RESUMO
The importance of perceiving and considering patients as healthcare partners has been increasingly promoted. Healthcare systems around the world are now highly interested in patient engagement, participation, collaboration, and partnership. Healthcare professionals are advised that patients, as autonomous beings, should be active in and responsible for a portion of their own care. The study presented here focused on patients' perceptions of interprofessional collaboration. It was conducted using the classic grounded theory methodology. The theory of protecting personhood emerged as the core concept of hospitalized patients, cared for by interprofessional healthcare teams. This theory encapsulates the process hospitalized patients go through to find balance in their sense of self, oscillating between personhood and patienthood in the unfamiliar hospital environment. The process consists of four stages: the stage of introspection, during which hospitalized patients become aware of their self as a person and as a patient; the stage of preservation, when patients find a balance between the sense of personhood and patienthood; the stage of rupture, wherein patients experience an imbalance between their sense of personhood and patienthood; and the stage of reconciliation, in which personhood is restored. The theory of protecting personhood offers insights into a better understanding of hospitalized patients' experiences and strategies, revealing the importance of relationships, and the driving force of empowerment. This study is about patients' perspectives of interprofessional healthcare teams. A grounded theory process allowed the emergence of patients' concerns and expectations, leading to a substantive theory grounded in the patients' data.
Assuntos
Hospitais , Pessoalidade , Humanos , Teoria Fundamentada , Pessoal de Saúde , Equipe de Assistência ao PacienteRESUMO
Introduction: For patients with newly diagnosed hematological cancer spirituality constitutes an important aspect. Spirituality refers to a person's attachment to what inspires and grounds him/her as well as to associated beliefs, values, and existential experiences, be they religious or not. However, these aspects are not systematically and regularly determined and integrated into the care of patients with hematological cancer. Objective: To describe the perception of spirituality among patients with newly diagnosed hematological malignancies and their loved ones. Method: This qualitative descriptive study employed semi-structured individual interviews with patients and their loved ones and the completion of three questionnaires concerning spiritual well-being, quality of life and symptom burden. Results: A total of 10 patients and six family members were included in our study. Three types of spirituality emerged from the interviews: religious, connecting, and non-religious spirituality. These perceptions are part of the backdrop of this disease whose sudden onset requires the mobilization of resources such as family support, coping strategies, resilience, and hope. Discussion: Beyond the physical consequences, hematological malignancies induce profound changes in patients and their loved-ones regarding their values and beliefs. Encouraging moments of self-expression such as addressing notions of spirituality and supporting patients in their personal cultural practices are important supportive measures that nurses can adopt into their practice.
Introduction: La prise en compte de la spiritualité auprès des patients atteints de cancer est importante. Elle désigne l'attachement de la personne à ce qui l'inspire et donne du sens à son existence, les convictions, les valeurs, les expériences associées, qu'elles soient de nature religieuse ou non. Cependant, ces aspects ne sont pas dépistés et utilisés d'une manière systématique et régulière dans la prise en soins des patients atteints d'hémopathie maligne. Objectif: Décrire le point de vue des patients ayant un diagnostic de cancer hématologique récent et de leurs proches envers la spiritualité. Méthode: Cette étude qualitative descriptive comprenait la réalisation d'entretiens semi-directifs auprès du patient et de son proche, et le remplissage de trois questionnaires concernant le bien-être spirituel, la qualité de vie et la charge en symptômes. Résultats: Dix patients et six de leurs proches ont été inclus dans notre étude. Trois types de spiritualité sont identifiés : religieuse, de connexion et non religieuse. Ces perceptions s'inscrivent en toile de fond d'une pathologie dont la survenue soudaine nécessite la mobilisation de ressources telles que la famille, les stratégies de coping, une résilience rapide et la manifestation d'espoir. Discussion: Le cancer hématologique, au-delà de l'impact physique, engage des changements profonds chez les patients et leurs proches concernant leurs valeurs et croyances. Favoriser des moments d'expressions de soi, comme aborder les notions de spiritualité, soutenir les patients dans leurs pratiques culturelles personnelles semble être favorable à l'intégration du soin spirituel en pratique par les infirmiers.
Assuntos
Neoplasias Hematológicas , Neoplasias , Adaptação Psicológica , Feminino , Humanos , Masculino , Qualidade de Vida , EspiritualidadeRESUMO
PURPOSE: In this qualitative study, nurses from the United States of America (USA) and Switzerland were asked to recount their spiritual care experiences with cancer patients and their own responses to their patients' spiritual needs. Recent advances in cancer care have highlighted the importance of spirituality and spiritual care as part of quality palliative care from the time of a patient's diagnosis through end of life. Nurses who play an important role in supporting patients, describe their own discomfort when confronting their patients' spiritual needs. METHODS: A qualitative survey was used to collect narratives of nurses' experiences in responding to spiritual care needs (n = 62). The accounts were analyzed using thematic analysis. RESULTS: Nurses identified patients as having spiritual needs and their own experiences in addressing spirituality or religion. Patients sought meaning in their illness, which, they believed, led to disease acceptance. Nurses reported their patients' struggles with challenging disease situations and their own challenges in addressing patients' spirituality/religion. With experience, nurses developed ways of talking with patients about spirituality/religion, which profoundly impacted their own lives and resulted in personal growth. CONCLUSION: Patients' spirituality was identified by nurses who tried to address patients' spiritual needs drawing on existing resources. For nurses, supporting patients in their spirituality and finding meaning in the disease situation eventually led to disease acceptance.