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1.
Proc Natl Acad Sci U S A ; 119(17): e2117454119, 2022 04 26.
Artículo en Inglés | MEDLINE | ID: mdl-35446613

RESUMEN

In the Nandi society in Kenya, custom establishes that a woman's "house property" can only be transmitted to male heirs. As not every woman gives birth to a male heir, the Nandi solution to sustain the family lineage is for the heirless woman to become the "female husband" to a younger woman by undergoing an "inversion" ceremony to "change" into a man. This biological female, now socially a man, becomes a "husband" and a "father" to the younger woman's children, whose sons become the heirs of her property. Using this unique separation of biological sex and social roles holding constant the same society, I conduct competitiveness experiments. Similar to Western cultures, I find that Nandi men choose to compete at roughly twice the rate as Nandi women. Importantly, however, female husbands compete at the same rate as males, and thus around twice as often as females. These findings are robust to controlling for several risk aversion, selection, and behavioral factors. The results provide support for the argument that social norms, family roles, and endogenous preference formation are crucially linked to differences in competitiveness between men and women.


Asunto(s)
Normas Sociales , Esposos , Adulto , Femenino , Identidad de Género , Humanos , Kenia , Masculino
2.
Proc Natl Acad Sci U S A ; 119(23): e2020901119, 2022 06 07.
Artículo en Inglés | MEDLINE | ID: mdl-35648824

RESUMEN

Divorces are predominantly initiated by one spouse alone. This might suggest that one spouse typically benefits from divorce (the initiator), while the other is disadvantaged (the noninitiator). At the same time, empirical research on the consequences of divorce commonly focuses on the average effect for both partners. In contrast, I estimate separation trajectories individually for initiators and noninitiators of formerly cohabitating or married couples. The analysis covers a wide range of outcomes and a long period of time surrounding the separation. I employ an event-study design based on individual fixed effects, thereby accounting for time-invariant individual heterogeneity that could be linked to initiator status and the outcomes. The results reveal substantial differences in separation trajectories between initiators and noninitiators. Initiators indeed improve their subjective well-being after a separation and also see gains in other life domains, with the exception of the economic domain. Noninitiators experience significant short-term losses in subjective well-being, from which they recover in the long run. Noninitiators' trajectories in other life domains vary.


Asunto(s)
Divorcio , Esposos , Divorcio/psicología , Femenino , Humanos , Masculino
3.
Proc Natl Acad Sci U S A ; 119(34): e2202515119, 2022 08 23.
Artículo en Inglés | MEDLINE | ID: mdl-35981139

RESUMEN

Marital attachment plays an important role in maintaining intimate personal relationships and sustaining psychological well-being. Mate-selection theories suggest that people are more likely to marry someone with a similar personality and social status, yet evidence for the association between personality-based couple similarity measures and marital satisfaction has been inconsistent. A more direct and useful approach for understanding fundamental processes underlying marital satisfaction is to probe similarity of dynamic brain responses to maritally and socially relevant communicative cues, which may better reflect how married couples process information in real time and make sense of their mates and themselves. Here, we investigate shared neural representations based on intersubject synchronization (ISS) of brain responses during free viewing of marital life-related, and nonmarital, object-related movies. Compared to randomly selected pairs of couples, married couples showed significantly higher levels of ISS during viewing of marital movies and ISS between married couples predicted higher levels of marital satisfaction. ISS in the default mode network emerged as a strong predictor of marital satisfaction and canonical correlation analysis revealed a specific relation between ISS in this network and shared communication and egalitarian components of martial satisfaction. Our findings demonstrate that brain similarities that reflect real-time mental responses to subjective perceptions, thoughts, and feelings about interpersonal and social interactions are strong predictors of marital satisfaction, reflecting shared values and beliefs. Our study advances foundational knowledge of the neurobiological basis of human pair bonding.


Asunto(s)
Encéfalo , Matrimonio , Satisfacción Personal , Encéfalo/fisiología , Comunicación , Humanos , Relaciones Interpersonales , Matrimonio/psicología , Personalidad , Esposos/psicología
4.
Cancer ; 130(5): 816-826, 2024 03 01.
Artículo en Inglés | MEDLINE | ID: mdl-37902827

RESUMEN

BACKGROUND: Cancer patients and survivors have high care needs, often provided by a spouse or partner. The purpose of this study was to elucidate how employment and work loss patterns differed across cancer history/treatment status and gender. METHODS: Using nationally representative data from the Medical Expenditure Panel Survey (2011, 2016, and 2017), the authors linked data across married participants and categorized them by spouses' cancer treatment status (no cancer history, on treatment for cancer, off treatment for cancer). Multivariable logistic and zero-inflated negative binomial regressions were used to assess the associations among cancer history/treatment status, gender, and employment outcomes (employment status and workdays lost to care for self or others). RESULTS: For men, employment did not differ significantly by cancer history/treatment status (on treatment: odds ratio [OR], 0.58; 95% confidence interval [CI], 0.33-1.02, off treatment: OR, 0.84; 95% CI, 0.62-1.14 vs. no cancer history). For women, employment was not significantly different when the spouse was on treatment for cancer compared to no cancer history (OR, 0.78; 95% CI, 0.33-1.86]) but was significantly increased for women whose spouse was off treatment (OR, 1.39; 95% CI, 1.05-1.84). Among employed participants, women whose spouse was on cancer treatment were nine times more likely to take days off work to provide care (OR, 9.52; 95% CI, 3.94-23.03) and took more than three times as many days off to care for others (OR, 3.21; 95% CI, 2.07-4.97) as men whose spouse had no cancer history. CONCLUSIONS: Wives of cancer survivors are at increased risk of work loss, with implications for their financial and psychological well-being. Employers, policymakers, and clinicians have opportunities to support working caregivers.


Asunto(s)
Supervivientes de Cáncer , Neoplasias , Masculino , Humanos , Femenino , Esposos/psicología , Empleo , Matrimonio , Sobrevivientes , Neoplasias/terapia , Neoplasias/psicología
5.
Psychosom Med ; 86(6): 512-522, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38666654

RESUMEN

OBJECTIVE: Chronic stress adversely affects mental and physical well-being. However, health outcomes vary among people experiencing the same stressor. Individual differences in physical and emotional well-being may depend on mitochondrial biology, as energy production is crucial for stress regulation. This study investigated whether mitochondrial respiratory capacity corresponds to individual differences in dementia spousal caregivers' mental and physical health. METHODS: Spousal caregivers of individuals with Alzheimer's disease and related dementias ( N = 102, mean age = 71, 78% female, 83% White) provided peripheral blood samples and completed self-report questionnaires on quality of life, caregiver burden, and a 7-day affect scale. Multiple and mixed linear regressions were used to test the relationship between mitochondrial biology and well-being. RESULTS: Spare respiratory capacity ( b = 12.76, confidence interval [CI] = 5.23-20.28, p = .001), maximum respiratory capacity ( b = 8.45, CI = 4.54-12.35, p < .0001), and ATP-linked respiration ( b = 10.11, CI = 5.05-15.18, p = .0001) were positively associated with physical functioning. At average ( b = -2.23, CI = -3.64 to -0.82, p = .002) and below average ( b = -4.96, CI = -7.22 to 2.70, p < .0001) levels of spare respiratory capacity, caregiver burden was negatively associated with daily positive affect. At above average levels of spare respiratory capacity, caregiver burden was not associated with positive affect ( p = .65). CONCLUSIONS: Findings suggest that higher mitochondrial respiratory capacity is associated with better psychological and physical health-a pattern consistent with related research. These findings provide some of the earliest evidence that cellular bioenergetics are related to well-being.


Asunto(s)
Cuidadores , Demencia , Metabolismo Energético , Mitocondrias , Humanos , Femenino , Masculino , Cuidadores/psicología , Anciano , Persona de Mediana Edad , Demencia/fisiopatología , Metabolismo Energético/fisiología , Mitocondrias/metabolismo , Calidad de Vida , Enfermedad de Alzheimer/fisiopatología , Afecto/fisiología , Anciano de 80 o más Años , Estado de Salud , Carga del Cuidador , Esposos/psicología , Estrés Psicológico/metabolismo , Estrés Psicológico/fisiopatología
6.
BMC Cancer ; 24(1): 933, 2024 Aug 01.
Artículo en Inglés | MEDLINE | ID: mdl-39090654

RESUMEN

BACKGROUND: Cervical cancer remains a significant but preventable threat to women's health throughout much of the developing world, including Uganda. Cervical cancer screening and timely treatment of pre-cancerous lesions is a cost-effective means of mitigating cervical cancer morbidity and mortality. However, only 5% of women in Uganda have ever been screened. Barriers to screening, such as social stigma and access to safe conditions, have been previously identified, but insights into the role of male spouses in encouraging or discouraging screening have been limited. To our knowledge, no studies have compared barriers and facilitators among women who had or had not yet been screened and male partners of screened and unscreened women. METHODS: To resolve this gap, we conducted 7 focus groups- 3 among women who had been screened, 3 among those who had not been screened, and 1 among men whose female partners had or had not been screened. We performed qualitative thematic analysis on the focus group data. RESULTS: We identified several important factors impacting screening and the decision to screen among women, ranging from stigma, availability of screening, false beliefs around the procedure and side effects, and the role of spousal support in screening promotion. Male spousal perspectives for screening ranged from full support to hesitancy around male-performed exams and possible prolonged periods without intercourse. CONCLUSION: This exploratory work demonstrates the importance of dialogue both among women and their male partners in enhancing screening uptake. Efforts to address screening uptake are necessary given that it is an important means of mitigating the burden of cervical cancer. Interventions along these lines need to take these barriers and facilitators into account in order to drive up demand for screening.


Asunto(s)
Detección Precoz del Cáncer , Grupos Focales , Conocimientos, Actitudes y Práctica en Salud , Investigación Cualitativa , Neoplasias del Cuello Uterino , Humanos , Neoplasias del Cuello Uterino/diagnóstico , Femenino , Masculino , Uganda/epidemiología , Detección Precoz del Cáncer/psicología , Adulto , Persona de Mediana Edad , Aceptación de la Atención de Salud/psicología , Estigma Social , Tamizaje Masivo/métodos , Esposos/psicología
7.
BMC Cancer ; 24(1): 391, 2024 Mar 27.
Artículo en Inglés | MEDLINE | ID: mdl-38539118

RESUMEN

BACKGROUND: Breast cancer and genital cancer are known as cancers that affect people's relationships with their partners. Women with such cancers are emotionally vulnerable and need more support from their partners. The present systematic review and meta-analysis evaluated the effectiveness of couple-based interventions on the marital outcomes of patients with these cancers and their intimate partners. METHODS: To perform this systematic review, Google Scholar and databases such as PubMed, Web of Science, Cochrane, Scopus, SID (Scientific Information Database), and Magiran were searched systematically. The reviewed studies included randomized controlled trials and quasiexperimental studies in which the intervention group, couple-based interventions, and the control group received routine care, general education or no intervention for cancer treatment. In this study, the included participants were patients with breast cancer or genital cancer and their intimate partners. The primary outcomes considered in this study included patients' marital adjustment, patients' marital satisfaction, patients' marital intimacy, and patients' marital relationships. The secondary outcomes were partners' marital adjustment, partners' marital satisfaction, partners' marital intimacy, and partners' marital relationships. A meta-analysis was performed with Review Manager v. 5.3 software (The Nordic Cochrane Centre, Cochrane Collaboration, 2014; Copenhagen, Denmark). The intervention impacts on continuous outcomes were measured using standardized mean differences (SMDs) with 95% confidence interval because of the use of various scales to evaluate the outcomes. The quality of evidence presented in the included studies was evaluated using the Grading of Recommendations Assessment, Development, and Evaluation (GRADE) approach. In the subgroup analysis, the studied outcomes were divided into two parts (theory-based and non-theory-based) in terms of the theoretical context of couple-based interventions. RESULTS: From a total of 138 retrieved studies, 14 trials were eligible for inclusion in the study. The results of the meta-analysis showed that the patient's marital satisfaction increased significantly with couple-based interventions (SMD 0.46, 95% confidence interval 0.07 to 0.85; 7 trials, 341 patients, very low certainty) compared to the control group, but the evidence was uncertain. However, there were no significant differences between the groups in the partner's marital satisfaction, the patient's and partner's marital adjustment, and the patient's and partner's marital intimacy. Additionally, the results of the subgroup analysis showed that the couple-based interventions significantly increased the patient's marital adjustment (SMD 1.96, 95% CI 0.87 to 3.06; 4 trials, 355 patients, very low certainty), the partner's marital adjustment (SMD 0.53, 95% CI 0.20 to 0.86; 4 trials, 347 partners, very low certainty), the patient's marital satisfaction (SMD 0.89, 95% CI 0.35 to 1.43; 2 trials, 123 patients, very low certainty), and the partner's marital satisfaction (SMD 0.57, 95% CI 0.20 to 0.94; 2 trials, 123 partners, very low certainty) compared to the control group in theory-based studies. In. However, in non-theory-based studies, the results of the meta-analysis revealed no significant differences between the intervention and control groups. CONCLUSIONS: The results of this study demonstrated the impact of couple-based interventions on the marital outcomes of patients with breast and genital cancers. Because of the very low confidence in the evidence, high-quality randomized trials with a sufficient sample size should be conducted considering the proper theoretical context.


Asunto(s)
Neoplasias de la Mama , Neoplasias de los Genitales Femeninos , Humanos , Femenino , Neoplasias de la Mama/psicología , Neoplasias de la Mama/terapia , Neoplasias de los Genitales Femeninos/psicología , Neoplasias de los Genitales Femeninos/terapia , Matrimonio/psicología , Esposos/psicología , Parejas Sexuales/psicología , Masculino
8.
Mov Disord ; 39(7): 1212-1217, 2024 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-38597193

RESUMEN

BACKGROUND: While preclinical studies have shown that alpha-synuclein can spread through cell-to-cell transmission whether it can be transmitted between humans is unknown. OBJECTIVES: The aim was to assess the presence of a synucleinopathy in autopsied conjugal couples. METHODS: Neuropathological findings in conjugal couples were categorized as Parkinson's disease (PD), dementia with Lewy bodies (DLB), Alzheimer's disease with Lewy bodies (ADLB), incidental Lewy body disease (ILBD), or no Lewy bodies. RESULTS: Ninety conjugal couples were included; the mean age of death was 88.3 years; 32 couples had no Lewy bodies; 42 couples had 1 spouse with a synucleinopathy: 10 PD, 3 DLB, 13 ADLB, and 16 ILBD; 16 couples had both spouses with a synucleinopathy: in 4 couples both spouses had PD, 1 couple had PD and DLB, 4 couples had PD and ADLB, 2 couples had PD and ILBD, 1 couple had DLB and ADLB, in 3 couples both had ADLB, and 1 couple had ADLB and ILBD. No couples had both spouses with ILBD. CONCLUSIONS: This large series of 90 autopsied conjugal couples found 16 conjugal couples with synucleinopathies, suggesting transmission of synucleinopathy between spouses is unlikely. © 2024 International Parkinson and Movement Disorder Society.


Asunto(s)
Enfermedad por Cuerpos de Lewy , Enfermedad de Parkinson , Sinucleinopatías , Humanos , Femenino , Masculino , Anciano de 80 o más Años , Enfermedad de Parkinson/patología , Enfermedad de Parkinson/metabolismo , Enfermedad por Cuerpos de Lewy/patología , Enfermedad por Cuerpos de Lewy/metabolismo , Anciano , Sinucleinopatías/patología , Autopsia , alfa-Sinucleína/metabolismo , Esposos , Enfermedad de Alzheimer/patología , Enfermedad de Alzheimer/metabolismo , Cuerpos de Lewy/patología
9.
Brain Behav Immun ; 119: 898-907, 2024 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-38718908

RESUMEN

Marital quality shares ties to inflammatory conditions like cardiovascular disease and diabetes. For decades, research has focused on marital conflict as a primary mechanism given its potential to trigger inflammatory responses. However, longitudinal evidence suggests that marital conflict declines over time, and little attention has been paid to the inflammatory aftermath of other types of marital exchanges. A spouse's emotional distress is an important but overlooked marital context, as partners are exposed to each other's upsetting emotions throughout adulthood. To directly compare reactivity in proinflammatory gene expression to these two marital stressors and to examine differences by age and marital satisfaction, 203 community adults ages 25-90 (N = 102 couples) provided blood samples and rated their negative mood before and after they 1) watched their partner relive an upsetting personal memory and, in a separate visit 1-2 weeks later, 2) discussed a conflictual topic in their relationship. Controlling for age, sex, race/ethnicity, BMI, alcohol use, smoking, and comorbidities, increases in proinflammatory gene expression were significantly larger after the partner's upsetting disclosure than after marital conflict (B = 0.073, SE = 0.031, p = .018). This pattern paralleled emotional reactivity to the tasks, wherein negative mood rose more in response to the partner's disclosure than to marital conflict (B = 4.305, SE = 1.468, p = .004). In sum, proinflammatory and mood reactivity to spousal distress exceeded reactivity to marital conflict, a well-established marital stressor. Findings reveal spousal distress as a novel mechanism that may link marriage to inflammation-related diseases, and even pose risks for both happy and unhappy couples across adulthood.


Asunto(s)
Conflicto Familiar , Inflamación , Matrimonio , Esposos , Estrés Psicológico , Humanos , Femenino , Masculino , Persona de Mediana Edad , Conflicto Familiar/psicología , Adulto , Anciano , Esposos/psicología , Estrés Psicológico/psicología , Estrés Psicológico/inmunología , Matrimonio/psicología , Inflamación/inmunología , Inflamación/psicología , Anciano de 80 o más Años , Satisfacción Personal , Emociones/fisiología , Distrés Psicológico , Afecto/fisiología
10.
J Rheumatol ; 51(9): 862-869, 2024 Sep 01.
Artículo en Inglés | MEDLINE | ID: mdl-38692667

RESUMEN

OBJECTIVE: Dyadic coping, the process of coping that transpires between couples challenged by one partner's illness, is an important predictor of disease adjustment and patient well-being. However, the extent of dyadic coping in rheumatoid arthritis (RA) remains unclear. This study examines the effect of dyadic coping on psychological distress and relationship quality from the perspectives of both participants with RA and their spouses. METHODS: Participants and their spouses were invited to participate in an online survey study if they were aged ≥ 18 years and had lived together for more than a year. The survey included the Chronic Pain Grade Scale, Dyadic Coping Inventory, Depression Anxiety Stress Scale, and Dyadic Adjustment Scale. Participants and spouses completed the survey independently. The actor-partner interdependence model was used to analyze the dyadic data. RESULTS: One hundred sixty-three couples participated. Our findings showed that participants who reported higher supportive dyadic coping reported lower depression, anxiety, and stress, and higher relationship quality, whereas participants who reported higher negative dyadic coping reported higher depression, anxiety, and stress, and lower relationship quality. Spouses who reported higher supportive dyadic coping reported higher relationship quality, but no effect on depression, anxiety, and stress was observed. In contrast, spouses who reported higher negative dyadic coping reported higher levels of depression, anxiety, and stress, and lower relationship quality. CONCLUSION: Participants' and spouses' perceptions of supportive and negative dyadic coping closely influenced their psychological distress and relationship quality. Further, having a partner with RA also seemed to affect the spouse, especially when there was a negative dyadic coping pattern.


Asunto(s)
Adaptación Psicológica , Ansiedad , Artritis Reumatoide , Depresión , Relaciones Interpersonales , Esposos , Estrés Psicológico , Humanos , Artritis Reumatoide/psicología , Masculino , Femenino , Persona de Mediana Edad , Esposos/psicología , Australia , Adulto , Depresión/psicología , Ansiedad/psicología , Anciano , Estrés Psicológico/psicología , Encuestas y Cuestionarios , Reumatología , Bases de Datos Factuales , Calidad de Vida/psicología
11.
Muscle Nerve ; 70(3): 306-315, 2024 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-38760965

RESUMEN

INTRODUCTION/AIMS: The care burden of people living with amyotrophic lateral sclerosis (pALS) increases with disease progression. This study aimed to investigate the home care status and preparedness of care partners of pALS (cALS) in Korea. METHODS: An online survey was conducted with family care partners of patients diagnosed with ALS for over 1 year in 2022. The data collected included care time, depression evaluated using the patient health questionnaire-9 (PHQ-9), preparedness for caregiving scale (PCS), and caregiver competence scale (CCS). Results were compared based on whether the pALS underwent a tracheostomy or not. RESULTS: Ninety-eight cALS of 98 pALS participated in the study, of whom 59 pALS had undergone tracheostomy. Among the cALS, 60.2% were spouses, and 34.7% were children. The cALS took care of the patients for 13 (8-20) hours/day (median, interquartile range [IQR]) on weekdays and 15 (10-24) h/day on weekends. Among the cALS, 91.8% were depressed, and 28.6% had severe depression. The median (IQR) PCS and CCS scores were low (11/32 (8-15) and 8/20 (8-11), respectively), and both were lower in those caring for patients without than with tracheostomy (p < .001 and p < .02, respectively). Most cALS (77.6%) wished to continue caring for their pALS at home. DISCUSSION: Family care partners of pALS spend more than half of each day caring for patients and are often depressed. Most cALS preferred providing care at home, but felt ill-prepared. Designing home-based medical care is necessary for pALS to thrive at home.


Asunto(s)
Esclerosis Amiotrófica Lateral , Cuidadores , Humanos , Esclerosis Amiotrófica Lateral/terapia , Esclerosis Amiotrófica Lateral/psicología , Esclerosis Amiotrófica Lateral/enfermería , Masculino , República de Corea/epidemiología , Femenino , Cuidadores/psicología , Persona de Mediana Edad , Anciano , Adulto , Encuestas y Cuestionarios , Depresión/psicología , Depresión/terapia , Depresión/epidemiología , Servicios de Atención de Salud a Domicilio , Costo de Enfermedad , Traqueostomía , Esposos/psicología , Carga del Cuidador/psicología
12.
J Natl Compr Canc Netw ; 22(6)2024 07 29.
Artículo en Inglés | MEDLINE | ID: mdl-39074504

RESUMEN

BACKGROUND: Colorectal cancer (CRC) is one of the few cancers for which screening has been associated with better survival and morbidity, but screening uptake has been underexplored in spouses of existing patients with CRC. The objective of this study was to evaluate whether a brief, structured behavioral intervention delivered to spouses of patients with CRC in a colorectal clinical setting could increase fecal immunochemical test (FIT) uptake within 3 months of the study period. METHODS: This study was designed as a block randomized, unblinded, parallel trial conducted in the colorectal outpatient clinics of 2 public tertiary hospitals in Singapore from December 2017 to February 2023. The intervention group received a structured informational pamphlet on CRC screening by the Singapore Ministry of Health and a printed guide with instructions on how to properly use a FIT kit. RESULTS: No significant differences in baseline characteristics were observed between the 2 groups. There was a statistically significant difference (P<.001) in FIT screening uptake between spouses in each group, with 86.2% (n=25) in the intervention group and 38.7% (n=12) in the control group. CONCLUSIONS: Our study demonstrated that a brief, structured behavioral intervention offered to spouses accompanying patients with CRC while they wait for the clinic appointment is useful in increasing FIT screening uptake rates. Colorectal clinics can consider setting aside 10 to 15 minutes to educate accompanying spouses in the future as a complementary avenue to holistically promote CRC prevention, subjected to the resources available in each clinic. CLINICALTRIALS: gov identifier: NCT04544852.


Asunto(s)
Neoplasias Colorrectales , Detección Precoz del Cáncer , Esposos , Humanos , Neoplasias Colorrectales/diagnóstico , Neoplasias Colorrectales/psicología , Masculino , Femenino , Esposos/psicología , Esposos/estadística & datos numéricos , Detección Precoz del Cáncer/psicología , Detección Precoz del Cáncer/métodos , Persona de Mediana Edad , Anciano , Sangre Oculta , Singapur , Aceptación de la Atención de Salud/estadística & datos numéricos , Aceptación de la Atención de Salud/psicología , Tamizaje Masivo/métodos , Tamizaje Masivo/psicología
13.
Psychooncology ; 33(4): e6324, 2024 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-38570198

RESUMEN

BACKGROUND: Active surveillance (AS) for prostate cancer (PCa) is a monitoring pathway for men with low-grade, slow growing PCa and aims to delay or avoid active treatment by treating only in the case of disease progression. Experiences of this pathway vary but living with an untreated cancer can have a negative psychological impact on both the patient and their significant other (SO). Literature suggests partners are the primary source of support for men on AS, and therefore it is important to consider SO experiences alongside those of the patient. To the best of our knowledge this is the first UK-based qualitative review looking specifically at experiences of AS for both men with PCa and their SOs. METHODS: MEDLINE (Ovid), EMBASE, PsychINFO, CINAHL and Cochrane Library were searched for literature reporting qualitative experiences of AS for PCa for either men on AS or SOs (or both). 2769 records were identified and screened, with 28 meeting the eligibility criteria. Qualitative data were synthesised and included men on AS (n = 428), and SOs (n = 51). RESULTS: Experiences of the AS pathway vary but reports of uncertainty and anxiety were present in the accounts of both men on AS and SOs. SOs are intertwined throughout every part of the PCa journey, and couples presented as a unit that were on AS together. Both patients and SOs expressed a need for more support, and highly valued peer support. Despite this finding, men expressed a dislike towards 'support groups'. CONCLUSIONS: Increased recognition in clinical practice of SO involvement in AS is needed. Further research is required to explore the specific types of support that would be most acceptable to this population to address the unmet support needs uncovered in this review.


Asunto(s)
Neoplasias de la Próstata , Investigación Cualitativa , Espera Vigilante , Humanos , Neoplasias de la Próstata/psicología , Masculino , Ansiedad/psicología , Apoyo Social , Incertidumbre , Esposos/psicología
14.
Psychooncology ; 33(3): e6314, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-38459736

RESUMEN

OBJECTIVE: Psychological distress is prevalent in couples facing breast cancer. Couples often deal with breast cancer as a unit instead of as individuals. Couple's dyadic coping is important for their adjustment to breast cancer; however, little is known about how couple's coping congruence influences their distress. This study examined how common dyadic coping (CDC) and coping congruence impact psychological distress in couples facing breast cancer. METHODS: Baseline data were analyzed from 343 women with recently diagnosed early-stage breast cancer and their partners who participated in a randomized clinical trial. Psychological distress was indicated by depressed mood and state anxiety. Common dyadic coping was measured by a self-report scale. Coping congruence was assessed by the absolute difference between a woman's and her partner's CDC scores. RESULTS: Higher CDC scores were associated with lower psychological distress in both women and partners. In the CDC subscales, women who suffered less scored higher on open communication, sharing a positive outlook, and lower on avoidance coping. Partners who suffered less scored higher on open communication, sharing a positive outlook, spending time talking, and lower on avoidance coping. Greater congruence in CDC was associated with lower psychological distress in women and their partners. Congruence in sharing a positive outlook benefited both members of the dyad; congruence in avoidance coping significantly benefited patients; congruence in open communication significantly benefited partners. CONCLUSIONS: CDC and its congruence in specific areas have potential benefit to couple's psychological distress when facing breast cancer. Health care providers could consider enhancing couple's CDC and coping congruence to improve their adjustment.


Asunto(s)
Neoplasias de la Mama , Distrés Psicológico , Humanos , Femenino , Adaptación Psicológica , Neoplasias de la Mama/psicología , Esposos/psicología , Habilidades de Afrontamiento
15.
Psychooncology ; 33(3): e6310, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-38411282

RESUMEN

OBJECTIVE: Patients with advanced cancer who parent minor children report parenting concerns and increased psychological distress. This cross-sectional study seeks to understand parenting-related issues in patients and spousal caregivers from a relationship perspective. METHODS: Patients with a metastatic solid malignancy and their spouses independently completed cross-sectional assessments of psychological distress (Hospital Anxiety and Depression Scale), parenting concerns (Parenting Concern Questionnaire) and efficacy (Cancer-Related Parenting Self-Efficacy Scale), and relationship measures (DAS-7, Couples' Illness Communication Scale, and Family Relationship Index). RESULTS: Of the 51 patients (57% female, 49% NHW, mean age 42 years) and spouses (43% female, 43% NHW, mean age of 42 years), approximately 50% couples endorsed psychological distress and were at risk for family dysfunction. Spouses reported significantly higher levels of parenting-related concerns (t = -2.0, p < 0.05) and anxiety (t = -2.8, p < 0.001) than patients. Parenting concerns were significantly associated with illness communication (r = -0.56, p < 0.001) and family function (r = -0.38, p < 0.001). Although the expected interactions between parenting concerns and relationship variables (i.e., illness communication, dyadic adjustment, and family function) were significant for depressive symptoms at p < 0.05, the associations were not in the expected direction. Relationship function buffered against depressive symptoms for those with low rather than high parenting concerns. CONCLUSIONS: Not only patients but also spouses report cancer-related parenting concerns. The associations between parenting concerns and distress were stronger for spouses than patients. Dual caregiving appears to be a particularly stressful role. Because relationship function was associated with parenting concerns, we suggest that parent support programs that are couple-based and include both parenting-specific and relationship-specific content may be most effective in reducing distress for this vulnerable population.


Asunto(s)
Neoplasias Primarias Secundarias , Neoplasias , Niño , Humanos , Femenino , Adulto , Masculino , Responsabilidad Parental/psicología , Esposos/psicología , Estudios Transversales , Neoplasias/psicología , Padres/psicología , Cuidadores/psicología , Adaptación Psicológica
16.
Am J Geriatr Psychiatry ; 32(7): 825-831, 2024 07.
Artículo en Inglés | MEDLINE | ID: mdl-38342662

RESUMEN

OBJECTIVE: This study aims to investigate the effect of partner loss on suicide mortality for surviving partners in the elderly Italian population and to explore differences according to sex and time elapsed since the loss. DESIGN: This was a historical cohort study. SETTING: All Italian residents registered by the 15th Italian Population Census (9 October 2011) were linked to emigration records and death certificates for 2012-2017 to track migration, vital status, and cause of death. PARTICIPANTS: 5,068,414 individuals living as a couple, as registered in the census, and aged ≥69 years on January 1, 2012. MEASUREMENTS: Mortality rate ratios (MRR) estimated through Poisson regression models were used to compare suicide mortality at age ≥75 years between subjects who experienced partner loss and those who did not. RESULTS: Among people who experienced partner loss, there were 383 suicide deaths in men and 90 in women. Suicide mortality was higher in older men and women who experienced the loss compared to those who did not, and the impact of the spouse loss on mortality was stronger in men (age-adjusted MRR=2.83) than in women (1.41). Among men the excess risk was particularly high during the first year following the loss; in women, no substantial differences in the excess risk were observed over the follow-up period. CONCLUSION: Study findings provide evidence of the sex differences in the impact of spouse loss based on data from a large national cohort and reinforce the need for monitoring suicide risk in recently widowed older people.


Asunto(s)
Suicidio , Humanos , Masculino , Femenino , Anciano , Italia/epidemiología , Suicidio/estadística & datos numéricos , Anciano de 80 o más Años , Estudios de Cohortes , Esposos/estadística & datos numéricos , Esposos/psicología , Factores Sexuales , Viudez/estadística & datos numéricos , Viudez/psicología , Factores de Riesgo
17.
Am J Geriatr Psychiatry ; 32(10): 1187-1199, 2024 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-38839462

RESUMEN

OBJECTIVES: Cognitive impairment poses considerable challenges among older adults, with the role of family support becoming increasingly crucial. This study examines the association of children's residential proximity and spousal presence with key modifiable risk factors for dementia in cognitively impaired older adults. METHODS: We analyzed 14,600 individuals (35,165 observations) aged 50 and older with cognitive impairment from the Health and Retirement Study (1995-2018). Family support was categorized by spousal presence and children's residential proximity. Modifiable risk factors, including smoking, depressive symptoms, and social isolation, were assessed. Associations between family support and the modifiable risk factors were determined using mixed-effects logistic regressions. RESULTS: A significant proportion of older adults with cognitive impairment lacked access to family support, with either no spouse (46.9%) or all children living over 10 miles away (25.3%). Those with less available family support, characterized by distant-residing children and the absence of a spouse, had a significantly higher percentage of smoking, depressive symptoms, and social isolation. Moreover, we revealed a consistent gradient in the percentage of the risk factors by the degree of family support. Relative to older adults with a spouse and co-resident children, those without a spouse and with all children residing further than 10 miles displayed the highest percentage of the risk factors. These findings were robust to various sensitivity analyses. CONCLUSIONS: Family support from spouses and nearby children serves as a protective factor against modifiable dementia risk factors in cognitively impaired older adults. Policies that strengthen family and social support may benefit this population.


Asunto(s)
Disfunción Cognitiva , Demencia , Apoyo Social , Humanos , Masculino , Femenino , Demencia/epidemiología , Anciano , Disfunción Cognitiva/epidemiología , Factores de Riesgo , Persona de Mediana Edad , Esposos/psicología , Esposos/estadística & datos numéricos , Depresión/epidemiología , Aislamiento Social/psicología , Anciano de 80 o más Años , Fumar/epidemiología , Familia/psicología , Apoyo Familiar
18.
Pediatr Blood Cancer ; 71(2): e30790, 2024 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-38053241

RESUMEN

It is unknown how common job lock (i.e., staying at job to maintain health insurance) remains among childhood cancer survivors after Affordable Care Act (ACA) implementation in 2010. We examined prevalence of and factors associated with job lock using a cross-sectional survey from the Childhood Cancer Survivor Study (3503 survivors; 942 siblings). Survivor, spousal, and any survivor/spouse job lock were more frequently reported by survivors than siblings. Survivor job lock/any job lock was associated with older age, low income, severe chronic conditions, and debt/inability to pay debt. Job lock remains more common among survivors than siblings after ACA implementation.


Asunto(s)
Supervivientes de Cáncer , Neoplasias , Estados Unidos/epidemiología , Humanos , Niño , Neoplasias/epidemiología , Patient Protection and Affordable Care Act , Estudios Transversales , Esposos , Sobrevivientes , Hermanos
19.
J Geriatr Psychiatry Neurol ; 37(2): 163-172, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-37551824

RESUMEN

Dementia caregiving experiences are not universal and different factors may influence the risk for burden and depression. This study examined factors such as the relationship with the care recipient, severity of dementia, and relationship satisfaction to uncover different types of caregiver burden profiles using baseline assessment for a telephone-based intervention study for dementia caregivers. Participants (n = 233) completed a battery of psychological and caregiving related surveys. The sample was predominantly White and female. Latent class analysis suggested four class models in subsamples of spousal caregivers and adult children caregivers. The results suggested four distinct classes among samples of spousal and adult child caregivers. Differences in burden emerged across both spouses and adult children, and differences in depression also emerged in the spousal sample. Our findings demonstrate the diversity of the caregiving experience and suggest that future psychosocial interventions may benefit from being tailored to the needs of caregiver subgroups.


Asunto(s)
Cuidadores , Demencia , Humanos , Femenino , Cuidadores/psicología , Depresión/psicología , Esposos/psicología , Carga del Cuidador , Demencia/psicología
20.
J Sex Marital Ther ; 50(5): 659-674, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38721828

RESUMEN

This study examined attachment insecurities, infertility-specific coping strategies, and quality of life (QoL) in 87 couples seeking fertility treatment. Partners completed self-report measures. Path analyses showed that women's and men's attachment anxiety were associated with their own lower QoL, whereas attachment avoidance was associated with their own and their partner's lower QoL. Adaptive coping in men and women were associated with women's higher QoL. Non-adaptive coping was associated with men and women's lower QoL. Coping strategies explained the associations between attachment and QoL. This highlights the importance of individual and dyadic factors for understanding QoL in couples seeking fertility treatment.


Asunto(s)
Adaptación Psicológica , Infertilidad , Apego a Objetos , Calidad de Vida , Humanos , Femenino , Calidad de Vida/psicología , Masculino , Adulto , Infertilidad/psicología , Esposos/psicología , Relaciones Interpersonales , Parejas Sexuales/psicología
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