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Health-Related Quality of Life and mental health of families with children and adolescents affected by rare diseases and high disease burden: the perspective of affected children and their siblings.
Wiegand-Grefe, Silke; Liedtke, Anna; Morgenstern, Lydia; Hoff, Antonia; Csengoe-Norris, Anikó; Johannsen, Jessika; Denecke, Jonas; Barkmann, Claus; Grolle, Benjamin; Daubmann, Anne; Wegscheider, Karl; Boettcher, Johannes.
Affiliation
  • Wiegand-Grefe S; Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20251, Hamburg, Germany. s.wiegand-grefe@uke.de.
  • Liedtke A; Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20251, Hamburg, Germany.
  • Morgenstern L; Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20251, Hamburg, Germany.
  • Hoff A; Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20251, Hamburg, Germany.
  • Csengoe-Norris A; Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20251, Hamburg, Germany.
  • Johannsen J; Department of Pediatrics, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Denecke J; Department of Pediatrics, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Barkmann C; Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20251, Hamburg, Germany.
  • Grolle B; Department of Pediatrics, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Daubmann A; Department of Medical Biometry and Epidemiology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Wegscheider K; Department of Medical Biometry and Epidemiology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
  • Boettcher J; Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Medical Center Hamburg-Eppendorf, Martinistraße 52, 20251, Hamburg, Germany. j.boettcher@uke.de.
BMC Pediatr ; 22(1): 596, 2022 10 14.
Article in En | MEDLINE | ID: mdl-36229869
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Full text: 1 Database: MEDLINE Main subject: Quality of Life / Mental Health Type of study: Observational_studies / Prevalence_studies / Risk_factors_studies Limits: Adolescent / Child / Humans Language: En Year: 2022 Type: Article
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Full text: 1 Database: MEDLINE Main subject: Quality of Life / Mental Health Type of study: Observational_studies / Prevalence_studies / Risk_factors_studies Limits: Adolescent / Child / Humans Language: En Year: 2022 Type: Article