'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1.

Higgs, Emily J; McClaren, Belinda J; Sahhar, Margaret Ar; Ryan, Monique M; Forbes, Robin

Higgs, Emily J; McClaren, Belinda J; Sahhar, Margaret Ar; Ryan, Monique M; Forbes, Robin.

Afiliación

Higgs EJ; Department of Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia.
McClaren BJ; Genetics Education and Health Research, Murdoch Childrens Research Institute, Melbourne, Victoria, Australia.
Sahhar MA; Department of Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia.
Ryan MM; Victorian Clinical Genetics Services, The Royal Children's Hospital, Melbourne, Victoria, Australia.
Forbes R; Department of Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia.

J Paediatr Child Health ; 52(1): 40-6, 2016 Jan.

Article en En | MEDLINE | ID: mdl-26437687

Asunto(s)

Aflicción; Familia/psicología; Atrofias Musculares Espinales de la Infancia/psicología; Adaptación Psicológica; Preescolar; Femenino; Humanos; Lactante; Entrevistas como Asunto; Masculino; Investigación Cualitativa; Apoyo Social

Palabras clave

bereavement; genetics; neuromuscular disease; qualitative research; spinal muscular atrophy

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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Aflicción / Familia / Atrofias Musculares Espinales de la Infancia Tipo de estudio: Guideline / Prognostic_studies / Qualitative_research Límite: Child, preschool / Female / Humans / Infant / Male Idioma: En Año: 2016 Tipo del documento: Article

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