Your browser doesn't support javascript.
loading
Mostrar: 20 | 50 | 100
Resultados 1 - 20 de 109
Filtrar
Más filtros

Medicinas Complementárias
Tipo del documento
Intervalo de año de publicación
1.
Artículo en Inglés, Portugués | LILACS, BDENF | ID: biblio-1355017

RESUMEN

Objetivo: analisar evidências científicas sobre a utilização de cuidados paliativos aplicados em idosos no domicílio. Métodos: trata-se de uma revisão sistemática de literatura, realizada em janeiro de 2020, utilizando os descritores: "cuidados paliativos/Paliative care" AND "saúde do idoso/heal thof the elderly" AND "assistência domiciliar/home care". Resultados: foram selecionados sete artigos, que emergiram as categorias: Assistência domiciliar adaptada as necessidades dos pacientes de acordo com seus recursos disponíveis; Ampliação dos resultados através do empoderamento e autonomia na participação do cuidado familiar no domicílio; Os cuidados paliativos contribuem para a melhoria dos fatores psicológicos e emocionais, enfrentamento positivo e aceitação do tratamento. Conclusão: a literatura traz uma aplicabilidade geral sem estudos que tratem de forma específica a situação do idoso. Demonstra também um aumento deliberado da necessidade de assistência permanente a estas pessoas com doenças incuráveis, necessitando de apoio holístico


Objective: to analyze scientific evidence on the use of palliative care applied to elderly people at home. Methods: this is a systematic literature review, conducted in January 2020, using the descriptors: "palliative care / Palliative care" AND "health of the elderly / heal thof the elderly" AND "home care / home care". Results: seven articles were selected, which emerged in the categories: Home care adapted to the needs of patients according to their available resources; Expansion of results through empowerment and autonomy in the participation of family care at home; Palliative care contributes to the improvement of psychological and emotional factors, positive coping and treatment acceptance. Conclusion: the literature has a general applicability without studies that specifically address the situation of the elderly. It also demonstrates a delibeate increase in the need for permanent assistance to these people with incurable diseases, requiring holistic support


Objetivo: analizar la evidencia científica sobre el uso de cuidados paliativos aplicados a personas mayores en el hogar. Métodos: esta es una revisión sistemática de la literatura, realizada en enero de 2020, utilizando los descriptores: "cuidados paliativos / cuidados paliativos" Y "salud de los ancianos / curar a los ancianos" Y "cuidado en el hogar / cuidado en el hogar". Resultados: se seleccionaron siete artículos, que surgieron en las categorías: Atención domiciliaria adaptada a las necesidades de los pacientes de acuerdo con sus recursos disponibles; Expansión de resultados a través del empoderamiento y la autonomía en la participación del cuidado familiar en el hogar; Los cuidados paliativos contribuyen a la mejora de los factores psicológicos y emocionales, el afrontamiento positivo y la aceptación del tratamiento. Conclusión: la literatura tiene una aplicabilidad general sin estudios que aborden específicamente la situación de las personas mayores. También demuestra un aumento deliberado en la necesidad de asistencia permanente a estas personas con enfermedades incurables, que requieren un apoyo integral


Asunto(s)
Humanos , Masculino , Femenino , Anciano , Anciano de 80 o más Años , Cuidados Paliativos/tendencias , Salud del Anciano , Atención Domiciliaria de Salud/tendencias , Adaptación Psicológica , Familia , Autonomía Personal , Empoderamiento , Servicios de Atención de Salud a Domicilio
2.
Nutrients ; 13(8)2021 Aug 12.
Artículo en Inglés | MEDLINE | ID: mdl-34444926

RESUMEN

Gastric cancer treatments are rapidly evolving, leading to significant survival benefit. Recent evidence provided by clinical trials strongly encouraged the use of perioperative chemotherapy as standard treatment for the localized disease, whereas in the advanced disease setting, molecular characterization has improved patients' selection for tailored therapeutic approaches, including molecular targeted therapy and immunotherapy. The role of nutritional therapy is widely recognized, with oncologic treatment's tolerance and response being better in well-nourished patients. In this review, literature data on strategies or nutritional interventions will be critically examined, with particular regard to different treatment phases (perioperative, metastatic, and palliative settings), with the aim to draw practical indications for an adequate nutritional support of gastric cancer patients and provide an insight on future directions in nutritional strategies. We extensively analyzed the last 10 years of literature, in order to provide evidence that may fit current clinical practice both in terms of nutritional interventions and oncological treatment. Overall, 137 works were selected: 34 Randomized Clinical Trials (RCTs), 12 meta-analysis, 9 reviews, and the most relevant prospective, retrospective and cross-sectional studies in this setting. Eleven ongoing trials have been selected from clinicaltrial.gov as representative of current research. One limitation of our work lies in the heterogeneity of the described studies, in terms of sample size, study procedures, and both nutritional and clinical outcomes. Indeed, to date, there are no specific evidence-based guidelines in this fields, therefore we proposed a clinical algorithm with the aim to indicate an appropriate nutritional strategy for gastric cancer patients.


Asunto(s)
Neoplasias Esofágicas/terapia , Apoyo Nutricional/tendencias , Cuidados Paliativos/tendencias , Atención Perioperativa/tendencias , Neoplasias Gástricas/terapia , Adolescente , Adulto , Estudios Transversales , Neoplasias Esofágicas/complicaciones , Femenino , Humanos , Masculino , Desnutrición/etiología , Desnutrición/prevención & control , Persona de Mediana Edad , Apoyo Nutricional/métodos , Cuidados Paliativos/métodos , Atención Perioperativa/métodos , Estudios Prospectivos , Ensayos Clínicos Controlados Aleatorios como Asunto , Estudios Retrospectivos , Neoplasias Gástricas/complicaciones , Adulto Joven
3.
BMC Palliat Care ; 19(1): 170, 2020 Nov 06.
Artículo en Inglés | MEDLINE | ID: mdl-33158421

RESUMEN

BACKGROUND: The disparities in access to pediatric palliative care and pain management in Latin America remains an unaddressed global health issue. Efforts to improve the development of Palliative Care (PC) provision have traditionally targeted services for adults, leaving the pediatric population unaddressed. Examples of such services are scarce and should be portrayed in scientific literature to inform decision-makers and service providers on models of care available to tackle the burden of Pediatric Palliative Care (PPC) in Low-and middle-income countries (LMIC). The purpose of this study is to describe the implementation of a pediatric palliative care program, "Taking Care of You" (TCY), in a tertiary care, university hospital in Cali, Colombia. METHODS: A program's database was built with children between 0 to 18 years old and their families, from year 2017 to 2019. Descriptive analysis was carried out to evaluate the impact of the program and service delivery. A theory-based method was directed to describe the PPC program, according to the implementation of self-designed taxonomy, mapping theoretical levels and domains. Clinical outcomes in patients were included in the analysis. RESULTS: Since 2017 the program has provided PPC services to 1.965 children. Most of them had an oncologic diagnosis and were referred from hospitalization services (53%). The number of ambulatory patients increased by 80% every trimester between 2017 and 2018. A 50% increase was reported in hospitalization, emergency, and intensive care units during the same time period. CONCLUSIONS: The program addressed a gap in the provision of PPC to children in Cali. It shows effective strategies used to implement a PPC program and how the referral times, coordination of care, communication with other hospital services were improved while providing compassionate/holistic care to children with life-limiting and threatening diseases and in end-of-life. The implementation of this program has required the onset of specific strategies and arrangements to promote awareness and education proving it a hard task, yet not impossible.


Asunto(s)
Países en Desarrollo , Cuidados Paliativos/métodos , Adolescente , Adulto , Niño , Preescolar , Colombia , Femenino , Hospitalización/tendencias , Humanos , Lactante , Recién Nacido , Masculino , Cuidados Paliativos/tendencias , Pediatría/métodos , Pobreza
4.
Respir Res ; 21(1): 197, 2020 Jul 23.
Artículo en Inglés | MEDLINE | ID: mdl-32703199

RESUMEN

Systemic sclerosis (SSc) is a multi-organ autoimmune disease with complex interactions between immune-mediated inflammatory processes and vascular pathology leading to small vessel obliteration, promoting uncontrolled fibrosis of skin and internal organs. Interstitial lung disease (ILD) is a common but highly variable manifestation of SSc and is associated with high morbidity and mortality. Treatment approaches have focused on immunosuppressive therapies, which have shown some efficacy on lung function. Recently, a large phase 3 trial showed that treatment with nintedanib was associated with a reduction in lung function decline. None of the conducted randomized clinical trials have so far shown convincing efficacy on other outcome measures including quality of life determined by patient reported outcomes. Little evidence is available for non-pharmacological treatment and supportive care specifically for SSc-ILD patients, including pulmonary rehabilitation, supplemental oxygen, symptom relief and adequate information. Improved management of SSc-ILD patients based on a holistic approach is necessary to support patients in maintaining as much quality of life as possible throughout the disease course and to improve long-term outcomes.


Asunto(s)
Necesidades y Demandas de Servicios de Salud/tendencias , Salud Holística/tendencias , Enfermedades Pulmonares Intersticiales/terapia , Calidad de Vida , Esclerodermia Sistémica/terapia , Humanos , Enfermedades Pulmonares Intersticiales/diagnóstico , Enfermedades Pulmonares Intersticiales/epidemiología , Trasplante de Pulmón/tendencias , Cuidados Paliativos/métodos , Cuidados Paliativos/tendencias , Esclerodermia Sistémica/diagnóstico , Esclerodermia Sistémica/epidemiología
5.
BMC Palliat Care ; 19(1): 77, 2020 Jun 03.
Artículo en Inglés | MEDLINE | ID: mdl-32493301

RESUMEN

BACKGROUND: Spirituality can give meaning to life, providing support and guidance in complex situations. Despite its importance in palliative care, the role of spirituality for family caregivers of patients under exclusive palliative care has not received enough attention in the literature. We aimed to address the correlation between spirituality and the emotional burden of family members of patients under exclusive palliative care. METHODS: This transversal study was conducted in a tertiary private teaching hospital, in São Paulo, Brazil. The study comprised family members of patients receiving palliative care exclusively. Only one caregiver who cared for the patient for at least 2 months was invited to participate. Family members answered the following questionnaires: WHOQOL spirituality, religiousness and personal beliefs (SRPB), Zarit Burden Interview (ZBI) and Self-Reporting Questionnaire (SRQ-20). They were excluded if patients were residing in a Long Stay Institution. Continuous variables were expressed by median and quartiles and analyzed with the Kruskal-Wallis test with Muller-Dunn post-test adjusted by Bonferroni or with the Mann-Whitney test for two groups. We used multivariable linear regression to identify independent predictors of caregiver burden. RESULTS: A total of 178 family members were interviewed in a median of 8 [4-13.25] days after patient admission. Almost 40% of families presented high score of burden. Faith and Meaning in Life were the facets that scored the highest, with a median of 4.50 [4.00-5.00] for both facets. There was an inverse correlation between Zarit score and all of the WHOQOL-SRPB facets, indicating that the lower the spirituality, the greater the emotional burden. Inner peace was the strongest protective factor associated with burden. CONCLUSIONS: Psycho-socio-spiritual interaction can improve the coping ability of family caregivers of patients under exclusive palliative care, addressing a critical gap in the provision of holistic palliative care services.


Asunto(s)
Cuidadores/psicología , Costo de Enfermedad , Cuidados Paliativos/psicología , Espiritualidad , Adaptación Psicológica , Adulto , Anciano , Brasil , Femenino , Humanos , Masculino , Persona de Mediana Edad , Cuidados Paliativos/métodos , Cuidados Paliativos/tendencias , Encuestas y Cuestionarios
6.
BMC Palliat Care ; 19(1): 31, 2020 Mar 12.
Artículo en Inglés | MEDLINE | ID: mdl-32164672

RESUMEN

BACKGROUND: Palliative care (PC) referral is recommended early in the course of advanced cancer. This study aims to describe, in an integrated onco-palliative care program (IOPC), patient's profile when first referred to this program, timing of this referral and its impact on the trajectory of care at end-of-life. METHODS: The IOPC combined the weekly onco-palliative meeting (OPM) dedicated to patients with incurable cancer, and/or the clinical evaluation by the PC team. Oncologists can refer to the multidisciplinary board of the OPM the patients for whom goals and organization of care need to be discussed. We analyzed all patients first referred at OPM in 2011-2013. We defined the index of precocity (IP), as the ratio of the time from first referral to death by the time from diagnosis of incurability to death, ranging from 0 (late referral) to 1 (early referral). RESULTS: Of the 416 patients included, 57% presented with lung, urothelial cancers, or sarcoma. At first referral to IOPC, 76% were receiving antitumoral treatment, 63% were outpatients, 56% had a performance status ≤2 and 46% had a serum albumin level > 35 g/l. The median [1st-3rd quartile] IP was 0.39 [0.16-0.72], ranging between 0.53 [0.20-0.79] (earliest referral, i.e. close to diagnosis of incurability, for lung cancer) to 0.16 [0.07-0.56] (latest referral, i.e. close to death relatively to length of metastatic disease, for prostate cancer). Among 367 decedents, 42 (13%) received antitumoral treatment within 14 days before death, and 157 (43%) died in PC units. CONCLUSIONS: The IOPC is an effective organization to enable early integration of PC and decrease aggressiveness of care near the end-of life. The IP is a useful tool to model the timing of referral to IOPC, while taking into account each cancer types and therapeutic advances.


Asunto(s)
Toma de Decisiones Conjunta , Servicio de Oncología en Hospital/normas , Derivación y Consulta/normas , Factores de Tiempo , Anciano , Prestación Integrada de Atención de Salud/métodos , Prestación Integrada de Atención de Salud/normas , Prestación Integrada de Atención de Salud/tendencias , Femenino , Humanos , Masculino , Persona de Mediana Edad , Neoplasias/clasificación , Neoplasias/terapia , Servicio de Oncología en Hospital/organización & administración , Servicio de Oncología en Hospital/tendencias , Cuidados Paliativos/métodos , Cuidados Paliativos/normas , Cuidados Paliativos/tendencias , Derivación y Consulta/tendencias , Estudios Retrospectivos , Cuidado Terminal/organización & administración , Cuidado Terminal/normas , Cuidado Terminal/tendencias
7.
BMC Palliat Care ; 19(1): 22, 2020 Feb 21.
Artículo en Inglés | MEDLINE | ID: mdl-32085765

RESUMEN

BACKGROUND: Decision-making in palliative care can be complex due to the uncertain prognosis and general fear surrounding decisions. Decision-making in palliative care may be influenced by spiritual and cultural beliefs or values. Determinants of the decision-making process are not completely understood, and spirituality is essential for coping with illness. Thus, this study aims to explore the influence of spirituality on the perception of healthcare decision-making in palliative care outpatients. METHODS: A cross-sectional study was developed. A battery of tests was administered to 95 palliative outpatients, namely: sociodemographic questionnaire (SQ), Decisional Conflict Scale (DCS), Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being scale (FACIT-Sp), and a semi-structured interview (SSI) to study one's perception of spirituality and autonomy in decision-making. Statistical analyses involved descriptive statistics for SQ and SSI. The Mann-Whitney test was used to compare scale scores between groups and correlations were used for all scales and subscales. The analysis of patients' definitions of spirituality was based on the interpretative phenomenological process. RESULTS: Spiritual wellbeing significantly correlated with greater levels of physical, emotional and functional wellbeing and a better quality of life. Greater spiritual wellbeing was associated with less decisional conflict, decreased uncertainty, a feeling of being more informed and supported and greater satisfaction with one's decision. Most patients successfully implemented their decision and identified themselves as capable of early decision-making. Patients who were able to implement their decision presented lower decisional conflict and higher levels of spiritual wellbeing and quality of life. Within the 16 themes identified, spirituality was mostly described through family. Patients who had received spiritual care displayed better scores of spiritual wellbeing, quality of life and exhibited less decisional conflict. Patients considered spirituality during illness important and believed that the need to receive spiritual support and specialised care could enable decision-making when taking into consideration ones' values and beliefs. CONCLUSION: The impact of spiritual wellbeing on decision-making is evident. Spirituality is a key component of overall wellbeing and it assumes multidimensional and unique functions. Individualised care that promotes engagement in decision-making and considers patients' spiritual needs is essential for promoting patient empowerment, autonomy and dignity.


Asunto(s)
Toma de Decisiones , Pacientes Ambulatorios/psicología , Cuidados Paliativos/psicología , Espiritualidad , Adaptación Psicológica , Adulto , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Pacientes Ambulatorios/estadística & datos numéricos , Cuidados Paliativos/métodos , Cuidados Paliativos/tendencias , Encuestas y Cuestionarios
8.
J Holist Nurs ; 38(3): 320-330, 2020 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-31955648

RESUMEN

Leading highly functional health care teams in all practice settings is sustained through the identification of a conceptual framework to guide education and practice. This article presents an interdisciplinary framework for palliative and hospice education and practice. The framework builds on theoretical caring to convey elements of relational, holistic and compassion; articulates interprofessional tenets for guiding values; and aligns with constructs for palliative and hospice best practices. The framework invites those at the bedside and in leadership to be intentional in attending to education and the necessary activities that address the day-to-day operations of palliative and hospice care, as well as, honoring all interdisciplinary collaboration that supports quality outcomes and inspires actions that transform.


Asunto(s)
Hospitales para Enfermos Terminales/métodos , Cuidados Paliativos/métodos , Grupo de Atención al Paciente , Hospitales para Enfermos Terminales/tendencias , Humanos , Relaciones Interprofesionales , Liderazgo , Cuidados Paliativos/tendencias
9.
BMC Palliat Care ; 19(1): 9, 2020 Jan 15.
Artículo en Inglés | MEDLINE | ID: mdl-31941486

RESUMEN

BACKGROUND: The EAPC White Paper addresses the issue of spiritual care education for all palliative care professionals. It is to guide health care professionals involved in teaching or training of palliative care and spiritual care; stakeholders, leaders and decision makers responsible for training and education; as well as national and local curricula development groups. METHODS: Early in 2018, preliminary draft paper was written by members of the European Association for Palliative Care (EAPC) spiritual care reference group inviting comment on the four core elements of spiritual care education as outlined by Gamondi et al. (2013) in their paper on palliative care core competencies. The preliminary draft paper was circulated to experts from the EAPC spiritual care reference group for feedback. At the second stage feedback was incorporated into a second draft paper and experts and representatives of national palliative care organizations were invited to provide feedback and suggest revisions. The final version incorporated the subsequent criticism and as a result, the Gamondi framework was explored and critically revised leading to updated suggestions for spiritual care education in palliative care. RESULTS: The EAPC white paper points out the importance of spiritual care as an integral part of palliative care and suggests incorporating it accordingly into educational activities and training models in palliative care. The revised spiritual care education competencies for all palliative care providers are accompanied by the best practice models and research evidence, at the same time being sensitive towards different development stages of the palliative care services across the European region. CONCLUSIONS: Better education can help the healthcare practitioner to avoid being distracted by their own fears, prejudices, and restraints and attend to the patient and his/her family. This EAPC white paper encourages and facilitates high quality, multi-disciplinary, academically and financially accessible spiritual care education to all palliative care staff.


Asunto(s)
Personal de Salud/educación , Cuidados Paliativos/métodos , Espiritualidad , Personal de Salud/tendencias , Humanos , Cuidados Paliativos/tendencias
10.
BMC Palliat Care ; 19(1): 12, 2020 Jan 24.
Artículo en Inglés | MEDLINE | ID: mdl-31980015

RESUMEN

BACKGROUND: Palliative care (PC) is increasingly recognized as essential for oncology care, and several academic societies strongly recommend integrating oncology and palliative care (IOP) in daily practice. Similarly, the Japanese government encouraged the implementation of IOP through the Cancer Control Act of 2007; however, its detailed progress remains unclear. Therefore, this cross-sectional nationwide survey was conducted to investigate the current status and hospital executive physicians' perception of IOP. METHODS: The questionnaire was developed based on IOP indicators with international consensus. It was distributed to executive physicians at all government-designated cancer hospitals (DCHs, n = 399) and matched non-DCHs (n = 478) in November 2017 and the results were compared. RESULTS: In total, 269 (67.4%) DCHs and 259 (54.2%) non-DCHs responded. The number of PC resources in DCHs was significantly higher than those in non-DCHs (e.g., full-time PC physicians and nurses, 52.8% vs. 14.0%, p < 0.001; availability of outpatient PC service ≥3 days per week, 47.6% vs. 20.7%, p < 0.001). Routine symptom screening was more frequently performed in DCHs than in non-DCHs (65.1% vs. 34.7%, p < 0.001). Automatic trigger for PC referral availability was limited (e.g., referral using time trigger, 14.9% vs. 15.3%, p = 0.700). Education and research opportunities were seriously limited in both types of hospitals. Most executive physicians regarded IOP as beneficial for their patients (95.9% vs. 94.7%, p = 0.163) and were willing to facilitate an early referral to PC services (54.7% vs. 60.0%, p < 0.569); however, the majority faced challenges to increase the number of full-time PC staff, and < 30% were planning to increase the staff members. CONCLUSIONS: This survey highlighted a considerable number of IOP indicators met, particularly in DCHs probably due to the government policy. Further efforts are needed to address the serious research/educational gaps.


Asunto(s)
Prestación Integrada de Atención de Salud/tendencias , Servicio de Oncología en Hospital/tendencias , Cuidados Paliativos/métodos , Estudios Transversales , Prestación Integrada de Atención de Salud/métodos , Prestación Integrada de Atención de Salud/normas , Humanos , Japón , Servicio de Oncología en Hospital/normas , Cuidados Paliativos/normas , Cuidados Paliativos/tendencias , Encuestas y Cuestionarios
12.
J Hosp Palliat Nurs ; 21(6): 510-517, 2019 12.
Artículo en Inglés | MEDLINE | ID: mdl-31513047

RESUMEN

Worldwide, health care is becoming more complex and multifaceted. Nurses, who spend more time at the bedside or out in the community with patients and their families than any other health care professional, need leadership-building skills in order to navigate these challenging times. New guidelines focus on interprofessional and holistic care, emphasizing the importance of building leadership skills and abilities. The World Health Organization and the European Association for Palliative Care have shown interest in influencing the development and implementation of palliative care services globally, given the increasingly aging population, the growing incidence of cancer, and the human immunodeficiency virus/AIDS epidemic. Despite challenges in developing leadership skills in nurses throughout Central and Eastern Europe (CEE), visionary nursing leaders throughout these countries have taken the opportunity to develop the Transformational Palliative Nursing Leadership Program, which has been designed to improve the leadership abilities of palliative care nurses throughout CEE countries. The purpose of the Transformational Palliative Nursing Leadership Program education is to equip palliative care nurses with the ability to promote, develop, and sustain this specialized care in CEE countries or any other part of the world.


Asunto(s)
Creación de Capacidad/métodos , Liderazgo , Cuidados Paliativos/métodos , Europa Oriental , Humanos , Rol de la Enfermera/psicología , Cuidados Paliativos/tendencias , Rumanía
13.
West J Nurs Res ; 41(10): 1347-1369, 2019 10.
Artículo en Inglés | MEDLINE | ID: mdl-31170893

RESUMEN

The term nonhospice palliative care was developed to describe and differentiate palliative care that is delivered prior to the end of life. The purpose of this article is to better define and clarify this concept using Rodgers's evolutionary concept analysis method. Attributes of nonhospice palliative care include (a) patient- and family-centered care, (b) holistic care, (c) interdisciplinary team, (d) early intervention, (e) quality of life-enhancing, (f) advanced care planning, (g) any age of the patient, (h) at any stage in illness, (i) care coordination, (j) concurrent curative treatment options, and (k) provided by primary and specialist providers. Nonhospice palliative care antecedents are serious illness, education, and access to services; consequences include benefits for the patient, family, provider, and health care system. Offering a clearly defined concept may allow for changes in health care to improve access to these services.


Asunto(s)
Formación de Concepto , Cuidados Paliativos/métodos , Humanos , Cuidados Paliativos/tendencias
14.
Neuroepidemiology ; 53(1-2): 84-92, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31238305

RESUMEN

BACKGROUND: Palliative care (PC) is an essential component of comprehensive care of patients with intracerebral hemorrhage (ICH). In the present study, we sought to characterize the variability of PC use after ICH among US hospitals. METHODS: ICH admissions from hospitals with at least 12 annual ICH cases were identified in the Nationwide Inpatient Sample between 2008 and 2011. We used multilevel logistic regression modeling to estimate between-hospital variance in PC use. We calculated the intraclass correlation coefficient (ICC), proportional variance change, and median OR after accounting for individual-level and hospital-level covariates. RESULTS: Among 26,791 ICH admissions, 12.5% received PC (95% CI 11.5-13.5). Among the 629 included hospitals, the median rate of PC use was 9.1 (interquartile range 1.5-19.3) per 100 ICH admissions, and 150 (23.9%) hospitals had no recorded PC use. The ICC of the random intercept (null) model was 0.274, suggesting that 27.4% of the overall variability in PC use was due to between-hospital variability. Adding hospital-level covariates to the model accounted for 25.8% of the between-hospital variance observed in the null model, with 74.2% of between-hospital variance remaining unexplained. The median OR of the fully adjusted model was 2.62 (95% CI 2.41-2.89), indicating that a patient moving from 1 hospital to another with a higher intrinsic propensity of PC use had a 2.63-fold median increase in the odds of receiving PC, independent of patient and hospital factors. CONCLUSIONS: Substantial variation in PC use after ICH exists among US hospitals. A substantial proportion of this between-hospital variability remains unexplained even after accounting for patient and hospital characteristics.


Asunto(s)
Hemorragia Cerebral/epidemiología , Hemorragia Cerebral/terapia , Hospitales/estadística & datos numéricos , Análisis Multinivel/métodos , Cuidados Paliativos/estadística & datos numéricos , Aceptación de la Atención de Salud/estadística & datos numéricos , Anciano , Anciano de 80 o más Años , Hemorragia Cerebral/diagnóstico , Bases de Datos Factuales/estadística & datos numéricos , Bases de Datos Factuales/tendencias , Femenino , Hospitalización/estadística & datos numéricos , Hospitalización/tendencias , Hospitales/tendencias , Humanos , Masculino , Persona de Mediana Edad , Análisis Multinivel/tendencias , Cuidados Paliativos/tendencias , Estados Unidos/epidemiología
15.
Epilepsy Behav ; 101(Pt B): 106288, 2019 12.
Artículo en Inglés | MEDLINE | ID: mdl-31133511

RESUMEN

Prolonged seizures and status epilepticus (SE) are relevant problems in palliative care. Timely recognition and effective early treatment with first- and second-line antiepileptic drugs (AEDs) may prevent unnecessary hospitalizations. Seizures should be recognized and addressed like any other symptom that causes discomfort or reduces quality of life. Use of alternative AED administration routes (buccal, intranasal, or subcutaneous) may offer possibilities for effective and individualized AED therapy, even during the last days of life. In hospice or home care, however, also intravenous treatment is possible via vascular access devices for long-term use. Aggressive unlimited intensive care unit (ICU) treatment of refractory SE in palliative patients is mostly not indicated. At worst, intensive care can be futile and possibly harmful: death in the ICU is often preceded by long and aggressive treatments. Metastatic cancer, old age, high severity of acute illness, overall frailty, poor functional status before hospital admission, and the presence of severe comorbidities all increase the probability of poor outcome of intensive care. When several of these factors are present, consideration of withholding intensive care may be in the patient's best interests. Anticipated outcomes influence patients' preferences. A majority of patients with a limited life expectancy because of an incurable disease would not want aggressive treatment, if the anticipated outcome was survival but with severe functional impairment. Doctors' perceptions about their patients' wishes are often incorrect, and therefore, advance care planning including seizure management should be done early in the course of the disease. This article is part of the Special Issue "Proceedings of the 7th London-Innsbruck Colloquium on Status Epilepticus and Acute Seizures".


Asunto(s)
Manejo de la Enfermedad , Cuidados Paliativos/métodos , Convulsiones/terapia , Estado Epiléptico/terapia , Anticonvulsivantes/uso terapéutico , Cuidados Críticos/métodos , Cuidados Críticos/tendencias , Hospitalización/tendencias , Humanos , Unidades de Cuidados Intensivos/tendencias , Cuidados Paliativos/tendencias , Calidad de Vida/psicología , Convulsiones/epidemiología , Convulsiones/psicología , Estado Epiléptico/epidemiología , Estado Epiléptico/psicología , Resultado del Tratamiento
16.
J Holist Nurs ; 37(1): 100-106, 2019 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-29669454

RESUMEN

The fields of palliative and holistic nursing both maintain a commitment to the care of the whole person, including a focus on spiritual care. Advanced serious illness may pose a plethora of challenges to patients seeking to create meaning and purpose in their lives. The purpose of this article is to introduce scholarly dialogue on the integration of entheogens, medicines that engender an experience of the sacred, into the spiritual and holistic care of patients experiencing advanced serious illness. A brief history of the global use of entheogens as well as a case study are provided. Clinical trials show impressive preliminary findings regarding the healing potential of these medicinal agents. While other professions, such as psychology, pharmacy, and medicine, are disseminating data related to patient outcomes secondary to entheogen administration, the nursing literature has not been involved in raising awareness of such advancements. Research is illustrating their effectiveness in achieving integrative experiences for patients confronting advanced serious illness and their ability to promote presence, introspection, decreased fear, and increased joy and acceptance. Evidence-based knowledge surrounding this potentially sensitive topic is necessary to invite understanding, promote scientific knowledge development, and create healing environments for patients, nurses, and researchers alike.


Asunto(s)
Medicina Tradicional/métodos , Cuidados Paliativos/métodos , Terapias Espirituales/métodos , Banisteriopsis , Canfanos , Medicamentos Herbarios Chinos/uso terapéutico , Femenino , Humanos , Mescalina/uso terapéutico , Persona de Mediana Edad , Neoplasias/complicaciones , Neoplasias/psicología , Cuidados Paliativos/tendencias , Panax notoginseng , Psilocibina/uso terapéutico , Salvia miltiorrhiza , Terapias Espirituales/normas , Tabernaemontana
17.
Int J Cardiol ; 279: 57-61, 2019 Mar 15.
Artículo en Inglés | MEDLINE | ID: mdl-30413300

RESUMEN

As a result of advances in pediatric care, the majority of patients born with congenital heart disease (CHD) survive into adulthood [1]. Effective transfer and transition programs assure that patients with CHD remain in follow-up and receive continuous holistic care. Unfortunately, adult patients with CHD carry residual lesions and sequelae putting them at risk for premature death related to re-interventions or complications; most commonly heart failure and arrhythmia [2]. The scientific adult CHD (ACHD) community has been working hard to identify variables related to worse outcomes, modifying those where possible in order to improve survival. Indeed, survival in adults with CHD has increased, but consequently, on top of CHD-related complications, patients are increasingly exposed to the standard cardiovascular risk factors. Therefore, a program for lifelong coaching on health behavior and life style management becomes indispensable. More emerging is that a substantial number of patients, in particular those with complex heart defects, will eventually end up in a stage with hardly any medical or interventional options left. Our healthcare provision has to be prepared to organize care for this specific group of patients who will die prematurely and require the timely development and establishment of advanced care planning. Advanced care planning should preferentially be set-up in expert CHD centers. The long-lasting relationship in ACHD care with healthcare providers offers an excellent basis with regards to prognosis, advanced care planning and end-of-life issues.


Asunto(s)
Continuidad de la Atención al Paciente , Cardiopatías Congénitas/terapia , Cuidados Paliativos/métodos , Cuidado Terminal/métodos , Adulto , Continuidad de la Atención al Paciente/tendencias , Cardiopatías Congénitas/diagnóstico , Cardiopatías Congénitas/epidemiología , Humanos , Cuidados Paliativos/tendencias , Cuidado Terminal/tendencias , Cuidado de Transición/tendencias
18.
J Hosp Palliat Nurs ; 20(4): 358-367, 2018 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-30063629

RESUMEN

Stroke survivors often experience life-altering functional and cognitive changes and burdensome symptoms. Palliative care could provide additional support to improve outcomes of stroke patients and their families. The purpose of this review was to describe how palliative care is conceptualized and implemented within stroke care.An integrative review of the literature published between 1990 and 2016 using the terms "palliative care," "stroke," or "acute stroke" was conducted. Of the 363 articles identified, 44 were screened, 21 met inclusion criteria, and 2 additional articles were identified through reference list review, resulting in a final sample of 23 articles.Palliative care was predominantly understood as end-of-life care and was most commonly offered in acute stages when patients were expected to die. Patients, families, and providers reported challenges surrounding decision making, uncertainty regarding transitions to palliative care, and needs related to communication and physical and psychosocial support. The quality of the research was moderate to good but was limited by retrospective designs, reliability of data collection procedures and tools, recall bias, and generalizability.This review highlights gaps in access to palliative care throughout the illness trajectory and underscores the need for study of models that integrate palliative care into stroke care.


Asunto(s)
Toma de Decisiones , Cuidados Paliativos/métodos , Accidente Cerebrovascular/enfermería , Humanos , Cuidados Paliativos/tendencias , Calidad de Vida , Accidente Cerebrovascular/psicología
19.
Chin Clin Oncol ; 7(3): 32, 2018 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-30056734

RESUMEN

Palliative care acknowledges the historical origin of the hospice developed in the UK during the 20th century. Palliative care initially focused primarily on end-of-life care provided at hospices, but then changed to at-home care, leading to the formation of a support system provided by the palliative care team. The palliative care team further coordinated with acute care hospitals and became involved in earlier stages of care as well, such as providing symptomatic relief in conjunction with cancer treatment. On this backdrop, the concept of palliative care itself also evolved over time. In recent years, attempts at early-stage palliative care from the initial stages of treatment are being studied with respect to cases with complications such as advanced cancer. Early-stage palliative care has been reported to improve patient quality of life (QOL), improve depression, reduce the burden on the family, and possibly improve survival prognosis for some advanced cancers. Currently, efforts to integrate palliative care into standard oncology care regimens by providing specialist palliative care and cancer treatment as a single unit are anticipated to enter more widespread practice. Such a care approach differs from conventional palliative care, which is started around the time when the end of conventional cancer treatment, and consists of applying specialist palliative care from the stage where cancer treatments are administered to address with multiple problems. Many breast cancer patients have severe problems such as esthetic outcome, sexuality and psycho-social effects associated with breast cancer itself and treatment. And it effects their QOL for a long time not only during therapy but also having done therapy or recurrence. Therefore, it may be effectiveness for patients to integrate of palliative care into standard oncology care in breast cancer, but the effect of it for only breast cancer patients has not been reported on yet. In this paper, after reviewing the concepts and historical evolution of palliative care, we describe the integration of palliative care into standard oncology care that has been making progress recently.


Asunto(s)
Oncología Integrativa/métodos , Oncología Integrativa/tendencias , Cuidados Paliativos/tendencias , Nivel de Atención/tendencias , Historia del Siglo XX , Historia del Siglo XXI , Humanos , Oncología Integrativa/historia , Oncología Médica/historia , Oncología Médica/métodos , Oncología Médica/tendencias , Cuidados Paliativos/historia , Cuidados Paliativos/métodos , Nivel de Atención/historia , Nivel de Atención/normas
20.
Rev. Pesqui. (Univ. Fed. Estado Rio J., Online) ; 10(2): 585-592, abr.-jun. 2018. tab
Artículo en Inglés, Portugués | LILACS, BDENF | ID: biblio-908477

RESUMEN

Objective: to identify key interventions and nursing actions to elderly patient in palliative care in the UCI. Methods: This is a descriptive study with qualitative approach of the kind integrative review, which analyzed 16 articles published between the years 2005-2014, in databases Scielo, Lilacs and BDENF. For the selection and analysis of the articles was used a validated instrument. Results: Most of the articles were published in 2013, in journals of general nursing, emerging three thematic categories: nursing in relieving pain and suffering in palliative care, communication as therapeutic treatment and multidisciplinary approach in UTI as a care strategy. Conclusion: it is proposed that further research be conducted in an attempt to deepen and publish strategies for a good senior care in intensive care and improve the service method in the workplace.


Objetivo: identificar as principais intervenções e ações da enfermagem ao paciente idoso sob cuidados paliativos em UTI. MÉTODOS: Trata-se de um estudo descritivo com abordagem qualitativa do tipo revisão integrativa, do qual foram analisados 16 artigos publicados entre os anos de 2005 a 2014, nas bases de dados Scielo, Lilacs e Bdenf. Para a seleção e análise dos artigos foi utilizado um instrumento validado. RESULTADOS: A maioria dos artigos foram publicados no ano de 2013, em periódicos de enfermagem geral, emergindo três categorias temáticas: a Enfermagem no alívio da dor e sofrimento em cuidados paliativos, a comunicação como tratamento terapêutico e abordagem multiprofissional em UTI como estratégia de cuidado. CONCLUSÃO: Propõe-se que pesquisas posteriores sejam realizadas, na tentativa de aprofundar e publicar estratégias para um bom atendimento ao idoso sob cuidados paliativos em terapia intensiva e melhorar o método de assistência nos ambientes de trabalho. DESCRITORES: Cuidado Paliativo; Idoso; Unidades de Terapia Intensiva.


Objetivo: identificar las principales intervenciones y acciones de La enfermería al paciente mayor sobre los cuidados paliativos en UCI. Métodos: Se trata del estudio descriptivo con abordaje cualitativa Del tipo revisión integrativa, de los cuales fueron analisados 16 artículos publicados entre los años de 2005 hasta 2014,en las bases de datos Scielo, Lilacs y Bdenf. Para la selección y análisis de los artículos fue utilizado un instrumento validado. Resultados: La mayoría de los artículos fueronpublicados en el año de 2013, en periódicos de enfermería general, surgiendo tres categorías temáticas: la Enfermería en el alívio del dolor y sufrimiento en cuidados paliativos, la comunicación como tratamiento terapéutico y abordaje multiprofesional en UCI como estratégia de cuidado. Conclusión: Se propone que investigaciones posteriores Sean realizadas, en la tentativa de aprofundar y publicar estratégias para um buen atendimiento al adulto mayor sobre cuidados paliativos en cuidado intensivo y mejorar el método de asistencia en los ambientes de trabajo.


Asunto(s)
Masculino , Femenino , Humanos , Anciano , Anciano de 80 o más Años , Unidades de Cuidados Intensivos , Cuidados Paliativos/métodos , Cuidados Paliativos/tendencias , Cuidados Paliativos , Brasil
SELECCIÓN DE REFERENCIAS
DETALLE DE LA BÚSQUEDA