence to a median of 12 (range 9-14) guideline elements per patient. Six guideline elements were not adhered to in any patients (0/30), including pre-operative carbohydrate loading, patient engagement, pre-habilitation, rigid sternal fixation, active chest tube clearance and postoperative acute kidney injury biomarker screening. Seven recommendations achieved partial compliance, with complete adherence to the remaining nine elements (Table 1). (Table Presented) Discussion This first audit cycle has identified areas for stepwise quality improvement across the spectrum of peri-operative care. Although the COVID-19 pandemic poses a challenge to the routine delivery of healthcare services, this may also provide an opportunity to address existing variation in practice and implement change as services recover.

15.
Journal of the American Academy of Dermatology ; 87(3):AB210, 2022.
Artigo em Inglês | EMBASE | ID: covidwho-2031399

RESUMO

Dermatology is unique in that not only are there a shortage of dermatologists in the United States but patient access care to is largely disproportionate. As a response to the chasm of access that exists, many patients have relied on the Internet to obtain information on how to address their concerns, and this often comes at the cost of non-evidence based remedies being promoted. The inception of the 2020 COVID-19 pandemic has led many physicians to restrategize their approach to patient care. Fortunately, utilization of a virtual model has been integral to this process. The purpose of this study was twofold: increase patient confidence in addressing dermatologic concerns by providing targeted education on specific dermatologic topics and define a framework that can be implemented by dermatologists looking to use social media to increase patient education and access to dermatologic care. 3 separate education sessions (webinars) were held where the topics of hair, eczema, and acne were discussed, respectively. Each session was roughly 1 hour in length. Attendees were given pre- and postwebinar surveys to assess existing patient attitude toward their knowledge of dermatologic topics and their comfort in consulting a dermatologist with their concerns. Across the 3-day series, the total number of registrants was 30. 12 registrants for the hair webinar with an overall attendance rate of 33%;12 registrants for the eczema webinar with an overall attendance rate of 33%;6 registrants for the acne webinar with an overall attendance rate of 50%.

16.
Digital Innovation for Healthcare in COVID-19 Pandemic: Strategies and Solutions ; : 75-93, 2022.
Artigo em Inglês | Scopus | ID: covidwho-2027779

RESUMO

The COVID-19 pandemic has catalyzed the pace and scope of digital technology (DIT) use in healthcare. It has facilitated health promotion, disease prevention, diagnosis and treatment of secondary health concerns, patient engagement, monitoring treatment adherence, and surveillance. COVID-19-related large databases and medical and public health research have been shared freely and rapidly. Continued adoption of technology can lead to better and faster diagnosis of health conditions and accelerate the attainment of sustainable development goals (SDGs). However, many barriers still remain. Key issues are high costs, lack of interoperability of technology, frequent need for software updates, training and development, concerns about privacy, technological disruption, and network coverage issues. Greater involvement of end users in the development and rollout of new digital technologies is needed to ensure faster and deeper implementation of technology in healthcare as uneven implementation can exacerbate the divide between the haves and the have-nots. © 2022 Elsevier Inc. All rights reserved.

17.
Journal of Clinical Oncology ; 40(16), 2022.
Artigo em Inglês | EMBASE | ID: covidwho-2009571

RESUMO

Background: In the thick of the ongoing global crises of the COVID-19 pandemic, uprisings against anti-Black racism and police brutality, and anti-Asian racism and violence, Black, indigenous, and people of color (BIPOC) adolescent and young adult (AYA) cancer patients may be particularly vulnerable and exploited. Whilst embroiled in sociopolitical complexity, BIPOC AYAs are increasingly called upon to contribute as patient advocates in AYA oncology research and advocacy. Researchers, clinicians, and advocates in AYA oncology must dismantle long-standing racism and create meaningful structural change. The purpose of this study is to derive vital best practices for implementing antiracist patient engagement in AYA oncology research and advocacy that are co-developed by BIPOC AYA cancer patients and oncology professionals. Methods: We utilized a modified Delphi technique with a panel of BIPOC AYA cancer patients (n = 32) to build consensus opinions on professional recommendations from a prior study (Cheung et al., 2021), and to generate antiracist best practices in patient engagement. The Delphi study was comprised of three consecutive and iterative survey rounds over the course of 8 months in 2021;participants were BIPOC AYAs diagnosed with cancer between ages 15-36 years. Results: Results detail best practices for the implementation of antiracist patient engagement across all research activities within the Patient-Centered Outcomes Research Institute's (PCORI) Framework for Patient Engagement. For example, BIPOC AYAs agreed with oncology professionals' high priority recommendation for including BIPOC AYAs at the highest levels of decision making in research topic selection. As such, a best practice is for researchers to ensure that such representatives not only hold BIPOC AYA identity, but also hold direct experience with the particular oncology diagnosis, issue, or other outcome of interest. Additionally, BIPOC AYAs concurred with oncology professionals' high priority for “transparency, honesty, and trust” as a core principle for best practices in patient engagement. They further explained that trustworthy relationships are especially important when collaborating with teens and young adults, who are developmentally just coming into their own. When describing successful experiences of inclusion, participants ranked “build collaborative relationships with BIPOC AYA communities and listen to patients not usually heard” and “recruit a diverse range of BIPOC patients and let them give actual input into the study” as the highest priority best practices. Conclusions: Findings from this study are instructional for AYA oncology researchers, clinicians, and advocates to prevent harmful tokenism and implement genuine antiracist inclusion to advance health equity. Future research should investigate best practices within unique clinical settings.

18.
Curr Oncol ; 29(8): 5616-5626, 2022 08 07.
Artigo em Inglês | MEDLINE | ID: covidwho-2009970

RESUMO

The Canadian Real-world Evidence for Value in Cancer Drugs (CanREValue) Collaboration established the Engagement Working Group (WG) to ensure that all key stakeholders had an opportunity to provide input into the development and implementation of the CanREValue Real-World Evidence (RWE) Framework. Two consultations were held in 2021 to solicit patient perspectives on key policy and data access issues identified in the interim policy and data WG reports. Over 30 individuals, representing patients, caregivers, advocacy leaders, and individuals engaged in patient research were invited to participate. The consultations provided important feedback and valuable lessons in patient engagement. Patient leaders actively shaped the process and content of the consultation. Breakout groups facilitated by patient advocacy leaders gave the opportunity for open and thoughtful contributions from all participants. Important recommendations were made: the RWE framework should not impede access to new drugs; it should be used to support conditional approvals; patient relevant endpoints should be captured in provincial datasets; access to data to conduct RWE should be improved; and privacy issues must be considered. The manuscript documents the CanREValue experience of engaging patients in a consultative process and the useful contributions that can be achieved when the processes to engage are guided by patients themselves.


Assuntos
Antineoplásicos , Neoplasias , Antineoplásicos/uso terapêutico , Canadá , Humanos , Neoplasias/tratamento farmacológico , Participação do Paciente
19.
Journal of Clinical Oncology ; 40(16), 2022.
Artigo em Inglês | EMBASE | ID: covidwho-2005642

RESUMO

Background: Digital health solutions (DHS) allow for enhanced remote communication between patients and clinical staff and the COVID-19 pandemic has brought these tools to the forefront of care delivery. Once adopted, barriers to adequate utilization still exist. Given the important need to decrease digital divides, and the diversity of patients and care settings across our clinic's 220 sites of service, we sought to understand how utilization of oncology DHS may be limited among certain populations. Methods: We investigated utilization among cancer patients who enrolled and engaged with a portfolio of DHS between March 1, 2019 and January 15, 2022. This portfolio includes three tools: (1) an electronic patient-reported outcomes (ePRO) remote monitoring program for tracking symptoms and oral adherence, (2) a patient portal (PP) for securely accessing patient health records, and (3) digital education (DE) for patients regarding disease and treatments. ePRO completion rate, average number of PP logins, and DE read rate were used as measures of utilization for each tool, respectively, and compared among patients with different age (< 65 and ≥65 years), language preference [English (EL) or Spanish (SL)], and distance from clinic (non-rural: < 20 miles OR rural: ≥20 miles). Mann-Whitney U and Chi-Square tests were used to compare continuous and categorical variables, respectively. Results: This study included a total of 77,347 unique patients representing 651,004 digital encounters. 9,938 patients engaged in ePRO, 49,771 patients in PP, and 12,044 patients in DE. Engagement across all DHS was high in patients of age group < 65 (ePRO: 72.7%, PP: 79.67% and PE 54.7%) as compared to ≥65 years, but the ePRO completion rate is high in ≥65 age group (59.0% vs 55.6%), whereas no significant difference was observed in the PP login activity and DE read rate. EL patients were significantly (p-value < 0.01) more engaged (ePRO 68% vs. 54%, PP: 80% vs. 62%, DE: 57% vs. 37%) and had higher digital utilization (ePRO completion rate: 57.31% vs 53.23%, average PP logins: 7.48 vs 7.14 and DE read rate: 96.2% vs 90.8%) than SL patients across the DHS. Patients living in rural areas comprised roughly 25% of the population and participated across tools similarly as patients living in non-rural areas (ePRO 67% vs. 69%, PP: 79% vs. 79%, DE: 56.9% vs. 56.8%). Utilization of the portfolio was variable based on rural vs non-rural status (ePRO completion rate: 56.3% vs. 57.4%, average PP logins: 7.9 vs. 7.3, DE read rate: 96.02.7% vs 96.3%). Conclusions: Despite variable engagement based on age, language, and rural status across the portfolio, patients within these populations continue to utilize the DHS. How we understand and explore enhancements to DHS remain under investigation for tool optimization for patient-specific barriers to care.

20.
Clinical Oncology ; 34(4):e179, 2022.
Artigo em Inglês | EMBASE | ID: covidwho-2003980

RESUMO

Purpose: Undergoing radiotherapy treatment for breast cancer can be a daunting and anxiety-provoking experience. Evidence shows that empowering patients with education prior to commencing treatment can have a positive impact on their anxiety levels [1,2]. We aimed to educate this patient cohort through the development of a video to reinforce information delivered at consultation regarding the treatment process and side-effects of breast radiotherapy. Methods: We created a patient information video in collaboration with breast cancer patients, which is available to view on the Royal Free Hospital Trust website via the following link:. Audits were carried out to assess patient satisfaction and anxiety levels in breast cancer patients receiving radiotherapy before and after implementation of the video. Results: Pre-video implementation data (n = 25): 36% (9/25) of patients reported feeling anxious about starting radiotherapy, 28% had neutral feelings and 36% had no anxiety. 68% (17/25) of patients felt they would benefit from an educational video. Post-video implementation data (n = 29): 72% of patients (21/29) watched the video, 95% of patients (20/21) would recommend the video to other patients, 85% found it helped prepare them for what to expect from radiotherapy, 33% (7/21) felt the video reduced their anxiety levels. Data collected post-onset of the COVID-19 pandemic in UK (n = 15): 66% of patients felt COVID-19 has negatively impacted their cancer treatment. The proportion of patients who watched the video increased from 58% to 80% pre- and post-onset of the COVID-19 pandemic. Conclusion: Our video has been viewed 18 354 times at the time of writing, showing very encouraging patient engagement. It is an effective method of preparing a vulnerable population for radiotherapy from the safety of their own home during the COVID-19 pandemic. Although only 33% felt it improved their anxiety levels, only 36% of patients had anxiety regarding treatment at any point. References [1] Nabavi FH, Behboudifar A, Pouresmail Z, Shafiee MN. Effect of pre-treatment education programs on the anxiety of patients receiving radiotherapy: an integrative literature review. Evidence Based Care J 2016;6:49–62. [2] Assessing the impact of educational video on student engagement, critical thinking and learning: the current state of play ;Education.report. Available at:.

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