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1.
J Glob Health ; 10(2): 020103, 2020 Dec.
Article in English | MEDLINE | ID: mdl-33110502

ABSTRACT

The COVID-19 pandemic has put health systems, economies and societies under unprecedented strain, calling for innovative approaches. Scotland's government, like those elsewhere, is facing difficult decisions about how to deploy digital technologies and data to help contain, control and manage the disease, while also respecting citizens' rights. This paper explores the ethical challenges presented by these methods, with particular emphasis on mobile apps associated with contact tracing. Drawing on UK and international experiences, it examines issues such as public trust, data privacy and technology design; how changing disease threats and contextual factors can affect the balance between public benefits and risks; and the importance of transparency, accountability and stakeholder participation for the trustworthiness and good-governance of digital systems and strategies. Analysis of recent technology debates, controversial programmes and emerging outcomes in comparable countries implementing contact tracing apps, reveals sociotechnical complexities and unexpected paradoxes that warrant further study and underlines the need for holistic, inclusive and adaptive strategies. The paper also considers the potential role of these apps as Scotland transitions to the 'new normal', outlines challenges and opportunities for public engagement, and poses a set of ethical questions to inform decision-making at multiple levels, from software design to institutional governance.


Subject(s)
Contact Tracing/ethics , Disease Transmission, Infectious/ethics , Human Rights/ethics , Mobile Applications/ethics , Pandemics/ethics , Betacoronavirus , COVID-19 , Contact Tracing/methods , Coronavirus Infections/prevention & control , Disease Transmission, Infectious/prevention & control , Government , Humans , Pandemics/prevention & control , Pneumonia, Viral/prevention & control , SARS-CoV-2 , Scotland/epidemiology , Stakeholder Participation , Technology/ethics
2.
ScientificWorldJournal ; 4: 264-72, 2004 May 11.
Article in English | MEDLINE | ID: mdl-15167940

ABSTRACT

This study was undertaken to examine the association between the immunological impact of HIV (measured by CD4 count) and global self-assessed quality of life (QOL) (measured with QOL1) for people suffering from HIV, to see if the connection was large and statistically strong enough to support our hypothesis of a strong QOL-immunological connection through the nonspecific, nonreceptor-mediated immune system, and thus to give a rationale for a holistic cure for HIV. This cross-sectional population study in Uganda included 20 HIV infected persons with no symptoms of AIDS and a CD4 count above 200 mill./liter. The main outcome measures were CD4 count, global QOL measured with the validated questionnaire QOL1, translated to Luganda and translated back to English. We found a large, clinically significant correlation between the number of T-helper cells (CD4) and global self-assessed quality of life (QOL1) (r = 0.57, p = 0.021), when controlled for age, gender, and years of infection. Together with other studies and holistic medicine theory, the results have given rationale for a holistic cure for HIV. We suggest, based on our findings and theoretical considerations, that HIV patients who improve their global QOL, also will improve their CD4 counts. Using the technique of holistic medicine based on the life mission theory and the holistic process theory of healing, we hypothesize that the improvement of QOL can have sufficient biological effect on the CD4, which could avoid or postpone the development of AIDS. A holistic HIV/AIDS cure improving the QOL draws on hidden resources in the person and is thus affordable for everybody. Improving global QOL also means a higher consciousness and a more ethical attitude, making it more difficult for the HIV-infected person to pass on the infection.


Subject(s)
Acquired Immunodeficiency Syndrome/psychology , HIV Infections/psychology , Holistic Health , Quality of Life/psychology , Acquired Immunodeficiency Syndrome/blood , Acquired Immunodeficiency Syndrome/transmission , Adult , Antiretroviral Therapy, Highly Active/trends , CD4 Lymphocyte Count/trends , Cross-Sectional Studies , Disease Transmission, Infectious/ethics , Female , HIV Infections/blood , HIV Infections/transmission , Humans , Male , Middle Aged , Pilot Projects , Population Surveillance , Surveys and Questionnaires , T-Lymphocyte Subsets/physiology , T-Lymphocytes, Helper-Inducer/physiology , Uganda
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