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1.
Nature ; 600(7890): 695-700, 2021 12.
Article in English | MEDLINE | ID: mdl-34880504

ABSTRACT

Surveys are a crucial tool for understanding public opinion and behaviour, and their accuracy depends on maintaining statistical representativeness of their target populations by minimizing biases from all sources. Increasing data size shrinks confidence intervals but magnifies the effect of survey bias: an instance of the Big Data Paradox1. Here we demonstrate this paradox in estimates of first-dose COVID-19 vaccine uptake in US adults from 9 January to 19 May 2021 from two large surveys: Delphi-Facebook2,3 (about 250,000 responses per week) and Census Household Pulse4 (about 75,000 every two weeks). In May 2021, Delphi-Facebook overestimated uptake by 17 percentage points (14-20 percentage points with 5% benchmark imprecision) and Census Household Pulse by 14 (11-17 percentage points with 5% benchmark imprecision), compared to a retroactively updated benchmark the Centers for Disease Control and Prevention published on 26 May 2021. Moreover, their large sample sizes led to miniscule margins of error on the incorrect estimates. By contrast, an Axios-Ipsos online panel5 with about 1,000 responses per week following survey research best practices6 provided reliable estimates and uncertainty quantification. We decompose observed error using a recent analytic framework1 to explain the inaccuracy in the three surveys. We then analyse the implications for vaccine hesitancy and willingness. We show how a survey of 250,000 respondents can produce an estimate of the population mean that is no more accurate than an estimate from a simple random sample of size 10. Our central message is that data quality matters more than data quantity, and that compensating the former with the latter is a mathematically provable losing proposition.


Subject(s)
COVID-19 Vaccines/administration & dosage , Health Care Surveys , Vaccination/statistics & numerical data , Benchmarking , Bias , Big Data , COVID-19/epidemiology , COVID-19/prevention & control , Centers for Disease Control and Prevention, U.S. , Datasets as Topic/standards , Female , Health Care Surveys/standards , Humans , Male , Research Design , Sample Size , Social Media , United States/epidemiology , Vaccination Hesitancy/statistics & numerical data
2.
Am J Public Health ; 111(12): 2141-2148, 2021 12.
Article in English | MEDLINE | ID: mdl-34878878

ABSTRACT

While underscoring the need for timely, nationally representative data in ambulatory, hospital, and long-term-care settings, the COVID-19 pandemic posed many challenges to traditional methods and mechanisms of data collection. To continue generating data from health care and long-term-care providers and establishments in the midst of the COVID-19 pandemic, the National Center for Health Statistics had to modify survey operations for several of its provider-based National Health Care Surveys, including quickly adding survey questions that captured the experiences of providing care during the pandemic. With the aim of providing information that may be useful to other health care data collection systems, this article presents some key challenges that affected data collection activities for these national provider surveys, as well as the measures taken to minimize the disruption in data collection and to optimize the likelihood of disseminating quality data in a timely manner. (Am J Public Health. 2021;111(12):2141-2148. https://doi.org/10.2105/AJPH.2021.306514).


Subject(s)
COVID-19/epidemiology , Health Care Surveys/methods , Ambulatory Care/organization & administration , Data Collection/methods , Data Collection/standards , Electronic Health Records/organization & administration , Health Care Surveys/standards , Hospitalization , Humans , Long-Term Care/organization & administration , Pandemics , SARS-CoV-2 , Time Factors , United States/epidemiology
3.
Arch Orthop Trauma Surg ; 141(6): 947-957, 2021 Jun.
Article in English | MEDLINE | ID: mdl-32785761

ABSTRACT

INTRODUCTION: Administering patient-reported outcome measures (PROMs) by text message may improve response rate in hard-to-reach populations. This study explored cultural acceptability of PROMs and compared measurement equivalence of the EQ-5D-3L administered on paper and by text message in a rural South African setting. MATERIALS AND METHODS: Participants with upper or lower limb orthopaedic pathology were recruited. The EQ-5D was administered first on paper and then by text message after 24 h and 7 days. Differences in mean scores for paper and text message versions of the EQ-5D were evaluated. Test-retest reliability between text message versions was evaluated using Intraclass Correlation Coefficients (ICCs). RESULTS: 147 participants completed a paper EQ-5D. Response rates were 67% at 24 h and 58% at 7 days. There were no differences in means between paper and text message responses for the EQ-5D Index (p = 0.95) or EQ-5D VAS (p = 0.26). There was acceptable agreement between the paper and 24-h text message EQ-5D Index (0.84; 95% Confidence Interval (CI) 0.78-0.89) and EQ-5D VAS (0.73; 95% CI 0.64-0.82) and acceptable agreement between the 24-h and 7-day text message EQ-Index (0.72; CI 0.62-0.82) and EQ-VAS (0.72; CI 0.62-0.82). Non-responder traits were increasing age, Xhosa as first language and lower educational levels. CONCLUSIONS: Text messaging is equivalent to paper-based measurement of EQ-5D in this setting and is thus a viable tool for responders. Non-responders had similar socioeconomic characteristics and attrition rates to traditional modes of administration. The EQ-5D by text message offers potential clinical and research uses in hard-to-reach populations.


Subject(s)
Health Care Surveys , Text Messaging , Health Care Surveys/methods , Health Care Surveys/standards , Humans , Patient Reported Outcome Measures , Reproducibility of Results , Rural Population , South Africa
4.
Med Care ; 58(9): 842-849, 2020 09.
Article in English | MEDLINE | ID: mdl-32826749

ABSTRACT

BACKGROUND: The CAregiver Perceptions About CommunIcaTion with Clinical Team members (CAPACITY) instrument measures how care partners perceive themselves to be supported by the patient's health care team and their experiences communicating with the team. OBJECTIVES: The objective of this study was to assess the measurement properties (ie, structural validity of the construct and internal consistency) of the CAPACITY instrument in care partners of patients with cognitive impairment, and to examine whether care partner health literacy and patient cognitive impairment are associated with a higher or lower CAPACITY score. RESEARCH DESIGN: This was a retrospective cohort study. SUBJECTS: A total of 1746 dyads of community-dwelling care partners and older adults in the United States with cognitive impairment who obtained an amyloid positron emission tomography scan. MEASURES: The CAPACITY instrument comprises 12 items that can be combined as a total score or examined as subdomain scores about communication with the team and care partner capacity-assessment by the team. The 2 covariates of primary interest in the regression model are health literacy and level of cognitive impairment of the patient (Modified Telephone Interview Cognitive Status). RESULTS: Confirmatory factor analysis showed the CAPACITY items fit the expected 2-factor structure (communication and capacity). Higher cognitive functioning of patients and higher health literacy among care partners was associated with lower communication domain scores, lower capacity domain scores, and lower overall CAPACITY scores. CONCLUSIONS: The strong psychometric validity of the CAPACITY measure indicates it could have utility in other family caregivers or care partner studies assessing the quality of interactions with clinical teams. Knowing that CAPACITY differs by care partner health literacy and patient impairment level may help health care teams employ tailored strategies to achieve high-quality care partner interactions.


Subject(s)
Caregivers/psychology , Cognitive Dysfunction/epidemiology , Communication , Health Care Surveys/standards , Health Literacy/statistics & numerical data , Patient Care Team/organization & administration , Age Factors , Aged , Aged, 80 and over , Factor Analysis, Statistical , Female , Health Status , Humans , Male , Psychometrics , Reproducibility of Results , Retrospective Studies , Severity of Illness Index , Sex Factors , Socioeconomic Factors
5.
J Nurs Adm ; 50(4): 216-224, 2020 Apr.
Article in English | MEDLINE | ID: mdl-32195914

ABSTRACT

Given the implications of value-based reimbursement, nurse leaders must thoughtfully assimilate an extraordinary amount of quality, safety, and patient experience data to effectively drive behavioral change. This article proposes Swanson Caring Theory (SCT) as context for Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS) improvement strategies. The diagnostic model described herein is not intended to encompass the full scope of nursing care, but rather to help nurse leaders interpret HCAHPS results in terms of the SCT attributes of compassion, competence, and patient well-being.


Subject(s)
Health Care Surveys/standards , Nurse Administrators/standards , Nursing Theory , Patient Care , Patient Satisfaction , Quality Improvement , Health Personnel/standards , Health Personnel/statistics & numerical data , Humans
6.
Int J Health Plann Manage ; 35(2): 614-624, 2020 Mar.
Article in English | MEDLINE | ID: mdl-31747715

ABSTRACT

BACKGROUND: Differential item functioning (DIF) means the interference of some demographic characteristic or grouping of the tight relationship between trait levels. DIF threatens precise interpretations of survey results and makes them unreliable. The aim of this study was to examine whether the succinct version of Taiwan Patient Safety Culture (TPSC-S) survey is free from DIF and to mitigate its impact if needed. METHODS: The TPSC-S survey results of 2964 respondents in a public hospital in Taiwan were analyzed. The existence, type, and effect size of DIF were examined for each TPSC-S item using a proportional-odds logistic regression method between characteristic groups, including gender, work experience, job types, management roles, employment status, and safety reporting experiences. RESULTS: The study results revealed that several items of TPSC-S showed statistically significant DIF between characteristic groups. Nevertheless, the magnitude of these DIF was small, and their influence to TPSC-S survey was not significant. The domain-level DIF impact was completely insignificant for all characteristic groups. CONCLUSION: This study revealed that the 24-item TPSC-S survey was free from DIF in six characteristic groups. The difference in survey scores between groups stems from the real difference that hospital safety managers want to measure.


Subject(s)
Health Care Surveys/standards , Patient Safety , Safety Management , Female , Humans , Male , Taiwan
7.
Fam Process ; 59(4): 1789-1800, 2020 12.
Article in English | MEDLINE | ID: mdl-31562834

ABSTRACT

SCORE-15 (Systemic Clinical Outcome and Routine Evaluation) is a 15-item questionnaire for completion by family members aged 12 years and older to assess outcomes in systemic therapy. This study aimed to investigate (a) the psychometric properties and the internal consistency reliability of the Italian version of SCORE-15, (b) clinical responsiveness, and (c) normative (Italian) criteria. Furthermore, (d) the study sought to evaluate the participants' representation of both their family and their problems, analyzing open-ended questions included in the SCORE-15. Data were collected from two clinical centers for 208 families (n = 507). Results confirmed the three-factor structure (i.e., strengths, difficulties, and communication), a good internal consistency reliability, and indicated a cutoff threshold for the Italian version. Furthermore, results showed that SCORE-15 is a good instrument for clinical responsiveness and that it can be used to explore the way in which family members describe their families and problems. Overall, SCORE-15 is a brief, psychometrically robust family assessment instrument that may be used for both researchers and practitioners in several domains of clinical and social psychology.


El SCORE-15 (Evaluación de Rutina y Resultados Clínicos de la Terapia Sistémica) es un cuestionario de 15 preguntas para que lo contesten los miembros de la familia mayores de 12 años a fin de evaluar los resultados de la terapia sistémica. Este estudio tuvo como fin investigar a) las propiedades psicométricas y la consistencia interna fiabilidad de la versión italiana del SCORE-15, b) el grado de respuesta clínica y c) los criterios normativos (italianos). Además, (d) el estudio se propuso evaluar la representación de los participantes de su familia y sus problemas, analizando preguntas abiertas incluidas en el SCORE-15. Se recopilaron datos de dos centros clínicos para 208 familias (n = 507). Los resultados confirmaron la estructura de tres factores (p. ej.: puntos fuertes, dificultades y comunicación), una buena consistencia interna fiabilidad y indicaron un tope para la versión italiana. Además, los resultados demostraron que el SCORE-15 es un buen instrumento para evaluar el grado de respuesta clínica y que puede utilizarse para analizar la forma en la que los familiares describen a sus familias y a sus problemas. En general, el SCORE-15 es un instrumento de evaluación familiar breve y psicométricamente sólido que puede utilizarse tanto para los investigadores como para los profesionales en varias áreas de la psicología clínica y social.


Subject(s)
Family Therapy , Health Care Surveys/standards , Outcome Assessment, Health Care/standards , Surveys and Questionnaires/standards , Adolescent , Adult , Child , Factor Analysis, Statistical , Female , Humans , Italy , Male , Psychometrics , Reproducibility of Results , Translations , Young Adult
8.
Med Care ; 57(10): 830-835, 2019 10.
Article in English | MEDLINE | ID: mdl-31453892

ABSTRACT

BACKGROUND: The Medicare Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey includes items about chronic conditions, health history, and self-rated health. Questions remain about the concordance between patient reports and administrative sources on questions related to health history. OBJECTIVE: To validate CAHPS measures of chronic conditions against claims-based measures from the Medicare Chronic Conditions Warehouse (CCW). METHODS: We linked CAHPS responses from 301,050 fee-for-service Medicare beneficiaries in 2010-2012 with summaries of their claims in the CCW and identified nearest equivalent measures of conditions across sources. We calculated sensitivities and specificities for conditions and estimated regression models to assess the effects of patient characteristics on the sensitivity. RESULTS: The sensitivity of CAHPS measures differed across conditions, ranging from 0.513 for history of stroke to 0.773 for history of cancer. Sensitivity was generally lower for older beneficiaries, those reporting good self-rated health, and those with fair or poor mental health. Specificity was 0.904 or greater for all conditions, up to 0.961 for stroke. CONCLUSIONS: Despite difference in timeframes and definitions of conditions, the measured sensitivities demonstrated reasonable validity. Variation in sensitivity is consistent with covariates that either directly measure health severity within a diagnosis or can be construed as a proxy for severity of illness.


Subject(s)
Chronic Disease , Health Care Surveys/standards , Insurance Benefits/statistics & numerical data , Medicare/statistics & numerical data , Outcome and Process Assessment, Health Care/standards , Quality of Health Care/statistics & numerical data , Aged , Aged, 80 and over , Fee-for-Service Plans/statistics & numerical data , Female , Humans , Male , Reproducibility of Results , United States
9.
Med Care ; 57(12): e80-e86, 2019 12.
Article in English | MEDLINE | ID: mdl-31107400

ABSTRACT

BACKGROUND: Patient experience data can be collected by sampling patients periodically (eg, patients with any visits over a 1-year period) or sampling visits continuously (eg, sampling any visit in a monthly interval). Continuous sampling likely yields a sample with more frequent and more recent visits, possibly affecting the comparability of data collected under the 2 approaches. OBJECTIVE: To explore differences in Consumer Assessment of Healthcare Providers and Systems Clinician and Group survey (CG-CAHPS) scores using periodic and continuous sampling. RESEARCH DESIGN: We use observational data to estimate case-mix-adjusted differences in patient experience scores under 12-month periodic sampling and simulated continuous sampling. SUBJECTS: A total of 29,254 adult patients responding to the CG-CAHPS survey regarding visits in the past 12 months to any of 480 physicians, 2007-2009. MEASURES: Overall doctor rating and 4 CG-CAHPS composite measures of patient experience: doctor communication, access to care, care coordination, and office staff. RESULTS: Compared with 12-month periodic sampling, simulated continuous sampling yielded patients with more recent visits (by definition), more frequent visits (92% of patients with 2+ visits, compared with 76%), and more positive case-mix-adjusted CAHPS scores (2-3 percentage points higher). CONCLUSIONS: Patients with more frequent visits reported markedly higher CG-CAHPS scores, but this causes only small to moderate changes in adjusted physician-level scores between 12-month periodic and continuous sampling schemes. Caution should be exercised in trending or comparing scores collected through different schemes.


Subject(s)
Health Care Surveys/methods , Health Personnel/organization & administration , Patient Satisfaction , Adolescent , Adult , Aged , Aged, 80 and over , Data Collection , Female , Health Care Surveys/standards , Health Personnel/standards , Humans , Longitudinal Studies , Male , Middle Aged , Physician-Patient Relations , Reproducibility of Results , Young Adult
10.
BMC Health Serv Res ; 19(1): 836, 2019 Nov 14.
Article in English | MEDLINE | ID: mdl-31727062

ABSTRACT

BACKGROUND: The objectives of this study are to test the psychometric properties of the safety attitudes and safety climate questionnaire Chinese simplified version (SAQ-CS), to test the safety attitudes of health professionals in tertiary hospitals in the Liaoning province and to explore the effects of demographic factors on safety attitudes. METHODS: The SAQ-CS was used to conduct a cross-sectional survey in nine tertiary hospitals in Liaoning province. RESULTS: Cronbach's alpha of each subscale of SAQ-CS were > 0.7, the values of GFI, TLI, and CFI were > 0.8, and RMSEA values ranged from 0.048-0.199. The mean of the safety attitudes of 2157 health professionals was 4.00, indicating a good safety attitude, with a positive response rate (% of items that scored ≥4) of 51.1%. The stress recognition subscale had the lowest score, with a mean of 2.73 and a positive response rate of 17.8%. A multiple linear regression equation revealed that demographic factors like gender, age, and training participation significantly affected the scores (ßgender > 0.06, ßage < - 0.08, ßtraining < - 0.07, p < 0.05). CONCLUSIONS: The psychometric properties of SAQ-CS are good and stable. Health professionals rate teamwork climate, safety climate, perception of management, and work conditions in Liaoning province are perceived as good; however, the stress of the health professionals is poor. To improve safety attitudes, it is necessary to not only reduce the stress of health professionals, but also to pay more attention to men, older health professionals, and health professionals who have not participated in safety training.


Subject(s)
Attitude of Health Personnel , Hospitals/statistics & numerical data , Organizational Culture , Patient Safety/statistics & numerical data , Safety Management/organization & administration , Surveys and Questionnaires/standards , Health Care Surveys/standards , Humans , Psychometrics
11.
J Hum Nutr Diet ; 32(4): 535-546, 2019 08.
Article in English | MEDLINE | ID: mdl-30972816

ABSTRACT

BACKGROUND: The lack of a valid instrument to measure patient-centred care (PCC) in dietetic practice makes it challenging to evaluate how patient-centred dietitians are. The present study aimed to develop and psychometrically test a dietitian-reported inventory to measure PCC in dietetic practice. METHODS: The inventory was compiled based on a literature review of existing validated scales that measured the dimensions of PCC. Next, the inventory was distributed as a cross-sectional survey to 180 Australian Accredited Practicing Dietitians who worked in primary care. Exploratory factor analysis was performed using principal factor analysis with Promax rotation. Cronbach's alpha (criteria ≥0.80), inter-item correlations and corrected item-total correlations (criteria 0.30-0.70) were computed to evaluate the internal consistency of each scale. RESULTS: Five factors were extracted accounting for 56.9% of the variance. Most variables had strong loadings on only one factor. Factors were labelled as: shared decision-making; holistic and individualised care; patient-dietitian communication; knowing the patient; and caring patient-dietitian relationships. Cronbach's alpha was 0.94 for the total inventory and ranged from 0.73 to 0.91 for the individual factors. Inter-item correlations and corrected item-total correlations mostly fell in the desired range. CONCLUSIONS: The present study offers a preliminary, conceptually grounded dietitian-reported inventory, which is the first instrument developed and tested to measure PCC in dietetic practice. These findings illustrate the underlying factor structure of the inventory and support the reliability of the scales. With further testing, this inventory may provide useful to clinicians and researchers working to better understand and improve dietetic practice.


Subject(s)
Health Care Surveys/standards , Nutritionists/standards , Patient Acceptance of Health Care/statistics & numerical data , Patient Satisfaction/statistics & numerical data , Patient-Centered Care/standards , Adult , Australia , Cross-Sectional Studies , Dietetics/methods , Dietetics/standards , Factor Analysis, Statistical , Female , Health Care Surveys/methods , Humans , Male , Middle Aged , Patient Acceptance of Health Care/psychology , Primary Health Care/methods , Primary Health Care/standards , Psychometrics , Reproducibility of Results
12.
Am J Community Psychol ; 64(3-4): 481-493, 2019 12.
Article in English | MEDLINE | ID: mdl-31532011

ABSTRACT

The Vicarious Trauma Organizational Readiness Guide (VT-ORG) is an assessment of an organization's readiness to address vicarious trauma (VT), which is exposure to the traumatic experiences of people served. This study reports on the psychometric properties of the VT-ORG. Employees of first responder agencies (e.g., law enforcement, fire, emergency services) and victim assistance agencies are at a high risk for vicarious traumatization, which can lead to PTSD, substance use, and suicidal ideation, among other negative impacts. Organizations that do not address VT may see such effects as employee turnover, reduced efficiency, and negative work environments. The VT-ORG is an assessment tool designed to help organizations complete the first step of organizational change-conducting a needs assessment. Study participants were 3,018 employees across 13 first responder and victim assistance agencies who completed the 67-item VT-ORG and additional measures for evaluation of its validity and reliability. The VT-ORG was found to have excellent internal consistency (Cronbach's α = .98). A structural equation model demonstrated that the subscales of the VT-ORG predicted criterion measures of turnover intention, compassion satisfaction, and organizational resilience, with an overall model fit of CFI = .99, RMSEA = .053. This study found the VT-ORG to be a reliable and valid assessment of organizational responses to vicarious trauma.


Subject(s)
Community Health Services , Compassion Fatigue/prevention & control , Wounds and Injuries/psychology , Adult , Emergency Responders/psychology , Factor Analysis, Statistical , Female , Health Care Surveys/standards , Humans , Male , Middle Aged , Organizational Innovation , Psychometrics , Reproducibility of Results
13.
J Interprof Care ; 33(5): 558-569, 2019.
Article in English | MEDLINE | ID: mdl-30557065

ABSTRACT

Increasing prevalence of chronic conditions and multimorbidity challenges health care systems and calls for patient-centered coordination of care. Implementation and evaluation of health policies focusing on the development of patient-centered coordination of care needs valid instruments measuring this dimension of care. The aim of this validation study was to assess the psychometric properties of the French version of the 14-item Patient-Centered Coordination by a Care Team (PCCCT) questionnaire in a primary care setting. PCCCT provides a total score from 0 (worst coordination) to 42 (best coordination). 165 adult patients consulting in primary care with one or more chronic condition(s) completed questionnaires (including PCCCT) at recruitment. After three weeks, participants completed PCCCT again, either by mail (group A) or during a telephone interview (group B). At recruitment, the mean (SD) PCCCT score was 33.3 (7.7). Exploratory factor analysis revealed a 2-dimension structure, 8 items relating to patient involvement and 6 items relating to coordination (factors loadings ranging from 0.34 to 0.88). PCCCT score correlated significantly with subscales of Haggerty's continuity questionnaire, Spearman correlation coefficients (95% confidence interval) ranging from 0.40 (0.22-0.57) to 0.52 (0.38-0.63). Internal consistency was excellent: Cronbach alpha 0.90 (0.79-0.92). Reliability was good, with an intraclass correlation coefficient of 0.68 (0.55-0.78) for test-retest reliability (group A) and of 0.65 (0.46-0.79) for reliability between the self-administered and the interviewer-administered versions of the questionnaire (group B,). The PCCCT questionnaire presents satisfactory validity and reliability; it can be used for the evaluation of health organizations involving team work in primary care.


Subject(s)
Health Care Surveys/standards , Patient Care Team , Patient-Centered Care/organization & administration , Adult , Aged , Chronic Disease , Cross-Sectional Studies , Female , Humans , Interprofessional Relations , Male , Middle Aged , Primary Health Care , Psychometrics , Reproducibility of Results
14.
Health Econ ; 27(3): e43-e58, 2018 03.
Article in English | MEDLINE | ID: mdl-29098741

ABSTRACT

Long-term care services are provided to help people manage the consequences of impairment, but their impact goes beyond the meeting of basic needs. Accordingly, the main aim was to explore the marginal effectiveness of care when measured in terms of people's overall care-related quality of life (CRQoL) and assess changes in marginal effect for increasing intensity. The associated aim was to refine and apply an observational method to estimate marginal effectiveness. A "production function" approach was used with survey data, including Adult Social Care Outcomes Toolkit-measured CRQoL, whereby we statistically modelled the expected relationship between service utilisation rates and CRQoL. This method seeks to limit endogeneity issues by controlling on observables and using instrumental variable. Using a survey of publicly funded long-term care service users in England, we found that community-based long-term care significantly improved people's CRQoL but with diminishing marginal effects and effects differentiated by baseline impairment levels. There are implications for how the care system should respond to changes in global public budgets. For example, where there is unmet need, a system aimed to maximise (unadjusted) CRQoL would put more emphasis on access (more recipients) than intensity of support compared to a system operating on a needs basis.


Subject(s)
Long-Term Care/organization & administration , Quality of Life , State Medicine/organization & administration , Adult , Age Factors , Aged , Aged, 80 and over , Cost-Benefit Analysis , England , Female , Health Care Surveys/standards , Health Status , Humans , Long-Term Care/economics , Male , Middle Aged , Models, Economic , Needs Assessment , Severity of Illness Index , Sex Factors , Socioeconomic Factors , State Medicine/economics
15.
Palliat Med ; 32(4): 804-814, 2018 04.
Article in English | MEDLINE | ID: mdl-29130380

ABSTRACT

BACKGROUND: The perspectives of patients and relatives are important in the improvement of the quality of health care. However, the quality of end-of-life care has not been systematically evaluated in Scandinavia. AIM: To develop or adapt and subsequently validate a questionnaire assessing the quality of end-of-life care in Denmark. The questionnaire was intended for bereaved relatives in order to assess the quality of care in the last 3 months of the patient's life and the circumstances surrounding death. DESIGN AND DATA SOURCES: Based on the literature and interviews with 15 bereaved relatives and 17 healthcare professionals, relevant topics to include in a questionnaire were identified. The topics were prioritized by 100 bereaved relatives and subsequently compared to existing questionnaires. The chosen questionnaire was tested by cognitive interviews with 36 bereaved relatives. RESULTS: Most of the important topics were covered by the Views of Informal Carers' Evaluation of Services-Short Form, but not all Danish settings (e.g. home care by a palliative team) were covered. These settings were added to the Views of Informal Carers' Evaluation of Services-Short Form, and a few adaptations were made before a Danish version of the Views of Informal Carers' Evaluation of Services-Short Form was tested by cognitive interviews. This cultural validation showed that the slightly adapted Danish version was perceived as relevant, understandable, and acceptable. Furthermore, the cognitive interviews gave insight in the comprehension and interpretation of Views of Informal Carers' Evaluation of Services-Short Form items. CONCLUSION: With a few adaptations, the British Views of Informal Carers' Evaluation of Services-Short Form was relevant in a Danish setting.


Subject(s)
Culture , Health Care Surveys/standards , Quality of Health Care , Terminal Care/standards , Adult , Aged , Denmark , Female , Humans , Interviews as Topic , Male , Middle Aged , Palliative Care , Qualitative Research
16.
Article in English | MEDLINE | ID: mdl-27774664

ABSTRACT

Neuro-oncological patients experience high symptom and psychosocial burden. The aim was to test feasibility and practicability of the Supportive Care Needs Survey Short Form (SCNS-SF34-G) and the SCNS-Screening Tool (SCNS-ST9) to assess supportive care needs of neuro-oncological patients in clinical routine. A total of 173 patients, most with a primary diagnosis of high-grade glioma (81%), were assessed first using SCNS-SF34-G in comparison to two well-established patient-reported outcome measures, the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQC30 + QLQ-BN20) and Distress Thermometer (DT). In a follow-up assessment, SCNS-ST9 was used in a subgroup (n = 90). Questionnaires were completed either with personal guidance offered (group A) or by patients alone (group B). Feasibility was compared between instruments and groups for possible associations with patient and treatment-related factors. Missing values occurred in similar frequencies in all instruments. Errors in completion occurred in SCNS-SF34-G in 20% and in SCNS-ST9 in 16%; difficulties in completion were observed more often in SCNS-SF34-G and SCNS-ST9 (39%) compared to DT and EORTC (13%, p < .001). Distress was found to be associated with difficulties in completion of SCNS (OR 1.4, [95% CI 1.1-1.9], p = .013). SCNS-SF34 and SCNS-ST9 are suitable tools for glioma patients as long as personal guidance is offered.


Subject(s)
Brain Neoplasms/psychology , Glioma/psychology , Health Care Surveys/methods , Health Services Needs and Demand , Needs Assessment , Social Support , Adult , Aged , Feasibility Studies , Female , Health Care Surveys/standards , Humans , Male , Middle Aged , Psychometrics , Young Adult
17.
Int J Qual Health Care ; 30(9): 660-677, 2018 Nov 01.
Article in English | MEDLINE | ID: mdl-29788273

ABSTRACT

PURPOSE: To learn the weaknesses and strengths of safety culture as expressed by the dimensions measured by the Hospital Survey on Patient Safety Culture (HSOPSC) at hospitals in the various cultural contexts. The aim of this study was to identify studies that have used the HSOPSC to collect data on safety culture at hospitals; to survey their findings in the safety culture dimensions and possible contributions to improving the quality and safety of hospital care. DATA SOURCES: Medline (via PubMed), Web of Science and Scopus were searched from 2005 to July 2016 in English, Portuguese and Spanish. STUDY SELECTION: Studies were identified using specific search terms and inclusion criteria. A total of 33 articles, reporting on 21 countries, was included. DATA EXTRACTION: Scores were extracted by patient safety culture dimensions assessed by the HSOPSC. The quality of the studies was evaluated by the STROBE Statement. RESULTS: The dimensions that proved strongest were 'Teamwork within units' and 'Organisational learning-continuous improvement'. Particularly weak dimensions were 'Non-punitive response to error', 'Staffing', 'Handoffs and transitions' and 'Teamwork across units'. CONCLUSION: The studies revealed a predominance of hospital organisational cultures that were underdeveloped or weak as regards patient safety. For them to be effective, safety culture evaluation should be tied to strategies designed to develop safety culture hospital-wide.


Subject(s)
Health Care Surveys/standards , Patient Safety/standards , Safety Management , Hospital Administration , Humans
18.
Int J Qual Health Care ; 30(10): 743-750, 2018 Dec 01.
Article in English | MEDLINE | ID: mdl-29733366

ABSTRACT

PURPOSE: The Patient Assessment of Chronic Illness Care (PACIC) was created to assess whether provided care is congruent with the Chronic Care Model, according to patients. We aimed to identify all studies using the PACIC in diabetic patients to explore (i) how overall PACIC scores varied across studies and (ii) whether scores varied according to healthcare delivery, patient and instrument characteristics. DATA SOURCES: MEDLINE, Embase, PsycINFO, CINAHL and PubMed Central (PMC), from 2005 to 2016. STUDY SELECTION: Studies of any design using the PACIC in diabetic patients. DATA EXTRACTION AND SYNTHESIS: We extracted data on healthcare delivery, patient, and instrument characteristics, and overall PACIC score and standard deviation. We performed random-effects meta-analyses and meta-regressions. RESULTS: We identified 34 studies including 25 942 patients from 13 countries, mostly in North America and Europe, using different versions of the PACIC in 11 languages. The overall PACIC score fluctuated between 1.7 and 4.2, with a pooled score of 3.0 (95% confidence interval 2.8-3.2, 95% predictive interval 1.9-4.2), with very high heterogeneity (I2 = 99%). The PACIC variance was not explained by healthcare delivery or patient characteristics, but by the number of points on the response scale (5 vs. 11) and the continent (Asia vs. others). CONCLUSION: The PACIC is a widely used instrument, but the direct comparison of PACIC scores between studies should be performed with caution as studies may employ different versions and the influence of cultural norms and language on the PACIC score remains unknown.


Subject(s)
Diabetes Mellitus/therapy , Health Care Surveys/standards , Quality of Health Care , Chronic Disease/therapy , Humans , Language , Patient Satisfaction
19.
Int J Qual Health Care ; 30(4): 291-297, 2018 May 01.
Article in English | MEDLINE | ID: mdl-29432554

ABSTRACT

OBJECTIVE: To translate and assess the validity and reliability of the original American Care Transitions Measure, both the 15-item and the shortened 3-item versions, in a sample of people in transition from hospital to home within Sweden. DESIGN: Translation of survey items, evaluation of psychometric properties. SETTING: Ten surgical and medical wards at five hospitals in Sweden. PARTICIPANTS: Patients discharged from surgical and medical wards. MAIN OUTCOME MEASURE: Psychometric properties of the Swedish versions of the 15-item (CTM-15) and the 3-item (CTM-3) Care Transition Measure. RESULTS: We compared the fit of nine models among a sample of 194 Swedish patients. Cronbach's alpha was 0.946 for CTM-15 and 0.74 for CTM-3. The model indices for CTM-15 and CTM-3 were strongly indicative of inferior goodness-of-fit between the hypothesized one-factor model and the sample data. A multidimensional three-factor model revealed a better fit compared with CTM-15 and CTM-3 one factor models. The one-factor solution, representing 4 items (CTM-4), showed an acceptable fit of the data, and was far superior to the one-factor CTM-15 and CTM-3 and the three-factor multidimensional models. The Cronbach's alpha for CTM-4 was 0.85. CONCLUSIONS: CTM-15 with multidimensional three-factor model was a better model than both CTM-15 and CTM-3 one-factor models. CTM-4 is a valid and reliable measure of care transfer among patients in medical and surgical wards in Sweden. It seems the Swedish CTM is best represented by the short Swedish version (CTM-4) unidimensional construct.


Subject(s)
Health Care Surveys/standards , Patient Transfer/standards , Psychometrics , Adult , Aged , Aged, 80 and over , Female , Hospitals/statistics & numerical data , Humans , Male , Middle Aged , Patient Discharge , Sweden , Translating
20.
J Adv Nurs ; 74(12): 2922-2934, 2018 Dec.
Article in English | MEDLINE | ID: mdl-30168620

ABSTRACT

AIM: Develop and test the validity and reliability of MISSCARE Survey-Ped adapted from previous versions of the MISSCARE Survey, which measures omitted nursing activities and the reasons why they were left undone. Our secondary aim was to pre-test the construct validity using Exploratory Factor Analysis (EFA). BACKGROUND: Missed Nursing Care is described as "every care activity necessary for the patient that is not provided or is seriously delayed". Missed Care is correlated with negative patient outcomes, such as mortality and adverse events. DESIGN: A mixed-mode cross-sectional survey. METHODS: Participants included registered pediatric nurses and nurses working in pediatric wards. This study was conducted between June and September 2017 and consisted of four phases: (a) analysis of existing surveys and item construction; (b) content and face validity; (c) reliability analysis (acceptability for ease of use, Cronbach's alpha for internal consistency and test-retest to measure stability); and (d) construct validity (EFA). RESULTS: The MISSCARE Survey-Ped consists of two sections: Section A "Missed Nursing Care Activities" (29 items) and Section B "Reasons for Missed Nursing Care Activities" (17 items). The new survey showed good validity properties and effectively identified Missed Nursing Care activities in pediatric settings. CONCLUSION: The development and validation of the MISSCARE Survey-Ped made it possible to conduct an objective and standardized study of missed nursing care activities in the field of pediatrics. This new survey offers the opportunity to collect data that enable to design and implement interventions that improve the quality and safety of pediatric nursing.


Subject(s)
Health Care Surveys/standards , Nursing Care/standards , Pediatric Nursing/standards , Quality of Health Care , Child , Cross-Sectional Studies , Female , Humans , Male , Reproducibility of Results
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