RESUMO
Rapid expansion of outpatient palliative care has been fueled by the growing number of people living with cancer and other chronic illnesses whose symptoms are largely managed in the community rather than inpatient settings. Nurses and other palliative care professionals support seriously ill patients and their families, yet little research has specifically examined the needs of cancer family caregivers receiving services from outpatient palliative care teams. To address this gap in the knowledge base, researchers conducted a reflective thematic analysis of qualitative interviews conducted with 39 family caregivers, using Comfort Theory as a theoretical guide. Seven themes describing caregivers' comfort needs were identified, including the need to understand, need for self-efficacy, need to derive meaning, need for informal support, need for formal support, need for resources, and need for self-care. Findings have clear implications for palliative nursing, as they directly address cancer family caregivers' needs in 5 of the 8 domains of care delineated by the National Consensus Project for Quality Palliative Care's Clinical Practice Guidelines. Comprehensive, holistic nursing assessment is suggested to identify family caregivers' needs and plan for delivery of evidence-based interventions shown to decrease burden and improve quality of life.
Assuntos
Neoplasias , Cuidadores , Enfermagem de Cuidados Paliativos na Terminalidade da Vida , Humanos , Neoplasias/terapia , Pacientes Ambulatoriais , Cuidados Paliativos , Qualidade de VidaRESUMO
Collaboration between family caregivers and health care providers is necessary to ensure patient-centered care, especially for hospice patients. During hospice care, interdisciplinary team members meet biweekly to collaborate and develop holistic care plans that address the physical, spiritual, psychological, and social needs of patients and families. The purpose of this study was to explore team communication when video-conferencing is used to facilitate the family caregiver's participation in a hospice team meeting. Video-recorded team meetings with and without family caregiver participation were analyzed for communication patterns using the Roter Interaction Analysis System. Standard meetings that did not include caregivers were shorter in duration and task-focused, with little participation from social workers and chaplains. Meetings that included caregivers revealed an emphasis on biomedical education and relationship-building between participants, little psychosocial counseling, and increased socioemotional talk from social workers and chaplains. Implications for family participation in hospice team meetings are highlighted.
Assuntos
Cuidadores , Participação da Comunidade , Comunicação em Saúde/normas , Cuidados Paliativos na Terminalidade da Vida/normas , Equipe de Assistência ao Paciente/normas , Adulto , Idoso , Idoso de 80 Anos ou mais , Comportamento Cooperativo , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Comunicação por VideoconferênciaRESUMO
In health care teams, lack of collaboration or inability to collaborate undermines the goal of providing holistic and comprehensive geriatric care. This study examines relational communication control used by hospice interdisciplinary team members in their attempt to share information and contribute to decision making in team meetings. Eighty-one hospice team discussions were coded for message control types. Analysis of the data found that the nurse's role as primary reporter implicitly created a struggle for relational control among other team members within the meeting. This study concluded that a majority of interpersonal communication in the team meetings was aimed at gaining control of the information exchange. Future attention should be given to organizational policy aimed at shaping the structure of team meetings.
Assuntos
Processos Grupais , Hospitais para Doentes Terminais , Equipes de Administração Institucional , Relações InterpessoaisRESUMO
This article provides a framework labeled ACT that aims to successfully integrate family caregivers and patients into one unit of care, as dictated by the hospice philosophy. ACT (assessing caregivers for team interventions) is based on the ongoing assessment of the caregiver background context, primary, secondary, and intrapsychic stressors as well as outcomes of the caregiving experience and subsequently, the design and delivery of appropriate interventions to be delivered by the hospice interdisciplinary team. Interventions have to be tailored to a caregiver's individual needs; such a comprehensive needs assessment allows teams to customize interventions recognizing that most needs and challenges cannot be met by only one health care professional or only one discipline. The proposed model ensures a holistic approach to address the multifaceted challenges of the caregiving experience.
Assuntos
Cuidadores/organização & administração , Necessidades e Demandas de Serviços de Saúde/organização & administração , Assistência Domiciliar/organização & administração , Cuidados Paliativos na Terminalidade da Vida/organização & administração , Equipe de Assistência ao Paciente/organização & administração , Atitude Frente a Morte , Comportamento Cooperativo , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Modelos Teóricos , Neoplasias/terapia , Relações Profissional-Paciente , Qualidade da Assistência à Saúde/organização & administraçãoRESUMO
The purpose of this descriptive project is to use the Modified Index of Interdisciplinary Collaboration (MIIC) to assess the perceptions of collaboration of 95 staff from all disciplines on five different hospice teams. Specifically, the research questions for the project are: 1) Are there variances in perceptions of collaboration between hospice programs? 2) Are there variances in perceptions of collaboration between and within hospice programs by staff in different disciplines? Significant variances were found in the perceptions of interdisciplinary collaboration between hospice teams. There were no significant differences found between hospice providers of different disciplines. The study concludes that measurement of collaboration is important given the emphasis in hospice on collaboration, and that the MIIC is one tool that can be used for that purpose.