A survey on patients' disease perception and the impact of the COVID-19 pandemic on persons living with amyotrophic lateral sclerosis in Malaysia.
Neurodegener Dis Manag
; 11(4): 307-314, 2021 08.
Artigo
em Inglês
| MEDLINE | ID: covidwho-1319563
ABSTRACT
Aim:
To investigate the patients' perception of their disease, its management and the impact of the COVID-19 pandemic on persons living with amyotrophic lateral sclerosis (ALS) in Malaysia. Patients &methods:
An online survey comprising 42 questions was conducted on ALS patients during the peak of the COVID-19 pandemic.Results:
Responses were received from 37/60 (62%) participants with ALS directly or through their caregivers. During the COVID-19 pandemic, two-thirds of patients were negatively impacted by the sudden disruption to their hospital appointments, rehabilitation sessions and reduced social interactions.Conclusion:
This study provided insight into patients' perception of their care and management of ALS in Malaysia which will facilitate in implementing changes that can improve care to persons living with this devastating illness.Palavras-chave
Texto completo:
Disponível
Coleções:
Bases de dados internacionais
Base de dados:
MEDLINE
Assunto principal:
Conhecimentos, Atitudes e Prática em Saúde
/
COVID-19
/
Esclerose Amiotrófica Lateral
Tipo de estudo:
Estudo experimental
/
Estudo observacional
/
Ensaios controlados aleatorizados
Limite:
Adulto
/
Idoso
/
Feminino
/
Humanos
/
Masculino
/
Meia-Idade
País/Região como assunto:
Ásia
Idioma:
Inglês
Revista:
Neurodegener Dis Manag
Ano de publicação:
2021
Tipo de documento:
Artigo
País de afiliação:
Nmt-2021-0004
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