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Int J Palliat Nurs ; 26(5): 230-237, 2020 Jun 02.
Article in English | MEDLINE | ID: mdl-32584687

ABSTRACT

AIM: The authors aimed to evaluate the experiences of the relatives of dying people, both in regard to benefits and special needs, when supported by a mobile palliative care bridging service (MPCBS), which exists to enable dying people to stay at home and to support patients' relatives. DESIGN: A cross-sectional survey. METHODS: A standardised survey was performed, asking 106 relatives of dying people about their experiences with the MPCBS (response rate=47.3%). Descriptive statistics were analysed using SPSS 23. FINDINGS: Many relatives (62.5%) reported that their dying relations when discharged from a facility to stay at home were not symptom-free. The MPCBS helped relatives maintain home care, and this was reported to be helpful. Support provided by the MPCBS made it easier for 77.6% of relatives to adjust care as soon as situations changed, and helped ensure that symptoms could be better controlled, at least for 68.2% of relatives. Younger relatives felt more encouraged by the MPCBS to care for their relatives dying at home.


Subject(s)
Ambulatory Care/organization & administration , Family , Palliative Care/organization & administration , Terminal Care/organization & administration , Adult , Aged , Aged, 80 and over , Attitude to Health , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Surveys and Questionnaires , Young Adult
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