1.
Soins
; 68(880): 16-17, 2023 Nov.
Article
in French
| MEDLINE
| ID: mdl-37931990
ABSTRACT
Finding information about diseases and their treatment can be useful for healthcare professionals, patients and their families. The Internet has made it easy to find information on rare diseases. However, it is sometimes difficult to select useful and accurate data sources. One of the roles of reference centers and patient associations is to provide appropriate, high-quality information. Another of their aims is to develop therapeutic patient education to improve quality of life.