Lung transplant or bust: patients' recommendations for ideal lung transplant education.
Prog Transplant
; 24(2): 132-41, 2014 Jun.
Article
in En
| MEDLINE
| ID: mdl-24919729
ABSTRACT
CONTEXT Effective lung transplant education helps ensure informed decision making by patients and better transplant outcomes. OBJECTIVE:
To understand the educational needs and experiences of lung transplant patients.DESIGN:
Mixed-method study employing focus groups and patient surveys.SETTING:
Barnes-Jewish Hospital in St Louis, Missouri. PATIENTS 50 adult lung transplant patients 23 pretransplant and 27 posttransplant. MAIN OUTCOMEMEASURES:
Patients' interest in receiving specific transplant information, the stage in the transplant process during which they wanted to receive the education, and the preferred format for presenting the information.RESULTS:
Patients most wanted information about how to sustain their transplant (72%), when to contact their coordinator immediately (56%), transplant benefits (56%), immunosuppressants (54%), and possible out-of-pocket expenses (52%). Patients also wanted comprehensive information early in the transplant process and a review of a subset of topics immediately before transplant (time between getting the call that a potential donor has been found and getting the transplant). Patients reported that they would use Internet resources (74%) and converse with transplant professionals (68%) and recipients (62%) most often.DISCUSSION:
Lung transplant patients are focused on learning how to get a transplant and ensuring its success afterwards. A comprehensive overview of the evaluation, surgery, and recovery process at evaluation onset with a review of content about medications, pain management, and transplant recovery repeated immediately before surgery is ideal.
Full text:
1
Database:
MEDLINE
Main subject:
Patient Education as Topic
/
Lung Transplantation
/
Patient Preference
/
Lung Diseases
Type of study:
Qualitative_research
Limits:
Adult
/
Aged
/
Female
/
Humans
/
Male
/
Middle aged
Language:
En
Year:
2014
Type:
Article