ABSTRACT
The aim of the rheumatology network ADAPTHERA ("risk-adapted rheumatology therapy") is to achieve a comprehensive improvement in rheumatology care by coordinating treatment in a regional, trans-sectoral network. Accompanying biomedical research projects, training concepts, and the construction of a rheumatology register (gathering data and biomaterials) should furthermore ensure the stable and sustainable optimisation of care. In the pilot phase (2012-2015) the focus of the ADAPTHERA network, required as a "regional key project" within the framework of the Initiative on Health Economy of Rheinland-Palatinate (RL-P), Germany, was placed on the optimisation of the early diagnosis of rheumatoid arthritis, where it is well-known that there is a significant care deficit.Through the intensive, stable, and coordinated cooperation of all health care partners in the field of rheumatology (registered general practitioners and orthopaedic specialists, registered core rheumatologists as well as the Association of Rheumatology of RL-P) a unique regional, comprehensive offer with verifiable care optimisation has been established in RL-P. The network is supported by outstanding collaboration with the Association of Statutory Health Insurance Physicians and the self-help organisation Rheumatology League.The aims that were established at the start of the project will be achieved by the end of the pilot phase:- significant improvement in the early diagnosis of rheumatoid arthritis (an average of 23.7 days until diagnosis by rheumatologists)- access covering all health insurance (regardless of the particular scheme the patients belong to)- comprehensive (verifiable participation of general practitioners from all over RL-P)- data and biomaterials collection, established as a basis for biomarker research, and a rheumatology register for RL-P.
Subject(s)
Delivery of Health Care, Integrated/organization & administration , National Health Programs/organization & administration , Regional Medical Programs/organization & administration , Rheumatic Diseases/diagnosis , Rheumatic Diseases/therapy , Rheumatology/organization & administration , Delivery of Health Care/organization & administration , Humans , Models, Organizational , RegistriesABSTRACT
The functionality of a personal electronic health record (EHR) may vary from a simple web-based interface for interactive data entry and data review up to a much more powerful system, additionally supporting electronic data/document communication between clinical information systems of primary care practitioners or hospitals, and even reminder-based support for the empowered citizen to actively take care of his/her health, based on relevant disease management programs. It is a means of supporting patient empowerment. Since storage and communication of data in an EHR involves sensitive personal health data, it is necessary to implement specific security and access management requirements for each of these functions.
Subject(s)
Internet , Medical Records Systems, Computerized , Patient Access to Records , Computer Security , Germany , Humans , Reminder Systems , User-Computer InterfaceABSTRACT
After development of a state of the art electronic health record, which is accessible via the internet and belongs to a patient, who can manage access to it, the methods of introducing it into routine use in the environment of children's oncology is the theme of this paper. The new navigation in an EHR intends a shared use for the patient, relatives, and different HCPs. The laboratory devices were equipped with an HL7-interface to send messages to the HIS. These messages are combined in documents according to the CDA and sent to the EHR. In a similar way referral letters are uploaded directly from the HIS. Several information resources are used to enlighten the patient and help to enable him to become a member of a team for collaborative care. The varying roles of patient and HCPs lead to some very interesting questions, which have to be answered by a following study.