[Deaths with leprosy as the underlying cause recorded in Brazil: use of data base linkage to enhance information]. / Óbitos registrados com causa básica hanseníase no Brasil: uso do relacionamento de bases de dados para melhoria da informação.

This study sought to describe the characteristics of deaths with leprosy as the underlying cause recorded in the Mortality Information System (SIM) and compare these characteristics with the groups of cases where the cause of death was reported, or failed to be reported, in the National Case Registration Database (Sinan). Deaths with leprosy as the underlying cause occurring in Brazil in the 2004-2009 period, and cases of leprosy from 1975 to 2010 were included. The probabilistic bases of SIM and Sinan were compared. Of the 1,463 deaths from leprosy recorded in SIM, 44.2% were not recorded in Sinan. Of the total number of deaths, the majority were men (72.5%), aged 60 or older (56.6%), occurring in hospitals (65.3%) and with due care (45.8%). Of the 820 deaths identified in Sinan, 92% were patients with multibacillary disease, 45.2% were discharged as cured by Sinan and 38.9% died. Deaths due to leprosy were found on SIM that were not notified to Sinan. The data base linkage enabled identification of ancillary records and inconsistencies between the systems.

Óbitos registrados com causa básica hanseníase no Brasil: uso do relacionamento de bases de dados para melhoria da informação / Deaths with leprosy as the underlying cause recorded in Brazil: use of data base linkage to enhance information

O presente estudo objetivou descrever as características dos óbitos que tiveram como causa básica a hanseníase, registrados no Sistema de Informações sobre Mortalidade (SIM), e comparar estas características entre os grupos de óbitos cujos casos foram notificados e não notificados no Sistema de Informação sobre Agravos de Notificação (Sinan). Foram incluídos os óbitos com causa básica hanseníase, ocorridos no Brasil no período 2004-2009, e os casos registrados de hanseníase entre 1975-2010. Realizou-se o relacionamento probabilístico das bases do SIM e Sinan. Dos 1.463 óbitos por hanseníase registrados no SIM, 44,2% não foram encontrados no Sinan. Do total dos óbitos, a maioria foi de homens (72,5%), com 60 ou mais anos de idade (56,6%), ocorridos em hospitais (65,3%) e com assistência (45,8%). Dos 820 óbitos identificados no Sinan, 92% foram multibacilares, 45,2% tinham alta por cura no Sinan e 38,9%, óbito. Foram encontrados óbitos por hanseníase que estão registrados no SIM, mas não foram notificados no Sinan. O relacionamento das bases permitiu identificação de subregistros e inconsistências entre os sistemas.

This study sought to describe the characteristics of deaths with leprosy as the underlying cause recorded in the Mortality Information System (SIM) and compare these characteristics with the groups of cases where the cause of death was reported, or failed to be reported, in the National Case Registration Database (Sinan). Deaths with leprosy as the underlying cause occurring in Brazil in the 2004-2009 period, and cases of leprosy from 1975 to 2010 were included. The probabilistic bases of SIM and Sinan were compared. Of the 1,463 deaths from leprosy recorded in SIM, 44.2% were not recorded in Sinan. Of the total number of deaths, the majority were men (72.5%), aged 60 or older (56.6%), occurring in hospitals (65.3%) and with due care (45.8%). Of the 820 deaths identified in Sinan, 92% were patients with multibacillary disease, 45.2% were discharged as cured by Sinan and 38.9% died. Deaths due to leprosy were found on SIM that were not notified to Sinan. The data base linkage enabled identification of ancillary records and inconsistencies between the systems.