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1.
Oncologist ; 26(12): e2200-e2208, 2021 12.
Artículo en Inglés | MEDLINE | ID: mdl-34390287

RESUMEN

INTRODUCTION: Systemic treatment for breast cancer in sub-Saharan Africa (SSA) is cost effective. However, there are limited real-world data on the translation of breast cancer treatment guidelines into clinical practice in SSA. The study aimed to identify provider factors associated with adherence to breast cancer guideline-concordant care at Princess Marina Hospital (PMH) in Botswana. MATERIALS AND METHODS: The Consolidated Framework for Implementation Research was used to conduct one-on-one semistructured interviews with breast cancer providers at PMH. Purposive sampling was used, and sample size was determined by thematic saturation. Transcribed interviews were double-coded and analyzed in NVivo using an integrated analysis approach. RESULTS: Forty-one providers across eight departments were interviewed. There were variations in breast cancer guidelines used. Facilitators included a strong tension for change and a government-funded comprehensive cancer care plan. Common provider and health system barriers were lack of available resources, staff shortages and poor skills retention, lack of relative priority compared with HIV/AIDS, suboptimal interdepartmental communication, and lack of a clearly defined national cancer control policy. Community-level barriers included accessibility and associated transportation costs. Participants recommended the formal implementation of future guidelines that involved key stakeholders in all phases of planning and implementation, strategic government buy-in, expansion of multidisciplinary tumor boards, leveraging nongovernmental and academic partnerships, and setting up monitoring, evaluation, and feedback processes. DISCUSSION: The study identified complex, multilevel factors affecting breast cancer treatment delivery in Botswana. These results and recommendations will inform strategies to overcome specific barriers in order to promote standardized breast cancer care delivery and improve survival outcomes. IMPLICATIONS FOR PRACTICE: To address the increasing cancer burden in low- and middle-income countries, resource-stratified guidelines have been developed by multiple international organizations to promote high-quality guideline-concordant care. However, these guidelines still require adaptation in order to be successfully translated into clinical practice in the countries where they are intended to be used. This study highlights a systematic approach of evaluating important contextual factors associated with the successful adaptation and implementation of resource-stratified guidelines in sub-Saharan Africa. In Botswana, there is a critical need for local stakeholder input to inform country-level and facility-level resources, cancer care accessibility, and community-level barriers and facilitators.


Asunto(s)
Neoplasias de la Mama , Botswana , Neoplasias de la Mama/tratamiento farmacológico , Neoplasias de la Mama/epidemiología , Femenino , Humanos
2.
J Cancer Surviv ; 15(6): 951-960, 2021 12.
Artículo en Inglés | MEDLINE | ID: mdl-33606188

RESUMEN

PURPOSE: Insomnia is a debilitating symptom experienced by nearly 60% of cancer survivors. Building on our prior research showing the clinical benefit of cognitive behavioral therapy for insomnia (CBT-I) and acupuncture, we organized a workshop of patient advocates and clinician stakeholders to understand the barriers and develop recommendations for the dissemination and implementation of these interventions. METHODS: Participants completed a pre-workshop survey assessing their experiences with insomnia and barriers to insomnia treatment and participated in a workshop facilitated by professionals and patient experts. Responses from the survey were tabulated and the discussions from the workshop were content-analyzed to extract relevant factors that may influence dissemination and implementation. RESULTS: Multidisciplinary and stakeholder workshop participants (N = 51) identified barriers and proposed solutions and future recommendations for dissemination and implementation of evidence-based interventions to improve sleep health in cancer survivors. Barriers were identified in four categories: patient (e.g., knowledge, time, cost), clinician (e.g., education, time, capacity), institutional (e.g., space, insurance reimbursement, referrals), and societal (e.g., lack of prioritization for sleep issues). Based on these categories, we made six recommendations for dissemination and implementation of research findings to improve clinical sleep management in oncology. CONCLUSION: Dissemination and implementation efforts are necessary to translate research into clinical practice to improve patient care. IMPLICATIONS FOR CANCER SURVIVORS: Sleep needs to be prioritized in cancer care, but patient, provider, and institutional/societal barriers remain. Dedicated effort and resources at each of these levels are needed to help millions of people affected by cancer manage their insomnia and improve their quality of life.


Asunto(s)
Supervivientes de Cáncer , Neoplasias , Trastornos del Inicio y del Mantenimiento del Sueño , Humanos , Neoplasias/complicaciones , Neoplasias/terapia , Atención Dirigida al Paciente , Calidad de Vida , Trastornos del Inicio y del Mantenimiento del Sueño/etiología , Trastornos del Inicio y del Mantenimiento del Sueño/terapia , Resultado del Tratamiento
3.
Palliat Support Care ; 18(3): 301-306, 2020 06.
Artículo en Inglés | MEDLINE | ID: mdl-31571560

RESUMEN

OBJECTIVE: Like any therapy, acupuncture is effective for some patients, while not helpful for others. Understanding from a patients' perspective what makes one respond or not to acupuncture can help guide further intervention development. This study aimed to identify factors that influence the perception of acupuncture's therapeutic effect among cancer survivors with insomnia. METHOD: We conducted post-treatment semi-structured interviews with cancer survivors who were randomized to the acupuncture group in a clinical trial for the treatment of insomnia. Survivors were categorized into Responders and Non-Responders to acupuncture treatment based on the change in the Insomnia Severity Index with a reduction of eight points or greater as the cut-off for the response. An integrated approach to data analysis was utilized by merging an a priori set of codes derived from the key ideas and a set of codes that emerged from the data through a grounded theory approach. Codes were examined for themes and patterns. RESULTS: Among 28 cancer survivors interviewed, 18 (64%) were classified as Responders. Participants perceived the ability to respond to acupuncture as dependent on treatment that effectively: (1) alleviated co-morbidities contributing to insomnia, (2) supported sleep hygiene practices, and (3) provided a durable therapeutic effect. Acupuncture treatment that did not address one of these themes often detracted from positive treatment outcomes and diminished perceived benefit from acupuncture. SIGNIFICANCE OF RESULTS: We identified patient-perceived contributors to response to acupuncture, such as co-morbid medical conditions, adequate support for sleep hygiene practices, and temporary therapeutic relief. Addressing these factors may improve the overall effectiveness of acupuncture for insomnia.


Asunto(s)
Terapia por Acupuntura/normas , Supervivientes de Cáncer/psicología , Trastornos del Inicio y del Mantenimiento del Sueño/terapia , Terapia por Acupuntura/métodos , Terapia por Acupuntura/psicología , Adulto , Supervivientes de Cáncer/estadística & datos numéricos , Femenino , Humanos , Entrevistas como Asunto/métodos , Masculino , Persona de Mediana Edad , Pennsylvania , Investigación Cualitativa , Trastornos del Inicio y del Mantenimiento del Sueño/psicología , Encuestas y Cuestionarios , Resultado del Tratamiento
4.
J Natl Cancer Inst ; 111(12): 1323-1331, 2019 12 01.
Artículo en Inglés | MEDLINE | ID: mdl-31081899

RESUMEN

BACKGROUND: Insomnia is a common and debilitating disorder experienced by cancer survivors. Although cancer survivors express a preference for using nonpharmacological treatment to manage insomnia, the comparative effectiveness between acupuncture and Cognitive Behavioral Therapy for Insomnia (CBT-I) for this disorder is unknown. METHODS: This randomized trial compared 8 weeks of acupuncture (n = 80) and CBT-I (n = 80) in cancer survivors. Acupuncture involved stimulating specific points on the body with needles. CBT-I included sleep restriction, stimulus control, cognitive restructuring, relaxation training, and education. We measured insomnia severity (primary outcome), pain, fatigue, mood, and quality of life posttreatment (8 weeks) with follow-up until 20 weeks. We used linear mixed-effects models for analyses. All statistical tests were two-sided. RESULTS: The mean age was 61.5 years and 56.9% were women. CBT-I was more effective than acupuncture posttreatment (P < .001); however, both acupuncture and CBT-I produced clinically meaningful reductions in insomnia severity (acupuncture: -8.31 points, 95% confidence interval = -9.36 to -7.26; CBT-I: -10.91 points, 95% confidence interval = -11.97 to -9.85) and maintained improvements up to 20 weeks. Acupuncture was more effective for pain at the end of treatment; both groups had similar improvements in fatigue, mood, and quality of life and reduced prescription hypnotic medication use. CBT-I was more effective for those who were male (P < .001), white (P = .003), highly educated (P < .001), and had no pain at baseline (P < .001). CONCLUSIONS: Although both treatments produced meaningful and durable improvements, CBT-I was more effective and should be the first line of therapy. The relative differences in the comparative effectiveness between the two interventions for specific groups should be confirmed in future adequately powered trials to guide more tailored interventions for insomnia.


Asunto(s)
Terapia por Acupuntura , Supervivientes de Cáncer , Terapia Cognitivo-Conductual , Trastornos del Inicio y del Mantenimiento del Sueño/terapia , Terapia por Acupuntura/efectos adversos , Terapia por Acupuntura/estadística & datos numéricos , Afecto , Terapia Cognitivo-Conductual/estadística & datos numéricos , Intervalos de Confianza , Fatiga/terapia , Femenino , Humanos , Masculino , Persona de Mediana Edad , Neoplasias/complicaciones , Calidad de Vida , Trastornos del Inicio y del Mantenimiento del Sueño/psicología , Factores Socioeconómicos , Resultado del Tratamiento
5.
J Invest Dermatol ; 139(8): 1672-1679.e1, 2019 08.
Artículo en Inglés | MEDLINE | ID: mdl-30738054

RESUMEN

In the United States, black patients are less likely than white patients to receive biologic treatment for their psoriasis. We conducted a qualitative free-listing study to identify patient-generated factors that may explain this apparent racial disparity in psoriasis treatment by comparing the perceptions of biologics and other psoriasis therapies between white and black adults with psoriasis. Participants included 68 white and black adults with moderate to severe psoriasis who had and had not received biologic treatment. Each participant was asked to list words in response to verbal probes querying five psoriasis treatments: self-injectable biologics, infliximab, methotrexate, apremilast, and phototherapy. Salience scores indicating the relative importance of each word were calculated, and salient words were compared across each race/treatment group. Participants who had experience with biologics generally associated positive words with self-injectable biologics. Among biologic-naïve participants, "apprehension," "side effects," and "immune suppression" were most salient. "Unfamiliar" and "dislike needles" were salient only among black participants who were biologic naïve. Participants were generally unfamiliar with the other psoriasis therapies except phototherapy. Unfamiliarity with biologics, particularly among black, biologic-naïve patients, may partly explain the existing racial disparity in biologic treatment for psoriasis and might stem from lack of exposure to or poor understanding of biologics.


Asunto(s)
Productos Biológicos/administración & dosificación , Conocimientos, Actitudes y Práctica en Salud/etnología , Disparidades en Atención de Salud , Fototerapia/psicología , Psoriasis/terapia , Adulto , Anciano , Productos Biológicos/efectos adversos , Femenino , Humanos , Inyecciones/instrumentación , Inyecciones/psicología , Masculino , Persona de Mediana Edad , Agujas , Aceptación de la Atención de Salud/psicología , Fototerapia/efectos adversos , Psoriasis/etnología , Psoriasis/psicología , Investigación Cualitativa , Grupos Raciales/psicología , Autoadministración/psicología , Factores Socioeconómicos , Estados Unidos
6.
J Altern Complement Med ; 24(9-10): 962-967, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-30247951

RESUMEN

OBJECTIVE: To understand cancer survivors' perceptions regarding the use of acupuncture for the treatment of cancer-related insomnia. DESIGN: Semistructured interviews with cancer survivors participating in a randomized controlled trial comparing the effectiveness of Cognitive Behavioral Therapy for Insomnia (CBT-I) and acupuncture for the treatment of insomnia. Interviews were conducted before randomization into either treatment option, and structured to elicit participants' experiences with insomnia as well as their beliefs and understanding surrounding acupuncture for the treatment of insomnia. An integrated approach was used for data analysis. SUBJECTS: Sixty-three cancer survivors with DSM-V diagnosed insomnia. RESULTS: Participants shared a broad lack of understanding regarding acupuncture for the treatment of insomnia. Specifically, individuals in this study expressed confusion surrounding what symptoms or medical conditions acupuncture could be used to treat, how acupuncture works, and how long the effects of acupuncture last. CONCLUSIONS: This study identified three specific gaps in knowledge, including treatment target, mechanism, and durability, surrounding the use of acupuncture for insomnia in cancer survivors. Addressing these gaps by providing appropriate and timely education surrounding the use of acupuncture to treat insomnia is essential to increase the evidence-informed utilization of acupuncture and to better meet patients' needs among cancer survivors.


Asunto(s)
Terapia por Acupuntura/estadística & datos numéricos , Supervivientes de Cáncer/estadística & datos numéricos , Conocimientos, Actitudes y Práctica en Salud , Trastornos del Inicio y del Mantenimiento del Sueño/terapia , Anciano , Estudios de Cohortes , Femenino , Humanos , Masculino , Persona de Mediana Edad , Investigación Cualitativa
7.
Support Care Cancer ; 26(7): 2407-2415, 2018 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-29423681

RESUMEN

PURPOSE: Patient preference is an essential component of patient-centered supportive cancer care; however, little is known about the factors that shape preference for treatment. This study sought to understand what factors may contribute to patient preference for two non-pharmacological interventions, acupuncture or cognitive behavioral therapy for insomnia (CBT-I). METHODS: We conducted individual, open-ended, semi-structured interviews among cancer survivors who had completed active treatment and met the diagnostic criteria for insomnia disorder. Two forms of codes were used for analysis: a priori set of codes derived from the key ideas and a set of codes that emerged from the data. RESULTS: Among 53 participants, the median age was 60.7 (range 27-83), 30 participants (56.6%) were female, and 18 (34%) were non-white. We identified three themes that contributed to an individual's treatment preference: perception of the treatment's evidence base, experience with the treatment, and consideration of personal factors. Participants gave preference to the treatment perceived as having stronger evidence. Participants also reflected on positive or negative experiences with both of the interventions, counting their own experiences, as well as those of trusted sources. Lastly, participants considered their own unique circumstances and factors such as the amount of work involved, fit with personality, or fit with their "type" of insomnia. CONCLUSIONS: Knowledge of the evidence base, past experience, and personal factors shaped patient preference regardless of whether they accurately represent the evidence. Acknowledging these salient factors may help inform patient-centered decision-making and care.


Asunto(s)
Terapia por Acupuntura/métodos , Terapia Cognitivo-Conductual/métodos , Neoplasias/complicaciones , Trastornos del Inicio y del Mantenimiento del Sueño/terapia , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Persona de Mediana Edad , Neoplasias/patología , Prioridad del Paciente , Trastornos del Inicio y del Mantenimiento del Sueño/patología
8.
Acad Pediatr ; 16(6): 571-8, 2016 08.
Artículo en Inglés | MEDLINE | ID: mdl-27132050

RESUMEN

OBJECTIVE: To describe influences on shared decision making between primary care pediatricians and parents of young children with autism spectrum disorder (ASD). METHODS: We conducted a qualitative study using key informant interviews with 20 pediatricians of varying experience from 10 primary care practices and 20 English-speaking parents of young children (aged 2-5 years) with a parent-reported diagnosis of ASD. Subjects were recruited through purposive sampling. Interviews were audiotaped, transcribed verbatim, and analyzed using an integrated approach to data analysis. Differences in coding were resolved by consensus. We achieved thematic saturation and ceased recruitment after 20 interviews were completed within each group. RESULTS: Three primary themes emerged: 1) pediatricians and parents reported knowledge gaps by pediatricians about ASD treatments and community resources as well as ambiguity regarding the pediatrician's role in ASD care; 2) there was little communication between parents and pediatricians about treatment choices; 3) use of complementary and alternative medical treatments created conflict between pediatricians and parents, and as a result, parents may independently pursue treatments, without the benefit of discussing safety and efficacy with pediatricians. Despite these barriers, parents desired increased support and guidance from their pediatricians, including for complementary and alternative medicine. CONCLUSIONS: Much work is needed to effectively foster shared decision making in the context of ASD treatment decisions in primary care, including pediatrician training in ASD to enhance knowledge about evidence-based and novel treatments, clinical practice guidelines, and community resources.


Asunto(s)
Trastorno del Espectro Autista/terapia , Toma de Decisiones , Padres , Pediatras , Adulto , Niño , Preescolar , Femenino , Humanos , Lactante , Masculino , Persona de Mediana Edad , Investigación Cualitativa
9.
Contemp Clin Trials ; 47: 349-55, 2016 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-26956541

RESUMEN

Insomnia is a prevalent and persistent side effect of cancer, which if left unaddressed, can be unremitting and negatively influence physical and mental well-being. Acupuncture and Cognitive Behavioral Therapy (CBT) are commonly used non-pharmacological treatments that are efficacious for treating insomnia in cancer patients; however, little is known about the comparative effectiveness of these options. The goal of personalized medicine is to determine which treatments are most effective for which individuals, and patient preference for treatment is a particularly important contributor to adherence and outcomes. Here we describe the design of a clinical trial that begins to determine how best to personalize the treatment of insomnia for cancer survivors. This project is a randomized controlled comparative effectiveness trial with a nested qualitative study comparing acupuncture and CBT for insomnia and co-morbid symptoms in a heterogeneous sample of 160 cancer survivors. The primary aim is to determine which treatment is associated with the largest reduction in insomnia severity. The secondary aim is to examine the demographic, clinical, and psychological characteristics that predict and/or moderate treatment effect. Patients will receive ten treatments of acupuncture or 7 sessions of CBT over eight weeks and complete validated patient-reported outcome measures of sleep and co-morbid symptoms at baseline, mid-treatment, post-treatment, and at three-months to assess durability of effect. The results of the proposed study have the potential to improve healthcare outcomes by helping cancer survivors and their caregivers make informed and evidence-based decisions, leading to patient-centered and personalized care for cancer survivors with insomnia.


Asunto(s)
Terapia por Acupuntura , Terapia Cognitivo-Conductual , Neoplasias/complicaciones , Trastornos del Inicio y del Mantenimiento del Sueño/terapia , Adulto , Anciano , Anciano de 80 o más Años , Protocolos Clínicos , Investigación sobre la Eficacia Comparativa/métodos , Femenino , Estudios de Seguimiento , Humanos , Masculino , Persona de Mediana Edad , Proyectos de Investigación , Trastornos del Inicio y del Mantenimiento del Sueño/etiología , Resultado del Tratamiento
10.
Support Care Cancer ; 22(5): 1207-15, 2014 May.
Artículo en Inglés | MEDLINE | ID: mdl-24362843

RESUMEN

PURPOSE: Acupuncture is a complementary and alternative medicine (CAM) modality that shows promise as a component of supportive breast cancer care. Lack of robust recruitment for clinical trial entry has limited the evidence base for acupuncture as a treatment modality among breast cancer survivors. The objective of this study is to identify key decision-making factors among breast cancer survivors considering entry into an acupuncture clinical trial for treatment of symptoms. METHODS: Semistructured interviews were conducted among African-American (n=12) and Caucasian (n=13) breast cancer survivors. Verbatim transcripts were made and analyzed by two or more independent coders using NVivo software. Major recurring themes were identified and a theoretical framework developed. RESULTS: Six themes emerged reflecting key attributes of the decision to enter a clinical trial: (1) symptom appraisal, (2) practical barriers (e.g., distance and travel), (3) beliefs about the interventions (e.g., fear of needles and dislike of medications), (4) comfort with elements of clinical trial design (e.g., randomization, the nature of the control intervention, and blinding), (5) trust, and (6) altruism. African-American and Caucasian women weighed similar attributes but differed in the information sources sought regarding clinical trial entry and in concerns regarding the use of a placebo in a clinical trial. CONCLUSIONS: Our findings contribute to the development of a theoretical model of decision making for breast cancer survivors considering participation in a CAM clinical trial. Insights regarding the decision making process can inform interventions to support informed decision making and robust recruitment to CAM trials among cancer survivors.


Asunto(s)
Terapia por Acupuntura/psicología , Neoplasias de la Mama/psicología , Neoplasias de la Mama/terapia , Aceptación de la Atención de Salud/psicología , Terapia por Acupuntura/métodos , Adulto , Negro o Afroamericano/psicología , Anciano , Neoplasias de la Mama/etnología , Neoplasias de la Mama/patología , Toma de Decisiones , Femenino , Humanos , Persona de Mediana Edad , Recurrencia Local de Neoplasia/etnología , Recurrencia Local de Neoplasia/psicología , Recurrencia Local de Neoplasia/terapia , Estadificación de Neoplasias , Aceptación de la Atención de Salud/etnología , Sobrevivientes/psicología , Población Blanca/psicología
11.
Matern Child Nutr ; 8(1): 1-18, 2012 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-21978181

RESUMEN

Iron supplementation for women of reproductive age is a main part of an interdisciplinary strategy recommended for the control and prevention of iron deficiency and the treatment of mild-to-moderate iron-deficiency anaemia. This systematic review reports the findings from a meta-synthesis of qualitative data concerning the experiences and perceptions of iron supplementation among women of reproductive age and health service providers worldwide. Qualitative systematic review methods were used to conduct a search of published literature, define inclusion and exclusion criteria, appraise quality of studies and extract data on the use of iron supplementation among women of reproductive age. Coding, thematic analysis, reciprocal translation and line of argument synthesis were used to synthesize data. Twelve studies spanning 17 countries met inclusion criteria and were included in the analysis. Seven domains emerged from the review: cultural norms and societal values including explanatory models and medical pluralism; political and socio-economic circumstances; education and communication; social organization and social relationships; health care access and supplement supply; food and nutrition availability; and adherence. In addition, 16 sub-domains are highlighted. Connecting review findings to a conceptual framework of social determinants of health highlights salient issues that policy makers must consider when adapting global iron supplementation recommendations to the local context.


Asunto(s)
Anemia Ferropénica/prevención & control , Suplementos Dietéticos , Hierro de la Dieta/administración & dosificación , Medio Social , Salud de la Mujer , Adulto , Anemia Ferropénica/dietoterapia , Escolaridad , Femenino , Accesibilidad a los Servicios de Salud , Humanos , Necesidades Nutricionales , Embarazo , Complicaciones del Embarazo/sangre , Complicaciones del Embarazo/prevención & control , Factores Socioeconómicos
12.
Integr Cancer Ther ; 9(4): 339-47, 2010 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-21106614

RESUMEN

PURPOSE: Spirituality is an important component of the cancer experience. This study aims to assess characteristics of spiritual health following a cancer diagnosis, and evaluate the relationship between spiritual change and the use of complementary and alternative medicine (CAM) among a population-based cohort of cancer survivors. METHOD: A mailed, cross-sectional survey was completed by 614 cancer survivors identified through the Pennsylvania Cancer Registry. All subjects were 3 to 4.5 years postdiagnosis. Relationships between various characteristics of spiritual health and CAM use were examined, along with clinical and sociodemographic factors. RESULTS: Although large proportions of individuals reported that having cancer had positively affected their spiritual well-being (eg, 40.3% experienced highly positive spiritual changes, 68% felt a high sense of purpose, 75.9% reported being very hopeful), some individuals experienced negative spiritual change (36.1%) and continued to experience high levels of uncertainty (27.2%). In multivariate analyses, those survivors who felt spiritual life became more important (adjusted odds ratio [AOR] = 1.92, 95% confidence interval (CI) = 1.21-3.04, P = .006), or experienced positive changes resulting from the cancer experience (AOR = 1.99, 95% CI = 1.26-3.15, P = .003), were more likely to use CAM than those who stated otherwise. CONCLUSIONS: Having cancer affects many different aspects of spiritual well-being, both positively and negatively. Positive changes and increased spiritual importance appear to be associated with the use of CAM. Prospective research is needed to test whether integrating CAM into conventional cancer care systems will facilitate positive, spiritually transformative processes among diverse groups of cancer survivors.


Asunto(s)
Terapias Complementarias/métodos , Terapias Complementarias/psicología , Terapias Complementarias/estadística & datos numéricos , Neoplasias/terapia , Espiritualidad , Sobrevivientes/psicología , Anciano , Estudios Transversales , Humanos , Persona de Mediana Edad , Análisis Multivariante , Neoplasias/epidemiología , Neoplasias/psicología , Neoplasias/rehabilitación , Pennsylvania/epidemiología , Calidad de Vida , Sistema de Registros , Encuestas y Cuestionarios
13.
J Gen Intern Med ; 24(3): 402-7, 2009 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-19156471

RESUMEN

BACKGROUND AND OBJECTIVES: Older African Americans are often under diagnosed and under treated for depression. Given that older African Americans are more likely than whites to identify spirituality as important in depression care, we sought to understand how spirituality may play a role in the way they conceptualize and deal with depression in order to inform possible interventions aimed at improving the acceptability and effectiveness of depression treatment. DESIGN: Cross-sectional qualitative interview study of older African American primary care patients. PARTICIPANTS AND SETTING: Forty-seven older African American patients recruited from primary care practices in the Baltimore, MD area, interviewed in their homes. MEASUREMENTS: Semi-structured interviews lasting approximately 60 minutes. Interviews were transcribed and themes related to spirituality in the context of discussing depression were identified using a grounded-theory approach. MAIN RESULTS: Participants in this study held a faith-based explanatory model of depression with a particular emphasis on the cause of depression and what to do about it. Specifically, participants described depression as being due to a "loss of faith" and faith and spiritual/religious activities were thought to be empowering in the way they can work together with medical treatments to provide the strength for healing to occur. CONCLUSIONS: The older African Americans in this study described an intrinsically spiritual explanatory model of depression. Addressing spirituality in the clinical encounter may lead to improved detection of depression and treatments that are more congruent with patient's beliefs and values.


Asunto(s)
Negro o Afroamericano , Depresión/psicología , Curación por la Fe , Conocimientos, Actitudes y Práctica en Salud , Aceptación de la Atención de Salud/psicología , Espiritualidad , Anciano , Depresión/terapia , Femenino , Humanos , Entrevistas como Asunto , Masculino , Atención Primaria de Salud , Religión y Medicina
14.
Ethos ; 37(3): 282-313, 2009 Sep 01.
Artículo en Inglés | MEDLINE | ID: mdl-20428332

RESUMEN

Psychiatrists and anthropologists have taken distinct analytic approaches when confronted with differences between emic and etic models for distress: psychiatrists have translated folk models into diagnostic categories whereas anthropologists have emphasized culture-specific meanings of illness. The rift between psychiatric and anthropological research keeps "individual disease" and "culture" disconnected and thus hinders the study of interrelationships between mental health and culture. In this article we bridge psychiatric and anthropological approaches by using cultural models to explore the experience of nerves among 27 older primary care patients from Baltimore, Maryland. We suggest that cultural models of distress arise in response to personal experiences, and in turn, shape those experiences. Shifting research from a focus on comparing content of emic and etic concepts, to examining how these social realities and concepts are coconstructed, may resolve epistemological and ontological debates surrounding differences between emic and etic concepts, and improve understanding of the interrelationships between culture and health.

15.
J Cancer Surviv ; 2(2): 116-24, 2008 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-18648980

RESUMEN

PURPOSE: Despite advancements in cancer care, cancer survivors continue to experience a substantial level of physical and emotional unmet needs (UMN). This study aims to determine the relationship between patients' perceived UMN and their use of complementary and alternative medicine (CAM) to help with cancer problems during and after treatment. METHODS: A mailed, cross-sectional survey was completed by 614 cancer survivors identified through the Pennsylvania Cancer Registry 3.5 to 4 years from initial diagnosis. Relationships among UMN and CAM use along with clinical and socio-demographic factors were examined. RESULTS: Respondents who identified any UMN were 63% more likely to report CAM use than those without UMN (58% vs. 36%), p < 0.001. UMN remained the only independent predictor (adjusted odds ratio = 2.30, 95% confidence interval = 1.57-3.36, p < 0.001) of CAM use in a multivariate logistic regression model that included age, sex, marital status, education, previous chemotherapy and radiotherapy. Adjusted for covariates, UMN in domains of emotional, physical, nutritional, financial, informational, treatment-related, employment-related, and daily living activities were all related to CAM use, whereas UMN in transportation, home care, medical staff, family and spirituality were not related to CAM use. Patients who experienced multiple types of unmet needs were also more likely to use multiple types of CAM (p < 0.001 for model). CONCLUSIONS: Cancer survivors who experienced unmet needs within the existing cancer treatment and support system were more likely to use CAM to help with cancer problems. Research is needed to determine if appropriate CAM use decreases unmet needs among cancer survivors.


Asunto(s)
Actividades Cotidianas , Terapias Complementarias/estadística & datos numéricos , Evaluación de Necesidades/estadística & datos numéricos , Neoplasias/fisiopatología , Neoplasias/psicología , Sobrevivientes , Adolescente , Adulto , Anciano , Estudios Transversales , Escolaridad , Empleo , Femenino , Encuestas Epidemiológicas , Humanos , Renta , Masculino , Estado Civil , Masaje , Meditación , Persona de Mediana Edad , Neoplasias/terapia , Oportunidad Relativa , Apoyo Social
16.
Ann Fam Med ; 5(1): 6-13, 2007.
Artículo en Inglés | MEDLINE | ID: mdl-17261859

RESUMEN

PURPOSE: American television viewers see as many as 16 hours of prescription drug advertisements (ads) each year, yet no research has examined how television ads attempt to influence consumers. This information is important, because ads may not meet their educational potential, possibly prompting consumers to request prescriptions that are clinically inappropriate or more expensive than equally effective alternatives. METHODS: We coded ads shown during evening news and prime time hours for factual claims they make about the target condition, how they attempt to appeal to consumers, and how they portray the medication and lifestyle behaviors in the lives of ad characters. RESULTS: Most ads (82%) made some factual claims and made rational arguments (86%) for product use, but few described condition causes (26%), risk factors (26%), or prevalence (25%). Emotional appeals were almost universal (95%). No ads mentioned lifestyle change as an alternative to products, though some (19%) portrayed it as an adjunct to medication. Some ads (18%) portrayed lifestyle changes as insufficient for controlling a condition. The ads often framed medication use in terms of losing (58%) and regaining control (85%) over some aspect of life and as engendering social approval (78%). Products were frequently (58%) portrayed as a medical breakthrough. CONCLUSIONS: Despite claims that ads serve an educational purpose, they provide limited information about the causes of a disease or who may be at risk; they show characters that have lost control over their social, emotional, or physical lives without the medication; and they minimize the value of health promotion through lifestyle changes. The ads have limited educational value and may oversell the benefits of drugs in ways that might conflict with promoting population health.


Asunto(s)
Publicidad/estadística & datos numéricos , Industria Farmacéutica , Televisión , Industria Farmacéutica/estadística & datos numéricos , Prescripciones de Medicamentos , Emociones , Educación en Salud , Humanos , Estilo de Vida , Investigación Cualitativa , Televisión/estadística & datos numéricos , Estados Unidos , United States Food and Drug Administration
17.
Fam Med ; 39(1): 16-8, 2007 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-17186440

RESUMEN

OBJECTIVE: This study describes an international acupuncture elective and its impact on medical students' development of cultural competence. METHODS: Collaborating with Chinese colleagues, we created a 4-week elective that teaches medical students about acupuncture in its native cultural environment. Three focus groups were conducted to elicit students' experiences. RESULTS: Students' reflections indicated that studying an alternative medical system in its own cultural setting helped them become open to other medical beliefs and realize the importance of culture in health care delivery. Further, being linguistically isolated allowed students to personally experience what it is like for those patients with limited language proficiency. CONCLUSION: Studying an alternative medical system while immersed in another culture maybe an effective way to enhance cultural competence.


Asunto(s)
Acupuntura/educación , Actitud del Personal de Salud , Actitud Frente a la Salud , Diversidad Cultural , Educación de Pregrado en Medicina/métodos , Aculturación , Femenino , Grupos Focales , Humanos , Cooperación Internacional , Masculino , Estudiantes de Medicina
18.
Psychooncology ; 15(2): 174-9, 2006 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-15937868

RESUMEN

BACKGROUND: Although African American breast cancer survivors are most likely to gain weight following diagnosis and treatment compared to women from other ethnic groups, limited information is available on psychological and behavioral reactions to weight change in this population. OBJECTIVES: To explore perceptions and reactions to weight change in African American breast cancer survivors. METHODOLOGY: A parallel mixed methods approach was used to explore experiences with and reactions to weight change following breast cancer diagnosis and treatment. Participants were 16 short- and long-term African American breast cancer survivors. RESULTS: Nine out of 16 participants gained weight following diagnosis and treatment and most participants were concerned about these changes. Most participants were also interested in diet and exercise programs; however, a holistic and common sense approach to diet and physical activity emerged as key themes. CONCLUSIONS: Although prior reports have found that African American women in the general population report a greater tolerance for larger body sizes, most participants in this study were concerned about changes in their weight and were actively trying to minimize weight gain. Several themes emerged regarding physical activity and dietary behaviors; overall, participants described a holistic and practical approach to these behaviors.


Asunto(s)
Negro o Afroamericano/estadística & datos numéricos , Neoplasias de la Mama/mortalidad , Obesidad/epidemiología , Sobrevivientes/psicología , Pérdida de Peso , Adulto , Neoplasias de la Mama/epidemiología , Demografía , Supervivencia sin Enfermedad , Ingestión de Energía , Femenino , Humanos , Persona de Mediana Edad , Actividad Motora , Encuestas y Cuestionarios
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