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1.
Int J Gynaecol Obstet ; 167(1): 16-41, 2024 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-38654586

RESUMO

BACKGROUND: Heavy menstrual bleeding (HMB) and dysmenorrhea (DM) are common gynecological problems. OBJECTIVE: To systematically review the needs, quality of life (QOL), and effectiveness of self-management strategies among young women (12-25 years) with DM or HMB. SEARCH STRATEGY: Relevant terms were searched through PubMed, EBSCO, Google Scholar, ProQuest, and Ovid between 2010 and 2022. SELECTION CRITERIA: Qualitative and quantitative studies published in peer-reviewed journals, females aged 12-25, exploring DM or HMB, reporting supportive care needs, quality of life, self-treatment strategies, and/or treatment-seeking behavior. DATA COLLECTION AND ANALYSIS: Abstracts were reviewed for eligibility by two researchers. Included studies were extracted and assessed for quality independently by two authors, with discrepancies resolved through consensus or the involvement of a third researcher. Data extracted included study details, menstrual history, symptoms, self-care strategies, and quality of life. The Joanna Briggs Institute checklists were used for quality assessment. MAIN RESULTS: The search returned 285 190 studies, of which 55 were eligible for inclusion. Prevalence rates of HMB and DM were in the ranges 4%-63% and 42%-94%, respectively. Over 80% of young women with DM and HMB experienced physical and psychological problems, including pelvic pain, sleep issues, mood disturbance, diarrhea, and nausea. Academic performance and daily activities were severely affected. Most (>62%) named their mothers as their primary source of information, and friends as the secondary source (10%-65%). Few studies explored needs, but they could be inferred and fell under school-related and social needs. QOL was poorer in those who had DM than those who did not. Pain was the most common issue that drove young women to find treatment. More than 70% used medication to reduce pain. More than half chose home remedies (e.g., heat therapy, massages, herbal tea, hot drinks). No studies provided information about the efficacy and dosage of medication and herbal remedies. CONCLUSIONS: HMB and DM have a large impact on daily living, with large areas of unmet need. Limited access to information impairs the management of symptoms and consequent QOL.


Assuntos
Dismenorreia , Menorragia , Qualidade de Vida , Autogestão , Humanos , Feminino , Dismenorreia/terapia , Adolescente , Menorragia/terapia , Autogestão/métodos , Adulto Jovem , Criança , Adulto
2.
Altern Ther Health Med ; 30(7): 34-39, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38581314

RESUMO

Objective: To explore the effect of Internet health science popularization on the use of antihypertensive drugs in patients with hypertension in the community. Methods: Ninety-six community hypertensive patients treated in our hospital from May 2021 to May 2023 were selected as the subjects of the study. According to the different intervention schemes received by the patients, they were equally divided into a control group (n = 48) and a study group (n = 48). The control group was given routine intervention, while the study group was given Internet health science popularization intervention based on the control group. The blood pressure [diastolic blood pressure (DBP), systolic blood pressure (SBP)], medication compliance, self-management behavior, disease uncertainty, mastery of hypertension-related knowledge, and quality of life were compared between the two groups. Results: After the intervention, the levels of DBP and SBP and the score of disease uncertainty in the study group were lower than those in the control group (P < .05). After the intervention, the scores of medication compliance, self-management behavior, and quality of life in the study group were higher than those in the control group (P < .05). The mastery of disease knowledge in the study group was higher than that in the control group (P < .05). Conclusion: The application of Internet health science popularization to community hypertension patients can improve their medication compliance, effectively control the level of blood pressure, improve patients' mastery of hypertension-related knowledge, enhance their self-management ability, reduce disease uncertainty, and improve patients' quality of life.


Assuntos
Hipertensão , Internet , Qualidade de Vida , Humanos , Hipertensão/terapia , Hipertensão/tratamento farmacológico , Masculino , Feminino , Pessoa de Meia-Idade , Adesão à Medicação/estatística & dados numéricos , Idoso , Anti-Hipertensivos/uso terapêutico , Adulto , Pressão Sanguínea , Conhecimentos, Atitudes e Prática em Saúde , Autogestão/métodos
3.
Altern Ther Health Med ; 30(9): 406-414, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-38401062

RESUMO

Objective: The objective of this study is to propose and assess the clinical application value of a nursing intervention method based on the Integrated Theory of Health Behavior Change, aiming to address the increasing incidence and mortality of chronic obstructive pulmonary disease (COPD) and enhance the focus on its treatment and nursing in clinical practice. Methods: The study included 120 COPD patients admitted to the respiratory department, using random number table method randomly assigned to a control group (Ctrl group, receiving routine nursing management) and an observation group (Obs group, receiving Integrated Theory of Health Behavior Change (ITHBC)-based nursing management), each comprising 60 cases. Self-management, recovery of lung function and clinical symptoms, and quality of life (QOL) of patients were compared in two groups. Results: In summary, the study demonstrated significant improvements in specific parameters among COPD patients receiving Integrated Theory of Health Behavior Change (ITHBC)-based nursing management compared to routine nursing management. After 2 months of intervention, the COPD self-management scale scores indicated noteworthy enhancements in symptom management (Obs: 29.12±4.01 vs. Ctrl: 26.53±3.66), daily living management (Obs: 53.77±4.78 vs. Ctrl: 45.21±4.02), emotional management (Obs: 46.56±5.83 vs. Ctrl: 34.10±4.83), information management (Obs: 29.83±5.33 vs. Ctrl: 25.37±5.83), self-efficacy (Obs: 34.32±4.78 vs. Ctrl: 28.38±3.33), and overall self-management (Obs: 184.18±24.03 vs. Ctrl: 170.88±22.66), all with statistical significance (P < .05). The 6-minute walk test (6MWT) demonstrated improved exercise endurance for the observation group after 1 and 4 months of intervention, with scores (380.03±52.47) significantly higher than the control group (351.73±51.26) at T3 (P < .05). Dyspnea scores were notably lower in the observation group, indicating reduced respiratory severity, and the comprehensive evaluation using the CAT scale showed significantly lower symptom scores in the observation group (Obs: 15.57±4.21 vs. Ctrl: 19.25±4.63) (P < .05). Finally, the WHOQOL-BREF scores reflected a higher quality of life for patients receiving ITHBC-based nursing management (Obs: P < .05), highlighting the substantial impact of ITHBC-based interventions in significantly enhancing self-management, lung function, exercise endurance, dyspnea, symptom recovery, and overall quality of life in COPD patients compared to routine nursing management. Conclusion: In conclusion, the study underscores the effectiveness of Integrated Theory of Health Behavior Change (ITHBC)-based nursing management in significantly improving the self-management capabilities of COPD patients, leading to enhanced prognosis. The findings suggest that ITHBC holds promise as a valuable approach in nursing management for COPD and potentially extends its applicability to other chronic conditions. This study not only contributes to the understanding of effective interventions for COPD but also opens avenues for broader applications of ITHBC-based nursing management in the context of various chronic health conditions.


Assuntos
Doença Pulmonar Obstrutiva Crônica , Qualidade de Vida , Humanos , Doença Pulmonar Obstrutiva Crônica/terapia , Doença Pulmonar Obstrutiva Crônica/enfermagem , Doença Pulmonar Obstrutiva Crônica/fisiopatologia , Masculino , Feminino , Pessoa de Meia-Idade , Idoso , Comportamentos Relacionados com a Saúde , Autogestão/métodos , Autocuidado/métodos
4.
BMJ Open ; 12(7): e056692, 2022 07 15.
Artigo em Inglês | MEDLINE | ID: mdl-35840301

RESUMO

OBJECTIVE: Neurofibromatosis type 1 (NF1) is a genetic disorder in which chronic pain commonly occurs. The study sought to understand the needs of individuals with NF1 and pain management experts when adapting a pain self-management mobile health application (app) for individuals with NF1. DESIGN: We conducted a series of online, audio-recorded focus groups that were then thematically analysed. SETTING: Online focus groups with adults currently residing in the USA. PARTICIPANTS: Two types of participants were included: individuals with NF1 (n=32 across six focus groups) and pain management experts (n=10 across three focus groups). RESULTS: Six themes across two levels were identified. The individual level included lifestyle, reasons for using the mobile app and concerns regarding its use. The app level included desired content, desired features and format considerations. Findings included recommendations to grant free access to the app and include a community support feature for individuals to relate and validate one another's experience with pain from NF1. In addition, participants noted the importance of providing clear instructions on navigating the app, the use of an upbeat, hopeful tone and appropriate visuals. CONCLUSIONS: Both participant groups endorsed the use of iCanCope (iCC) as an NF1 pain self-management mobile app. Differences between groups were noted, however. The NF1 group appeared interested in detailed and nuanced pain tracking capabilities; the expert group prioritised tracking information such as mood, nutrition and activity to identify potential associations with pain. In tailoring the existing iCC app for individuals with NF1, attention should be paid to creating a community support group feature and to tailoring content, features and format to potential users' specific needs.


Assuntos
Dor Crônica , Aplicativos Móveis , Neurofibromatose 1 , Autogestão , Adulto , Dor Crônica/etiologia , Dor Crônica/terapia , Grupos Focais , Humanos , Neurofibromatose 1/complicações , Neurofibromatose 1/terapia , Manejo da Dor , Autogestão/métodos
6.
Workplace Health Saf ; 69(4): 161-167, 2021 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-33525999

RESUMO

BACKGROUND: Stress affects U.S. healthcare workers (HCWs) and costs US$191 billion annually. About 30% to 50% of healthcare providers report burnout. Based on an assessment of a U.S. rural hospital system, 94% of workers experienced negative health consequences. We conducted a quality improvement (QI) project for the purpose of implementing a stress management program for HCWs in a hospital system. METHODS: A total of 500 HCWs were informed of the program through hospital communication channels. Using the Plan-Do-Study-Act (PDSA) process, we screened workers presenting to the occupational health clinic for care. Project team members recruited other workers for stress screening throughout the organization. Interventions included contacting workers with elevated scores on the Perceived Stress Survey (PSS; N = 213). The nurse practitioner scheduled them for a shared-decision-making (SDM) appointment (N = 33) where workers were informed of and encouraged to participate in stress reduction activities. Surveys were used to assess effectiveness of SDM appointments and the stress reduction activities. After each 2-week PDSA cycle, interventions were adjusted. FINDINGS: Of the 42% (N = 213) of workers who were screened for stress, 24% (n = 52) had elevated scores. Fifty percent (n = 26) completed an SDM appointment. Participants reported an 86% assurance level that they would use personalized stress management plans. Participants utilizing the interventions (n = 271) reported 25% to 72% reduced stress levels. CONCLUSIONS/APPLICATION TO PRACTICE: This successful project, in a rural setting, included workers across job classifications. Team engagement, PSS screening, SDM opportunities, and stress management activities were project strengths. This low-cost project can be replicated.


Assuntos
Tomada de Decisão Compartilhada , Pessoal de Saúde/psicologia , Estresse Ocupacional/prevenção & controle , Hospitais Rurais , Humanos , Enfermagem do Trabalho/métodos , Recursos Humanos em Hospital/psicologia , Terapia de Relaxamento , Autogestão/métodos , Inquéritos e Questionários , Yoga
7.
Support Care Cancer ; 29(8): 4819-4825, 2021 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-33538895

RESUMO

OBJECTIVE: We examined the qualitative impact of an online integrative oncology (IO) treatment program, designed in response to the restrictions created by the current COVID-19 pandemic. METHODS: Patients undergoing chemotherapy were seen by an integrative physician (IP), together co-designing an IO treatment program of ≥ 6 weekly treatments to alleviate symptoms and improve quality of life (QoL). IO practitioners guided patients and their caregivers online in self-treatment with manual/touch, movement, and/or mind-body modalities. Narratives of both patients and IO practitioners were analyzed for systematic coding, identifying barriers and advantages of the online treatment program. RESULTS: Narratives obtained from 30 patients and eight IO-trained practitioners were examined. The patients had undergone 169 online IO sessions with a total of 327 IO interventions during the 3-month study period. Patient narratives included reflections on both non-specific effects (e.g., less of a "sense of isolation") and specific QoL-related outcomes with the online intervention. IO practitioner narratives focused on barriers to providing manual-movement and mind-body modalities, suggesting practical recommendations on how to address specific QoL-related outcomes using the online IO "toolbox." CONCLUSIONS: Effective online IO practitioner-guided treatments are feasible and may induce both specific and non-specific QoL-related effects. Future research needs to explore online IO interventions for additional situations in which access to IO care is limited.


Assuntos
COVID-19 , Oncologia Integrativa , Intervenção Baseada em Internet , Neoplasias , Qualidade de Vida , COVID-19/epidemiologia , COVID-19/prevenção & controle , Terapias Complementares/métodos , Continuidade da Assistência ao Paciente , Feminino , Humanos , Oncologia Integrativa/métodos , Oncologia Integrativa/tendências , Masculino , Pessoa de Meia-Idade , Narração , Neoplasias/epidemiologia , Neoplasias/psicologia , Neoplasias/terapia , Gravidez , SARS-CoV-2 , Autogestão/métodos , Autogestão/psicologia
8.
J Complement Integr Med ; 17(3)2020 Sep 23.
Artigo em Inglês | MEDLINE | ID: mdl-33001851

RESUMO

Background This study assesses the effectiveness of nurse-led intervention on self-management, self-efficacy, and blood glucose level among patients with Type 2 diabetes mellitus (DM) attending diabetic Out patient department (OPD) in Sri Ramachandra Hospital, Chennai. Methods In this study, the experimental group received nurse-led intervention on video-assisted teaching regarding nature of the disease condition including, diet, medication, hand and leg exercises, home care management, for 30 mins. Then a demonstration of hand and leg exercise was done followed by return demonstration done by the participants. The participants in the control group did not receive nurse-led intervention; they received only routine care. On the 15th day, when the patients came for the first follow-up, posttest was conducted for both the experimental and control groups. Results There was a statistically considerable difference noted in self-management (t=29.639; p<0.001), self-efficacy (t=28.293; p<0.001), FBS (t=2.415; p<0.05), and PPBS (t=2.102; p<0.05) in the posttest among patients with Type 2 DM in the experimental group. Conclusions The study concluded that the nurse-led intervention through video-assisted teaching is an effective method to recover self-management and self-efficacy as well as reduce the fasting blood sugar and postprandial blood sugar among patients with Type 2 DM.


Assuntos
Glicemia/análise , Diabetes Mellitus Tipo 2/enfermagem , Educação de Pacientes como Assunto/métodos , Autoeficácia , Autogestão/psicologia , Adulto , Recursos Audiovisuais , Diabetes Mellitus Tipo 2/sangue , Diabetes Mellitus Tipo 2/psicologia , Jejum/sangue , Feminino , Humanos , Índia , Masculino , Pessoa de Meia-Idade , Período Pós-Prandial , Autogestão/métodos , Resultado do Tratamento
9.
Med Care ; 58 Suppl 2 9S: S88-S93, 2020 09.
Artigo em Inglês | MEDLINE | ID: mdl-32826777

RESUMO

OBJECTIVES: Nonpharmacological options to treat pain are in demand, in part to address the opioid crisis. One such option is acupuncture. Battlefield acupuncture (BFA) is an auricular needling protocol currently used to treat pain in the Veterans Health Administration. We aimed to identify the advantages and disadvantages of BFA from providers' perspectives. METHODS: We rely on an inductive qualitative approach to explore provider perceptions through thematic analysis of semistructured interviews with 43 BFA providers across the nation. RESULTS: We identified the following themes. Disadvantages included: (1) clinical guidelines are insufficient; (2) patients often request multiple BFA visits from providers; (3) BFA can be uncomfortable; (4) BFA may not be an effective treatment option unless it can be provided "on demand"; and (5) BFA can promote euphoria, which can have deleterious consequences for patient self-care. Perceived advantages included: (1) BFA can simultaneously effectively control pain while reducing opioid use; (2) BFA may alleviate the pain that has been unsuccessfully treated by conventional methods; (3) BFA gives providers a treatment option to offer patients with substance use disorder; (4) BFA helps build a trusting patient-provider relationship; (5) BFA can create the opportunity for hope. CONCLUSIONS: Providers perceive BFA to have many benefits, both clinical and relational, including ways in which it may have utility in addressing the current opioid crisis. BFA is easy to deliver and has potential clinical and relational utility. Efforts to better understand effectiveness are warranted.


Assuntos
Acupuntura Auricular/métodos , Atitude do Pessoal de Saúde , Manejo da Dor/métodos , Acupuntura Auricular/efeitos adversos , Analgésicos Opioides/administração & dosagem , Protocolos Clínicos , Euforia/fisiologia , Feminino , Humanos , Masculino , Guias de Prática Clínica como Assunto , Pesquisa Qualitativa , Qualidade de Vida , Autogestão/métodos , Autogestão/psicologia , Transtornos Relacionados ao Uso de Substâncias/prevenção & controle , Fatores de Tempo , Saúde dos Veteranos
10.
BMC Musculoskelet Disord ; 21(1): 404, 2020 Jun 26.
Artigo em Inglês | MEDLINE | ID: mdl-32590959

RESUMO

BACKGROUND: Chronic musculoskeletal pain is one of the main causes of years lived with disability and generates the highest cost of health care among chronic pain conditions. Internet-based treatments have been shown to be an alternative for the treatment of musculoskeletal conditions, in addition to reducing barriers such as travel, high demands on the public health system, lack of time, lack of insurance coverage for private care, and high costs for long-term treatment. The aim of this clinical trial is to develop and test the effectiveness and cost-effectiveness of, an internet-based self-management program based on pain education and exercise for people with chronic musculoskeletal pain. METHODS: This is a prospectively registered, assessor-blinded, two-arm randomised controlled trial with economic evaluation comparing the Internet-based pain education and exercise intervention with a control group that will receive an online booklet. One hundred and sixty patients will be recruited from Sao Paulo, Brazil. Follow-ups will be conducted in post-treatment, 6 and 12 months after randomisation. The conduct of the study, as well as the evaluations and follow-ups will be carried out entirely remotely, through online platforms and telephone calls. The primary outcome will be pain intensity at post-treatment (8 weeks) measured using the 11-item Pain Numerical Rating Scale. Secondary outcomes will be biopsychosocial factors presents in the chronic musculoskeletal pain condition. Costs due to chronic musculoskeletal pain will be also measured, and cost-effectiveness analysis from a societal perspective will performed. DISCUSSION: Our hypothesis is that internet-based pain education and exercise will be better than an online booklet in reducing pain and improving biopsychosocial outcomes in patients with chronic musculoskeletal pain. In addition, we believe that there will be good acceptance of patients for the internet-based intervention and that internet-based intervention will be more cost effective than the online booklet. TRIAL REGISTRATION: The study was prospectively registered at ClinicalTrials.gov ( NCT04274439 , registered 18 February 2020).


Assuntos
Dor Crônica/terapia , Internet , Dor Musculoesquelética/terapia , Folhetos , Brasil , Dor Crônica/economia , Análise Custo-Benefício , Terapia por Exercício/métodos , Seguimentos , Humanos , Dor Musculoesquelética/economia , Medição da Dor , Estudos Prospectivos , Qualidade de Vida , Ensaios Clínicos Controlados Aleatórios como Assunto , Autogestão/métodos , Resultado do Tratamento
11.
J Med Internet Res ; 22(5): e16157, 2020 05 21.
Artigo em Inglês | MEDLINE | ID: mdl-32436852

RESUMO

BACKGROUND: Electronic health (eHealth) is a rapidly evolving field informed by multiple scientific disciplines. Because of this, the use of different terms and concepts to explain the same phenomena and lack of standardization in reporting interventions often leaves a gap that hinders knowledge accumulation. Interventions focused on self-management support of cardiovascular diseases through the use of remote monitoring technologies are a cross-disciplinary area potentially affected by this gap. A review of the underlying frameworks, models, and theories that have informed projects at this crossroad could advance future research and development efforts. OBJECTIVE: This research aimed to identify and compare underlying approaches that have informed interventions focused on self-management support of cardiovascular diseases through the use of remote monitoring technologies. The objective was to achieve an understanding of the distinct approaches by highlighting common or conflicting principles, guidelines, and methods. METHODS: The metaethnography approach was used to review and synthesize researchers' reports on how they applied frameworks, models, and theories in their projects. Literature was systematically searched in 7 databases: Scopus, Web of Science, EMBASE, CINAHL, PsycINFO, Association for Computing Machinery Digital Library, and Cochrane Library. Included studies were thoroughly read and coded to extract data for the synthesis. Studies were mainly related by the key ingredients of the underlying approaches they applied. The key ingredients were finally translated across studies and synthesized into thematic clusters. RESULTS: Of 1224 initial results, 17 articles were included. The articles described research and development of 10 different projects. Frameworks, models, and theories (n=43) applied by the projects were identified. Key ingredients (n=293) of the included articles were mapped to the following themes of eHealth development: (1) it is a participatory process; (2) it creates new infrastructures for improving health care, health, and well-being; (3) it is intertwined with implementation; (4) it integrates theory, evidence, and participatory approaches for persuasive design; (5) it requires continuous evaluation cycles; (6) it targets behavior change; (7) it targets technology adoption; and (8) it targets health-related outcomes. CONCLUSIONS: The findings of this review support and exemplify the numerous possibilities in the use of frameworks, models, and theories to guide research and development of eHealth. Participatory, user-centered design, and integration with empirical evidence and theoretical modeling were widely identified principles in the literature. On the contrary, less attention has been given to the integration of implementation in the development process and supporting novel eHealth-based health care infrastructures. To better integrate theory and evidence, holistic approaches can combine patient-centered studies with consolidated knowledge from expert-based approaches. TRIAL REGISTRATION: PROSPERO CRD42018104397; https://tinyurl.com/y8ajyajt. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-10.2196/13334.


Assuntos
Doenças Cardiovasculares/terapia , Consulta Remota/métodos , Autogestão/métodos , Telemedicina/métodos , Humanos
12.
Appl Psychophysiol Biofeedback ; 45(3): 175-181, 2020 09.
Artigo em Inglês | MEDLINE | ID: mdl-32342249

RESUMO

Panic disorder (PD) is a debilitating condition that drives medical spending at least twice as high as medically matched controls. Excessive utilization of healthcare resources comes from emergency department (ED), medications, diagnostic testing, and physician visits. Freespira is an FDA-cleared digital therapeutic that treats PD and panic attacks (PA) by correcting underlying abnormal respiratory physiology. Efficacy of Freespira has been established in prior studies. This paper reports on a quality improvement program that investigated whether treating PD patients with Freespira would reduce medical costs and improve outcomes over 12-months. Panic symptoms were assessed using the Panic Disorder Severity Scale (PDSS). Pre-and post-treatment insurance claims determined costs. At baseline, mean Clinician Global Impression (CGI-S) was 4.4 (moderately/markedly ill), mean PDSS was 14.4 and mean PA frequency/week was 2 (range 0-5). Immediately post-treatment (week 5) mean CGI-S, PDSS and weekly PA frequency declined to 2.8 (borderline/mildly ill, 4.9 (remission) and 0.2 (range 0-2) respectively, p < 0.001. 82% reported PDSS decrease of ≥ 40% (clinically significant), 86% were PA-free. One-year post treatment mean CGI-S, PDSS and PA remained low at 2.1, 4.4, and 0.3 (range 0-1) respectively. 91% had PDSS decrease of ≥ 40%, 73% were PA-free. The majority of patients were panic attack free and/or reduced their symptoms and avoidance behaviors 1-year post Freespira treatment. Mean overall medical costs were reduced by 35% from $548 to $358 PMPM (per member per month) or an annual reduction of $2280. at 12 months post-treatment. There was a 65% reduction in ED costs from $87 to $30 PMPM. Median pharmacy costs were reduced by 68% from $73 to $23 PMPM.


Assuntos
Biorretroalimentação Psicológica , Dióxido de Carbono/metabolismo , Custos de Cuidados de Saúde , Monitorização Ambulatorial , Avaliação de Resultados em Cuidados de Saúde , Transtorno de Pânico/terapia , Taxa Respiratória/fisiologia , Autogestão , Adulto , Biorretroalimentação Psicológica/instrumentação , Biorretroalimentação Psicológica/métodos , Feminino , Humanos , Masculino , Monitorização Ambulatorial/economia , Monitorização Ambulatorial/instrumentação , Monitorização Ambulatorial/métodos , Desenvolvimento de Programas , Melhoria de Qualidade , Autogestão/economia , Autogestão/métodos , Índice de Gravidade de Doença
13.
BMJ Open ; 10(4): e033520, 2020 04 12.
Artigo em Inglês | MEDLINE | ID: mdl-32284387

RESUMO

INTRODUCTION: Chronic headaches are poorly diagnosed and managed and can be exacerbated by medication overuse. There is insufficient evidence on the non-pharmacological approaches to helping people living with chronic headaches. METHODS AND ANALYSIS: Chronic Headache Education and Self-management Study is a pragmatic randomised controlled trial to test the effectiveness and cost-effectiveness of a self-management education support programme on top of usual care for patients with chronic headaches against a control of usual care and relaxation. The intervention is a 2-day group course based on education, personal reflection and a cognitive behavioural approach, plus a nurse-led one-to-one consultation and follow-up over 8 weeks. We aim to recruit 689 participants (356 to the intervention arm and 333 to the control) from primary care and self-referral in London and the Midlands. The trial is powered to show a difference of 2.0 points on the Headache Impact Test, a patient-reported outcome measure at 12 months post randomisation. Secondary outcomes include health related quality of life, self-efficacy, social activation and engagement, anxiety and depression and healthcare utilisation. Outcomes are being measured at 4, 8 and 12 months. Cost-effectiveness will be expressed in terms of incremental cost per quality-adjusted life year gained. ETHICS AND DISSEMINATION: This trial will provide data on effectiveness and cost-effectiveness of a self-management support programme for chronic headaches. The results will inform commissioning of services and clinical practice. North West - Greater Manchester East Research Ethics Committee have approved the trial. The current protocol version is 3.6 date 7 March 2019. TRIAL REGISTRATION NUMBER: ISRCTN79708100.


Assuntos
Transtornos da Cefaleia/terapia , Desenvolvimento de Programas , Terapia de Relaxamento , Autogestão/métodos , Ansiedade , Doença Crônica , Terapia Cognitivo-Comportamental , Depressão , Seguimentos , Humanos , Aceitação pelo Paciente de Cuidados de Saúde , Educação de Pacientes como Assunto , Medidas de Resultados Relatados pelo Paciente , Seleção de Pacientes , Padrões de Prática em Enfermagem , Qualidade de Vida , Tamanho da Amostra , Autoeficácia , Participação Social
14.
Holist Nurs Pract ; 34(3): 138-149, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32282489

RESUMO

One or 2 decades ago, oncologists focused on only cancer treatments or acute care related to cancer. Since cancer care is considered as long-term cares, cancer patients require self-management (SM) ability or skill to manage their symptoms and daily cares. This mixed-method review is to evaluate quantitative and qualitative studies, which were conducted using non-traditional SM interventions for cancer pain based. This review also explores the process of SM in the chronic care model (CCM). PubMed, CINAHL, Scopus, and Wiley were used from 2011 to 2018. A total of 16 quantitative and 2 qualitative studies were included for this review. All interventions are divided into 3 types, which are educational and/or counseling programs, complementary and alternative medicine (CAM) therapy, and exercise. Ten of the included 16 studies were statistically significant on pain management: 3 CAM studies (100%), 1 exercise study (100%), and 6 of the 12 educational and/or counseling studies (50%). The CAM and exercise were statistically effective in improving cancer pain in the review. However, uncertainty remains regarding the strength of the evidence, due to the small number of studies included and lack of consistent methodologies. The application (5A) of SM support may help cancer patients to manage their pain.


Assuntos
Neoplasias/terapia , Manejo da Dor/métodos , Autogestão/métodos , Humanos , Neoplasias/psicologia , Autogestão/tendências
15.
BMJ Open ; 10(3): e035700, 2020 03 09.
Artigo em Inglês | MEDLINE | ID: mdl-32156769

RESUMO

OBJECTIVE: To understand the facilitators and barriers to the self-management of chronic obstructive pulmonary disease (COPD) in rural Nepal. SETTINGS: Community and primary care centres in rural Nepal. PARTICIPANTS: A total of 14 participants (10 people with COPD and 4 health care providers) were interviewed. PRIMARY AND SECONDARY OUTCOME MEASURES: People with COPD and healthcare provider's experience of COPD self-management in rural Nepal. RESULTS: Facilitators and barriers affecting COPD self-management in Nepal operated at the patient-family, community and service provider levels. People with COPD were found to have a limited understanding of COPD and medications. Some participants reported receiving inadequate family support and described poor emotional health. At the community level, widespread use of complementary and alternative treatment was found to be driven by social networks and was used instead of western medicine. There were limited quality controls in place to monitor the safe use of alternative treatment. While a number of service level factors were identified by all participants, the pertinent concerns were the levels of trust and respect between doctors and their patients. Service level factors included patients' demands for doctor time and attention, limited confidence of people with COPD in communicating confidently and openly with their doctor, limited skills and expertise of the doctors in promoting behavioural change, frustration with doctors prescribing too many medicines and the length of time to diagnose the disease. These service level factors were underpinned by resource constraints operating in rural areas. These included inadequate infrastructure and resources, limited skills of primary level providers and lack of educational materials for COPD. CONCLUSIONS: The study findings suggest the need for a more integrated model of care with multiple strategies targeting all three levels in order to improve the self-management practices among people with COPD.


Assuntos
Pessoal de Saúde/psicologia , Atenção Primária à Saúde/estatística & dados numéricos , Doença Pulmonar Obstrutiva Crônica/terapia , Autogestão/métodos , Idoso , Idoso de 80 Anos ou mais , Competência Clínica/estatística & dados numéricos , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Nepal/epidemiologia , Atenção Primária à Saúde/tendências , Doença Pulmonar Obstrutiva Crônica/epidemiologia , Doença Pulmonar Obstrutiva Crônica/psicologia , Pesquisa Qualitativa , Qualidade de Vida , Alocação de Recursos/provisão & distribuição , Alocação de Recursos/tendências , População Rural , Autogestão/estatística & dados numéricos , Rede Social
16.
BJOG ; 127(7): 886-896, 2020 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-32034849

RESUMO

OBJECTIVES: To test whether providing psychological self-help materials would significantly lower the incidence of post-traumatic stress disorder (PTSD) at 6-12 weeks postnatally. DESIGN: Open-label randomised controlled trial, with blinded outcome assessment. SETTING: Community midwifery services in two National Health Service (NHS) trusts in the North West. SAMPLE: A cohort of 2419 women receiving normal NHS postnatal care. METHODS: Midwives screened women for traumatic birth experience; 678 women who screened positively (28.1%) were randomly allocated to self-help with usual care (n = 336) or to usual care alone (n = 342). The self-help materials were a leaflet and online film designed to prevent the development of PTSD after trauma exposure through explaining how to manage early psychological responses. MAIN OUTCOME MEASURE: The primary outcome was a composite of diagnostic and subdiagnostic PTSD at 6-12 weeks postnatally using the gold-standard Clinician-Administered PTSD Scale (CAPS-5) interview. RESULTS: Of the 678 women correctly randomised plus the nine women randomised in error, 478 (70.5%) were followed up. Diagnostic or subdiagnostic PTSD rates at follow-up did not differ between groups who received self-help (26.7%, 65/243) or usual care alone (26.2%, 64/244) (intention-to-treat analysis: RR 1.02, 95% CI 0.68-1.53). Findings remained consistent in the per-protocol analysis (RR 1.04, 95% CI 0.85-1.27). Women viewed the materials very positively. There were no adverse effects. Health economic micro-costing indicated implementation would be very low cost. CONCLUSIONS: Many women experience a traumatic birth and risk developing PTSD, but self-help strategies without professional support are insufficient and should not be routinely introduced. TWEETABLE ABSTRACT: Self-help information alone does not reduce the number of women developing PTSD after a traumatic childbirth.


Assuntos
Intervenção Baseada em Internet , Complicações do Trabalho de Parto , Folhetos , Parto/psicologia , Qualidade de Vida , Transtornos de Estresse Pós-Traumáticos , Adulto , Erros de Diagnóstico/prevenção & controle , Feminino , Humanos , Tocologia/métodos , Complicações do Trabalho de Parto/diagnóstico , Complicações do Trabalho de Parto/prevenção & controle , Complicações do Trabalho de Parto/psicologia , Gravidez , Técnicas Psicológicas , Autogestão/métodos , Transtornos de Estresse Pós-Traumáticos/diagnóstico , Transtornos de Estresse Pós-Traumáticos/etiologia , Transtornos de Estresse Pós-Traumáticos/prevenção & controle , Transtornos de Estresse Pós-Traumáticos/psicologia , Resultado do Tratamento
17.
Palliat Med ; 34(2): 160-178, 2020 02.
Artigo em Inglês | MEDLINE | ID: mdl-32009565

RESUMO

BACKGROUND: Patients with advanced cancer are increasingly expected to self-manage. Thus far, this topic has received little systematic attention. AIM: To summarise studies describing self-management strategies of patients with advanced cancer and associated experiences and personal characteristics. Also, to summarise attitudes of relatives and healthcare professionals towards patient self-management. DESIGN: A systematic review including non-experimental quantitative and qualitative studies. Data were analysed using critical interpretive synthesis. Included studies were appraised on methodological quality and quality of reporting. DATA SOURCES: MEDLINE, Embase, Cochrane Central, PsycINFO, CINAHL, Web of Science and Google Scholar (until 11 June 2019). RESULTS: Of 1742 identified articles, 31 moderate-quality articles describing 8 quantitative and 23 qualitative studies were included. Patients with advanced cancer used self-management strategies in seven domains: medicine and pharmacology, lifestyle, mental health, social support, knowledge and information, navigation and coordination and medical decision-making (29 articles). Strategies were highly individual, sometimes ambivalent and dependent on social interactions. Older patients and patients with more depressive symptoms and lower levels of physical functioning, education and self-efficacy might have more difficulties with certain self-management strategies (six articles). Healthcare professionals perceived self-management as desirable and achievable if based on sufficient skills and knowledge and solid patient-professional partnerships (three articles). CONCLUSION: Self-management of patients with advanced cancer is highly personal and multifaceted. Strategies may be substitutional, additional or even conflicting compared to care provided by healthcare professionals. Self-management support can benefit from an individualised approach embedded in solid partnerships with relatives and healthcare professionals.


Assuntos
Conhecimentos, Atitudes e Prática em Saúde , Neoplasias/terapia , Pacientes/psicologia , Autoeficácia , Autogestão/métodos , Autogestão/psicologia , Apoio Social , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
18.
J Sport Rehabil ; 29(8): 1171-1178, 2020 11 01.
Artigo em Inglês | MEDLINE | ID: mdl-32050162

RESUMO

CONTEXT: Several studies have reported that self-massage using a foam roller (FR) increased joint range of motion (ROM) immediately. However, the mechanism of increasing ROM by the FR intervention has not been elucidated. OBJECTIVE: To clarify the mechanism by investigating properties and morphological changes of muscles targeted by the FR intervention. DESIGN: An interventional study. SETTING: An athletic training laboratory. PARTICIPANTS: Ten male college volunteers with no injuries in their lower limbs (mean [SD]: age 23.8 [3.2] y, height 173.2 [4.9] cm, weight 69.5 [8.6] kg). INTERVENTION: The FR intervention on the right plantar flexors for 3 minutes. MAIN OUTCOME MEASURES: Maximum ankle ROM, muscle hardness, and fascicle length of the gastrocnemius muscle at the neutral (0°), maximum dorsiflexion, and maximum plantar flexion positions. All measurements were conducted before (PRE) and after (POST) the FR intervention. RESULTS: Dorsiflexion ROM increased significantly at POST (PRE: 13.6° [8.0°], POST: 16.6° [8.4°]; P < .001), although plantar flexion ROM did not change significantly between PRE and POST (PRE: 40.0° [6.1°], POST: 41.1° [4.9°]). There was no significant difference in muscle hardness and fascicle length between PRE and POST in any of the angles. CONCLUSIONS: Dorsiflexion ROM increased significantly by the FR intervention in the present study; however, muscle hardness and fascicle length did not change. FR may affect not only the muscle but also the fascia, tendon, and muscle-tendon unit. The FR protocol of the present study can be applied in clinical situations, because it was found to be effective to increase ROM.


Assuntos
Articulação do Tornozelo/fisiologia , Massagem/instrumentação , Músculo Esquelético/fisiologia , Amplitude de Movimento Articular/fisiologia , Autogestão/métodos , Adulto , Humanos , Masculino , Massagem/métodos , Músculo Esquelético/diagnóstico por imagem , Projetos Piloto , Ultrassonografia , Adulto Jovem
19.
BMC Womens Health ; 20(1): 6, 2020 01 06.
Artigo em Inglês | MEDLINE | ID: mdl-31906937

RESUMO

BACKGROUND: Prior research has shown that a small proportion of U.S. women attempt to self-manage their abortion. The objective of this study is to describe Texas women's motivations for and experiences with attempts to self-manage an abortion. The objective of this study is to describe Texas women's motivations for and experiences with attempts to self-manage an abortion. METHODS: We report results from two data sources: two waves of surveys with women seeking abortion services at Texas facilities in 2012 and 2014 and qualitative interviews with women who reported attempting to self-manage their abortion while living in Texas at some time between 2009 and 2014. We report the prevalence of attempted self-managed abortion for the current pregnancy among survey respondents, and describe interview participants' decision-making and experiences with abortion self-management. RESULTS: 6.9% (95% CI 5.2-9.0%) of abortion clients (n = 721) reported they had tried to end their current pregnancy on their own before coming to the clinic for an abortion. Interview participants (n = 18) described multiple reasons for their decision to attempt to self-manage abortion. No single reason was enough for any participant to consider self-managing their abortion; however, poverty intersected with and layered upon other obstacles to leave them feeling they had no other option. Ten interview participants reported having a complete abortion after taking medications, most of which was identified as misoprostol. None of the six women who used home remedies alone reported having a successful abortion; many described using these methods for several days or weeks which ultimately did not work, resulting in delays for some, greater distress, and higher costs. CONCLUSION: These findings point to a need to ensure that women who may consider self-managed abortion have accurate information about effective methods, what to expect in the process, and where to go for questions and follow-up care. There is increasing evidence that given accurate information and access to clinical consultation, self-managed abortion is as safe as clinic-based abortion care and that many women find it acceptable, while others may prefer to use clinic-based abortion care.


Assuntos
Aborto Induzido , Assistência ao Convalescente/métodos , Tomada de Decisões , Misoprostol/administração & dosagem , Autogestão , Abortivos não Esteroides/administração & dosagem , Aborto Induzido/métodos , Aborto Induzido/psicologia , Aborto Induzido/estatística & dados numéricos , Adulto , Instituições de Assistência Ambulatorial/estatística & dados numéricos , Feminino , Humanos , Motivação , Avaliação das Necessidades , Pobreza , Gravidez , Resultado da Gravidez , Autogestão/métodos , Autogestão/psicologia , Autogestão/estatística & dados numéricos , Texas/epidemiologia
20.
J Altern Complement Med ; 26(3): 239-246, 2020 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-31934771

RESUMO

Background: Attention deficit/hyperactivity disorder (ADHD), characterized by inattention, hyperactivity, and impulsivity, is currently one of the most common diagnoses given to children. Children with ADHD have a unique cognitive profile that involves difficulties in executive functions (EFs) and in the self-management system of the brain, and are at higher risk for educational failure, social and emotional difficulties, and high risk behavior. Objectives: The purpose of this study was to examine the effectiveness of self-management intervention for attention and executive functions using equine-assisted occupational therapy (STABLE-OT) for school-aged children with ADHD. Design: A pre-post design was used in the intervention. Setting/location: The study was conducted at two riding school stables is Israel. Subjects: Twenty-five 6-14-year-old children (3 girls, 22 boys, age: 7.8-12.3 years, M = 9.41 ± 1.75) diagnosed with ADHD participated in a therapeutic equestrian riding intervention. Intervention: The intervention included structured 45-min sessions for 12 weeks, while integrating child- and family-centered strategy acquisition and immediate feedback principles. Outcome measures: Their EF and occupational performance were evaluated pre- and post-intervention, using The Behavior Rating Inventory of Executive Function (BRIEF) and the Canadian Occupational Performance Measure (COPM). Results: Results showed a significant improvement in EF, as reflected by statistically significant decreases in the Global Executive Composite (GEC; t = 2.801; p = 0.01), metacognitive index (t = 3.873; p = 0.001), working memory (t = 2.476; p = 0.021), monitor (t = 2.359; p = 0.027), and initiation (t = 3.204; p = 0.004) subscales of the BRIEF questionnaire. A statistically (p < 0.001) and clinically significant improvement was also found in the COPM performance and satisfaction scales. Conclusions: This study provides key preliminary evidence supporting the effectiveness of an individual equine-assisted OT intervention for children with ADHD. It constitutes an initial step toward clinical implementation of such therapeutic approaches, and is expected to spark further research in this area.


Assuntos
Transtorno do Deficit de Atenção com Hiperatividade/terapia , Terapia Assistida por Cavalos/métodos , Função Executiva/fisiologia , Terapia Ocupacional/métodos , Autogestão/métodos , Adolescente , Animais , Atenção/fisiologia , Criança , Feminino , Cavalos , Humanos , Masculino
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