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1.
Am J Phys Med Rehabil ; 103(6): 488-493, 2024 06 01.
Article in English | MEDLINE | ID: mdl-38112669

ABSTRACT

OBJECTIVE: This study aimed to describe the characteristics associated with unmet rehabilitation needs in a sample of Canadians with long-term health conditions or disabilities during the first wave of the COVID-19 pandemic. DESIGN: We used data from the Impacts of COVID-19 on Canadians Living With Long-Term Conditions and Disabilities, a national cross-sectional survey with 13,487 respondents. Unmet needs were defined as needing rehabilitation (ie, physiotherapy/massage/chiropractic, speech therapy, occupational therapy, counseling services, or support groups) but not receiving due to the pandemic. We used multivariable modified Poisson regression to examine the association between demographic, socioeconomic, and health-related characteristics and unmet rehabilitation needs. RESULTS: More than half of the sample were 50 years and older (52.3%), female (53.8%), and 49.3% reported unmet rehabilitation needs. Those more likely to report unmet needs were females, those with lower socioeconomic status (receiving disability benefits or social assistance, job loss, increased work hours, decreased household income or earnings), and those with lower perceived general health or mental health status. CONCLUSIONS: Among Canadians with disabilities or chronic health conditions, marginalized groups are more likely to report unmet rehabilitation needs. Understanding the systemic and upstream determinants is necessary to develop strategies to minimize unmet rehabilitation needs and facilitate the delivery of equitable rehabilitation services.


Subject(s)
COVID-19 , Disabled Persons , Health Services Needs and Demand , SARS-CoV-2 , Humans , COVID-19/epidemiology , COVID-19/rehabilitation , Female , Male , Canada/epidemiology , Cross-Sectional Studies , Middle Aged , Disabled Persons/rehabilitation , Disabled Persons/statistics & numerical data , Adult , Chronic Disease/rehabilitation , Health Services Needs and Demand/statistics & numerical data , Aged , Needs Assessment , Pandemics , Socioeconomic Factors , Young Adult , North American People
2.
Rev. Fac. Odontol. (B.Aires) ; 38(90): 61-65, 2023. ilus, tab
Article in Spanish | LILACS | ID: biblio-1554104

ABSTRACT

Se identificó el perfil epidemiológico y se caracterizó la situación de la población en base al Nivel Socio-Económico (NSE) asociado al estado dentario y se es-tablecieron las zonas geográficas de pacientes que asistieron a la Cátedra Odontología Integral Niños (COIN) de FOUBA durante el año 2019. La muestra total se conformó con 541 niños de 9,2±3,3 años; masculi-nos 51,0%. La segmentación de los estratos sociales dio como resultado que del total de pacientes, el 33,3% perteneció a Clase Baja D2/E, el 39,2% a Clase Baja Superior D1, el 22,4% a Clase Media Baja C3, el 4% a Clase Media Alta C2 y el 1,1% a Clase Alta ABC1. La mayor demanda de atención provino de las dos clases más bajas de la pirámide social, aunque se trata de un servicio arancelado. Los indicadores del estado den-tario ceod, ceos, CPOD y CPOS, indicaron que los niños de menor posición socioeconómica presentaron los índices más altos. La mayor concurrencia provino de la Ciudad Autónoma de Buenos Aires (52%), respecto a los pacientes concurrentes del Gran Buenos Aires (37%), el 80% provino de la zona Oeste y Sur (AU)


The epidemiological profile was identified, and the situation of the population was characterized based on Socio-Economic Status (SES) associated with their dental state. Geographical areas of patients who attended the FOUBA Children's Comprehensive Dentistry Chair during 2019 were established. The total sample consisted of 541 children aged 9.2±3.3 years; males 51.0%. The segmentation of the social strata resulted in 33.3% belonging to Low-Class D2/E, 39.2% to Upper Lower-Class D1, 22.4% to Lower Middle-Class C3, 4% to Upper Middle-Class C2, and 1.1% to Upper-Class ABC1. The largest demand for care came from the two lowest classes of the social pyramid, even though it is a fee-based service. The indicators of dental status dmft, dmfs, DMFT and DMFS, showed that children coming from the lowest socio-economic position presented the highest rate of occurrence. The highest attendance came from the City of Buenos Aires (52%), compared to patients from Buenos Aires suburbs (37%), of which 80% were from the Western and Southern suburbs (AU)


Subject(s)
Humans , Male , Female , Child, Preschool , Child , Socioeconomic Factors , Epidemiologic Factors , Dental Care for Children/methods , Dental Caries/epidemiology , Health Services Needs and Demand/statistics & numerical data , Argentina/epidemiology , Schools, Dental/statistics & numerical data , Social Class , DMF Index , Epidemiology, Descriptive , Cross-Sectional Studies
3.
Asian Pac J Cancer Prev ; 23(1): 319-325, 2022 Jan 01.
Article in English | MEDLINE | ID: mdl-35092401

ABSTRACT

OBJECTIVE: Cancer treatments often cause side effects. Cannabis is a plant that has been studied and used to treat and relieve side effects from modern medicine. Medical cannabis (MC) was legalized in Thailand in 2019 with limited research on demand for its use. Therefore, this study aimed to identify factors associated with demand for MC use among cancer patients in the North of Thailand. METHODS: This analytical cross-sectional study administered a multistage random sampling to recruit 1,284 cancer patients in northern Thailand to response a self-administered structured questionnaire. Generalized Linear Mixed Model (GLMM) was used to identify the determinants of demand for MC use among the population, presented adjusted odds ratios (adj.OR), 95% confidence intervals (95% CI), and p-values. RESULT: Nearly half of the respondents reported demand to use MC (44.0%). The factors that were significantly associated with demand to use MC included had high levels of health literacy about MC (adj.OR = 5.70; 95% CI: 4.08 to 7.96), higher levels of social support (adj.OR =5.50; 95% CI: 3.60 to 8.39), positive attitudes toward MC use (adj.OR = 2.56; 95% CI: 1.83 to 3.56), aged less than 30 (adj.OR =1.89; 95% CI: 1.21 to 2.93), diagnosis with cancerfor more than 12 months ago (adj.OR =1.73; 95% CI: 1.19 to 2.52) when controlling effect of other covariates. CONCLUSION: We found substantial demand for MC use among cancer patients. Health literacy,social support, attitudes about MC, age, and duration of having cancer were significantly associated with demand for MC use. Therefore, improving health literacy and social support, especially among older cancer patients, could help increasing demand for MC as a complementary medicine to treat cancers.


Subject(s)
Health Services Needs and Demand/statistics & numerical data , Medical Marijuana/therapeutic use , Neoplasms/drug therapy , Neoplasms/psychology , Phytotherapy/psychology , Adult , Age Factors , Cross-Sectional Studies , Female , Health Knowledge, Attitudes, Practice , Health Literacy , Humans , Male , Odds Ratio , Social Support , Thailand , Time Factors
4.
Article in English, Portuguese | LILACS, BDENF - Nursing | ID: biblio-1378413

ABSTRACT

Objetivo: descrever o perfil epidemiológico da clientela que busca atendimento em Práticas Integrativas e Complementares. Método: pesquisa descritiva, tipo corte transversal e abordagem quantitativa, realizado com 104 indivíduos que buscaram atendimento em Práticas Integrativas e Complementares na Universidade Federal Fluminense. Resultados: houve predomínio de jovens de 19 a 30 anos com alta escolaridade. Apesar de 57 (76%) ingerem regularmente a água e 14 (79%) praticam atividade física três ou mais vezes/semana, 14 (18,9%) eram etilistas, sete (9,3%) tabagistas, três (4,2%) consumiam drogas ilícitas e 27 (39,6%) dedicavam-se "nada" ou "muito pouco" ao lazer. Apenas 29 (37,1%) possuíam boa disposição geral, nove (11,8%) bom humor e 10 (9,3%) sentiam-se tranquilos a maior parte do tempo. Apetite e sede normal foram relatados em 43 (56,5%) e 38 (49,3%) respectivamente e 59 (90,7%) exibiram problemas com o sono. Conclusão: o atendimento tem sido buscado pela população que manifesta certo grau de sofrimento mental


Objective: describe the epidemiological profile of the clientele that seeks assistance in Integrative and Complementary Practices. Method: descriptive, cross-sectional research and quantitative approach, conducted with 104 individuals who sought assistance in Integrative and Complementary Practices at Universidade Federal Fluminense. Results: there was a predominance of young people from 19 to 30 years old with high schooling. Although 57 (76%) regularly drink water and 14 (79%) practice physical activity three or more times/week, 14 (18,9%) were alcoholics, seven (9,3%) smokers, three (4,2%) used illicit drugs and 27 (39,6%) devoted "nothing" or "very little" to leisure. Only 29 (37,1%) had good general disposition, nine (11,8%) good mood and 10 (9,3%) felt calm most of the time. Normal appetite and thirst were reported in 43 (56,5%) and 38 (49,3%) respectively and 59 (90,7%) exhibited problems with sleep. Conclusion: care has been sought by the population that manifests a certain degree of mental suffering


Objetivo: describir el perfil epidemiológico de la clientela que busca asistencia en Prácticas Integrativas y Complementarias. Método: enfoque descriptivo, transversal y cuantitativo, realizado con 104 personas que buscaron asistencia en Prácticas Integrativas y Complementarias en la Universidad Federal Fluminense. Resultados: predominó la juventud de 19 a 30 años con estudios secundarios. Aunque 57 (76%) beben regularmente agua y 14 (79%) practican actividad física tres o más veces/semana, 14 (18,9%) eran alcohólicos, siete (9,3%) fumadores, tres (4,2%) usaron drogas ilícitas y 27 (39,6%) dedicaron "nada" o "muy poco" al ocio. Solo 29 (37,1%) tenían buen humor general, nueve (11,8%) estaban de buen humor y 10 (9,3%) se sentían tranquilos la mayor parte del tiempo. Se informaron apetito y sed normales en 43 (56,5%) y 38 (49,3%) respectivamente y 59 (90,7%) exhibieron problemas con el sueño. Conclusión: la población ha buscado atención que manifieste cierto grado de sufrimiento mental


Subject(s)
Humans , Male , Female , Adolescent , Adult , Middle Aged , Young Adult , Health Profile , Complementary Therapies/statistics & numerical data , Mental Health/statistics & numerical data , Cross-Sectional Studies , Sociodemographic Factors , Health Services Needs and Demand/statistics & numerical data
5.
Lancet Oncol ; 22(9): e391-e399, 2021 09.
Article in English | MEDLINE | ID: mdl-34478675

ABSTRACT

The number of patients with cancer in Africa has been predicted to increase from 844 279 in 2012 to more than 1·5 million in 2030. However, many countries in Africa still lack access to radiotherapy as a part of comprehensive cancer care. The objective of this analysis is to present an updated overview of radiotherapy resources in Africa and to analyse the gaps and needs of the continent for 2030 in the context of the UN Sustainable Development Goals. Data from 54 African countries on teletherapy megavoltage units and brachytherapy afterloaders were extracted from the Directory for Radiotherapy Centres, an electronic, centralised, and continuously updated database of radiotherapy centres. Cancer incidence and future predictions were taken from the GLOBOCAN 2018 database of the International Agency for Research on Cancer. Radiotherapy need was estimated using a 64% radiotherapy utilisation rate, while assuming a machine throughput of 500 patients per year. As of March, 2020, 28 (52%) of 54 countries had access to external beam radiotherapy, 21 (39%) had brachytherapy capacity, and no country had a capacity that matched the estimated treatment need. Median income was an important predictor of the availability of megavoltage machines: US$1883 (IQR 914-3269) in countries without any machines versus $4485 (3079-12480) in countries with at least one megavoltage machine (p=0·0003). If radiotherapy expansion continues at the rate observed over the past 7 years, it is unlikely that the continent will meet its radiotherapy needs. This access gap might impact the ability to achieve the Sustainable Development Goals, particularly the target to reduce preventable, premature mortality by a third, and meet the target of the cervical cancer elimination strategy of 90% with access to treatment. Urgent, novel initiatives in financing and human capacity building are needed to change the trajectory and provide comprehensive cancer care to patients in Africa in the next decade.


Subject(s)
Health Resources/trends , Health Services Needs and Demand/trends , Radiotherapy/trends , Africa/epidemiology , Forecasting , Health Resources/statistics & numerical data , Health Services Needs and Demand/statistics & numerical data , Humans , International Agencies , Neoplasms/epidemiology , Neoplasms/radiotherapy , Radiotherapy/statistics & numerical data , Sustainable Development
6.
Growth Horm IGF Res ; 60-61: 101422, 2021.
Article in English | MEDLINE | ID: mdl-34404019

ABSTRACT

OBJECTIVE: It was the aim of this study to evaluate illness-related burdens and support needs of patients with acromegaly to identify hitherto unadressed research questions and to open up avenues for improvements in patient care. This was done by using the focus group approach as a qualitative research method. DESIGN: Seven patients with acromegaly took part in a focus group moderated by an external medical communication specialist. The discourse focused on topics such as impact of the illness on everyday life, support needs and personal resources. The discussion was recorded and transcribed and analyzed by qualitative content analysis. RESULTS: Participants reported a huge impact of acromegaly on daily life, ranging from time expenditure for managing their illness, to bodily and mental sequelae and strain caused by physical disfigurement. Patients' coping strategies included family support, physical activities and humor. The participants wished for a sound patient-doctor relationship, more interdisciplinary and holistic treatment, medical rehabilitation services with special knowledge on acromegaly-related morbidity, a stable contact person in the medical process and reliable information material for themselves and their relatives. CONCLUSIONS: The results provide multi-facetted impressions of the overwhelming impact of acromegaly and unmet support needs of the afflicted patients. Further quantitative research is necessary to examine the generalisibility of the present results in order to implement tailored support measures. We suggest to develop standardized questionnaires to explore the prevalence and severity of the addressed problems in a large patient sample and to establish screening instruments to monitor disease burden in clinical practice.


Subject(s)
Acromegaly/therapy , Cost of Illness , Focus Groups/methods , Health Services Needs and Demand/statistics & numerical data , Quality of Life , Acromegaly/economics , Acromegaly/pathology , Acromegaly/psychology , Adult , Female , Follow-Up Studies , Humans , Male , Middle Aged , Personal Autonomy , Prognosis
7.
N Z Med J ; 134(1537): 27-35, 2021 06 25.
Article in English | MEDLINE | ID: mdl-34239159

ABSTRACT

INTRODUCTION: A capacity and demand improvement initiative commenced in January 2019 with the goal of reducing the growing outpatient waiting list for magnetic resonance imaging (MRI) at Counties Manukau District Health Board (CMDHB). Initial work showed that the capacity (MRI machines and staff) actually outstripped demand, which challenged pre-existing assumptions. This became the basis for interventions to improve efficiency in the department. Interventions undertaken can be split into three distinct categories: (1) matching capacity to demand, (2) waiting list segmentation and (3) redesigning operational systems. METHODS: A capacity and demand time series during 2019 and 2020 was used as the basis for improving waiting list and operational systems. A combination of the Model for Improvement and Lean principles were used to embed operational improvements. Multiple small tests of change were implemented to various aspects of the MRI waiting list process. Staff engagement was central to the success of the quality improvement (QI) initiatives. The radiological information system (RIS) provided the bulk of the data, and this was supplemented with manual data collection. RESULTS: The number of people waiting for an MRI scan decreased from 1,954 at the start of the project to 413 at its conclusion-an overall reduction of 75%. Moreover, the average waiting time reduced from 96.4 days to 23.1. Achieving the Ministry of Health's (MoH) Priority 2 (P2) target increased from 23% to 87.5%. CONCLUSION: A partnership between Ko Awatea and the radiology department at CMDHB, examining capacity and demand for MRI and using multiple QI techniques, successfully and sustainably reduced the MRI waiting list over a two-year period. The innovative solutions to match capacity to demand may be instructive for other radiology departments, and other waiting list scenarios.


Subject(s)
Diagnostic Imaging/statistics & numerical data , Efficiency, Organizational/statistics & numerical data , Health Services Needs and Demand/statistics & numerical data , Magnetic Resonance Imaging/statistics & numerical data , Waiting Lists , Humans , National Health Programs , New Zealand , Outpatients/statistics & numerical data , Quality Improvement , Workload/statistics & numerical data
8.
JAMA ; 325(22): 2273-2284, 2021 06 08.
Article in English | MEDLINE | ID: mdl-34077502

ABSTRACT

Importance: Continuous glucose monitoring (CGM) is recommended for patients with type 1 diabetes; observational evidence for CGM in patients with insulin-treated type 2 diabetes is lacking. Objective: To estimate clinical outcomes of real-time CGM initiation. Design, Setting, and Participants: Exploratory retrospective cohort study of changes in outcomes associated with real-time CGM initiation, estimated using a difference-in-differences analysis. A total of 41 753 participants with insulin-treated diabetes (5673 type 1; 36 080 type 2) receiving care from a Northern California integrated health care delivery system (2014-2019), being treated with insulin, self-monitoring their blood glucose levels, and having no prior CGM use were included. Exposures: Initiation vs noninitiation of real-time CGM (reference group). Main Outcomes and Measures: Ten end points measured during the 12 months before and 12 months after baseline: hemoglobin A1c (HbA1c); hypoglycemia (emergency department or hospital utilization); hyperglycemia (emergency department or hospital utilization); HbA1c levels lower than 7%, lower than 8%, and higher than 9%; 1 emergency department encounter or more for any reason; 1 hospitalization or more for any reason; and number of outpatient visits and telephone visits. Results: The real-time CGM initiators included 3806 patients (mean age, 42.4 years [SD, 19.9 years]; 51% female; 91% type 1, 9% type 2); the noninitiators included 37 947 patients (mean age, 63.4 years [SD, 13.4 years]; 49% female; 6% type 1, 94% type 2). The prebaseline mean HbA1c was lower among real-time CGM initiators than among noninitiators, but real-time CGM initiators had higher prebaseline rates of hypoglycemia and hyperglycemia. Mean HbA1c declined among real-time CGM initiators from 8.17% to 7.76% and from 8.28% to 8.19% among noninitiators (adjusted difference-in-differences estimate, -0.40%; 95% CI, -0.48% to -0.32%; P < .001). Hypoglycemia rates declined among real-time CGM initiators from 5.1% to 3.0% and increased among noninitiators from 1.9% to 2.3% (difference-in-differences estimate, -2.7%; 95% CI, -4.4% to -1.1%; P = .001). There were also statistically significant differences in the adjusted net changes in the proportion of patients with HbA1c lower than 7% (adjusted difference-in-differences estimate, 9.6%; 95% CI, 7.1% to 12.2%; P < .001), lower than 8% (adjusted difference-in-differences estimate, 13.1%; 95% CI, 10.2% to 16.1%; P < .001), and higher than 9% (adjusted difference-in-differences estimate, -7.1%; 95% CI, -9.5% to -4.6%; P < .001) and in the number of outpatient visits (adjusted difference-in-differences estimate, -0.4; 95% CI, -0.6 to -0.2; P < .001) and telephone visits (adjusted difference-in-differences estimate, 1.1; 95% CI, 0.8 to 1.4; P < .001). Initiation of real-time CGM was not associated with statistically significant changes in rates of hyperglycemia, emergency department visits for any reason, or hospitalizations for any reason. Conclusions and Relevance: In this retrospective cohort study, insulin-treated patients with diabetes selected by physicians for real-time continuous glucose monitoring compared with noninitiators had significant improvements in hemoglobin A1c and reductions in emergency department visits and hospitalizations for hypoglycemia, but no significant change in emergency department visits or hospitalizations for hyperglycemia or for any reason. Because of the observational study design, findings may have been susceptible to selection bias.


Subject(s)
Biosensing Techniques/methods , Blood Glucose Self-Monitoring/methods , Diabetes Mellitus, Type 1/blood , Diabetes Mellitus, Type 2/blood , Adult , Biosensing Techniques/instrumentation , Blood Glucose Self-Monitoring/statistics & numerical data , Confidence Intervals , Diabetes Mellitus, Type 1/drug therapy , Diabetes Mellitus, Type 2/drug therapy , Female , Glycated Hemoglobin/analysis , Health Services Needs and Demand/statistics & numerical data , Hospitalization/statistics & numerical data , Humans , Hyperglycemia/blood , Hyperglycemia/diagnosis , Hyperglycemia/epidemiology , Hypoglycemia/blood , Hypoglycemia/diagnosis , Hypoglycemia/epidemiology , Hypoglycemic Agents/therapeutic use , Insulin/therapeutic use , Male , Middle Aged , Numbers Needed To Treat , Propensity Score , Retrospective Studies , Selection Bias , Time Factors , Treatment Outcome
9.
PLoS One ; 16(3): e0248474, 2021.
Article in English | MEDLINE | ID: mdl-33730070

ABSTRACT

The community and home-based elderly care service system has been proved an effective pattern to mitigate the elderly care dilemma under the background of accelerating aging in China. In particular, the participation of social organizations in community and home-based elderly care service has powerfully fueled the multi-supply of elderly care. As the industry of the elderly care service is in the ascendant, the management lags behind, resulting in the waste of significant social resources. Therefore, performance evaluation is proposed to resolve this problem. However, a systematic framework for evaluating performance of community and home-based elderly care service centers (CECSCs) is absent. To overcome this limitation, the SBM-DEA model is introduced in this paper to evaluate the performance of CECSCs. 186 social organizations in Nanjing were employed as an empirical study to develop the systematic framework for performance evaluation. Through holistic analysis of previous studies and interviews with experts, a systematic framework with 33 indicators of six dimensions (i.e., financial management, hardware facilities, team building, service management, service object and organization construction) was developed. Then, Sensitivity Analysis is used to screen the direction of performance optimization and specific suggestions were put forward for government, industrial associations and CECSCs to implement. The empirical study shows the proposed framework using SBM-DEA and sensitivity analysis is viable for conducting performance evaluation and improvement of CECSCs, which is conducive to the sustainable development of CECSCs.


Subject(s)
Benchmarking/methods , Community Participation , Health Services for the Aged/organization & administration , Home Care Services/organization & administration , Social Welfare , Aged , Aging , China , Health Services Needs and Demand/statistics & numerical data , Health Services for the Aged/statistics & numerical data , Home Care Services/statistics & numerical data , Humans , Models, Statistical , Quality Improvement/organization & administration , Quality Improvement/statistics & numerical data , Social Support , Sustainable Development
10.
Sex Reprod Health Matters ; 28(2): 1848004, 2020 Dec.
Article in English | MEDLINE | ID: mdl-33308048

ABSTRACT

Located in the South West Pacific region, with a population of 7.5 million, Papua New Guinea (PNG) is among a group of Pacific countries with sub-optimal health status. The maternal mortality ratio is 171 per 100,000 live births. Unmet need for contraception and family planning services, although poorly understood in PNG, may be one of the underlying causes of poor maternal health. This study set out to measure the prevalence and trends in unmet need for contraception and the identified socioeconomic factors associated with contraceptive use among women of reproductive age (15-49 years) in PNG. Data available from the Integrated Health and Demographic Surveillance System (IHDSS) were used in this study. A sub-population data set was extracted of 1434 women who gave birth in the preceding two years and resided in four rural surveillance sites: Asaro, Hides, Hiri and Karkar. Analyses of unmet need for contraception were performed with respect to birth spacing and limiting the number of births. Unmet need for contraception was 34% for the previous birth, 37% for the current pregnancy, and 49% for future family planning. The total unmet need for contraception was 35%, of which 49% was for spacing births and 51% for limiting births. Women's age, education and household wealth are the most significant determinants of unmet need for contraception. The high level of unmet need for contraception may contribute to women's poor health status in PNG. Urgent programming responses from the health sector for supporting effective interventions to increase availability and utilisation of contraceptives are required.


Subject(s)
Contraception , Family Planning Services , Health Services Needs and Demand/statistics & numerical data , Adolescent , Adult , Demography , Female , Health Services Needs and Demand/trends , Humans , Middle Aged , Papua New Guinea/epidemiology , Pregnancy , Prevalence , Rural Population , Socioeconomic Factors , Young Adult
11.
BMC Cancer ; 20(1): 528, 2020 Jun 05.
Article in English | MEDLINE | ID: mdl-32503477

ABSTRACT

BACKGROUND: Cancer impacts on patients and their families across a range of different domains. For that reason, optimal cancer care has moved away from a disease-centric focus to a more holistic approach in order to proactively support people with their individual needs and concerns. While international policy clearly advocates this agenda, implementation into routine care is limited. Therefore, relevant interventions that measurably improve patient outcomes are essential to understand if this ideal is to become routine multidisciplinary practice. The aim of this study was to analyse the impact of a proactive, holistic, community-based intervention on health-related quality of life in a cohort of people diagnosed with cancer. Secondary aim was to explore the relationship between changes in health status and: cancer type, cancer stage, number of concerns expressed and change in severity of concerns pre and post intervention. METHOD: Prospective observational cohort study. A convenience sample of 437 individuals were referred to the service 'Improving the Cancer Journey (ICJ) in the UK. Each completed the Euroqol EQ-5D-3 L and visual analogue scale (VAS) and a Holistic Needs Assessment (HNA) during initial visit to the service and again at follow-up review, median 84 days later. Change between scores was tested with paired t-tests and relationships between variables with multiple regression models with heteroscedasticity-consistent standard errors. RESULTS: Participants were White British with median age between 50 and 64 years. Cancer type and stage were varied. EQ-5D utility scores improved at follow-up by 0.121 [0.0891-0.153], p < .001, and VAS scores improved by 7.81 [5.88-9.74], p < .001. The strongest predictor of change was a decrease in severity of concerns. Cancer stage 'palliative care' contributed to a reduction in health status. CONCLUSION: This study is the first to show that a holistic community intervention dedicated to supporting the individual concerns of participants had both a statistically significant and clinically meaningful impact on participants' health-related quality of life. The mean change in EQ-5D scores was more than the 'minimally important clinical difference' described in the literature. This is important because while quality of life has multiple determinants, this study has shown for the first time that it is possible to capture a clinically meaningful improvement as a function of reducing someone's personally identified concerns.


Subject(s)
Health Status , Holistic Health , Neoplasms/therapy , Psychiatric Rehabilitation/organization & administration , Quality of Life , Adult , Aged , Community-Based Participatory Research , Female , Health Services Needs and Demand/organization & administration , Health Services Needs and Demand/statistics & numerical data , Humans , Male , Middle Aged , Needs Assessment/statistics & numerical data , Neoplasms/psychology , Prospective Studies , Psychiatric Rehabilitation/methods , Surveys and Questionnaires/statistics & numerical data
12.
J Trauma Acute Care Surg ; 89(5): 940-946, 2020 11.
Article in English | MEDLINE | ID: mdl-32345893

ABSTRACT

BACKGROUND: Returning patients to preinjury status is the goal of a trauma system. Trauma centers (TCs) provide inpatient care, but postdischarge treatment is fragmented with clinic follow-up rates of <30%. Posttraumatic stress disorder (PTSD) and depression are common, but few patients ever obtain necessary behavioral health services. We postulated that a multidisciplinary Center for Trauma Survivorship (CTS) providing comprehensive care would meet patient's needs, improve postdischarge compliance, deliver behavioral health, and decrease unplanned emergency department (ED) visits and readmissions. METHODS: Focus groups of trauma survivors were conducted to identify issues following TC discharge. Center for Trauma Survivorship eligible patients are aged 18 to 80 years and have intensive care unit stay of >2 days or have a New Injury Severity Score of ≥16. Center for Trauma Survivorship visits were scheduled by a dedicated navigator and included physical and behavioral health care. Patients were screened for PTSD and depression. Patients screening positive were referred for behavioral health services. Patients were provided 24/7 access to the CTS team. Outcomes include compliance with appointments, mental health visits, unplanned ED visits, and readmissions in the year following discharge from the TC. RESULTS: Patients universally felt abandoned by the TC after discharge. Over 1 year, 107 patients had 386 CTS visits. Average time for each appointment was >1 hour. Center for Trauma Survivorship "no show" rate was 17%. Eighty-six percent screening positive for PTSD/depression successfully received behavioral health services. Postdischarge ED and hospital admissions were most often for infections or unrelated conditions. Emergency department utilization was significantly lower than a similarly injured group of patients 1 year before the inception of the CTS. CONCLUSION: A CTS fills the vast gaps in care following TC discharge leading to improved compliance with appointments and delivery of physical and behavioral health services. Center for Trauma Survivorship also appears to decrease ED visits in the year following discharge. To achieve optimal long-term recovery from injury, trauma care must continue long after patients leave the TC. LEVEL OF EVIDENCE: Therapeutic, Level III.


Subject(s)
Aftercare/organization & administration , Health Services Needs and Demand/organization & administration , Stress Disorders, Post-Traumatic/rehabilitation , Survivorship , Wounds and Injuries/therapy , Adolescent , Adult , Aftercare/statistics & numerical data , Aged , Aged, 80 and over , Emergency Service, Hospital/statistics & numerical data , Female , Health Services Needs and Demand/statistics & numerical data , Humans , Male , Middle Aged , Patient Care Team/organization & administration , Patient Discharge/statistics & numerical data , Patient Readmission/statistics & numerical data , Stress Disorders, Post-Traumatic/diagnosis , Stress Disorders, Post-Traumatic/etiology , Stress Disorders, Post-Traumatic/psychology , Trauma Centers/statistics & numerical data , Wounds and Injuries/complications , Wounds and Injuries/mortality , Wounds and Injuries/psychology , Young Adult
13.
Support Care Cancer ; 28(11): 5511-5520, 2020 Nov.
Article in English | MEDLINE | ID: mdl-32179997

ABSTRACT

PURPOSE: To determine the prevalence, severity, and baseline associations of self-reported long-term unmet supportive care needs in a population-wide cohort of men with prostate cancer (PC), 15 years post-diagnosis. METHODS: Participants were drawn from the New South Wales (NSW) Prostate Cancer Care and Outcomes Study. Eligible men were diagnosed with PC between 2000 and 2002, aged less than 70 years at diagnosis, and completed a 15-year follow-up survey. Demographic and clinical data were collected at baseline. The validated Cancer Survivors' Unmet Needs (CaSUN) Survey was administered to assess unmet needs. RESULTS: Of 578 eligible men, 351 completed CaSUN. Mean age was 75.8 (range 59-84) with a mean follow-up time of 15.2 years post-diagnosis. Over a third of men (37.4%) reported at least one unmet need at 15 years. Most frequently reported unmet needs pertained to the comprehensive cancer care (34.1%) domain. 87.2% of participants who reported problems with sexual function reported this need as moderate/severe. Higher diagnostic prostate-specific antigen (PSA) levels (20+ ng/mL) at diagnosis were associated with future unmet needs (PSA 20+: OR = 4.80, 95% CI [1.33-17.35]). CONCLUSION: Many PC survivors continue to report unmet needs 15 years post-diagnosis. There is a pressing need for clinicians to work together to coordinate PC care, and to proactively, regularly, and openly enquire about men's sexual adjustment to PC. The needs of PC survivors could better be met with more coordinated approaches to multidisciplinary care and timely interventions and support for chronic sexual dysfunction.


Subject(s)
Cancer Survivors/statistics & numerical data , Health Services Needs and Demand/statistics & numerical data , Palliative Care/statistics & numerical data , Prostatic Neoplasms/therapy , Aged , Aged, 80 and over , Follow-Up Studies , Humans , Long-Term Care , Male , Middle Aged , Needs Assessment , New South Wales/epidemiology , Palliative Care/methods , Prevalence , Prostatic Neoplasms/epidemiology , Self Report , Surveys and Questionnaires
14.
J Trauma Acute Care Surg ; 88(6): 776-782, 2020 06.
Article in English | MEDLINE | ID: mdl-32176169

ABSTRACT

BACKGROUND: Recent civilian and military data from the United States and the United Kingdom suggest that further reductions in mortality will require prehospital or preoperating room hemorrhage control and blood product resuscitation. The aims of this study were to examine the potential preventability of prehospital and early in-hospital fatalities, and to consider the geographical location of such incidents, to contextualize how the use of advanced resuscitative techniques could be operationalized. METHODS: Retrospective analysis of prehospital and early in-hospital trauma deaths from January to December 2017. Data were obtained from the Coroner/ME's Office. Each death was reviewed by a panel of two trauma surgeons and a forensic pathologist. Anatomical and physiological survivabilities were evaluated separately, and then combined, leading to a holistic assessment of preventability. Incident locations were mapped and analyzed using ArcGIS. RESULTS: Three hundred sixteen trauma deaths were identified. Two hundred thirty-one (73%) were deemed anatomically not survivable; 29 (9%) anatomically survivable, but only with hospital care; 43 (14%) anatomically survivable with advanced prehospital care; and 13 (4%) anatomically survivable with basic prehospital care. Physiologically, 114 (36%) of the patients had been dead for some time when found; 137 (43%) had no cardiorespiratory effort on arrival of Emergency Medical Services (EMS) at the scene; 24 (8%) had cardiorespiratory effort at the scene, but not on arrival at the emergency department; and 41 (13%) had cardiorespiratory effort on arrival at the emergency department, but died shortly after. Combining the assessments, 10 (3%) deaths were deemed probably not preventable, 38 (12%) possibly preventable, and the remaining 278 (85%) not preventable. CONCLUSION: Twelve percent of trauma deaths were potentially preventable and might be amenable to advanced resuscitative interventions. Operationalizing this type of care will be challenging and will require either prehospital doctors, or very highly trained paramedics, nurses, or physician assistants. LEVEL OF EVIDENCE: Epidemiological, level III.


Subject(s)
Emergency Medical Services/organization & administration , Hemorrhage/mortality , Resuscitation/methods , Wounds and Injuries/mortality , Adult , Alabama/epidemiology , Blood Component Transfusion , Emergency Medical Services/methods , Female , Geography , Health Services Needs and Demand/statistics & numerical data , Hemorrhage/etiology , Hemorrhage/therapy , Hemostatic Techniques , Humans , Male , Middle Aged , Needs Assessment/statistics & numerical data , Patient Care Team/organization & administration , Retrospective Studies , Wounds and Injuries/complications , Wounds and Injuries/therapy
15.
Otolaryngol Head Neck Surg ; 163(2): 356-363, 2020 08.
Article in English | MEDLINE | ID: mdl-32178571

ABSTRACT

OBJECTIVE: Patients with head and neck cancer (HNC) face a unique set of unmet needs. A subset of these patients experience symptom control challenges related to their disease burden and treatments. A multidisciplinary approach involving palliative medicine is underutilized but crucial to identify and address these concerns. There is limited information on palliative integration with head and neck oncology. STUDY DESIGN: Case series with planned data collection. SETTING: Academic quaternary care center. SUBJECTS AND METHODS: We provide descriptive analyses of patients with HNC, including psychodiagnostic assessment and validated quality-of-life screening, from patients' first encounter at outpatient palliative medicine. RESULTS: HNC (N = 80) contributed the greatest number of palliative referrals (25%) between 2010 and 2012. This cohort was 74% male and 79% Caucasian with a mean age of 53 years (95% CI, 51.1-54.9) and with stage IV disease of the oral cavity (28%) or oropharynx (31%). Sixty-three percent of patients had no evidence of disease. Seventy-five percent had a psychological history based on DSM-IV criteria (Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition), and 70% had a history of substance use disorder. The most distressing quality-of-life concerns were pain, housing and financial problems, and xerostomia. CONCLUSIONS: Patients with HNC who were referred to palliative medicine are burdened by multiple physical, psychological, substance use, and social challenges. We recommend comprehensive cancer-specific screening, such as the James Supportive Care Screening, to triage patients to appropriate supportive care services. Palliative care is one of many services that these patients may need, and it should be utilized at any point of the disease trajectory rather than reserved for end-of-life care.


Subject(s)
Head and Neck Neoplasms/therapy , Health Services Needs and Demand/statistics & numerical data , Palliative Care , Female , Head and Neck Neoplasms/complications , Humans , Male , Middle Aged
17.
Pediatrics ; 145(1)2020 01.
Article in English | MEDLINE | ID: mdl-31888959

ABSTRACT

CONTEXT: Integrated care models may improve health care for children and young people (CYP) with ongoing conditions. OBJECTIVE: To assess the effects of integrated care on child health, health service use, health care quality, school absenteeism, and costs for CYP with ongoing conditions. DATA SOURCES: Medline, Embase, PsycINFO, Cumulative Index to Nursing and Allied Health Literature, and the Cochrane Library databases (1996-2018). STUDY SELECTION: Inclusion criteria consisted of (1) randomized controlled trials, (2) evaluating an integrated care intervention, (3) for CYP (0-18 years) with an ongoing health condition, and (4) including at least 1 health-related outcome. DATA EXTRACTION: Descriptive data were synthesized. Data for quality of life (QoL) and emergency department (ED) visits allowed meta-analyses to explore the effects of integrated care compared to usual care. RESULTS: Twenty-three trials were identified, describing 18 interventions. Compared with usual care, integrated care reported greater cost savings (3/4 studies). Meta-analyses found that integrated care improved QoL over usual care (standard mean difference = 0.24; 95% confidence interval = 0.03-0.44; P = .02), but no significant difference was found between groups for ED visits (odds ratio = 0.88; 95% confidence interval = 0.57-1.37; P = .57). LIMITATIONS: Included studies had variable quality of intervention, trial design, and reporting. Randomized controlled trials only were included, but valuable data from other study designs may exist. CONCLUSIONS: Integrated care for CYP with ongoing conditions may deliver improved QoL and cost savings. The effects of integrated care on outcomes including ED visits is unclear.


Subject(s)
Adolescent Health Services , Child Health Services , Delivery of Health Care, Integrated , Health Services Needs and Demand , Quality of Health Care , Absenteeism , Adolescent , Adolescent Health Services/economics , Adolescent Health Services/standards , Adolescent Health Services/statistics & numerical data , Asthma/therapy , Child , Child Health , Child Health Services/economics , Child Health Services/standards , Child Health Services/statistics & numerical data , Child, Preschool , Confidence Intervals , Cost Savings , Cost-Benefit Analysis , Delivery of Health Care, Integrated/economics , Delivery of Health Care, Integrated/standards , Delivery of Health Care, Integrated/statistics & numerical data , Emergency Service, Hospital/statistics & numerical data , Health Care Costs , Health Services Needs and Demand/economics , Health Services Needs and Demand/standards , Health Services Needs and Demand/statistics & numerical data , Humans , Infant , Infant, Newborn , Quality of Life , Randomized Controlled Trials as Topic , Treatment Outcome
18.
Health Soc Care Community ; 28(2): 357-365, 2020 03.
Article in English | MEDLINE | ID: mdl-31578768

ABSTRACT

One in five young adults (aged 18-25 years) in the United States experiences a past year mental disorder, commonly including depression or anxiety. Yet, 1.5 million each year do not receive needed mental health services and are unlikely, in general, to seek formal mental healthcare. We aimed to inform the development of a novel programme for young adult mental health by first eliciting their positive and negative prior experiences with mental health providers. Four focus groups with 19 young adults (aged 19-26 years) recruited from the community and with moderate to severe depression and/or anxiety were conducted in 2018 in a western US state. Participants' prior experiences with services/providers were elicited along six pre-defined recovery-related concepts: feeling listened to and validated, inclusivity, full information and consent, hope and optimism, connectedness, and change. Focus groups were audio-recorded, transcribed verbatim and uploaded into NVivo version 12 software. Two independent coders used deductive thematic analysis to identify patterned responses. Feeling listened to and validated appeared as a cornerstone of other recovery concepts. Participants discussed past negative experiences with psychiatrists and regret for being put on medications in their teenage years without information or options. Hope and optimism were low because of a general focus by professionals to address immediate symptom-based issues, rather than on improving their overall lives. Service providers' focus on medication-taking, and other one-size-fits-all tools, was interpreted as lacking a sincere desire to help. Young adults were particularly sensitive to inauthentic interactions and superficial strategies, which left them craving care that incorporated their whole lives, acknowledged biopsychosocial interconnections and prioritised improving their lives over 'feeling better' in a given moment. Mental health providers should consider developing programmes that shift focus away from an exclusively medical understanding of distress and towards holistic, educational or relational approaches that value body, mind, self-exploration and authentic connection.


Subject(s)
Anxiety/psychology , Depressive Disorder/psychology , Mental Health Services/organization & administration , Adolescent , Adult , Anxiety/therapy , Depressive Disorder/therapy , Female , Focus Groups , Health Services Accessibility/statistics & numerical data , Health Services Needs and Demand/statistics & numerical data , Humans , Male , Mental Health/statistics & numerical data , Psychotic Disorders/psychology , Qualitative Research , United States , Young Adult
19.
Pediatrics ; 145(1)2020 01.
Article in English | MEDLINE | ID: mdl-31810996

ABSTRACT

OBJECTIVES: In 2014, the American Academy of Pediatrics published bronchiolitis guidelines recommending against the use of bronchodilators. For the winter of 2015 to 2016, we aimed to reduce the proportion of emergency department patients with bronchiolitis receiving albuterol from 43% (previous winter rate) to <35% and from 18% (previous winter rate) to <10% in the inpatient setting. METHODS: A team identified key drivers of albuterol use and potential interventions. We implemented changes to our pathway and the associated order set recommending against routine albuterol use and designed education to accompany the pathway changes. We monitored albuterol use through weekly automated data extraction and reported results back to clinicians. We measured admission rate, length of stay, and revisit rate as balancing measures for the intervention. RESULTS: The study period included 3834 emergency department visits and 1119 inpatient hospitalizations. In the emergency department, albuterol use in children with bronchiolitis declined from 43% to 20% and was <3 SD control limits established in the previous year, meeting statistical thresholds for special cause variation. Inpatient albuterol use decreased from 18% to 11% of patients, also achieving special cause variation and approaching our goal. The changes in both departments were sustained through the entire bronchiolitis season, and admission rate, length of stay, and revisit rates remained unchanged. CONCLUSIONS: Using a multidisciplinary group that redesigned a clinical pathway and order sets for bronchiolitis, we substantially reduced albuterol use at a large children's hospital without impacting other outcome measures.


Subject(s)
Albuterol/therapeutic use , Bronchiolitis/drug therapy , Bronchodilator Agents/therapeutic use , Emergency Service, Hospital/statistics & numerical data , Length of Stay , Patient Admission/statistics & numerical data , Critical Pathways , Female , Health Services Needs and Demand/statistics & numerical data , Hospitals, Pediatric , Humans , Infant , Infant, Newborn , Male , Medical Overuse/prevention & control , Outcome Assessment, Health Care , Practice Guidelines as Topic , Quality Improvement , Seasons
20.
Am J Health Syst Pharm ; 76(1): 34-43, 2019 Jan 01.
Article in English | MEDLINE | ID: mdl-31603982

ABSTRACT

PURPOSE: The development of an inpatient antimicrobial stewardship program (ASP) in an integrated healthcare system is described. SUMMARY: With increasing national focus on reducing inappropriate antimicrobial use, state and national regulatory mandates require hospitals to develop ASPs. In 2015, BJC HealthCare, a multihospital health system, developed a system-level, multidisciplinary ASP team to assist member hospitals with ASP implementation. A comprehensive gap analysis was performed to assess current stewardship resources, activities and compliance with CDC core elements at each facility. BJC system clinical leads facilitated the development of hospital-specific leadership support statements, identification of hospital pharmacy and medical leaders, and led development of staff and patient educational components. An antimicrobial-use data dashboard was created for reporting and tracking the impact of improvement activities. Hospital-level interventions were individualized based on the needs and resources at each facility. Hospital learnings were shared at bimonthly system ASP meetings to disseminate best practices. The initial gap analysis revealed that BJC hospitals were compliant in a median of 6 ASP elements (range, 4-8) required by regulatory mandates. By leveraging system resources, all hospitals were fully compliant with regulatory requirements by January 2017. CONCLUSION: BJC's ASP model facilitated the development of broad-based stewardship activities, including education modules for patients and providers and clinical decision support, while allowing hospitals to implement activities based on local needs and resource availability.


Subject(s)
Anti-Bacterial Agents/therapeutic use , Antimicrobial Stewardship/organization & administration , Delivery of Health Care, Integrated/organization & administration , Pharmacy Service, Hospital/organization & administration , Program Development , Academic Medical Centers/organization & administration , Academic Medical Centers/statistics & numerical data , Antimicrobial Stewardship/statistics & numerical data , Delivery of Health Care, Integrated/statistics & numerical data , Health Services Needs and Demand/organization & administration , Health Services Needs and Demand/statistics & numerical data , Humans , Illinois , Missouri , Models, Organizational , Patient Care Team/organization & administration , Patient Education as Topic/organization & administration , Patient Education as Topic/statistics & numerical data , Pharmacists/organization & administration , Pharmacy Service, Hospital/statistics & numerical data , Professional Practice Gaps/organization & administration , Professional Practice Gaps/statistics & numerical data
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