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2.
Midwifery ; 92: 102861, 2021 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-33137546

RESUMO

OBJECTIVES: To explore facilitators and barriers to the implementation of a physiological approach to care during labour and birth in obstetric settings. To explore how facilitators and barriers located at three levels: organisation, professional groups (midwives and obstetricians) and women, interact to influence the implementation of a physiological approach. METHOD: A systematic review of the literature, identified 32 eligible studies from four databases reporting relevant qualitative data. Findings from these studies were thematically synthesised in three phases: line by line coding of findings from primary studies, development of descriptive themes and analytical themes. This review is reported in line with PRISMA guidelines. FINDINGS: At an organisational level, centralisation of care in obstetric units limited time for labouring and professional care to support a physiological labour and birth. Risk management strategies ostensibly designed to promote safety sustained a risk-based approach. At a professional level, important barriers include hierarchical decision-making led by obstetricians, midwifery acquiescence, obstetric and midwifery risk preoccupation, rationalisation of the routine use of clinical intervention and an erosion of midwifery skills and knowledge. At the level of the woman, barriers include a lack of knowledge and reliance on professional decision-making. Facilitators include collaborative working by midwives and obstetricians, a valuing of midwifery autonomy and women's questioning of inappropriate intervention use. KEY CONCLUSIONS: Contrary to evidence-based guidelines that recommend a physiological approach, a risk-based approach informs practices in obstetric units. Primary research has mainly identified barriers to implementing a physiological approach at a professional level, and this has been studied largely from a midwifery perspective. To aid comprehensive investigations of facilitators and barriers and their interactive influences, this review identifies important research gaps for study across all levels: organisation, professionals (midwives and obstetricians) and women. IMPLICATIONS FOR PRACTICE: Risk preoccupations and rationalisation, with negative influences on knowledge and skills in the use of a physiological approach, must prompt reflection and action amongst professional groups. Power imbalances between midwives and obstetricians need to be addressed, drawing on experiences in units where collaborative working and midwifery autonomy is fostered.


Assuntos
Prática Clínica Baseada em Evidências/normas , Fenômenos Reprodutivos Fisiológicos , Atitude do Pessoal de Saúde , Prática Clínica Baseada em Evidências/métodos , Humanos , Tocologia/métodos , Tocologia/normas , Desenvolvimento de Programas/métodos
4.
Sultan Qaboos Univ Med J ; 20(2): e147-e150, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-32655906

RESUMO

Consultation-liaison psychiatry (CLP), also known as psychosomatic medicine, is a subspecialty of psychiatry that focuses on the care of patients with mental health disorders and general medical/surgical conditions. Integrating CLP services facilitates diagnosis and management of patients with complex comorbidities. This article aimed to report the practical considerations and challenges associated with establishing a de novo CLP service in a tertiary hospital in the Gulf region. This includes discussing the rationale and clinical and educational benefits as well as the resources required for establishing a CLP service.


Assuntos
Desenvolvimento de Programas/métodos , Psiquiatria/métodos , Encaminhamento e Consulta/tendências , Comorbidade , Prestação Integrada de Cuidados de Saúde/métodos , Humanos , Centros de Atenção Terciária/organização & administração , Centros de Atenção Terciária/tendências
5.
Midwifery ; 89: 102794, 2020 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-32668387

RESUMO

OBJECTIVE: Development and validation of a set of quality indicators for vulnerable women during the perinatal period. DESIGN: A three-phase method was used. Phase 1 consisted of a literature review to identify publications for the development of care domains and potential QIs, as well as a quality assessment by the research team. In phase 2 an expert panel assessed the set of concept QIs in a modified three-round Delphi survey. Finally, semi-structured interviews with vulnerable women were conducted as a final quality assessment of a set of indicators (phase 3). Ethical approval was obtained from the ethics committee of the University Hospital Brussels and from the Ethics Committees of all the participating hospitals. SETTING: The Flemish Region and the Brussels Capital Region in Belgium. PARTICIPANTS: Healthcare and social care professionals (n = 40) with expertise in the field of perinatal care provision for vulnerable families. Vulnerable women (n = 11) who gave birth in one of the participating hospitals. FINDINGS: The literature review resulted in a set of 49 potential quality indicators in five care domains: access to healthcare, assessment and screening, informal support, formal support and continuity of care. After assessment by the expert panel and vulnerable women, a final set of 21 quality indicators in five care domains was identified. First of all, organisation of care must involve an integrated multidisciplinary approach taking account of financial, administrative and social barriers (care domain 1: access to healthcare). Second, qualitative care includes the timely initiation of care, a general screening of the various aspects of vulnerability (biological, psychological, social and cognitive) and a risk assessment for all women (care domain 2: assessment and screening). Vulnerable women benefit from intensive formal and informal support taking account of individual needs and strengths (care domain 3: formal support; care domain 4: informal support). Finally, continuity of care needs to be guaranteed in line with vulnerable woman's individual needs (care domain 5: continuity of care). KEY CONCLUSIONS AND IMPLICATIONS FOR PRACTICE: Implementing quality indicators in existing and new care pathways offers an evidence-based approach facilitating an integrated view promoting a healthy start for woman and child. These quality indicators can assist healthcare providers, organisations and governmental agencies to improve the quality of perinatal care for vulnerable women.


Assuntos
Prestação Integrada de Cuidados de Saúde/normas , Indicadores de Qualidade em Assistência à Saúde/normas , Populações Vulneráveis/psicologia , Adulto , Bélgica , Prestação Integrada de Cuidados de Saúde/métodos , Prestação Integrada de Cuidados de Saúde/estatística & dados numéricos , Feminino , Humanos , Gravidez , Desenvolvimento de Programas/métodos , Indicadores de Qualidade em Assistência à Saúde/estatística & dados numéricos , Medição de Risco/métodos , Populações Vulneráveis/estatística & dados numéricos
6.
J Clin Psychol Med Settings ; 27(1): 22-30, 2020 03.
Artigo em Inglês | MEDLINE | ID: mdl-30949791

RESUMO

Amid rising trends in opioid use, hospitalizations for health conditions secondary to intravenous drug use are becoming more common. Such patients often require prolonged hospitalizations and frequently present with substance use histories, co-occurring mental health diagnoses, and unique behavioral health needs. These issues can adversely impact completion of medical treatment and place added burden on hospital staff. There is a growing need for medical institutions to develop policies and procedures which address the specific emotional, behavioral, and substance use needs of this patient population. Because guidelines for doing so are sparse in the literature, this study outlines the University of Vermont Medical Center's process of developing an in-hospital care agreement intended to (1) increase patient access to in-hospital need assessments, psychotherapy, and medication for opioid use disorders, (2) increase referrals for opioid use treatment beyond hospitalization, (3) standardize staff response to common challenging behaviors, and (4) provide staff with education and support for interacting with patients in effective ways. The multidisciplinary process of developing this care agreement, its specific details, lessons learned, and anticipated future directions are also discussed.


Assuntos
Prestação Integrada de Cuidados de Saúde/métodos , Pacientes Internados/psicologia , Desenvolvimento de Programas/métodos , Abuso de Substâncias por Via Intravenosa/psicologia , Abuso de Substâncias por Via Intravenosa/terapia , Hospitalização , Humanos
7.
Eval Program Plann ; 78: 101733, 2020 02.
Artigo em Inglês | MEDLINE | ID: mdl-31675509

RESUMO

Despite widespread availability of yoga in the Veterans Health Administration (VA), it remains unclear how to best evaluate yoga programs. This is particularly problematic for programs aimed at veterans with mental health concerns, as evaluation typically focuses narrowly upon mental health symptom severity, even though program participants may have other health-related priorities. We analyzed responses to free-text questions on 237 surveys completed by veterans with mental health concerns enrolled in a yoga program at six VA clinics in Louisiana to characterize veteran participants' experiences with yoga. Qualitative analysis resulted in 15 domains reflecting veterans' individual health-related values and priorities. We use results to illustrate the potential for analysis of free-text responses to reveal valuable insights into patient experiences, demonstrating how these data can inform patient-centered program evaluation. The approach we present is more accessible to those responsible for decision-making about local programs than conventional methods of analyzing qualitive evaluation data.


Assuntos
Assistência Centrada no Paciente/organização & administração , Desenvolvimento de Programas/métodos , Avaliação de Programas e Projetos de Saúde/métodos , Inquéritos e Questionários/normas , Yoga , Meio Ambiente , Promoção da Saúde/organização & administração , Nível de Saúde , Humanos , Saúde Mental , Estados Unidos , United States Department of Veterans Affairs/organização & administração
8.
Rehabil Nurs ; 45(4): 195-203, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-29864046

RESUMO

PURPOSE: The aim of the study was to develop the Healthy Beat Acupunch (HBA) exercise program and evaluate its feasibility for community older adults. DESIGN: Stage I: The Delphi technique was used to consult 16 experts to develop the program. Stage II: A preexperimental, one-group, posttest-only design was used to pilot-test the program feasibility with 31 older adults. METHODS: After 4 weeks of interventions, participants evaluated the program based on four criteria (simplicity, safety, suitability, and helpfulness) and responded to five open-ended questions. FINDINGS: The developed HBA program from Stage I includes three phases with 24 motions and takes 40 minutes to complete. Program feasibility in Stage II showed average scores ranged from 8.84 ± 1.32 to 9.97 ± 0.18. CONCLUSION: Both experts and elderly participants confirmed that the HBA program was simple, safe, suitable, and helpful to older adults. CLINICAL RELEVANCE: The HBA program provides older adults with a new set of exercise options.


Assuntos
Terapia por Acupuntura/normas , Desenvolvimento de Programas/métodos , Terapia por Acupuntura/métodos , Terapia por Acupuntura/estatística & dados numéricos , Adulto , Estudos de Viabilidade , Feminino , Geriatria/métodos , Humanos , Masculino , Pessoa de Meia-Idade , Desenvolvimento de Programas/estatística & dados numéricos
9.
Health Policy Plan ; 35(1): 115-121, 2020 Feb 01.
Artigo em Inglês | MEDLINE | ID: mdl-31691791

RESUMO

Cultural consensus analysis (CCA) is a quantitative method for determining cohesion in a specified cultural domain and cultural modelling (CM) is a method for designing and testing connections within a cultural domain based on qualitative data collection. After a description of the methods, and examples of their application, we provide a description of three main points in the programme planning, implementation and evaluation cycle at which the method can best be utilized to plan, contextualize or evaluate programmes and policies. In addition, the use of CCA and CM is not constrained to one point in time though, in order to maximize its ability to help with programme design or evaluation, it ought to be done as early as possible in the process. Through examples from research, and a broader description of the methods of CM and analysis, we provide another tool for global public health practitioners, planners and policymakers. We argue these tools can be used to great effect in a short period of time to maximize the local suitability, acceptability and quality of proposed and implemented interventions, building on existing local strengths, not just in maternal health but, more broadly.


Assuntos
Consenso , Cultura , Desenvolvimento de Programas/métodos , Adulto , Idoso , Idoso de 80 Anos ou mais , Antropologia Cultural/métodos , Feminino , Identidade de Gênero , Humanos , Masculino , Pessoa de Meia-Idade , Tocologia , Parto/etnologia , Gravidez/etnologia , Complicações na Gravidez , Inquéritos e Questionários , Tanzânia
11.
Pain Manag Nurs ; 20(6): 532-540, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-31471209

RESUMO

Since the profession began, nurses have sought to comfort through their healing presence and interventions. Clinical aromatherapy is an ancient practice finding new attention in modern-day health care to contribute to relief of symptoms of pain, anxiety and nausea. The use of complementary and integrative therapies is on the rise as clinicians and consumers seek to reduce the use of medications and the evidence-base for integrative therapies continues to expand. This article describes the development and introduction of a clinical aromatherapy program into a hospital system using a train-the-trainer model. Lessons learned from the process and future considerations are also discussed.


Assuntos
Aromaterapia/normas , Assistência ao Paciente/métodos , Aromaterapia/métodos , Aromaterapia/estatística & dados numéricos , Humanos , Michigan , Assistência ao Paciente/normas , Desenvolvimento de Programas/métodos
12.
Curationis ; 42(1): e1-e9, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31478729

RESUMO

BACKGROUND: Since the publication of the White Paper for the Transformation of the Health System in South Africa in 1997, which included Policy on Integration of Mental Health Care into primary health care (PHC), there has been an emphasis on the promotion of health as well as the re-engineering of PHC to include the integration of mental health care into PHC. Although South Africa has made significant advances at the level of health-related policy development and legislation in trying to bring the country in line with international trends, there have been challenges with regard to implementation of policies, including that of integration of mental health care into PHC. OBJECTIVES: The aim of this study was to determine the challenges affecting the implementation of the Policy on Integration of Mental Health Care into PHC in KwaZulu-Natal (KZN) province of South Africa and to seek possible solutions. METHOD: A qualitative exploratory descriptive design was used to determine the challenges affecting the implementation of the Policy on Integration of Mental Health Care into PHC in KZN. The sample consisted of 42 participants of whom 4 were PHC managers, 6 were operational managers and 22 were professional nurses who were directly involved in implementing the policy at the operational level. RESULTS: The challenges identified included lack of training in mental healthcare services for staff working in PHC, unavailability of mental health policies, inadequate resources, poor communication between management and staff, lack of skills among PHC nurses in identifying signs of mental illness and misdiagnosis of patients. CONCLUSION: Considering the challenges pertaining to PHC nurses' abilities and skills to implement the Policy on Integration of Mental Health Care into PHC, PHC-trained nurses should engage in lifelong learning and be encouraged to develop their knowledge, skills and competence throughout their professional lives.


Assuntos
Prestação Integrada de Cuidados de Saúde/métodos , Serviços de Saúde Mental , Atenção Primária à Saúde/métodos , Desenvolvimento de Programas/métodos , Prestação Integrada de Cuidados de Saúde/tendências , Grupos Focais/métodos , Humanos , Entrevistas como Assunto/métodos , Atenção Primária à Saúde/tendências , Pesquisa Qualitativa , África do Sul
13.
Comput Inform Nurs ; 37(10): 532-540, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-31449142

RESUMO

The study aimed to develop and pilot test an Integrated Technology-Moderated Institutional Health Promotion Model for university staff in Nigeria. An operational research approach using mixed concurrent design was adopted to develop the model, and pretest-posttest method was used to evaluate the utilization and effectiveness of the developed model. The participants in the study were university staff. Health-promoting lifestyle behavior and health status were measured via the adapted Health-Promoting Lifestyle Profile II instrument. The emerging model (an Integrated Technology-Moderated Institutional Health Promotion Model, which is an Android phone app named Tertiary Staff Health Promotion App) was deployed. Data were collected before and 12 weeks after the app deployment. The quantitative and qualitative data findings were combined to develop an integrated technology-moderated institutional health promotion model as a means to enhance health-promoting lifestyle behavior and health status of staff. The result of the pilot testing of the model showed that the model enhances health-promoting lifestyle behaviors and improves the health status of staff. Nurses, especially in community/public health nursing practice, can provide innovative interventions to drive and enhance health-promoting lifestyle behavior and improve health status of workers and other population groups through effective use of information and communication technology.


Assuntos
Prestação Integrada de Cuidados de Saúde/métodos , Promoção da Saúde/métodos , Prestação Integrada de Cuidados de Saúde/normas , Prestação Integrada de Cuidados de Saúde/estatística & dados numéricos , Promoção da Saúde/normas , Promoção da Saúde/estatística & dados numéricos , Humanos , Pesquisa Operacional , Projetos Piloto , Desenvolvimento de Programas/métodos , África do Sul , Universidades/organização & administração
14.
Prev Chronic Dis ; 16: E98, 2019 08 01.
Artigo em Inglês | MEDLINE | ID: mdl-31370920

RESUMO

The National Center for Chronic Disease Prevention and Health Promotion at the Centers for Disease Control and Prevention funds the agency's largest investment in Indian Country, Good Health and Wellness in Indian Country. This 5-year program, launched in 2014, supports American Indian and Alaska Native communities and tribal organizations to address chronic diseases and risk factors simultaneously and in coordination. This article describes the development, funding, and implementation of the program. Dialogue with tribal members and leaders helped shape the program, and unlike previous programs that funded a small number of tribes to work on specific diseases, this program funds multiple tribal entities to reach widely into Indian Country. Implementation included culturally developed and adapted practices and opportunities for peer sharing and problem solving. This program identified approaches useful for the Centers for Disease Control and Prevention, other federal agencies, or other organizations working with American Indians and Alaska Natives.


Assuntos
Doença Crônica , Promoção da Saúde , Saúde Holística/etnologia , Serviços Preventivos de Saúde , Desenvolvimento de Programas , Centers for Disease Control and Prevention, U.S. , Doença Crônica/epidemiologia , Doença Crônica/prevenção & controle , Promoção da Saúde/métodos , Promoção da Saúde/organização & administração , Humanos , Indígenas Norte-Americanos , Modelos Organizacionais , Serviços Preventivos de Saúde/métodos , Serviços Preventivos de Saúde/organização & administração , Desenvolvimento de Programas/economia , Desenvolvimento de Programas/métodos , Avaliação de Programas e Projetos de Saúde , Estados Unidos/epidemiologia
15.
J Midwifery Womens Health ; 64(5): 641-648, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-31232508

RESUMO

Women want positive birth experiences with high quality maternity care that is neither too much, too soon, nor too little, too late. Research confirms the effectiveness of midwifery care, and the midwifery approach to birth as physiologic may counter the upward trend of the unnecessary medicalization of birth. The role of guardian of physiologic birth is seen as central to midwifery practice; however, medical hegemony has led to the subordination of midwives, which inhibits them in fulfilling the role as guardian of physiologic birth. Learning to become powerful advocates of physiologic birth creates midwives able to speak up for effective, evidence-based maternity care and challenge the unnecessary use of obstetric intervention. Midwifery education has a role to fulfil in molding midwives who are able to assume this role. This brief report describes the development of an educational prototype aimed at increasing student midwife agency as an advocate of physiologic birth. This was done using rapid prototyping (RP) methodology, in which important stakeholders gave input and feedback during the educational design and development process. Input from stakeholders led to the inclusion of persuasive communication strategies and discussion and debate as teaching methodologies in order to increase student midwife agency to argue for physiologic birth. Reflective evidence-based practice, using the Optimality Index-Netherlands, allowed students to reflect on their practice while providing a framework for discussion. Working with the RP methodology allowed for the development of a prototype that reflected the needs of midwifery stakeholders and was mindful of material and human resources.


Assuntos
Tocologia/educação , Parto , Defesa do Paciente , Desenvolvimento de Programas/métodos , Estudantes de Enfermagem , Feminino , Humanos , Avaliação das Necessidades , Países Baixos , Gravidez , Participação dos Interessados
16.
Nurs Womens Health ; 23(3): 224-233, 2019 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-31077639

RESUMO

OBJECTIVE: To design and implement group prenatal care (GPC) for Somali women and to evaluate participants' satisfaction, knowledge, and care engagement. DESIGN: Quality improvement project. SETTING/LOCAL PROBLEM: A federally qualified health center in an urban Midwestern setting, which serves a largely East African immigrant and refugee population. PARTICIPANTS: Pregnant Somali women at more than 20 weeks gestation receiving prenatal care at the project site. Many participants were non-English speaking. INTERVENTION/MEASUREMENTS: While honoring the 13 essential elements of CenteringPregnancy, the model was adapted to the East African population at the project site and offered to all eligible women receiving individual prenatal care at the clinic. Women attended biweekly sessions, including individual assessment and education, exposure to integrative health therapies, and group discussion. Pre- and postintervention data were collected in surveys and in-depth interviews from March through August 2017. RESULTS: Seventeen Somali women attended a median of two sessions (range = 1-7). Self-reported results for knowledge of safe exercise in pregnancy (p = .02), exclusive breastfeeding (p = .04), what happens in the hospital (p = .02), and stress management (p = .03) increased after GPC participation. Ninety-three percent of women preferred GPC to individual care. CONCLUSION: When adapted to meet the needs of Somali women, GPC has the potential to improve care satisfaction, increase knowledge, and reduce stress during pregnancy and the postpartum period. This model may interest women and care providers in similar community health care settings.


Assuntos
Instituições de Assistência Ambulatorial/tendências , Cuidado Pré-Natal/métodos , Desenvolvimento de Programas/métodos , Adulto , Instituições de Assistência Ambulatorial/organização & administração , Emigrantes e Imigrantes/psicologia , Feminino , Humanos , Meio-Oeste dos Estados Unidos , Áreas de Pobreza , Gravidez , Melhoria de Qualidade , Somália/etnologia , Inquéritos e Questionários
17.
JMIR Mhealth Uhealth ; 7(4): e11664, 2019 04 11.
Artigo em Inglês | MEDLINE | ID: mdl-30973345

RESUMO

BACKGROUND: In 2011, we launched the Smarter Pregnancy mobile health (mHealth) coaching program, which has shown to effectively improve inadequate nutrition and lifestyle behaviors in women before and during pregnancy. It is known that in deprived neighborhoods, risk factors for adverse pregnancy outcomes like inadequate nutrition and lifestyle behaviors accumulate. However, it has not yet been investigated whether the Smarter Pregnancy program is equally effective in women living in deprived neighborhoods. OBJECTIVE: This paper aimed to study the associations between neighborhood deprivation and improvement of inadequate nutrition and lifestyle behaviors of women who were either contemplating pregnancy or already pregnant and subscribed to the Smarter Pregnancy program. METHODS: We performed an additional analysis on data from women who used the Smarter Pregnancy program from 2011 to 2016. The program comprised 24 weeks of coaching on 5 nutrition and lifestyle behaviors, of which adequate intakes or lifestyle behaviors were defined as an intake of 200 grams or above of vegetables, 2 pieces of fruit, daily folic acid supplement use of 400 µg per day, and no smoking or alcohol consumption. Neighborhood deprivation was determined according to the status scores of the Netherlands Institute for Social Research. Logistic regression analyses and generalized estimating equation models were used to assess the associations between the neighborhood status score (NSS) and the improvement of inadequate nutrition and lifestyle behaviors, taking into account the behaviors at baseline. We adjusted the analyses for maternal age, body mass index, geographic origin, pregnancy status, and participation as a couple. RESULTS: Of the 2554 women included, 521 participated with their male partner. Overall, daily vegetable intake was most frequently inadequate at the start of the program (77.72, 1985/2554). Women with a higher NSS (ie, nondeprived neighborhood) smoked less often (adjusted odds ratio [OR] 0.85; 95% CI 0.77-0.93), consumed alcohol more often (adjusted OR 1.14, 95% CI 1.04-1.24), and were less likely to complete the 24 weeks of coaching (OR 0.91, 95% CI 0.88-0.95) compared with women who lived in a neighborhood with a low NSS (ie, deprived). In the total group, the relative improvement of inadequate nutrition and lifestyle behaviors after 24 weeks of coaching was between 26% and 64%. NSS was negatively associated with this improvement, indicating that women with a higher NSS were less likely to improve inadequate nutrition and lifestyle behaviors, especially vegetable intake (adjusted OR 0.89, 95% CI 0.82-0.97). CONCLUSIONS: The Smarter Pregnancy mHealth coaching program empowers women to improve inadequate nutrition and lifestyle behaviors. Unexpectedly, the program seemed more effective in women living in deprived neighborhoods. It is important to unravel differences in needs and behaviors of specific target groups to further tailor the mHealth program on the basis of demographic characteristics like neighborhood deprivation.


Assuntos
Tutoria/normas , Ciências da Nutrição/educação , Cuidado Pré-Concepcional/métodos , Telemedicina/normas , Adulto , Feminino , Humanos , Tutoria/métodos , Países Baixos , Ciências da Nutrição/métodos , Razão de Chances , Cuidado Pré-Concepcional/normas , Gravidez , Desenvolvimento de Programas/métodos , Características de Residência/estatística & dados numéricos , Inquéritos e Questionários , Telemedicina/métodos , População Urbana/estatística & dados numéricos
18.
JMIR Mhealth Uhealth ; 7(3): e10921, 2019 03 18.
Artigo em Inglês | MEDLINE | ID: mdl-30882352

RESUMO

BACKGROUND: Approximately 70,000 adolescents and young adults (AYA) are diagnosed with cancer each year in the United States. Sarcomas carry a particularly high symptom burden and are some of the most common cancers among AYA. Recent work has documented significant levels of unmet needs among AYA with cancer, particularly the need for psychosocial support. Mobile technology may be a cost-effective and efficient way to deliver a psychosocial intervention to AYA with cancer and cancer survivors. OBJECTIVE: The two aims of this study were to (1) develop a pilot version of a mobile-based mindfulness and social support program and (2) evaluate program usage and acceptability. An exploratory aim was to examine change in psychosocial outcomes. METHODS: Thirty-seven AYA with sarcoma or sarcoma survivors, parents, and health care providers participated in the study. Semistructured interviews were conducted with 10 AYA, parents of five of the adolescents, and six health care providers. Themes from the interviews helped to inform the development of a mobile-based mindfulness pilot program and a companion Facebook-based social support group. Twenty AYA consented to participate in a single-arm pre-post evaluation of the program; 17 downloaded the app and joined the Facebook group. Seven of these participants had participated in the semistructured interviews. Six additional health care providers consented to participate in the evaluation stage. RESULTS: On average, participants completed 16.9 of the 28 unique sessions and used the mindfulness app for a mean 10.2 (SD 8.2) days during the 28-day evaluation period. The majority of participants (16/17) engaged in the social group and posted at least one reply to the moderator's prompts. The mean number of responses per person to the moderator of the social group was 15.2 of 31 (49%, range 0%-97%). Both AYA and health care providers responded positively to the Mindfulness for Resilience in Illness program and offered useful recommendations for improvements. Exploratory psychosocial analyses indicated there were no significant differences from pretest to posttest on measures of perceived social support, mindfulness, body image, or psychological functioning. CONCLUSIONS: This study offers preliminary support for the feasibility and acceptability of a mobile-based mindfulness and Facebook-based social support program for AYA with sarcoma. The feedback from AYA and health care providers will assist in creating a fully developed intervention. TRIAL REGISTRATION: ClinicalTrials.gov NCT03130751; https://clinicaltrials.gov/ct2/show/NCT03130751.


Assuntos
Atenção Plena/instrumentação , Aplicativos Móveis/normas , Sarcoma/psicologia , Apoio Social , Adolescente , Sobreviventes de Câncer/psicologia , Sobreviventes de Câncer/estatística & dados numéricos , Feminino , Humanos , Masculino , Atenção Plena/métodos , Aplicativos Móveis/tendências , Desenvolvimento de Programas/métodos , Desenvolvimento de Programas/estatística & dados numéricos , Sarcoma/complicações
19.
BMC Musculoskelet Disord ; 20(1): 85, 2019 Feb 18.
Artigo em Inglês | MEDLINE | ID: mdl-30777049

RESUMO

BACKGROUND: Reassuring patient education and exercise therapy are widely recommended interventions for back pain in clinical guidelines. However, many patients are offered non-guideline endorsed options, and strategies for effective implementation of guideline-based care have not yet been developed. This protocol outlines the evaluation of a strategy for nationwide implementation of standardised patient education and exercise therapy for people with persistent or recurrent back pain in a hybrid implementation-effectiveness design. The strategy and the evaluation were planned using the framework of the Behaviour Change Wheel. METHODS: The main activity of the implementation strategy is a two-days course for physiotherapists and chiropractors in delivering patient education and exercise therapy that is aimed at supporting patient self-management. This comes with ready-to-use patient education materials and exercise programs. The clinical intervention is a group-based program consisting of two sessions of patient education and 8 weeks of supervised exercises. The program uses a cognitive-behavioural approach and the aim of the exercise component is to restore the patient's ability and confidence to move freely. The implementation process is evaluated in a dynamic process monitoring the penetration, adoption and fidelity of the clinical intervention. The clinical intervention and potential effect mechanisms will be evaluated at the patient-level using measures of knowledge, skills, beliefs, performance, self-efficacy and success in self-management. The education of clinicians will be evaluated via clinician-level outcomes, including the Pain Attitudes and Beliefs Scale, the Practitioner Confidence Scale, and the Determinants of Implementation Behaviour Questionnaire. Effects at a national level will be investigated via data from national registries of health care utilisation and sick-leave. DISCUSSION: This implementation-effectiveness study is designed to evaluate the process of implementing an evidence-based intervention for back pain. It will inform the development of strategies for implementing evidence-based care for musculoskeletal pain conditions, it will enhance the understanding of mechanisms for developing patient self-management skills, and it will demonstrate the outcomes that are achievable in everyday clinical practice. TRIAL REGISTRATION: ClinicalTrials.gov NCT03570463 . Registered 27 June 2018.


Assuntos
Dor nas Costas/terapia , Terapia por Exercício/métodos , Educação de Pacientes como Assunto/métodos , Desenvolvimento de Programas/métodos , Autogestão/métodos , Dor nas Costas/epidemiologia , Dinamarca/epidemiologia , Terapia por Exercício/psicologia , Humanos , Manipulação Quiroprática/métodos , Fisioterapeutas , Autogestão/psicologia , Resultado do Tratamento
20.
BMJ Open ; 9(2): e023362, 2019 02 24.
Artigo em Inglês | MEDLINE | ID: mdl-30804028

RESUMO

INTRODUCTION: Malnutrition remains underdetected, undertreated and often overlooked by those working with older people in primary care in the UK. A new procedure for screening and treatment of malnutrition is currently being implemented by a large National Health Service (NHS) trust in England, incorporating a programme of training for staff working within Integrated Community Teams and Older People's Mental Health teams. Running in parallel, the Implementing Nutrition Screening in Community Care for Older People process evaluation study explores factors that may promote or inhibit its implementation and longer term embedding in routine care, with the aim of optimising sustainability and scalability. METHODS AND ANALYSIS: Implementation will be assessed through observation of staff within a single area of the trust, in addition to the procedure development and delivery group (PDDG). Data collection will occur at three observation points: prior to implementation of training, baseline (T0); 2 months following training (T1); and 8 months following training (T2). Observation points will consist of a survey and follow-up semistructured telephone interview with staff. Investigation of the PDDG will involve: observations of discussions around development of the procedure; semistructured telephone interviews prior to implementation, and at 6 months following implementation. Quantitative data will be described using frequency tables reporting by team type, healthcare provider role group, and total study sample (Wilcoxon rank-sum and Wilcoxon signed-rank tests may also be conducted if appropriate. Audio and transcription data will be analysed using Nomarlization Process Theory as a framework for deductive thematic analysis (using the NVIVO CAQDAS software package). ETHICS AND DISSEMINATION: Ethical approval for the study has been granted through institutional ethical review (Bournemouth University); NHS Research Ethics committee approval was not required. Dissemination will occur through presentations to academic and practitioner audiences and publication results in peer-reviewed academic journals.


Assuntos
Atenção à Saúde/organização & administração , Desnutrição/diagnóstico , Programas de Rastreamento/métodos , Desenvolvimento de Programas/métodos , Humanos , Desnutrição/terapia , Programas de Rastreamento/economia , Estudos Prospectivos , Saúde Pública/métodos , Medicina Estatal , Inquéritos e Questionários , Reino Unido
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