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Pediatr Endocrinol Rev ; 12(3): 313-22, 2015 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-25962210

RESUMEN

The VIII ICET-A International Symposium was held in Muscat (Sultanate of Oman) on the 20th of December, 2014. The symposium included four sessions on a wide range of topics covering growth disorders and endocrine complications in thalassaemia. Despite the fact that endocrine complications are very common in multi-transfused thalassaemia patients a recent survey conducted by the International Network of Clinicians for Endocrinopathies in Thalassemia and Adolescent Medicine (ICET-A) in 2014 in Acitrezza (Catania, Italy) showed that the major difficulties reported by hematologists or pediatricians experienced in thalassaemias or thalassaemia syndromes in following endocrine complications included: Lack of familiarity with medical treatment of endocrine complications, interpretation of endocrine tests, lack of collaboration and on-time consultation between thalassaemic centres supervised by haematologists and endocrinologists. Endocrine monitoring of growth, pubertal development, reproductive ability and endocrine function in general are essential to achieve a good quality of life as well as controlling the pain which results from the defects of bone structure, all of which increase with the age of patients. Such comprehensive care is best provided by coordinated, multidisciplinary teams working in expert centres. The multidisciplinary team must include an endocrinologist, preferably someone experienced in the management of hormonal deficiencies caused early in life by transfusion-induced iron overload.


Asunto(s)
Desarrollo del Adolescente , Medicina del Adolescente , Enfermedades del Sistema Endocrino/complicaciones , Pubertad/fisiología , Talasemia/complicaciones , Adolescente , Medicina del Adolescente/organización & administración , Medicina del Adolescente/tendencias , Niño , Enfermedades del Sistema Endocrino/fisiopatología , Enfermedades del Sistema Endocrino/terapia , Humanos , Cooperación Internacional , Omán , Talasemia/fisiopatología , Talasemia/terapia , Universidades
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