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1.
Hum Reprod ; 39(6): 1247-1255, 2024 Jun 03.
Artículo en Inglés | MEDLINE | ID: mdl-38593421

RESUMEN

STUDY QUESTION: Can the application of the theory of planned behavior (TPB) help predict heterosexual parents' disclosure of donor conception to their children? SUMMARY ANSWER: Parents with a stronger will to act in accordance with social norms favoring disclosure were more likely to start the disclosure process within the next 5-9 years. WHAT IS KNOWN ALREADY: In contrast to single mothers by choice and same-sex couples, heterosexual couples need to make an active decision to disclose their use of donor conception to their child. While disclosure at an early age is encouraged by international guidelines, many heterosexual-couple parents struggle with this. A previous study has found an association between parental scores of TPB factors and disclosure intention, but so far, no study has applied the TPB to predict parents' disclosure behavior. STUDY DESIGN, SIZE, DURATION: The present study is based on the fourth and fifth waves of data collection (T4 and T5) in a nation-wide longitudinal study. Participating parents had conceived through identity-release oocyte donation (n = 68, response rate 65%) and sperm donation (n = 62, response rate 56%) as part of a heterosexual couple. PARTICIPANTS/MATERIALS, SETTING, METHODS: The present study is part of the prospective longitudinal Swedish Study on Gamete Donation (SSGD). Consecutive recruitment of couples starting oocyte or sperm donation treatment was conducted at all seven fertility clinics providing gamete donation in Sweden during a 3-year period (2005-2008). Participants were requested to complete postal surveys at five time points. The present study includes heterosexual-couple parents following oocyte or sperm donation who participated at the two latest time points when their children were 7-8 years old (T4), and 13-17 years old (T5). At T4, participants completed the study-specific TPB Disclosure Questionnaire (TPB-DQ) measuring attitudes and intentions to disclose the donor conception to the child, and disclosure behavior was assessed at both T4 and T5. Data from those participants who had not yet disclosed at T4 were analyzed using survival analysis with Cox regressions. MAIN RESULTS AND THE ROLE OF CHANCE: Forty participants had not disclosed the donor conception to their children at T4 and, out of these, 13 had still not disclosed at T5. We found a significant association between scores of the TPB factor Subjective norms at T4 and their subsequent disclosure behavior at T5 (HR = 2.019; 95% CI: 1.36-3.01). None of the other factors were significantly associated with disclosure behavior. LIMITATIONS, REASONS FOR CAUTION: The present study concerns heterosexual-couple parents with children conceived following treatment with gametes from open-identity donors, which limits the generalizability of our findings to other groups and contexts. Other limitations include the risk of systematic attrition due to the longitudinal study design and decreased statistical power due to few participants. WIDER IMPLICATIONS OF THE FINDINGS: Our findings highlight the importance of perceived subjective norms for parents' disclosure behavior and indicate that the co-parent's opinion about disclosure is of particular relevance in this regard. Counselors should focus on supporting prospective parents to initiate and maintain a healthy and open dialogue about concerns around building a family with donor conception. STUDY FUNDING/COMPETING INTEREST(S): The study was funded by the Swedish Research Council. The authors have no competing interests to declare. TRIAL REGISTRATION NUMBER: N/A.


Asunto(s)
Concepción de Donantes , Padres , Humanos , Femenino , Masculino , Estudios Longitudinales , Concepción de Donantes/psicología , Adulto , Niño , Padres/psicología , Relaciones Padres-Hijo , Donación de Oocito/psicología , Suecia , Revelación , Inseminación Artificial Heteróloga/psicología , Estudios Prospectivos , Heterosexualidad/psicología , Teoría del Comportamiento Planificado
2.
Hum Reprod ; 34(5): 842-850, 2019 05 01.
Artículo en Inglés | MEDLINE | ID: mdl-30927419

RESUMEN

STUDY QUESTION: What are the moral considerations held by donors, recipients and professionals towards the ethical aspects of the intake and distribution of donor bank oocytes for third-party assisted reproduction? SUMMARY ANSWER: Interviews with oocyte donors, oocyte recipients and professionals demonstrate a protective attitude towards the welfare of the donor and the future child. WHAT IS KNOWN ALREADY: The scarcity of donor oocytes challenges the approach towards the many ethical aspects that arise in establishing and operating an oocyte bank for third-party assisted reproduction. Including experiences and moral considerations originating from practice provides useful insight on how to overcome these challenges. STUDY DESIGN, SIZE, DURATION: The project was set-up as a qualitative interview study and took place between October 2016 and August 2017. PARTICIPANTS/MATERIALS, SETTING, METHODS: We conducted 25 semi-structured interviews with professionals engaged in the practice of oocyte banking (n = 10), recipients of donor oocytes (n = 7) and oocyte donors (n = 8). Key themes were formulated by means of a thematic analysis. MAIN RESULTS AND THE ROLE OF CHANCE: Based on the interviews, we formulated four main themes describing stakeholders' views regarding the ethical aspects of the intake and distribution of donor bank oocytes. First, respondents articulated that when selecting donors and recipients, healthcare workers should prevent donors from making a wrong decision and safeguard the future child's well-being by minimizing health risks and selecting recipients based on their parental capabilities. Second, they proposed to provide a reasonable compensation and to increase societal awareness on the scarcity of donor oocytes to diminish barriers for donors. Third, respondents considered the prioritization of recipients in case of scarcity a difficult choice, because they are all dependent on donor oocytes to fulfil their wish for a child. They emphasized that treatment attempts should be limited, but at least include one embryo transfer. Fourth and finally, the importance of good governance of oocyte banks was mentioned, including a homogenous policy and the facilitation of exchange of experiences between oocyte banks. LIMITATIONS, REASONS FOR CAUTION: The possibility of selection bias exists, because we interviewed donors and recipients who were selected according to the criteria currently employed in the clinics. WIDER IMPLICATIONS OF THE FINDINGS: Respondents' moral considerations regarding the ethical aspects of the intake and distribution of donor oocytes demonstrate a protective attitude towards the welfare of the donor and the future child. At the same time, respondents also questioned whether such a (highly) protective attitude was justified. This finding may indicate there is room for reconsidering strategies for the collection and distribution of donor bank oocytes. STUDY FUNDING/COMPETING INTEREST(S): This study was funded by ZonMw: The Dutch Organization for Health Research and Development (Grant number 70-73000-98-200). A.M.E.B. and B.C.J.M.F. are the initiators of the UMC Utrecht oocyte bank. J.J.P.M.P. is the director of the MCK Fertility Centre. IMC is working as a gynaecologist at the AMC Amsterdam oocyte bank. During the most recent 5-year period, BCJM Fauser has received fees or grant support from the following organizations (in alphabetic order): Actavis/Watson/Uteron, Controversies in Obstetrics & Gynaecologist (COGI), Dutch Heart Foundation, Dutch Medical Research Counsel (ZonMW), Euroscreen/Ogeda, Ferring, London Womens Clinic (LWC), Merck Serono (GFI), Myovant, Netherland Genomic Initiative (NGI), OvaScience, Pantharei Bioscience, PregLem/Gedeon Richter/Finox, Reproductive Biomedicine Online (RBMO), Roche, Teva and World Health Organization (WHO). The authors have no further competing interests to declare. TRIAL REGISTRATION NUMBER: N/A.


Asunto(s)
Personal de Salud/psicología , Donación de Oocito/ética , Bancos de Tejidos/ética , Donantes de Tejidos/psicología , Receptores de Trasplantes/psicología , Adolescente , Adulto , Concepción de Donantes/ética , Concepción de Donantes/psicología , Selección de Donante/ética , Femenino , Humanos , Masculino , Persona de Mediana Edad , Países Bajos , Investigación Cualitativa , Participación de los Interesados , Adulto Joven
3.
Sociol Health Illn ; 40(1): 188-203, 2018 01.
Artículo en Inglés | MEDLINE | ID: mdl-29143343

RESUMEN

This article considers the disclosure, sharing and exchange of information on being donor conceived within families, drawing on data from a study undertaken with donor-conceived adults registered with UK Donor Link (a voluntary DNA-linking register). This paper considers the narratives of how respondents found out they were donor-conceived and what events triggered disclosure of this information. This paper then goes on to examine the role secrecy played in their family life and uses the concept of 'display' to explore how secrecy affected their relationships with their immediate and extended family. Secrets are notoriously 'leaky' and we found complex patterns of knowing and uncertainty about whom in the family knew that the person was donor-conceived. We argue that what is kept secret and from whom provides insights into the multifaceted web of social relationships that can be created by donor-conception, and how knowledge can be managed and controlled in attempts to display and maintain family narratives of biogenetic connection.


Asunto(s)
Confidencialidad , Revelación , Concepción de Donantes/psicología , Femenino , Humanos , Masculino , Encuestas y Cuestionarios , Reino Unido
4.
Hum Reprod ; 32(5): 969-973, 2017 05 01.
Artículo en Inglés | MEDLINE | ID: mdl-28333327

RESUMEN

The matter of disclosure of donor conception to donor offspring is a very contentious issue. A frequently mentioned argument is that disclosure is in the best interest of the child. The objectives of this paper are 2-fold: first, to find out whether there are any measureable, stable differences in the psychological well-being of donor offspring who are informed of the mode of their conception compared to those who are not, and second, to find out what is being done with the evidence. We found that there exists no empirical evidence of differences in psychological well-being of donor offspring in disclosing or nondisclosing families. Regarding the age of disclosure, the findings are inconclusive. Some studies indicate no difference and some show slight positive effects of early disclosure. We also found that authors tend to ignore their own findings when formulating recommendations and that the recommendations are based on implicit moral premises. We conclude that disclosure, and directive counseling towards disclosure, cannot be justified by the welfare of the donor offspring.


Asunto(s)
Concepción de Donantes/psicología , Inseminación Artificial Heteróloga/psicología , Relaciones Padres-Hijo , Revelación de la Verdad , Factores de Edad , Consejo , Femenino , Humanos , Masculino
5.
J Child Psychol Psychiatry ; 58(3): 315-324, 2017 03.
Artículo en Inglés | MEDLINE | ID: mdl-27911012

RESUMEN

BACKGROUND: The question of whether children should be told of their biological origins is one of the most controversial issues regarding the birth of children through donated eggs, sperm, embryos or surrogacy. METHODS: In the sixth phase of this longitudinal study when the children were aged 14 years, family relationships and adolescent adjustment were examined in 87 families created through reproductive donation and 54 natural conception families. The quality of family relationships was assessed by standardised interview with mothers and by standardised questionnaires and an observational measure with mothers and adolescents. Adolescent adjustment was assessed using standardised questionnaires. Systematic information on whether and when parents had told children about their biological origins was obtained at earlier phases of the study. RESULTS: There were no overall differences between disclosing families and either nondisclosing or natural conception families. However, within the disclosing families, more positive family relationships and higher levels of adolescent wellbeing were found for adolescents who had been told about their biological origins before age 7. CONCLUSIONS: The earlier children born through reproductive donation are told about their biological origins, the more positive are the outcomes in terms of the quality of family relationships and psychological wellbeing at adolescence.


Asunto(s)
Conducta del Adolescente/psicología , Concepción de Donantes/psicología , Relaciones Familiares/psicología , Ajuste Social , Revelación de la Verdad , Adolescente , Adulto , Factores de Edad , Niño , Preescolar , Femenino , Humanos , Lactante , Estudios Longitudinales , Masculino , Persona de Mediana Edad , Relaciones Madre-Hijo/psicología
6.
Hum Reprod ; 31(6): 1275-87, 2016 06.
Artículo en Inglés | MEDLINE | ID: mdl-27067509

RESUMEN

STUDY QUESTION: Does a genetic link and/or a child's age influence a parent's willingness to talk to a child about how they were conceived? SUMMARY ANSWER: The presence/absence of a biological link and the child's age clearly influences the disclosure process. WHAT IS KNOWN ALREADY: The research published to date has yielded diverse findings on autologous and donor assisted reproductive technology (ART) parents' disclosure of the conception method to their children and on the ages at which the children are informed, if told. STUDY DESIGN, SIZE, DURATION: A systematic review and meta-analysis were carried out. A search of MEDLINE and PUBMED was run for English-language studies published from January 1996 through January 2015. A total of 26 studies were included in the systematic review, 19 of which were included in the meta-analysis. PARTICIPANTS/MATERIALS, SETTING, METHODS: A total of 2814 parent responses were included in the systematic review. Two authors independently assessed the studies for review inclusion. Selection criteria were: peer-reviewed studies, quantitative studies only, research conducted after the birth of ART-conceived children, number of parent responses on disclosure status reported in terms of Told, Plan to tell, Uncertain, Plan to not tell. Thirty-two (32) study-level effect size statistics were included in the meta-analysis. Three authors independently assessed the risk of bias. MAIN RESULTS AND THE ROLE OF CHANCE: Among parents who responded, 23% of the total number of parent responses indicated that they had already Told; 44% were Planning to tell; 13% were Uncertain and 20% were Planning to not tell their children about their ART conception. Meta-analysis gave no statistically significant differences between autologous and donor ART in the <10 years age group, when comparing Told versus Planning to tell/Uncertain/Planning to not tell. In both cases, the probability of disclosure was <50% (P < 0.05). Conversely, in the older age group (≥10 years old), a statistically significant difference was observed for autologous ART (Cohen's h = 0.86): Planning to tell showed a higher probability in the 10 years age group for the autologous ART subsample, than in the donor ART subsample (Cohen's h = 0.89). LIMITATIONS, REASONS FOR CAUTION: All parents participated voluntarily in the studies and may have influenced the data in the direction of disclosure thereby. The reviewed studies, moreover, differed in terms of methodology, type of sample and data categorization method. The number of studies analyzing disclosure for children ≥10 years was quite limited; and lastly, most of the data examined were not collected longitudinally. IMPLICATIONS OF THE FINDINGS: The high number of non-disclosing parents treated by donor ART points to an underestimation of the medical risks for the offspring (the presence of genetic illnesses, inadvertent consanguinity) and suggests that these children's rights may not be given due consideration. The decision to disclose may become more difficult over time, and ART parents need greater psychological support throughout the process. STUDY FUNDING/COMPETING INTERESTS: The study was funded by the University of Trieste.


Asunto(s)
Revelación , Concepción de Donantes/psicología , Técnicas Reproductivas Asistidas/psicología , Factores de Edad , Niño , Humanos , Relaciones Padres-Hijo
7.
Hum Reprod ; 31(11): 2416-2420, 2016 11.
Artículo en Inglés | MEDLINE | ID: mdl-27698073

RESUMEN

This article responds to a debate article published in Human Reproduction earlier this year. In that article, the authors suggested that parents should be encouraged to disclose the use of donor gametes to their children given rapid and widespread advances in genetic testing and sequencing. However, there is an urgent need to engage with the assertion that in this context, telling children about their donor conception both safeguards and promotes their interests, particularly if such disclosure is motivated by parents' anxieties about accidental discovery. Disclosure that is motivated by the notion of non-anonymity may also encourage parents to share misinformation about donors and encourage their children to have unrealistic expectations. Fertility professionals must remain mindful of these outcomes when discussing disclosure and the future implications of increasing access to genetic information with both prospective and current parents. It is strongly advised that future discussions about the end of donor anonymity are not conflated with the debate on disclosure.


Asunto(s)
Concepción de Donantes/psicología , Inseminación Artificial Heteróloga , Relaciones Padres-Hijo , Donantes de Tejidos/psicología , Revelación de la Verdad , Femenino , Humanos , Masculino , Motivación , Donación de Oocito
8.
Qual Health Res ; 25(9): 1223-40, 2015 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-25316692

RESUMEN

In this qualitative evidence synthesis, we explore how family relationships are experienced by parents who used gamete donation to conceive. We systematically searched four databases (PubMed, Web of Science, PsycINFO, and ProQuest) for literature related to this topic and retrieved 25 studies. Through the analysis of the qualitative studies, a comprehensive synthesis and framework was constructed. Following the meta-ethnography approach of Noblit and Hare, four main themes were identified: (a) balancing the importance of genetic and social ties, (b) normalizing and legitimizing the family, (c) building strong family ties, and (d) minimizing the role of the donor. Underlying these four main themes, a sense of being "different" and "similar" at the same time was apparent. Findings are discussed in terms of their implications for studying and counseling donor-conceived families.


Asunto(s)
Concepción de Donantes/psicología , Óvulo/trasplante , Relaciones Padres-Hijo , Espermatozoides/trasplante , Donantes de Tejidos/psicología , Antropología Cultural , Donación Directa de Tejido , Humanos , Relaciones Interpersonales , Masculino , Padres/psicología , Investigación Cualitativa , Apoyo Social
9.
Hum Reprod Update ; 30(4): 488-527, 2024 Jul 01.
Artículo en Inglés | MEDLINE | ID: mdl-38687968

RESUMEN

BACKGROUND: Disclosure of donor conception has been advocated in several jurisdictions in recent years, especially in those that practice identity-release donation. However, research on disclosure decisions has not been consolidated systematically in the last 10 years to review if parents are telling and what factors may be impacting their decisions. OBJECTIVE AND RATIONALE: Are parents disclosing to their donor-conceived children, and what factors have influenced their disclosure decisions across different contexts and family forms in the last 10 years? SEARCH METHODS: A bibliographic search of English-language, peer-reviewed journal articles published between 2012 and 2022 from seven databases was undertaken. References cited in included articles were manually scrutinized to identify additional references and references that cited the included articles were also manually searched. Inclusion criteria were articles focused on parents (including heterosexual, single mothers by choice, same-sex couples, and transsexual) of donor-conceived persons in both jurisdictions with or without identity-release provisions. Studies focused solely on surrogacy, donors, donor-conceived persons, or medical/fertility staff were excluded as were studies where it was not possible to extract donor-recipient parents' data separately. Both quantitative and qualitative studies were included. Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were followed and Joanna Briggs Institute Critical Appraisal Tools for Systematic Reviews were used to assess article quality and bias. OUTCOMES: Thirty-seven articles met the inclusion criteria representing 34 studies and 4248 parents (including heterosexual, single, same-sex, and transsexual parents although the majority were heterosexual) from countries with anonymous donation and those with identity-release provisions or who had subsequently enacted these provisions (Australia, Belgium, Finland, France, Hong Kong, Middle East, Spain, Sweden, the UK, and the USA) A general trend towards disclosure was noted across these groups of parents with most disclosing to their donor-conceived children before the age of 10 years. Further, the majority of those who had not yet told, reported planning to disclose, although delayed decisions were also associated with lower disclosure overall. Same-sex and single parents were more likely to disclose than heterosexual parents. There was recognition of disclosure as a process involving ongoing conversations and that decisions were impacted by multiple interacting intrapersonal, interpersonal, and external contextual and social factors. Methodological limitations, such as the different population groups and contexts from which participants were drawn (including that those parents who choose not to disclose may be less likely to participate in research), are acknowledged in integrating findings. WIDER IMPLICATIONS: This review has reinforced the need for a theoretical model to explain parents' disclosure decisions and research exploring the role of legislative provisions, culture, and donor/family type in decision-making. Greater ongoing access to psychological support around disclosure may be important to promote parent and family well-being.


Asunto(s)
Padres , Humanos , Padres/psicología , Femenino , Concepción de Donantes/psicología , Revelación , Masculino , Inseminación Artificial Heteróloga/psicología , Niño , Revelación de la Verdad , Relaciones Padres-Hijo , Toma de Decisiones
10.
PLoS One ; 16(12): e0260346, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-34882706

RESUMEN

Assisted Reproductive Technology (ART) is increasingly becoming a viable option for infertile couples in Ghana. There exists significant literature that explores the gender, legal, religious and socio-cultural implications of ART usage. In this paper, we expand the discourse on the nexus between religion and ART usage by looking at how the former is used as a frame of reference in the decision-making process, as well as how it is employed to explain treatment successes and failures. Irrespective of religious orientation, there was a general acceptance of ART by participants in the study-with exceptions only when it came to some aspects of the procedure. Even here, participants' desperate desire to have children, tended to engender some accommodation of procedures they were uncomfortable with because of their religious beliefs. Thus, in contrast to some studies that suggest religion as interfering with ART use, we posit that religion is not an inhibiting factor to ART usage. On the contrary, it is an enabling factor, engendering the agentic attitude of participants to find a solution to their infertility in ART; as well as providing the strength to endure the physical and emotional discomfort associated with the biomedical process of conception and childbirth. In this context, religion thus provides participants with a frame of reference to navigate the spaces between decision-making, treatment processes and outcomes, and attributions of responsibility for the outcomes whatever they may be.


Asunto(s)
Concepción de Donantes/psicología , Infertilidad/terapia , Técnicas Reproductivas Asistidas/psicología , Adulto , Cultura , Femenino , Ghana , Humanos , Masculino , Persona de Mediana Edad , Religión , Población Urbana , Adulto Joven
11.
Fertil Steril ; 115(5): 1302-1311, 2021 05.
Artículo en Inglés | MEDLINE | ID: mdl-33541691

RESUMEN

OBJECTIVE: To study differences by sperm donor type in the psychological adjustment of the U.S. National Longitudinal Lesbian Family Study (NLLFS) offspring across three time periods from childhood to adulthood. DESIGN: U.S.-based prospective cohort study. SETTING: Paper-and-pencil questionnaires and protected online surveys. PATIENT(S): A cohort of 74 offspring conceived by lesbian parents using an anonymous (n = 26), a known (n = 26), or an open-identity (n = 22) sperm donor. Data were reported when offspring were ages 10 (wave 4), 17 (wave 5), and 25 (wave 6). INTERVENTION(S): None. MAIN OUTCOME MEASURE(S): Achenbach Child Behavior Checklist administered to lesbian parents when offspring were ages 10 and 17 and the Achenbach Adult Self-Report administered to offspring at age 25. RESULT(S): In both relative and absolute stability, no differences were found in internalizing, externalizing, and total problem behaviors by donor type over 15 years. However, both externalizing and total problem behaviors significantly declined from age 10 to 17 and then increased from age 17 to 25. Irrespective of donor type, among the 74 offspring, the large majority scored continuously within the normal range on internalizing (n = 62, 83.8%), externalizing (n = 62, 83.8%), and total problem behaviors (n = 60, 81.1%). CONCLUSION(S): The results reassure prospective lesbian parents and provide policy makers and reproductive medicine practitioners with empirical evidence that psychological adjustment in offspring raised by lesbian parents is unrelated to donor type in the long term.


Asunto(s)
Adaptación Psicológica , Concepción de Donantes/psicología , Relaciones Familiares , Minorías Sexuales y de Género/psicología , Adaptación Psicológica/fisiología , Adolescente , Adulto , Hijos Adultos/psicología , Hijos Adultos/estadística & datos numéricos , Niño , Desarrollo Infantil/fisiología , Estudios de Cohortes , Ajuste Emocional/fisiología , Relaciones Familiares/psicología , Femenino , Homosexualidad Femenina/psicología , Homosexualidad Femenina/estadística & datos numéricos , Humanos , Inseminación Artificial Heteróloga/psicología , Inseminación Artificial Heteróloga/estadística & datos numéricos , Estudios Longitudinales , Masculino , Padres/psicología , Estudios Prospectivos , Minorías Sexuales y de Género/estadística & datos numéricos , Encuestas y Cuestionarios , Donantes de Tejidos/psicología , Estados Unidos/epidemiología , Adulto Joven
12.
J Fam Psychol ; 34(4): 469-479, 2020 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-31944802

RESUMEN

The number of families being created through fertility treatment with donor eggs is increasing yearly. Women who conceive in this way share a gestational but not genetic relationship with their child, yet there is limited understanding of how mothers experience the mother-child relationship during its formative period, infancy. This study explored heterosexual mothers' thoughts and feelings about the mother-infant relationship in families created through egg donation. Qualitative interviews were conducted with a sample of 85 women who had conceived following egg donation treatment at U.K. fertility clinics. Mothers had at least 1 infant (6-18 months) and were living with the child's father. Interview data were analyzed according to the principles of thematic analysis. The results showed that egg donation mothers used a range of strategies across the transition to parenthood that enabled them to establish their identity as the child's mother and facilitated the process of helping them feel that the baby was their own. This process was individual to each woman, with the absent genetic connection varying in significance between mothers. The strategies employed enabled most mothers to adjust successfully to parenthood and manage any ambivalence and uncertainties associated with nongenetic parenthood. Most mothers felt secure and confident in their position as the child's mother by the end of the first year. (PsycInfo Database Record (c) 2020 APA, all rights reserved).


Asunto(s)
Concepción de Donantes/psicología , Relaciones Madre-Hijo , Madres/psicología , Adulto , Femenino , Humanos , Lactante
13.
J Psychosom Obstet Gynaecol ; 40(1): 29-37, 2019 03.
Artículo en Inglés | MEDLINE | ID: mdl-29110558

RESUMEN

OBJECTIVES: We aimed at exploring the wishes of Dutch donor-conceived offspring for parental support, peer support and counseling and sought to contribute to the improvement of health care for all parties involved with assisted reproductive technologies. METHODS: We held semi-structured in-depth interviews with 24 donor-conceived offspring (Mage = 26.9, range 17-41) born within father-mother, two-mother and single mother families. The majority of the donor offspring was conceived with semen of anonymous donors. All offspring were recruited by network organizations and snowball sampling. The interviews were fully transcribed and analyzed using the constant comparative method. RESULTS: Donor-conceived offspring wished that their parents had talked openly about donor conception and had missed parental support. They wished that their parents would have received counseling before donor sperm treatment on how to talk with their children about donor conception in several stages of life. They valued the availability of peer contact to exchange stories with other donor-conceived offspring and would have liked assistance in getting access to trustworthy information about characteristics and identifying information of their donor. Donor-conceived offspring wished to know where to find specialist counseling when needed. CONCLUSIONS: Peer support and counseling by professionals for donor-conceived offspring should be available for those who need it. The findings also support professional counseling for intended parents before treatment to improve parental support for donor-children.


Asunto(s)
Consejo , Revelación , Concepción de Donantes/psicología , Padres , Grupo Paritario , Adolescente , Adulto , Femenino , Humanos , Inseminación Artificial Heteróloga/psicología , Entrevistas como Asunto , Masculino , Países Bajos , Donantes de Tejidos/psicología , Adulto Joven
14.
Fertil Steril ; 110(7): 1187-1193, 2018 12.
Artículo en Inglés | MEDLINE | ID: mdl-30503104

RESUMEN

This review examines the literature on the long-term outcomes for children and parents in families created through egg donation, focusing on child psychological adjustment, parental psychological health, and parent-child relationship quality. Where possible, outcomes were examined according to family disclosure status (i.e., whether or not the parents intended to tell/had told the child about their method of conception). The small body of empirical literature indicates that children and parents function well throughout childhood and into early adolescence, although there appear to be subtle differences in mother-child relationship quality. None of the differences found in relationship quality indicate problems in the mother-child relationship and instead reflect differences within the normal range.


Asunto(s)
Concepción de Donantes , Donación de Oocito , Relaciones Padres-Hijo , Adaptación Psicológica/fisiología , Niño , Concepción de Donantes/psicología , Concepción de Donantes/estadística & datos numéricos , Femenino , Humanos , Inseminación Artificial Heteróloga/psicología , Masculino , Donación de Oocito/psicología , Donación de Oocito/estadística & datos numéricos , Embarazo , Psicología Infantil , Factores de Tiempo , Resultado del Tratamiento , Revelación de la Verdad
15.
Hum Fertil (Camb) ; 21(3): 163-173, 2018 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-28549399

RESUMEN

This review aims to provide an up-to-date knowledge of the psychosocial aspects of egg donation from the perspectives of the egg share donor and their recipient. It explores the motives, experiences and attitudes of egg sharers and their views towards donor anonymity and disclosure. Conclusions are made on how these findings can guide clinical practice and improve egg sharing numbers. A systematic search of peer-reviewed journals of four computerized databases was undertaken. Eleven studies were included in the review. Psychosocial aspects towards donation were positive from the egg share donor and recipient. Concerns raised were whether participating in the egg sharing scheme would impact on their success rates, as well as frustration expressed by a minority regarding the lack of knowledge of egg sharing outside of fertility clinics. The 2005 legislative changes in the UK have not caused the anticipated dramatic decrease in egg donation; however, oocyte donation still falls short of demand. Egg sharing provides a practical option for more patients to access IVF, whilst also providing more donor oocytes. Improved information provision will result in greater awareness of egg sharing, with the potential to recruit more donors and meet the needs of recipients currently on long waiting lists.


Asunto(s)
Concepción de Donantes , Infertilidad Femenina/terapia , Óvulo , Sistemas de Apoyo Psicosocial , Estrés Psicológico/prevención & control , Confidencialidad , Concepción de Donantes/legislación & jurisprudencia , Concepción de Donantes/psicología , Femenino , Conocimientos, Actitudes y Práctica en Salud , Humanos , Infertilidad Femenina/psicología , Motivación , Embarazo , Autorrevelación , Estrés Psicológico/etiología , Reino Unido
16.
AJOB Empir Bioeth ; 9(4): 235-251, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-30398412

RESUMEN

BACKGROUND: Anonymity remains the more common practice in gamete donations, but legislation prohibiting anonymity with a goal of protecting donor-conceived children's right to know their genetic origins is becoming more common. However, given the dearth of research investigating the function of anonymity for donors and recipients, it is unclear whether these policies will accomplish their goals. The aim of this study was to explore experiences with anonymity among oocyte donors and recipients who participated in an anonymous donor oocyte program and to understand the ways in which anonymity functions for them. METHODS: Semistructured interviews were conducted with 50 women: 28 oocyte donors and 22 recipients who were recruited from an academic center for reproductive medicine in the United States. RESULTS: Donors and recipients view anonymity both as a mechanism to protect the interests of all parties (recipients, donors, and donor-conceived children) and as a point of conflict. Specifically, three key areas were identified where both donors and recipients saw anonymity as having an important role: relieving anxieties about family structures and obligations; protecting their interests and those of donor-conceived children (while acknowledging where interests conflict); and managing the future. CONCLUSION: As gamete donation increasingly moves away from the practice of anonymity, examining why anonymity matters to stakeholders will be helpful in devising strategies to successfully implement identity-release options.


Asunto(s)
Acceso a la Información/ética , Confidencialidad/ética , Revelación/ética , Concepción de Donantes/psicología , Pruebas Genéticas , Donación de Oocito/psicología , Donantes de Tejidos/psicología , Acceso a la Información/legislación & jurisprudencia , Confidencialidad/legislación & jurisprudencia , Bases de Datos Genéticas , Revelación/legislación & jurisprudencia , Concepción de Donantes/ética , Femenino , Pruebas Genéticas/ética , Humanos , Donación de Oocito/ética , Embarazo , Estados Unidos
17.
Fertil Steril ; 110(7): 1194-1202, 2018 12.
Artículo en Inglés | MEDLINE | ID: mdl-30503105

RESUMEN

The practice of egg donation in the United States has been based on assumptions about secrecy, anonymity, and contact among the parties that require reexamination. This article argues for the need to acknowledge that secrecy and anonymity are no longer viable assumptions and that all parties may have a strong interest in contact and connection. A shift in the narrative for the practice of egg donation from a purely medical perspective to a broader family-building perspective is described. Significant practice changes to accommodate the new realities, rooted in a family-building perspective, are outlined in the arenas of medical record retention, informed consent, recipient and donor preparation and counseling, facilitation of contact among the parties, and outreach to other medical professionals, with the goal of promoting not only healthy pregnancy, but also long-term positive family functioning.


Asunto(s)
Concepción de Donantes/tendencias , Familia , Donación de Oocito/tendencias , Relaciones Padres-Hijo , Pautas de la Práctica en Medicina/tendencias , Niño , Revelación , Concepción de Donantes/legislación & jurisprudencia , Concepción de Donantes/psicología , Familia/psicología , Femenino , Humanos , Consentimiento Informado , Donación de Oocito/legislación & jurisprudencia , Donación de Oocito/psicología , Relaciones Padres-Hijo/legislación & jurisprudencia , Pautas de la Práctica en Medicina/legislación & jurisprudencia , Pautas de la Práctica en Medicina/normas , Embarazo
18.
Fertil Steril ; 110(7): 1185-1186, 2018 12.
Artículo en Inglés | MEDLINE | ID: mdl-30503103

RESUMEN

The development of oocyte donation has led to a reexamination of the facets of motherhood: the genetic, gestational, and psychosocial contributions. In addition, the practice of oocyte donation has prompted a consideration of the unique psychosocial and legal aspects of this form of family building. In this section of Views and Reviews a summary and discussion of the long-term psychosocial adjustment of oocyte donor-conceived children and their parents is presented. Next, the current permeability around donor anonymity is investigated and questions regarding whether donor anonymity can still exist is discussed. Third, the evolution of oocyte cryopreservation and banking is reviewed and the future of oocyte banking is explored. Finally, as oocyte donation continues to grow and evolve, so too does the legal landscape in which it is practiced. Seminal legal cases are presented to describe the legal landscape that has shaped the practice of oocyte donation.


Asunto(s)
Concepción de Donantes , Madres , Donación de Oocito , Niño , Concepción de Donantes/legislación & jurisprudencia , Concepción de Donantes/psicología , Concepción de Donantes/tendencias , Femenino , Humanos , Recién Nacido , Inseminación Artificial Heteróloga/legislación & jurisprudencia , Inseminación Artificial Heteróloga/psicología , Inseminación Artificial Heteróloga/tendencias , Madres/psicología , Donación de Oocito/legislación & jurisprudencia , Donación de Oocito/psicología , Donación de Oocito/tendencias , Relaciones Padres-Hijo/legislación & jurisprudencia , Padres/psicología , Embarazo , Donantes de Tejidos/legislación & jurisprudencia , Donantes de Tejidos/psicología , Donantes de Tejidos/provisión & distribución
19.
Rev. Méd. Clín. Condes ; 32(2): 214-220, mar.-abr. 2021.
Artículo en Español | LILACS | ID: biblio-1518366

RESUMEN

La reproducción asistida con donación ha venido a interrogar y a ampliar la noción de parentesco. La hegemonía del modelo biogenético dificulta que los padres de estas familias incorporen con tranquilidad la donación en su gestación. Desde los inicios de la técnica los padres han optado por no contar a su decendencia la historia de su concepción, muchas veces por miedo a que se deslegitimara su relación filial. Con el tiempo, se ha observado una apertura hacia la comunicación. Este cambio va de la mano con el desarrollo de la investigación en el área, que comenzó preguntándose por el bienestar psicológico de los nacidos por donación, por los aspectos relacionales de las familias concebidas de este modo e interrogando los beneficios de la comunicación de orígenes. Luego, investigando las percepciones en relación con su origen de las personas nacidas por donación. Finalmente, se ha publicado acerca la imposibilidad del anonimato en la era de los exámenes genéticos directos al consumidor. El modo de entender la reproducción con donante ha evolucionado, de un modelo médico en el que el foco es el lograr un embarazo saludable, a un modelo de formación de familia, en el que la motivación es contribuir a formar familias de buen funcionamiento. Esto tiene implicancias en la consejería a quienes participan del proceso, y también en los lineamientos que las sociedades científicas y comités de ética sugieren a los programas de reproducción con donante.


Gamete donation has come to question and broaden the notion of kinship. The hegemony of an biogenetic model has been an obstacle for parents of these families to incorporate donation into their history. From the beginning of the technique the parents chose not to tell their descent the history of their conception, often for fear that their filial relationship would be delegitimized. Over time, an openness to disclosure has been observed. This change goes hand in hand with the development of research in the area, which began by asking about the psychological well-being of those born by donation. Then investigating the relational aspects of families conceived in this way and questioning the benefits of disclosure. Subsequently, it was possible to study the perceptions regarding their origin of people born by donation. Finally, the impossibility of anonymity in the era of direct consumer genetic testing has been published. The way of understanding donor reproduction has evolved, from a medical model in focus is to achieve a healthy pregnancy, a family formation model, in which the motivation is to contribute to forming well-functioning families. This has implications in counseling to those who participate in the process, and in the guidelines that scientific societies and ethics committees affect donor reproduction programs.


Asunto(s)
Humanos , Donación de Oocito , Confidencialidad , Revelación , Concepción de Donantes/psicología , Concepción de Donantes/ética
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