Detalles de la búsqueda
1.
Patients' unmet needs and treatment preferences concerning digital ulcers in systemic sclerosis.
Rheumatology (Oxford)
; 2024 03 02.
Artículo
en Inglés
| MEDLINE | ID: mdl-38430476
2.
ERN ReCONNET points to consider for treating patients living with autoimmune rheumatic diseases with antiviral therapies and anti-SARS-CoV-2 antibody products.
Clin Exp Rheumatol
; 41(3): 543-553, 2023 Mar.
Artículo
en Inglés
| MEDLINE | ID: mdl-36916322
3.
Sjögren's syndrome and other rare and complex connective tissue diseases: an intriguing liaison.
Clin Exp Rheumatol
; 40 Suppl 134(5): 103-112, 2022 May.
Artículo
en Inglés
| MEDLINE | ID: mdl-35349420
4.
The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN ReCONNET.
Clin Exp Rheumatol
; 40 Suppl 134(5): 3-11, 2022 May.
Artículo
en Inglés
| MEDLINE | ID: mdl-35349419
5.
Significant gastrointestinal unmet needs in patients with Systemic Sclerosis: insights from a large international patient survey.
Rheumatology (Oxford)
; 63(3): e92-e93, 2024 Mar 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-37725357
6.
A Multinational Survey Investigating the Unmet Needs and Patient Perspectives Concerning Proton Pump Inhibitors in Systemic Sclerosis.
Arthritis Care Res (Hoboken)
; 76(5): 608-615, 2024 May.
Artículo
en Inglés
| MEDLINE | ID: mdl-38111164
7.
The Rising Challenge of Poor Health Literacy of Patients with Systemic Sclerosis: Preliminary Data Identify Important Unmet Needs in an Italian Cohort.
Nurs Rep
; 14(1): 556-565, 2024 Mar 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-38535715
8.
A multi-national survey to identify clinicians' perspectives concerning Proton Pump inhibitors in patients with systemic sclerosis.
Semin Arthritis Rheum
; 67: 152419, 2024 Feb 23.
Artículo
en Inglés
| MEDLINE | ID: mdl-38430623
9.
Beyond very early systemic sclerosis: deciphering prescleroderma and its trajectories to open new avenues for preventive medicine.
Lancet Rheumatol
; 5(11): e683-e694, 2023 Nov.
Artículo
en Inglés
| MEDLINE | ID: mdl-38251534
10.
The role of skin ultrasound in systemic sclerosis: looking below the surface to understand disease evolution.
Lancet Rheumatol
; 5(7): e422-e425, 2023 Jul.
Artículo
en Inglés
| MEDLINE | ID: mdl-38251553
11.
Consensus on the assessment of systemic sclerosis-associated primary heart involvement: World Scleroderma Foundation/Heart Failure Association guidance on screening, diagnosis, and follow-up assessment.
J Scleroderma Relat Disord
; 8(3): 169-182, 2023 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-37744047
12.
Long-term outcomes of COVID-19 vaccination in patients with rare and complex connective tissue diseases: The ERN-ReCONNET VACCINATE study.
J Transl Autoimmun
; 7: 100221, 2023 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-38162456
13.
Exploring patient education unmet needs for rare and complex connective tissue and musculoskeletal diseases: A survey of health care providers' and patients' expectations in Europe.
Chronic Illn
; 18(2): 370-380, 2022 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-33092393
14.
Proton pump inhibitors in systemic sclerosis: a reappraisal to optimise treatment of gastro-oesophageal reflux disease.
Lancet Rheumatol
; 4(11): e795-e803, 2022 Nov.
Artículo
en Inglés
| MEDLINE | ID: mdl-37936680
15.
Exploring patient's experience and unmet needs on pregnancy and family planning in rare and complex connective tissue diseases: a narrative medicine approach.
RMD Open
; 8(2)2022 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-36597980
16.
Primary systemic sclerosis heart involvement: A systematic literature review and preliminary data-driven, consensus-based WSF/HFA definition.
J Scleroderma Relat Disord
; 7(1): 24-32, 2022 Feb.
Artículo
en Inglés
| MEDLINE | ID: mdl-35386946
17.
How do systemic sclerosis manifestations influence patients' lives? Results from a survey on patients and caregivers.
Curr Med Res Opin
; 37(sup2): 5-15, 2021 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-34726112
18.
Expert opinion and patients' in-depth interviews on the impact of pulmonary complications in systemic sclerosis.
Curr Med Res Opin
; 37(sup2): 17-26, 2021 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-34726093
19.
The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.
Nat Rev Rheumatol
; 17(3): 177-184, 2021 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-33408338
20.
Clinical practice guidelines adherence, knowledge and awareness in rare and complex connective tissue diseases across Europe: results from the first ERN ReCONNET survey.
RMD Open
; 6(2): 0, 2020 08.
Artículo
en Inglés
| MEDLINE | ID: mdl-32868449