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Soins ; 68(880): 16-17, 2023 Nov.
Article in French | MEDLINE | ID: mdl-37931990

ABSTRACT

Finding information about diseases and their treatment can be useful for healthcare professionals, patients and their families. The Internet has made it easy to find information on rare diseases. However, it is sometimes difficult to select useful and accurate data sources. One of the roles of reference centers and patient associations is to provide appropriate, high-quality information. Another of their aims is to develop therapeutic patient education to improve quality of life.


Subject(s)
Autoimmune Diseases , Skin Diseases, Vesiculobullous , Humans , Quality of Life , Information Sources , Autoimmune Diseases/therapy , Educational Status
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