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1.
Cancer Control ; 28: 10732748211039764, 2021.
Article in English | MEDLINE | ID: mdl-34634922

ABSTRACT

BACKGROUND: Radon is a predominant indoor air pollutant and second leading cause of lung cancer in radon-prone areas. Despite the gravity of the health risk, residents in Canada have inadequate perception and taken minimal protective actions. Better perception of a risk motivates people to take preventive measures. Scholarship about radon health risk perception is lacking in Canada. We applied a mixed methods population health approach to explore the determinants shaping perception and actions of a resident population in Canada. METHODS: We conducted mixed surveys (n = 557) and qualitative bilingual interviews (n = 35) with both homeowners and tenants of Ottawa-Gatineau areas. The study explored residents' risk perception and adaptations factors. Descriptive, correlational and regression analyses described and established associations between quantitative variables. Thematic, inductive analyses identified themes in the qualitative data. A mixed methods analysis triangulated both results to draw a holistic perception of the health risk. RESULTS: Residents' quantitative perceptions of radon health risk, smoking at home, synergistic risk perception, social influence and care for family were associated significantly with their intention to test for radon levels in their home, actual testing and mitigation. These results were explained further with the qualitative findings. Residents who had dual cognitive and emotional awareness of the risk were motivated enough to take preventive actions. Caring for family, knowing others who contracted lung cancer and financial capability were enablers, whereas lack of awareness and homeownership, cost of mitigation and stigma were obstacles to preventive actions. We also explored the dual subjective and objective aspects of risk perception that are influenced by micro- and macro-level determinants. CONCLUSIONS: Inducing protective action to reduce risk requires comprehensive population-level interventions considering dual perceptions of the risk that can modify the risk determinants. Future research can explore the dual aspects of risk perception and unequal distribution of the risk factors.


Subject(s)
Environmental Exposure/adverse effects , Lung Neoplasms/chemically induced , Radon/adverse effects , Adolescent , Adult , Age Factors , Aged , Canada/epidemiology , Cigarette Smoking/epidemiology , Consumer Health Information/methods , Cross-Sectional Studies , Female , Health Knowledge, Attitudes, Practice , Humans , Male , Middle Aged , Perception , Residence Characteristics , Risk Assessment , Risk Factors , Sex Factors , Social Networking , Sociodemographic Factors , Young Adult
2.
Clin Exp Dermatol ; 46(8): 1545-1547, 2021 Dec.
Article in English | MEDLINE | ID: mdl-33864398

ABSTRACT

Misinformation is one of the greatest threats to global health. Atopic dermatitis (AD) is a common skin disorder with a complex multifactorial aetiology, rendering it susceptible to misinformation. Little is known about the content of misinformation regarding AD online. We performed a review of AD-related misinformation available online, via PubMed for scientific papers and Google for nonscientific websites. Key areas of misinformation were identified, including 'simple cures' for AD, diet, chemicals, dust, vaccines, red skin syndrome and alternative therapies. Patients with AD and their families are vulnerable to misinformation given the severe impact of AD on quality of life. Dermatologists must be aware of the false AD-related content being shared online, and be prepared to refute and rebut misinformation by providing appropriate evidence.


Subject(s)
Communication , Consumer Health Information/standards , Dermatitis, Atopic , Social Media , Consumer Health Information/methods , Dermatitis, Atopic/etiology , Dermatitis, Atopic/therapy , Dermatologists , Humans , Patient Education as Topic , Physician's Role , Quality of Life
3.
BMJ Open ; 10(10): e040989, 2020 10 26.
Article in English | MEDLINE | ID: mdl-33109677

ABSTRACT

OBJECTIVE: The spread of misinformation has accompanied the coronavirus pandemic, including topics such as immune boosting to prevent COVID-19. This study explores how immune boosting is portrayed on the internet during the COVID-19 pandemic. DESIGN: Content analysis. METHODS: We compiled a dataset of 227 webpages from Google searches in Canada and the USA using the phrase 'boost immunity' AND 'coronavirus' on 1 April 2020. We coded webpages for typology and portrayal of immune boosting and supplements. We recorded mentions of microbiome, whether the webpage was selling or advertising an immune boosting product or service, and suggested strategies for boosting immunity. RESULTS: No significant differences were found between webpages that appeared in the searches in Canada and the USA. The most common types of webpages were from news (40.5%) and commercial (24.7%) websites. The concept of immune boosting was portrayed as beneficial for avoiding COVID-19 in 85.5% of webpages and supplements were portrayed as beneficial in 40% of the webpages, but commercial sites were more likely to have these portrayals. The top immune boosting strategies were vitamin C (34.8%), diet (34.4%), sleep (34.4%), exercise (30.8%) and zinc (26.9%). Less than 10% of the webpages provide any critique of the concept of immune boosting. CONCLUSIONS: Pairing evidence-based advice for maintaining one's health (eg, healthy diet, exercise, sleep) with the phrase immune boosting and strategies lacking in evidence may inadvertently help to legitimise the concept, making it a powerful marketing tool. Results demonstrate how the spread of misinformation is complex and often more subtle than blatant fraudulent claims.


Subject(s)
Communication , Consumer Health Information , Coronavirus Infections , Immunologic Factors , Immunotherapy , Internet , Marketing , Pandemics , Pneumonia, Viral , Betacoronavirus , COVID-19 , Canada/epidemiology , Consumer Health Information/methods , Consumer Health Information/standards , Coronavirus Infections/epidemiology , Coronavirus Infections/immunology , Coronavirus Infections/prevention & control , Data Accuracy , Dietary Supplements/standards , Humans , Immunologic Factors/standards , Immunologic Factors/therapeutic use , Immunotherapy/methods , Immunotherapy/standards , Information Dissemination/ethics , Information Dissemination/methods , Internet/statistics & numerical data , Internet/trends , Marketing/ethics , Marketing/methods , Pandemics/prevention & control , Pneumonia, Viral/epidemiology , Pneumonia, Viral/immunology , Pneumonia, Viral/prevention & control , Public Health , SARS-CoV-2 , United States/epidemiology
4.
Am J Health Promot ; 34(4): 436-439, 2020 05.
Article in English | MEDLINE | ID: mdl-31916839

ABSTRACT

PURPOSE: To compare cannabis enthusiasts' knowledge about cannabis risks and effectiveness in treating medical conditions with existing empirical evidence. DESIGN: A brief survey assessed cannabis use, information sources, and knowledge about risks and effectiveness. SETTING: A cannabis advocacy event in April 2019 in a state with legal medical and recreational cannabis. PARTICIPANTS: Demographically diverse adults (N = 472) who frequently used cannabis; 85% used cannabis for health or medical purposes. MEASURES: Participants reported the sources of their cannabis information, health conditions they thought cannabis was effective in treating (n = 10), and health risks increased by cannabis (n = 6). Conditions and risks were based on ratings of evidence (ie, from substantial to insufficient) for therapeutic effects and risks identified in a review by The National Academies of Sciences, Engineering, and Medicine (NASEM, 2017). ANALYSES: Chi-square tests examined the correspondence between participants' knowledge and NASEM conclusions. RESULTS: Most participants' (95% confidence interval [CI]: 74%-81%) knowledge of cannabis was from their own experiences; 18% (95% CI: 14%-21%) received information from primary care providers. On average, participants' beliefs matched NASEM conclusions for half of effectiveness (95% CI: 50%-53%) and risk items (95% CI: 55%-57%). Many (95% CI: 38%-42%) thought that cannabis use did not increase any risk. Contrary to NASEM conclusions, many thought cannabis was effective in treating cancer (76%), depressive symptoms (72%), and epilepsy (68%). Those who received cannabis information from their primary care providers had better knowledge of medical effectiveness. Medicinal cannabis use frequency inversely predicted knowledge of medical effectiveness and increased risks of adverse events. CONCLUSION: There were considerable discrepancies between cannabis users' knowledge and available evidence, highlighting the need for more research and education (by physicians, caregivers, and dispensaries) on effectiveness and health risks, especially for users with specific health issues such as pregnant women and people with depression.


Subject(s)
Consumer Health Information/methods , Health Knowledge, Attitudes, Practice , Marijuana Abuse/epidemiology , Medical Marijuana/therapeutic use , Adolescent , Adult , Aged , Female , Humans , Male , Medical Marijuana/administration & dosage , Medical Marijuana/adverse effects , Middle Aged , Socioeconomic Factors , Young Adult
5.
J Med Internet Res ; 21(1): e11297, 2019 01 30.
Article in English | MEDLINE | ID: mdl-30698526

ABSTRACT

BACKGROUND: Addiction is one of the most rapidly growing epidemics that currently plagues nations around the world. In the United States, it has cost the government more than US $700 billion a year in terms of health care and other associated costs and is also associated with serious social, physical, and mental consequences. Increasing efforts have been made to tackle this issue at different levels, from primary prevention to rehabilitation across the globe. With the use of digital technology rapidly increasing, an effort to leverage the consumer health information technologies (CHITs) to combat the rising substance abuse epidemic has been underway. CHITs are identified as patient-focused technological platforms aimed to improve patient engagement in health care and aid them in navigating the complex health care system. OBJECTIVE: This review aimed to provide a holistic and overarching view of the breadth of research on primary prevention of substance abuse using CHIT conducted over nearly past five decades. It also aimed to map out the changing landscape of CHIT over this period. METHODS: We conducted a scoping review using the Arksey and O'Malley's modified methodological framework. We searched 4 electronic databases (PubMed, Cochrane, Scopus, and EMBASE). Papers were included if the studies addressed the use of CHIT for primary prevention of substance abuse and were published in English between 1809 and 2018. Studies that did not focus solely on primary prevention or assessed additional comorbid conditions were eliminated. RESULTS: Forty-two papers that met our inclusion criteria were included in the review. These studies were published between 1970 and 2018 and were not restricted by geography, age, race, or sex. The review mapped studies using the most commonly used CHIT platforms for substance abuse prevention from mass media in the 1970s to mobile and social media in 2018. Moreover, 191 studies that were exclusively focused on alcohol prevention were excluded and will be addressed in a separate paper. The studies included had diverse research designs although the majority were randomized controlled trials (RCT) or review papers. Many of the RCTs used interventions based on different behavioral theories such as family interactions, social cognitive theories, and harm-minimization framework. CONCLUSIONS: This review found CHIT platforms to be efficacious and cost-effective in the real-world settings. We also observed a gradual shift in the types and use of CHIT platforms over the past few decades and mapped out their progression. In addition, the review detected a shift in consumer preferences and behaviors from face-to-face interactions to technology-based platforms. However, the studies included in this review only focused on the aspect of primary prevention. Future reviews could assess the effectiveness of platforms for secondary prevention and for prevention of substance abuse among comorbid populations.


Subject(s)
Consumer Health Information/methods , Substance-Related Disorders/prevention & control , Humans
7.
Qual Health Res ; 28(12): 1883-1896, 2018 10.
Article in English | MEDLINE | ID: mdl-30101662

ABSTRACT

Some women in a high-risk pregnancy go against medical advice and choose to birth at home with a "holistic" midwife. In this exploratory multiple case study, grounded theory and triangulation were employed to examine 10 cases. The women, their partners, and (regular and holistic) health care professionals were interviewed in an attempt to determine whether there was a pattern to their experiences. Two propositions emerged. The dominant one was a trajectory of trauma, self-education, concern about paternalism, and conflict leading to a negative choice for holistic care. The rival proposition was a path of trust and positive choice for holistic care without conflict. We discuss these two propositions and make suggestions for professionals for building a trusting relationship using continuity of care, true shared decision making, and an alternative risk discourse to achieve the goal of making women perceive the hospital as safe again.


Subject(s)
Home Childbirth/psychology , Midwifery/organization & administration , Pregnancy, High-Risk/psychology , Adult , Attitude of Health Personnel , Conflict, Psychological , Consumer Health Information/methods , Female , Grounded Theory , Health Knowledge, Attitudes, Practice , Humans , Netherlands , Paternalism , Perception , Pregnancy , Qualitative Research , Risk Factors , Socioeconomic Factors , Spouses/psychology , Trust/psychology
8.
Article in English | MEDLINE | ID: mdl-29882906

ABSTRACT

The aim of this study was to determine the prevalence of usage and the knowledge and attitudes towards dietary supplements among medical sciences and nonmedical sciences students from Croatia. The study was conducted based on a questionnaire about dietary supplement usage, knowledge and attitudes. The prevalence of dietary supplement use, among 910 university students was 30.5%. The most-used dietary supplements were vitamins (18.0% in medical sciences students and 9.8% in non-medical sciences students). For all students, the internet (66.1%) was the most common source of information, followed by healthcare professionals (33.2%). The most common reason for taking dietary supplements was to maintain good health (26.4%). Use of the internet rather than health professionals as a trusted information source should be revised among this young population. Supplement intake was significantly associated with body mass index (BMI) (p = 0.016) and physical activity (p = 0.050). Students with normal BMI (61.5%) and the most physically active students (37.7%) took significantly more dietary supplements. Results of this study could help medicine faculties to improve their curriculum and support the development of public health messages aimed at wise and safe use of dietary supplements.


Subject(s)
Dietary Supplements/statistics & numerical data , Health Knowledge, Attitudes, Practice , Adolescent , Body Mass Index , Consumer Health Information/methods , Croatia , Cross-Sectional Studies , Exercise , Female , Humans , Internet , Male , Prevalence , Surveys and Questionnaires , Vitamins/administration & dosage , Young Adult
9.
BMC Pregnancy Childbirth ; 18(1): 182, 2018 May 25.
Article in English | MEDLINE | ID: mdl-29801477

ABSTRACT

BACKGROUND: The reported long-term effects of poor maternal nutrition and uptake of recommended supplements before and during pregnancy was the impetus behind this study. Our objectives were to investigate and understand women's expectations, knowledge, behaviour and information sources used regarding the use of nutrition and vitamin supplements before and during pregnancy. METHODS: A cross-sectional survey using a self-administered questionnaire was undertaken. A purposive sampling technique was used. Women attending the antenatal clinic at Croydon University Hospital during 2015 were invited to take part in the study. The data was analysed using descriptive statistics, paired sample T-tests and Chi-squared tests, with the level of significance set at 5% (p < 0.05). RESULTS: A total of 133 pregnant women completed the survey. Analysis of the results showed that women are currently using electronic resources (33%, n = 42) rather than healthcare professionals (19%, n = 25) as an information source before pregnancy. Women who sourced information through the internet were significantly more likely to take folic acid (p = 0.006) and vitamin D (p = 0.004) before pregnancy. Women preferred to receive information from the antenatal clinic (62%, n = 83), internet (46%, n = 61) and from mobile applications (27%, n = 36). Although women believed they had sufficient knowledge (60%, n = 80) and had received adequate advice (53%, n = 70) concerning the correct supplements to take, this was not demonstrated in their behaviour, with only a small number of women (37%, n = 49) taking a folic acid supplement before pregnancy. Women mistakenly perceived the timing of supplement advice as correct, with only a small number of women (18%, n = 23) considering the advice on supplements as too late. CONCLUSIONS: Despite the small sample size, this study demonstrated that women did not receive timely and/or accurate advice to enable them to take the recommended supplements at the optimal time. Women had the misconception that they understood the correct use of pregnancy supplements. This misunderstanding may be prevented by providing women intending to become pregnant with a structured, approved electronic source of information that improves their supplements uptake.


Subject(s)
Consumer Health Information/statistics & numerical data , Dietary Supplements/statistics & numerical data , Patient Satisfaction , Pregnant Women/psychology , Prenatal Care/psychology , Adult , Consumer Health Information/methods , Cross-Sectional Studies , Diet/psychology , Female , Health Knowledge, Attitudes, Practice , Humans , Perception , Preconception Care , Pregnancy , Prenatal Care/methods , Surveys and Questionnaires , Young Adult
10.
Pediatr Allergy Immunol ; 29(4): 410-416, 2018 06.
Article in English | MEDLINE | ID: mdl-29512839

ABSTRACT

BACKGROUND: Food allergy affects an estimated 8% of children and 3% of adults in the United States. Food-allergic individuals increasingly use the web for medical information. We sought to determine the educational quality of food allergy YouTube videos. METHODS: We performed a YouTube search using keywords "food allergy" and "food allergies". The 300 most viewed videos were included and analyzed for characteristics, source, and content. Source was further classified as healthcare provider, alternative medicine provider, patient, company, media, and professional society. A scoring system (FA-DQS) was created to evaluate quality (-10 to +34 points). Negative points were assigned for misleading information. Eight reviewers scored each video independently. RESULTS: Three hundred videos were analyzed, with a median of 6351.50 views, 19 likes, and 1 dislike. More video presenters were female (54.3%). The most common type of video source was alternative medicine provider (26.3%). Alternative treatments included the following: water fast, juicing, Ayurveda, apple cider, yoga, visualization, and sea moss. Controversial diagnostics included kinesiology, IgG testing, and pulse test. Almost half of the videos depicted a non-IgE-mediated reaction (49.0%).Videos by professional societies had the highest FA-DQS (7.27). Scores for videos by professional societies were significantly different from other sources (P < .001). There was a high degree of agreement among reviewers (ICC = 0.820; P < .001). CONCLUSION: YouTube videos on food allergy frequently recommend controversial diagnostics and commonly depict non-IgE-mediated reactions. There is a need for high-quality, evidence-based, educational videos on food allergy.


Subject(s)
Consumer Health Information/methods , Consumer Health Information/standards , Food Hypersensitivity , Internet , Video Recording , Food Hypersensitivity/diagnosis , Food Hypersensitivity/immunology , Food Hypersensitivity/therapy , Humans , United States
11.
East Mediterr Health J ; 23(10): 662-669, 2017 Dec 14.
Article in English | MEDLINE | ID: mdl-29270966

ABSTRACT

Preconceptual folic acid use is known to have a protective effect against neural tube defects (NTDs). This study assessed knowledge and determinants of awareness on folic acid use among pregnant women at Omdurman Maternity Hospital, Sudan during 2014. The standardized, anonymous questionnaire was used to collect data. Almost 80% of respondents had heard of folic acid. College-educated women (92.2%) knew more about folic acid and used it more often in the pre-conceptual period (8.3%). Doctors were the commonest source of information on folic acid (62%). Fewer subjects (8.9%) knew that it prevented birth defects, and 33.8% of subjects knew that green leafy vegetables are a source of folic acid. Of all subjects, only 3.2% use it preconceptually. Supplementation of folic acid preconceptually needs to be addressed in order to reduce the rate of NTDs found in Sudan.


Subject(s)
Folic Acid/administration & dosage , Health Knowledge, Attitudes, Practice , Neural Tube Defects/prevention & control , Adolescent , Adult , Consumer Health Information/methods , Cross-Sectional Studies , Dietary Supplements , Female , Humans , Middle Aged , Preconception Care , Pregnancy , Prenatal Care , Socioeconomic Factors , Sudan , Young Adult
12.
Article in German | MEDLINE | ID: mdl-28447133

ABSTRACT

Over the last two decades, the Internet has become the primary source of information. Thanks to the Internet, laypeople have access to information from the health and the environmental sector, which was for a long time available only to experts (e. g. scientific publications, statistics). Information on the Internet varies in quality, as generally anybody can publish online, without any quality control. At the same time, Internet use comes with specific situational characteristics. Given that the amount of information is nearly unlimited and that this information is easily available via search engines, users are not restricted to one or just a few texts, but can choose between multiple sources depending on their motivation and interest. Together with the heterogeneity of the sources, this provides the basis for a strong impact of motivation on the process and the outcomes of information acquisition online. Based on empirical research in the domain of Internet searching in the health sector, the current article discusses the impact of the use of digital media in the context of environmental medicine. Research has led to four conclusions: (1) Users are not sufficiently sensitive to the quality of information. (2) Information supporting their own opinion is preferably processed. (3) Users who feel threatened focus on positive information. (4) Vigilant users focus on negative information, which might result in cyberchrondria. The implications of these effects for the use of digital media in the sector of environmental medicine are discussed.


Subject(s)
Consumer Health Information/methods , Consumer Health Information/statistics & numerical data , Environmental Health , Information Dissemination/methods , Internet/statistics & numerical data , Mobile Applications/statistics & numerical data , Search Engine/statistics & numerical data
13.
PLoS One ; 12(2): e0171188, 2017.
Article in English | MEDLINE | ID: mdl-28182630

ABSTRACT

Traffic-light labelling has been proposed as a public health intervention to improve the dietary intakes of consumers. OBJECTIVES: to model the potential impact of avoiding foods with red traffic lights on the label on the energy, total fat, saturated fat, sodium, and sugars intakes of Canadian adults. METHODS: Canadian adults aged 19 and older (n = 19,915) who responded to the Canadian Community Health Survey (CCHS), Cycle 2.2. The nutrient levels in foods consumed by Canadians in CCHS were profiled using the United Kingdom's criteria for traffic light labelling. Whenever possible, foods assigned a red traffic light for one or more of the profiled nutrients were replaced with a similar food currently sold in Canada, with nutrient levels not assigned any red traffic lights. Average intakes of calories, total fat, saturated fat, sodium, and sugars under the traffic light scenario were compared with actual intakes of calories and these nutrients (baseline) reported in CCHS. RESULTS: Under the traffic light scenario, Canadian's intake of energy, total fat, saturated fat, and sodium were significantly reduced compared to baseline; sugars intakes were not significantly reduced. Calorie intake was reduced by 5%, total fat 13%, saturated fat 14%, and sodium 6%. CONCLUSION: Governments and policy makers should consider the adoption of traffic light labelling as a population level intervention to improve dietary intakes and chronic disease risk.


Subject(s)
Dietary Fats , Energy Intake , Feeding Behavior , Food Labeling/methods , Sodium, Dietary , Adult , Aged , Aged, 80 and over , Canada/epidemiology , Color , Consumer Health Information/methods , Dietary Carbohydrates/administration & dosage , Dietary Fats/administration & dosage , Fatty Acids/administration & dosage , Female , Humans , Male , Middle Aged , Sodium, Dietary/administration & dosage , Young Adult
14.
Qual Health Res ; 27(9): 1302-1315, 2017 Jul.
Article in English | MEDLINE | ID: mdl-27811288

ABSTRACT

New interventions to reduce HIV and sexually transmitted infections (STI) among female sex workers are introduced into the context of women's existing prevention beliefs and practices. These indigenous practices affected implementation of our program to introduce female condoms to women in sex-work establishments in southern China. We used ethnographic field observations and in-depth interviews to document common prevention methods women reported using to protect themselves before and during intervention implementation. Individual, sex-work establishment, and other contextual factors, including sources of information and social and economic pressures to use or reject prevention options, shaped their perceptions and selection of these methods and affected adoption of female condoms as an additional tool. Efforts to improve uptake of effective prevention methods among low-income sex workers require attention to the context and spectrum of women's HIV/STI prevention practices when introducing innovations such as female condoms, microbicides, pre-exposure prophylaxis pills, and others, as they become available.


Subject(s)
Condoms, Female/statistics & numerical data , HIV Infections/prevention & control , Health Knowledge, Attitudes, Practice , Poverty , Sex Workers/psychology , Adult , Anthropology, Cultural , Anti-Bacterial Agents/administration & dosage , China/epidemiology , Consumer Health Information/methods , Female , HIV Infections/ethnology , Humans , Medicine, Chinese Traditional/statistics & numerical data , Middle Aged , Qualitative Research , Risk Assessment , Risk Factors , Sexually Transmitted Diseases/prevention & control , Socioeconomic Factors , Substance Abuse, Intravenous/epidemiology , Vaginal Douching/statistics & numerical data
15.
Eur J Gastroenterol Hepatol ; 28(11): 1320-8, 2016 Nov.
Article in English | MEDLINE | ID: mdl-27472271

ABSTRACT

BACKGROUND: There is an increasing interest in complementary and alternative medicine (CAM) in patients with chronic diseases, including those with inflammatory bowel disease (IBD). Patients may turn to CAM when conventional therapies are inadequate or associated with side effects for symptomatic relief or to regain control over their disease. The objectives were to explore CAM use and perceived effects in IBD patients in comparison with a control group. METHODS: A cross-sectional, multicenter, controlled study was carried out. IBD patients were invited from 12 IBD clinics in Sweden. Controls were selected randomly from a residence registry. A study-specific questionnaire was used for data collection. RESULTS: Overall, 48.3% of patients with IBD had used some kind of CAM during the past year compared with 53.5% in controls (P=0.025, adjusted for age, sex, geographic residence, and diet). The most frequently used CAM among IBD patients was massage (21.3%), versus controls (31.4%) (adjusted P=0.0003). The second most used CAM was natural products, 18.7% in IBD patients versus 22.3% of the controls (unadjusted P=0.018). In all, 83.1% of the patients experienced positive effects from CAM and 14.4% experienced negative effects. CONCLUSION: Overall, 48.3% of Swedish IBD patients used some kind of CAM and controls used CAM significantly more. Natural products were used by one-fifth of the patients and even more by controls. This is notable from a patient safety perspective considering the possible risks of interactions with conventional medication. In all, 40% of the patients reported adverse events from conventional medicine. Patients experienced predominantly positive effects from CAM, and so did controls.


Subject(s)
Complementary Therapies/statistics & numerical data , Inflammatory Bowel Diseases/therapy , Adolescent , Adult , Aged , Aged, 80 and over , Case-Control Studies , Complementary Therapies/methods , Consumer Health Information/methods , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Patient Satisfaction , Socioeconomic Factors , Sweden , Young Adult
16.
J Gen Intern Med ; 30(8): 1063-70, 2015 Aug.
Article in English | MEDLINE | ID: mdl-25691239

ABSTRACT

BACKGROUND: Patient eHealth technology offers potential support for disease self-management, but the value of existing applications for patients with multiple chronic conditions (MCCs) is unclear. OBJECTIVES: To understand self-management and health care navigation challenges that patients face due to MCCs and to identify opportunities to support these patients through new and enhanced eHealth technology. DESIGN: After administering a screening survey, we conducted 10 focus groups of 3-8 patients grouped by age, sex, and common chronic conditions. Patients discussed challenges associated with having MCCs and their use of (and desires from) technology to support self-management. Three investigators used standard content analysis methods to code the focus group transcripts. Emergent themes were reviewed with all collaborators, and final themes and representative quotes were validated with a sample of participants. PARTICIPANTS: Fifty-three individuals with ≥3 chronic conditions and experience using technology for health-related purposes. KEY RESULTS: Focus group participants had an average of five chronic conditions. Participants reported using technology most frequently to search for health information (96%), communicate with health care providers (92%), track medical information (83%), track medications (77%), and support decision-making about treatment (55%). Three themes emerged to guide eHealth technology development: (1) Patients with MCCs manage a high volume of information, visits, and self-care tasks; (2) they need to coordinate, synthesize, and reconcile health information from multiple providers and about different conditions; (3) their unique position at the hub of multiple health issues requires self-advocacy and expertise. Focus groups identified desirable eHealth resources and tools that reflect these themes. CONCLUSIONS: Although patients with multiple health issues use eHealth technology to support self-care for specific conditions, they also desire tools that transcend disease boundaries. By addressing the holistic needs of patients with MCCs, eHealth technology can advance health care from a disease-centered to a patient-centered model.


Subject(s)
Chronic Disease/therapy , Comorbidity , Telemedicine/methods , Aged , Consumer Health Information/methods , Female , Focus Groups , Health Surveys , Humans , Male , Middle Aged , Patient-Centered Care , Self Care
17.
Am J Hosp Palliat Care ; 32(4): 393-400, 2015 Jun.
Article in English | MEDLINE | ID: mdl-24595322

ABSTRACT

Despite the availability of endorsed quality measures and widespread usage of hospice, hospice quality data are rarely available to consumers. Moreover, little is known about how consumers prioritize extant measures. This study drew on focus group and survey data collected in 5 metropolitan areas. The study found that consumers reported the hospice quality indicators we tested were easy to understand. Participants placed top priority on measures related to pain and symptom management. Relative to consumers with hospice experience, consumers without previous experience tended to place less value on spiritual support for patients and caregivers, emotional support for caregivers, and after-hours availability. The National Quality Forum-approved measures resonate well with consumers. Consumers also appear to be ready for access to data on the quality of hospice providers.


Subject(s)
Caregivers/psychology , Hospice Care/psychology , Hospice Care/standards , Quality Indicators, Health Care/statistics & numerical data , Quality Indicators, Health Care/standards , Aged , Aged, 80 and over , Consumer Health Information/methods , Female , Focus Groups , Health Knowledge, Attitudes, Practice , Humans , Male , Middle Aged , Socioeconomic Factors , Spirituality
18.
Isr Med Assoc J ; 16(8): 483-6, 2014 Aug.
Article in English | MEDLINE | ID: mdl-25269338

ABSTRACT

BACKGROUND: Early detection of glaucoma enables early initiation of treatment. Screening populations at risk is likely to help achieve this goal. OBJECTIVES: To increase public awareness regarding early detection of glaucoma, and estimate the prevalence of increased intraocular pressure (IOP) and optic disk cupping in the screened population. METHODS: A public awareness campaign was carried out in Israel during the 2009 and 2010 World Glaucoma Week, culminating each year in a one-day, free-of-charge screening of individuals in 13 outreach public locations. Screening was performed by 45 ophthalmologists and included a brief medical history, slit-lamp exam with measurement of intraocular pressure (IOP), and evaluation of cup/disk ratio. RESULTS: A total of 2560 individuals were screened; the mean age was 59 +/- 13 years. IOP > or = 21 mmHg was found in 4.8%, and 12.3% had cupping > or = 0.5. IOP > or = 21 mmHg together with cupping > or = 0.5 were present in 1.4% and this rate increased with age: 3.7% of cases in the age group > or = 70 years compared to 1% and 0.6% in the age groups 50-69 and < 50 years, respectively (P < 0.001). Likewise, the prevalence of cupping > or = 0.7 and of IOP > or = 24 mmHg increased significantly with age. The prevalence of IOP > or = 21 mmHg increased in cases with a family history of glaucoma in first-degree relatives (10.5% compared to 3.9%, P < 0.001). The prevalence of IOP > or = 21 mmHg was also increased in diabetic patients (8.3% vs. 4.3% in non-diabetics, P = 0.002). Further ophthalmologic evaluation was recommended to 13% of the screened individuals. CONCLUSIONS: Outreach screening for glaucoma is a valuable tool for detecting glaucoma, pre-perimetric glaucoma, or ocular hypertension in a meaningful number of previously undiagnosed cases. Yet, cost-effectiveness issues should also be considered. The yield of such screening increases with age and seems to be most advantageous in cases with diabetes or a family history of glaucoma.


Subject(s)
Consumer Health Information , Glaucoma , Intraocular Pressure , Mass Screening , Age Factors , Aged , Consumer Health Information/methods , Consumer Health Information/organization & administration , Early Diagnosis , Female , Glaucoma/diagnosis , Glaucoma/epidemiology , Health Care Surveys , Humans , Israel/epidemiology , Male , Mass Screening/methods , Mass Screening/organization & administration , Middle Aged , Optic Disk/pathology , Prevalence , Risk Factors , Tonometry, Ocular/methods , Visual Field Tests/methods
19.
J Appl Gerontol ; 33(3): 316-35, 2014 Apr.
Article in English | MEDLINE | ID: mdl-24717738

ABSTRACT

Technological advancement benefits Internet users with the convenience of social connection and information search. This study aimed at investigating the predictors of Internet use to search for online health information among Chinese older adults. The Technology Acceptance Model (TAM) was applied to examine the predictiveness of perceived ease of use, perceived usefulness, and attitudes toward Internet use on behavioral intention to search for health information online. Ninety-eight Chinese older adults were recruited from an academic institute for older people and community centers. Frequency of Internet use and physical and psychological health were also assessed. Results showed that perceived ease of use and attitudes significantly predicted behavioral intention of Internet use. The potential influences of traditional Chinese values and beliefs in health were also discussed.


Subject(s)
Attitude to Computers/ethnology , Information Seeking Behavior , Intention , Internet , Aged , Aged, 80 and over , China/epidemiology , Consumer Health Information/methods , Demography , Female , Geriatric Assessment/methods , Health Status , Humans , Male , Medicine, Chinese Traditional/psychology , Middle Aged , Models, Theoretical , Socioeconomic Factors
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