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The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models.
Ferreira, Ricardo J O; Gossec, Laure; Duarte, Cátia; Nicklin, Joanne K; Hewlett, Sarah; da Silva, J A P; Ndosi, Mwidimi.
Afiliación
  • Ferreira RJO; Rheumatology Department, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal.
  • Gossec L; Health Sciences Research Unit: Nursing (UICiSA:E), Escola Superior de Enfermagem de Coimbra, Coimbra, Portugal.
  • Duarte C; Sorbonne Universités, UPMC Univ. Paris 06, Institut Pierre Louis d'Epidémiologie et de Santé Publique, GRC-UPMC 08, Paris, France.
  • Nicklin JK; Rheumatology Department, AP-HP, Pitié-Salpetrière Hospital, Paris, France.
  • Hewlett S; Rheumatology Department, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal.
  • da Silva JAP; Coimbra Institute for Clinical and Biomedical Research (iCBR), Faculty of Medicine, University of Coimbra, Coimbra, Portugal.
  • Ndosi M; Department of Nursing and Midwifery, University of the West of England, Bristol, UK.
Qual Life Res ; 27(11): 2909-2921, 2018 Nov.
Article en En | MEDLINE | ID: mdl-30069794
ABSTRACT

PURPOSE:

The Rheumatoid Arthritis Impact of Disease (RAID) score assesses seven impact domains of interest for people with RA. This study aimed to test patients' understanding of the Portuguese RAID and evaluate its cross-cultural validity for use in Portugal.

METHODS:

This was a mixed methods study comprising two phases (i) cognitive debriefing to determine patient's comprehension of the Portuguese RAID and (ii) cross-cultural validation using Rasch analysis. Construct validity was determined by fit to the model, invariance culture (compared with France and UK datasets) and evidence of convergent and divergent validity.

RESULTS:

Patients' input (n = 38) led to minor changes in the phrasing of two items to ensure conceptual equivalence between the Portuguese and the original RAID. In Rasch analysis (n = 288), two items 'Sleep' and 'Physical well-being' in the Portuguese dataset did not adequately fit the model specifications, suggesting multidimensionality (sleep-not necessarily associated with RA) and redundancy (physical well-being overlapping with functional disability). Despite the imperfections, the scale had high internal consistency, evidence of convergent and divergent validity and invariance to culture (compared to France n = 195 and UK n = 205 datasets). The scale was well targeted for patients with different levels of disease impact.

CONCLUSIONS:

The RAID has been successfully adapted into Portuguese and it can be used with confidence in clinical practice. Further research will be required to ensure it captures the full range of sleep problems in RA. Meanwhile, data across the three countries (Portugal, France and the UK) are comparable except for the two items (sleep and physical well-being).
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Artritis Reumatoide / Calidad de Vida Tipo de estudio: Clinical_trials / Prognostic_studies / Qualitative_research Límite: Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Año: 2018 Tipo del documento: Article

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Artritis Reumatoide / Calidad de Vida Tipo de estudio: Clinical_trials / Prognostic_studies / Qualitative_research Límite: Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Año: 2018 Tipo del documento: Article