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Marfan syndrome in childhood: parents' perspectives of the impact on daily functioning of children, parents and family; a qualitative study.
Warnink-Kavelaars, Jessica; Beelen, Anita; Dekker, Sarah; Nollet, Frans; Menke, Leonie A; Engelbert, Raoul H H.
Affiliation
  • Warnink-Kavelaars J; Amsterdam UMC, University of Amsterdam, Rehabilitation, Amsterdam Movement Sciences, Meibergdreef 9, Amsterdam, Netherlands. j.warnink@amsterdamumc.nl.
  • Beelen A; Amsterdam UMC, University of Amsterdam, Rehabilitation, Amsterdam Movement Sciences, Meibergdreef 9, Amsterdam, Netherlands.
  • Dekker S; Center of Excellence in Rehabilitation Medicine, Brain Center Rudolf Magnus, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, the Netherlands.
  • Nollet F; Department of Rehabilitation, Physical Therapy Science & Sports, Brain Center Rudolf Magnus, University Medical Center Utrecht, Utrecht, the Netherlands.
  • Menke LA; Amsterdam UMC, University of Amsterdam, Rehabilitation, Amsterdam Movement Sciences, Meibergdreef 9, Amsterdam, Netherlands.
  • Engelbert RHH; Amsterdam UMC, University of Amsterdam, Rehabilitation, Amsterdam Movement Sciences, Meibergdreef 9, Amsterdam, Netherlands.
BMC Pediatr ; 19(1): 262, 2019 07 29.
Article in En | MEDLINE | ID: mdl-31357961
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Full text: 1 Database: MEDLINE Main subject: Activities of Daily Living / Marfan Syndrome Type of study: Etiology_studies / Prognostic_studies / Qualitative_research Limits: Child / Child, preschool / Female / Humans / Male Language: En Year: 2019 Type: Article
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Full text: 1 Database: MEDLINE Main subject: Activities of Daily Living / Marfan Syndrome Type of study: Etiology_studies / Prognostic_studies / Qualitative_research Limits: Child / Child, preschool / Female / Humans / Male Language: En Year: 2019 Type: Article