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Developing patient-centered outcomes research infrastructure in a rural community through patient and stakeholder engagement and education during the COVID-19 pandemic.
Lovelett, Carly; Medeiros, Michelle; Jaremczuk, Daniel; Flanagan, Jennie; Shaver, Jennifer; LaLone, Elaine; Kedar, Eyal.
  • Lovelett C; Department of Clinical and Rural Health Research, St Lawrence Health, Potsdam, NY 13676, USA.
  • Medeiros M; The PATIENTS Program, University of Maryland School of Pharmacy, Baltimore, MD, USA.
  • Jaremczuk D; Department of Clinical and Rural Health Research, St Lawrence Health, Potsdam, NY 13676, USA.
  • Flanagan J; Department of Clinical and Rural Health Research, St Lawrence Health, Potsdam, NY 13676, USA.
  • Shaver J; Community Partner.
  • LaLone E; Patient Partner.
  • Kedar E; Division of Rheumatology, St Lawrence Health, Potsdam, NY 13676, USA.
J Clin Transl Sci ; 6(1): e143, 2022.
Artigo em Inglês | MEDLINE | ID: covidwho-2114760
ABSTRACT
In addition to facing numerous healthcare disparities, rural America is chronically underrepresented in clinical research. This gap was made more evident during the COVID-19 pandemic. St Lawrence Health, located in rural Upstate New York, established its Clinical and Rural Health Research Department in 2015 to help close this gap. The research department then launched the DISRUPTS (Developing InfraStructure for Research to Utilize Patient-centered Techniques at St Lawrence Health System) program to build the infrastructure to conduct Patient-Centered Outcomes Research (PCOR). Together with a diverse committee, the team used proven methods and frameworks to develop a model for engagement, content creation, and education delivery that was successfully used to create educational programs on PCOR and COVID-19. The resulting DISRUPTS webinars had a combined total of over 450 live attendees and over 1,110 views on recordings. Furthermore, nearly one-third of those who participated in the COVID-19 vaccines webinar indicated they were more likely to receive a COVID-19 vaccine after taking part. DISRUPTS can serve as an important model for other rural communities that aim to increase access to and engagement in PCOR, and which hope to improve outreach and education efforts in their communities.
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Texto completo: Disponível Coleções: Bases de dados internacionais Base de dados: MEDLINE Tipo de estudo: Estudo prognóstico Tópicos: Vacinas Idioma: Inglês Revista: J Clin Transl Sci Ano de publicação: 2022 Tipo de documento: Artigo País de afiliação: Cts.2022.486

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Texto completo: Disponível Coleções: Bases de dados internacionais Base de dados: MEDLINE Tipo de estudo: Estudo prognóstico Tópicos: Vacinas Idioma: Inglês Revista: J Clin Transl Sci Ano de publicação: 2022 Tipo de documento: Artigo País de afiliação: Cts.2022.486