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1.
J Pediatr Oncol Nurs ; 37(1): 65-75, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-31540566

RESUMO

Children with cancer suffer from symptoms and burdensome treatments that often cause distress to children and their families. Mortality is one aspect of cancer diagnosis, while another is the quality of life and well-being during and after the treatment. By supporting children's communication, self-efficacy and coping ability in the care situation, children are given the possibilities for increased independence and participation and are allowed to develop an influence over their care. The aim of this study was to develop and evaluate the feasibility and acceptability of an adult-facilitated pretend play intervention for children with cancer. Five children with ongoing treatment for cancer were invited to a play intervention that consisted of six to eight sessions of structured pretend play aimed at increasing participation, independence, and well-being. A mixed method design was used to evaluate the feasibility and acceptability of the play intervention. Measures were collected before and after interventions, and in conjunction with every play session. Results suggest that the children enjoyed the play intervention. Findings indicate small improvements regarding self-efficacy in care situations and equal or increased quality of life for participants. A main finding was that no adverse events or increased worrying was reported in conjunction with play sessions. Therefore, the intervention is regarded as safe, feasible, and acceptable as reported by participants and their primary caregivers and a possible means of increasing participation and independence in children with a cancer diagnosis.


Assuntos
Crianças com Deficiência/psicologia , Neoplasias/psicologia , Neoplasias/terapia , Enfermagem Oncológica/métodos , Enfermagem Pediátrica/métodos , Ludoterapia/métodos , Qualidade de Vida/psicologia , Adolescente , Criança , Pré-Escolar , Estudos de Viabilidade , Feminino , Humanos , Lactente , Masculino
2.
Patient Educ Couns ; 74(2): 135-41, 2009 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-18845412

RESUMO

OBJECTIVE: The growing prevalence of multiple medicine use among elderly challenges health care. The aim was to conduct an exploratory study describing multiple medicine use from the elderly patient's perspective. METHODS: Twelve focus groups of 29 men and 30 women 65 years of age or older, using five or more medicines were analysed qualitatively. RESULTS: Initially the participants reported no problems with using multiple medicines; they felt fortunate that medicines existed and kept them alive. However, negative attitudes were also revealed, both similar to those presented in studies on lay experience of medicine-taking and some that appear more specific to users of multiple medicines. The foremost of these was that acceptance of medicines depends on not experiencing adverse effects and worrying whether multiple medicine use is 'good' for the body. Furthermore, participants' perception of their medicines depended on interaction with doctors, i.e. trusting 'good' doctors. CONCLUSION: The participants revealed co-existing accounts of both immediate gratitude and problems with using multiple medicines. Furthermore, the patient-doctor relationship coloured their attitudes towards their medicines. PRACTICE IMPLICATIONS: Importance of the patient-doctor relationship for treatment success is highlighted. Moreover, to be able to capture both accounts of the elderly in this study an appropriate consultation length is needed.


Assuntos
Idoso/psicologia , Atitude Frente a Saúde , Polimedicação , Idoso de 80 Anos ou mais , Comunicação , Interações Medicamentosas , Prescrições de Medicamentos , Quimioterapia Combinada , Feminino , Grupos Focais , Conhecimentos, Atitudes e Prática em Saúde , Necessidades e Demandas de Serviços de Saúde , Humanos , Masculino , Medicamentos sem Prescrição/efeitos adversos , Medicamentos sem Prescrição/uso terapêutico , Educação de Pacientes como Assunto , Relações Médico-Paciente , Fitoterapia/efeitos adversos , Fitoterapia/psicologia , Pesquisa Qualitativa , Suécia , Confiança
3.
Health Qual Life Outcomes ; 3: 1, 2005 Jan 05.
Artigo em Inglês | MEDLINE | ID: mdl-15634354

RESUMO

BACKGROUND: Little is understood about the conceptual relationship of depression and quality of life (QoL). Judgments concerning both, implicitly or explicitly, involve a time perspective. The aim of this study was to test de Leval's theoretical model linking depression and QoL with a time perspective. The model predicts that changes in cognitions about one's past, present and future QoL, will be associated with changes in depressive symptomatology. METHODS: Eighteen psychiatric in-patients with a clinically confirmed diagnosis of depression were assessed on commencing treatment and 12 weeks later. QoL was assessed by the Schedule for Evaluation of Individual Quality of Life (SEIQoL), depression by the Beck Depression Inventory (BDI-II) and hopelessness by the Beck Hopelessness Scale (BHS). Time perspective was incorporated by asking QoL questions about the past, present and future. RESULTS: Depression and hopelessness were associated with a poorer present QoL. Depression lowered present QoL but did not alter future QoL, as these remained consistently high whether participants were depressed or recovering. However, depressed individuals had a larger gap between their actual present QoL and future (aspired to) QoL. Changes in QoL were influenced by depression and hopelessness. Contrary to the model, perception of "past" QoL was not affected by depression or hopelessness. CONCLUSIONS: de Leval's model was largely confirmed. Thus depression and hopelessness influence a person's present and future QoL. The analysis of a temporal horizon was helpful in understanding the link between depression and QoL.


Assuntos
Transtorno Depressivo/psicologia , Modelos Psicológicos , Qualidade de Vida/psicologia , Autoimagem , Perfil de Impacto da Doença , Tempo , Adulto , Transtorno Depressivo/fisiopatologia , Transtorno Depressivo/terapia , Escolaridade , Emoções , Feminino , Hospitalização , Humanos , Masculino , Estado Civil , Pessoa de Meia-Idade , Ocupações , Estudos Prospectivos , Psicometria , Inquéritos e Questionários , Resultado do Tratamento
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