RESUMEN
The COVID-19 pandemic has become the leading societal concern. The pandemic has shown that the public health concern is not only a medical problem, but also affects society as a whole; so, it has also become the leading scientific concern. We discuss in this treatise the importance of bringing the world's scientists together to find effective solutions for controlling the pandemic. By applying novel research frameworks, interdisciplinary collaboration promises to manage the pandemic's consequences and prevent recurrences of similar pandemics.
Asunto(s)
Investigación Biomédica/organización & administración , Infecciones por Coronavirus/epidemiología , Prestación Integrada de Atención de Salud/organización & administración , Urgencias Médicas , Necesidades y Demandas de Servicios de Salud , Pandemias , Neumonía Viral/epidemiología , Betacoronavirus/patogenicidad , Investigación Biomédica/métodos , COVID-19 , Infecciones por Coronavirus/terapia , Infecciones por Coronavirus/virología , Prestación Integrada de Atención de Salud/métodos , Historia del Siglo XXI , Humanos , Comunicación Interdisciplinaria , Estudios Interdisciplinarios , Neumonía Viral/terapia , Neumonía Viral/virología , Salud Pública/historia , Salud Pública/normas , SARS-CoV-2RESUMEN
The Primary Immune Deficiency Treatment Consortium (PIDTC) is a network of 33 centers in North America that study the treatment of rare and severe primary immunodeficiency diseases. Current protocols address the natural history of patients treated for severe combined immunodeficiency (SCID), Wiskott-Aldrich syndrome, and chronic granulomatous disease through retrospective, prospective, and cross-sectional studies. The PIDTC additionally seeks to encourage training of junior investigators, establish partnerships with European and other International colleagues, work with patient advocacy groups to promote community awareness, and conduct pilot demonstration projects. Future goals include the conduct of prospective treatment studies to determine optimal therapies for primary immunodeficiency diseases. To date, the PIDTC has funded 2 pilot projects: newborn screening for SCID in Navajo Native Americans and B-cell reconstitution in patients with SCID after hematopoietic stem cell transplantation. Ten junior investigators have received grant awards. The PIDTC Annual Scientific Workshop has brought together consortium members, outside speakers, patient advocacy groups, and young investigators and trainees to report progress of the protocols and discuss common interests and goals, including new scientific developments and future directions of clinical research. Here we report the progress of the PIDTC to date, highlights of the first 2 PIDTC workshops, and consideration of future consortium objectives.