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1.
Acta Paediatr ; 107(2): 347-353, 2018 Feb.
Article in English | MEDLINE | ID: mdl-29032599

ABSTRACT

AIM: This study examined the reliability, validity and factor structure of the Swedish version of the IMPACT-III questionnaire for assessing health-related quality of life in children with inflammatory bowel disease. METHODS: We recruited 202 participants aged eight to 18 years, who were enrolled from 16 of the 23 paediatric gastroenterology clinics across Sweden during 2010-2013. This cross-sectional study compared two versions of the IMPACT-III questionnaire - one with six factors and 35 items and one with four factors and 19 items - plus the Paediatric Quality of Life Inventory 4.0 Generic Core Scale. Disease activity was assessed and defined as active or inactive. RESULTS: The mean total score for the six-factor IMPACT-III scale was 143.7/175, with a standard deviation (SD) of 17.9. There was a significant difference in mean total scores between the 133 children with inactive disease (147.8, SD: 14.9) and the 52 with active disease (133.0, SD: 20.3). Confirmatory factor analysis showed that the four-factor scale was more robust than the original six-factor scale. Concurrent validity and discriminant validity were high for both versions. CONCLUSION: The Swedish version of the IMPACT-III questionnaire was valid and reliable, but the shorter, four-factor version is quicker and may be more convenient in clinical settings.


Subject(s)
Inflammatory Bowel Diseases , Quality of Life , Surveys and Questionnaires , Adolescent , Child , Cross-Sectional Studies , Female , Health Status , Humans , Male , Reproducibility of Results , Statistics, Nonparametric , Sweden
2.
Acta Paediatr ; 106(2): 282-287, 2017 Feb.
Article in English | MEDLINE | ID: mdl-27859574

ABSTRACT

AIM: There has been a lack of research on adolescents who undergo double-blind placebo-controlled food challenges. The aim of this study was to investigate food allergic adolescents' experiences and consequences of double-blind placebo-controlled food challenges. METHODS: This qualitative, descriptive interview study included 17 adolescents aged 14-15 years with total elimination of cows' milk, hens' eggs or cod due to food allergies. The participants, who were initially identified from a large population-based cohort study, were interviewed 18 months after completing their challenges. RESULTS: The double-blind placebo-controlled food challenge proved to be a complex experience for the adolescents, involving fear of potential reactions and the hope that the food could be reintroduced. Experiences during the challenge were described in three themes: facing fears in a secure environment, being hesitant but curious about unknown tastes and waiting for unknown food reactions. Experiences after the challenge were described in two themes: gaining control and freedom and continuing old habits. A negative challenge was not consistently associated with the reintroduction of the challenged food. CONCLUSION: This study highlighted the importance of considering the adolescents' expectations and experiences of the challenge and the reintroduction process to ensure desirable changes in their dietary habits. Follow-ups should be performed regardless of the outcome of challenges.


Subject(s)
Egg Hypersensitivity/psychology , Milk Hypersensitivity/psychology , Adolescent , Cohort Studies , Diet/psychology , Double-Blind Method , Fear , Female , Humans , Male , Placebo Effect
3.
Pain ; 80(1-2): 143-8, 1999 Mar.
Article in English | MEDLINE | ID: mdl-10204726

ABSTRACT

The aim of the investigation was to assess pain by frequency domain analysis of heart rate variability (HRV) during a routine heel lancing procedure in term new-born infants. Beat-to-beat heart rate (HR) was recorded in 23 healthy new-born infants on the maternity ward during blood sampling for neonatal screening. A sham heel prick prior to the sharp lancing procedure was performed randomly in half of the infants. Spectral analysis of HRV was assessed for each of the following sequences: (1) baseline (2) sham heel prick (3) sharp heel prick and (4) squeezing the heel for blood sampling. The response to the sham prick did not differ significantly from the sharp prick. Compared with the baseline, sharp lancing gave rise to minor increases in HR and variability in the low frequency band of the spectral analysis. A clear stress response was provoked when the heel was squeezed for blood sampling, indicated by an increased HR and a decreased spectral power in the high frequency band (i.e. lower vagal tone). The different stress responses during the lancing and the squeezing of the heel were clearly illustrated when principal component analysis was applied and the vectors for the changes in HR and spectral pattern were indicated. In conclusion, the squeezing of the heel is the most stressful event during the heel prick procedure.


Subject(s)
Blood Specimen Collection , Heart Rate , Heel/innervation , Pain Measurement/methods , Humans , Infant, Newborn , Physical Stimulation , Respiratory Mechanics
4.
Early Hum Dev ; 48(1-2): 131-42, 1997 Apr 25.
Article in English | MEDLINE | ID: mdl-9131314

ABSTRACT

In ten preterm infants (postconceptional age 27-35 weeks) facial expression and heart rate variability (HRV) were investigated during three situations: (a) the infant at rest in its crib or incubator, (b) provocation of the withdrawal flexor reflex by application of von Frey's hairs, and (c) lancing and squeezing for blood sampling. Video recordings of facial expressions, mixed at random, were categorised as the baby being either undisturbed, disturbed or in pain and a detailed scoring for each situation was performed. Mean heart rate (HR) was calculated and power spectral analysis was assessed on data from segments of 45-s duration from the three procedures. Flexor withdrawal did not evoke visual signs of pain or influence HRV, but caused a slight increase in HR. The lancing and squeezing of the heel evoked a facial expression of pain in all infants. The HR increased and a reduction in both total HRV and power in the low frequency band of the HRV spectrum was seen during blood sampling. The differentiation between painful and non-painful procedures was more apparent when principal component analysis of HRV was applied.


Subject(s)
Facial Expression , Heart Rate , Infant, Premature , Pain Measurement , Pain/physiopathology , Acute Disease , Blood Specimen Collection , Gestational Age , Humans , Infant, Newborn
5.
Midwifery ; 26(4): 463-8, 2010 Aug.
Article in English | MEDLINE | ID: mdl-19084301

ABSTRACT

OBJECTIVE: postnatal care has gone through remarkable changes, such as reducing the length of hospital stay and increasing the parents' responsibility. Focusing on dissatisfaction, this study describes how new parents experience postpartum care. DESIGN: cross-sectional, population-based study, based on questionnaires. PARTICIPANTS: 1474 parents. MEASUREMENTS AND FINDINGS: the questionnaires, posted six months after childbirth, addressed how parents experienced postnatal care. The data were analysed with descriptive statistics and content analysis. KEY CONCLUSIONS: a main finding was that the close emotional attachment between the parents was not always supported by staff. The father was treated as an outsider and the care was described as 'a woman's world'. The asymmetric encounter between parents and staff was pronounced with respect to decision-making, and some designated this as 'paternalism'. A great deal of the discontent with health care may be due to organisational failure, and the postnatal care should be more prioritised in the health-care organisation. IMPLICATIONS FOR PRACTICE: midwives should acknowledge that parents, irrespective of gender, should have equal opportunities as parents during postpartum care as parenting is a joint project.


Subject(s)
Parents/psychology , Patient Satisfaction/statistics & numerical data , Postnatal Care/statistics & numerical data , Postpartum Period/psychology , Professional-Patient Relations , Adult , Anecdotes as Topic , Attitude of Health Personnel , Communication , Cross-Sectional Studies , Delivery Rooms , Female , Humans , Male , Nursing Methodology Research , Postnatal Care/psychology , Surveys and Questionnaires , Sweden/epidemiology , Young Adult
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