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1.
PLoS One ; 19(4): e0300521, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38558082

RESUMO

Calls to leverage routinely collected data to inform health system improvements have been made. Misalignment between home care services and client needs can result in poor client, caregiver, and system outcomes. To inform development of an integrated model of community-based home care, grounded in a holistic definition of health, comprehensive clinical profiles were created using Ontario, Canada home care assessment data. Retrospective, cross-sectional analyses of 2017-2018 Resident Assessment Instrument Home Care (RAI-HC) assessments (n = 162,523) were completed to group home care clients by service needs and generate comprehensive profiles of each group's dominant medical, functional, cognitive, and psychosocial care needs. Six unique groups were identified, with care profiles representing home care clients living with Geriatric Syndromes, Medical Complexity, Cognitive Impairment and Behaviours, Caregiver Distress and Social Frailty. Depending on group membership, between 51% and 81% of clients had identified care needs spanning four or more Positive Health dimensions, demonstrating both the heterogeneity and complexity of clients served by home care. Comprehensive clinical profiles, developed from routinely collected assessment data, support a future-focused, evidence-informed, and community-engaged approach to research and practice in integrated home-based health and social care.


Assuntos
Serviços de Assistência Domiciliar , Reabilitação Psiquiátrica , Adulto , Humanos , Idoso , Ontário , Estudos Retrospectivos , Estudos Transversais , Participação da Comunidade , Participação dos Interessados , Cognição
2.
Altern Ther Health Med ; 30(1): 332-338, 2024 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-37820660

RESUMO

Objective: To explore the effect of Naikan mindfulness therapy on psychiatric rehabilitation for chronic schizophrenia. Methods: 100 chronic schizophrenic patients in a third-class psychiatric hospital from July 2020 to August 2021 were selected as the research object. The following criteria were adopted: a clinician clearly diagnosed chronic schizophrenia, the patient was between 18 and 65 years old, and the patient agreed to participate in the study and signed an informed consent form.The random mathematical table method divided them into the control group (50 cases treated with Naikan therapy) and the experimental group (50 cases treated with Naikan mindfulness therapy). The LSIA(Life Satisfaction Index in Schizophrenia) score, SSFPI (Social Satisfaction and Functioning in Patients with Schizophrenia)score and satisfaction of psychiatric rehabilitation nursing were compared between the two groups. Result: In terms of LSIA score, there was no significant difference in baseline score between the two groups (P > .05). At 6 and 12 weeks after the intervention, the scores of the two groups increased, but the scores of the experimental group at 6 and 12 weeks after the intervention were higher than those of the control group, the difference was statistically significant (P < .05). In terms of SSFPI score, there was no significant difference in baseline score between the two groups (P < .05); At 6 and 12 weeks after the intervention, the scores of the two groups increased, but the scores of the experimental group at 6 and 12 weeks after the intervention were higher than those of the control group, the difference was statistically significant (P < .05). In terms of satisfaction with psychiatric rehabilitation nursing, there was no significant difference between the experimental group and the control group 6 weeks after intervention (P > .05); 12 weeks after the intervention, the satisfaction scores of the two groups increased significantly, and the scores of the experimental group were significantly higher than those of the control group (P < .05). Naikan mindfulness therapy led to significant improvements in LSIA scores, SSFPI scores, and satisfaction with psychiatric rehabilitation nursing at both 6 and 12 weeks. Conclusion: The life satisfaction, social function, and the satisfaction of psychiatric rehabilitation nursing of the chronic schizophrenics can be improved by the combination of Naikan mindfulness therapy. This study found that by using Naikan therapy, we can improve life satisfaction, social functioning, and satisfaction with psychiatric rehabilitation care in patients with chronic schizophrenia. This has important practical implications for patient treatment and care, including improving quality of life, enhancing social integration, improving rehabilitation outcomes, and reducing the burden on medical staff. This research provides a useful method for comprehensive care of patients with schizophrenia and is expected to have a positive impact on improving patients' lives and recovery in the future.


Assuntos
Atenção Plena , Reabilitação Psiquiátrica , Esquizofrenia , Adolescente , Adulto , Idoso , Humanos , Pessoa de Meia-Idade , Adulto Jovem , Qualidade de Vida , Esquizofrenia/terapia , Resultado do Tratamento
3.
Clin Rehabil ; 38(2): 263-284, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-37933440

RESUMO

OBJECTIVE: Stroke has a major impact on a person's life. While much research exists on stroke prevention and treatment, explorations into psychosocial recovery needs are lacking. This review critically consolidates the challenges and needs of stroke survivors and develops a trajectory that encapsulates their journey from illness to recovery. DATA SOURCES: Six major databases were searched, including Academic Search Premier, CINAHL, Global Health, Medline, PsycArticles, and PsycINFO. METHODS: This review adhered to the PRISMA guidelines and employed the PICo (population, phenomena of interest, context) framework to screen for relevant qualitative reviews published between 1 January 2010 and 31 August 2023. Following full-text screening and the assessment of methodological quality using a modified version of the Assessment of Multiple Systematic Reviews scale, a total of 17 reviews were included for thematic synthesis. RESULTS: Included reviews referenced 400 qualitative primary studies involving more than 5623 stroke survivors. Data synthesis revealed 18 themes that were further organized into six conceptual categories: (1) The unfamiliar body, (2) compassionate healthcare system, (3) holistic rehabilitation, (4) intrapersonal strength, (5) interpersonal relations, and (6) thriving forward to form the psychosocial rehabilitation trajectory of stroke survivor (PReTS) model. The model recognizes the losses that can occur after a stroke and emphasizes the essentiality of addressing psycho-socio-emotional and spiritual needs alongside physical impairments. CONCLUSION: The PReTS model is the first to highlight stroke survivors' losses, recovery journeys, and psychosocial needs. The conceptualization serves to inform and advance stroke rehabilitation practices with holistic and wellness recovery research.


Assuntos
Reabilitação Psiquiátrica , Reabilitação do Acidente Vascular Cerebral , Acidente Vascular Cerebral , Humanos , Revisões Sistemáticas como Assunto , Acidente Vascular Cerebral/diagnóstico , Acidente Vascular Cerebral/psicologia , Pesquisa Qualitativa , Sobreviventes/psicologia
4.
San Salvador; MINSAL; sept. 21, 2023. 45 p. ilus, tab..
Não convencional em Espanhol | BISSAL, LILACS | ID: biblio-1511346

RESUMO

Los presentes lineamientos técnicos, constituyen una herramienta que permitirá al personal del Sistema Nacional Integrado de Salud, estandarizar conceptos y procedimientos para la atención psicosocial en duelo perinatal y primera infancia


The present technical guidelines are a tool that will enable the staff of the National Integrated Health System to standardize concepts and procedures for psychosocial care in perinatal and early childhood bereavement


Assuntos
Pesar , Reabilitação Psiquiátrica , El Salvador , Experiências Adversas da Infância
5.
Washington, D.C.; PAHO; 2023-08-23. (PAHO/NMH/NV/apcp.122-0027).
em Inglês | PAHOIRIS | ID: phr-57891

RESUMO

Advances in the treatment of pediatric cancer have made it possible to expand initiatives beyond cure and cover aspects such as early detection, continuity of treatment and reduction in toxicity. All this has paved the way for a more comprehensive vision of patient care, which means better chances of healing and a fuller life - objectives of the World Initiative against Childhood Cancer. Within this comprehensive care, psychosocial care includes the social, psychological, spiritual and functional dimensions of the disease process of patients. This series includes guidelines and standards based on evidence that guarantee the quality of said care. The standards are the result of discussion and review by different professionals from Latin America and the Caribbean. Module 1 focuses on psychosocial evaluation as a strategy to support the objectives of the World Initiative against Childhood Cancer, and as a tool for health professionals to gather the necessary information to offer these patients a comprehensive approach focused on well-being, adaptation to the disease process, and adherence to treatment.


Assuntos
Neoplasias , Saúde da Criança , Reabilitação Psiquiátrica , Assistência à Saúde Mental
6.
Washington, D.C.; PAHO; 2023-08-21. (PAHO/NMH/NV/apcp.3/22-0027).
em Inglês | PAHOIRIS | ID: phr-57886

RESUMO

Advances in the treatment of pediatric cancer have made it possible to expand initiatives beyond cure and cover aspects such as early detection, continuity of treatment and reduction in toxicity. All this has paved the way for a more comprehensive vision of patient care, which means better chances of healing and a fuller life - objectives of the World Initiative against Childhood Cancer. Within this comprehensive care, psychosocial care includes the social, psychological, spiritual and functional dimensions of the disease process of patients. This series includes guidelines and standards based on evidence that guarantee the quality of said care. The standards are the result of discussion and review by different professionals from Latin America and the Caribbean. Module 3 focuses on mental health care, referring to the interventions of mental health specialists with the aim of preventing and addressing psychological or psychiatric symptoms in childhood cancer patients and their families, as well as the possible sequelae of disease and treatment.


Assuntos
Neoplasias , Saúde da Criança , Reabilitação Psiquiátrica , Assistência à Saúde Mental , Orientação
7.
Washington, D.C.; PAHO; 2023-08-21. (PAHO/NMH/NV/apcp.4/22-0027).
em Inglês | PAHOIRIS | ID: phr-57885

RESUMO

Advances in the treatment of pediatric cancer have made it possible to expand initiatives beyond cure and cover aspects such as early detection, continuity of treatment and reduction in toxicity. All this has paved the way for a more comprehensive vision of patient care, which means better chances of healing and a fuller life - objectives of the World Initiative against Childhood Cancer. Within this comprehensive care, psychosocial care includes the social, psychological, spiritual and functional dimensions of the disease process of patients. This series includes guidelines and standards based on evidence that guarantee the quality of said care. The standards are the result of discussion and review by different professionals from Latin America and the Caribbean. Module 4 focuses on the progressive reintegration of childhood cancer patients into daily life. The objective is to provide them with the possibility of accessing academic, social or other resources that facilitate their healthy reintegration after cancer treatment, in addition to anticipating possible psychosocial disorders in survivors.


Assuntos
Neoplasias , Saúde da Criança , Reabilitação Psiquiátrica , Assistência à Saúde Mental
8.
Washington, D.C.; PAHO; 2023-08-21. (OPS/NMH/NV/apcp.5/22-0027).
em Inglês | PAHOIRIS | ID: phr-57884

RESUMO

Advances in the treatment of pediatric cancer have made it possible to expand initiatives beyond cure and cover aspects such as early detection, continuity of treatment and reduction in toxicity. All this has paved the way for a more comprehensive vision of patient care, which means better chances of healing and a fuller life - objectives of the World Initiative against Childhood Cancer. Within this comprehensive care, psychosocial care includes the social, psychological, spiritual and functional dimensions of the disease process of patients. This series includes guidelines and standards based on evidence that guarantee the quality of said care. The standards are the result of discussion and review by different professionals from Latin America and the Caribbean. Module 5 focuses on strengthening psychosocial skills and caring for the multidisciplinary team. The competencies that professionals must have to provide comprehensive care are collected, as well as the necessary conditions to optimize interdisciplinary work and for the care and self-care of the teams.


Assuntos
Neoplasias , Saúde da Criança , Reabilitação Psiquiátrica , Assistência à Saúde Mental , Assistência Integral à Saúde , Equipe de Assistência ao Paciente , Desenvolvimento de Pessoal
9.
Washington, D.C.; PAHO; 2023-08-21. (PAHO/NMH/NV/apcp.6/22-0027).
em Inglês | PAHOIRIS | ID: phr-57883

RESUMO

Advances in the treatment of pediatric cancer have made it possible to expand initiatives beyond cure and cover aspects such as early detection, continuity of treatment and reduction in toxicity. All this has paved the way for a more comprehensive vision of patient care, which means better chances of healing and a fuller life - objectives of the World Initiative against Childhood Cancer. Within this comprehensive care, psychosocial care includes the social, psychological, spiritual and functional dimensions of the disease process of patients. This series includes guidelines and standards based on evidence that guarantee the quality of said care. The standards are the result of discussion and review by different professionals from Latin America and the Caribbean. Module 6 focuses on transversal approaches in psychosocial care for childhood cancer. Both the design and the application of the activities included in the previous modules (1 to 5) must be adapted to the particular needs of the patients, according to the course of life and cultural differences. In addition, they must respond to fair treatment, in accordance with values ​​of equal opportunities and respect for fundamental rights.


Assuntos
Neoplasias , Saúde da Criança , Reabilitação Psiquiátrica , Assistência à Saúde Mental
10.
Washington, D.C.; PAHO; 2023-08-18. (PAHO/NMH/NV/apcp.2/22-0027).
em Inglês | PAHOIRIS | ID: phr-57881

RESUMO

Advances in the treatment of pediatric cancer have made it possible to expand initiatives beyond cure and cover aspects such as early detection, continuity of treatment and reduction in toxicity. All this has paved the way for a more comprehensive vision of patient care, which means better chances of healing and a fuller life - objectives of the World Initiative against Childhood Cancer. Within this comprehensive care, psychosocial care includes the social, psychological, spiritual and functional dimensions of the disease process of patients. This series includes guidelines and standards based on evidence that guarantee the quality of said care. The standards are the result of discussion and review by different professionals from Latin America and the Caribbean. Module 2 focuses on psychoeducation and support in the course of the disease, that is, the activities and interventions carried out by the multidisciplinary team during active treatment with the aim of promoting adaptation to the disease, and reducing the stressors that could lead to abandonment of treatment by child patients.


Assuntos
Neoplasias , Saúde da Criança , Reabilitação Psiquiátrica , Assistência à Saúde Mental
11.
Sante Publique ; 34(HS2): 241-250, 2023.
Artigo em Francês | MEDLINE | ID: mdl-37336740

RESUMO

INTRODUCTION: LGBTQI+ migrants are at greater risk of facing health issues, including mental health issues, especially since the arrival of COVID-19. Furthermore, they face many barriers to accessing care in Quebec. It is in this context that Clinic Mauve was implemented, which aims to remove these barriers by offering medical and psychosocial care in an integrated care setting to LGBTQI+ migrants in Montreal. PURPOSE OF RESEARCH: The purpose of this article is to identify the benefits and challenges of a model like the Clinic Mauve in addressing the psychosocial needs of LGBTQI+ migrant individuals. RESULTS: The analysis shows that the Clinic Mauve model, because of its approaches is able to remove some of the barriers to accessing care for LGBTQI+ migrants and to allow for a certain degree of empowerment of these populations. However, some challenges have been identified, which are mainly due to the lack of resources and organizational constraints. CONCLUSIONS: The article concludes that providing psychosocial care in an integrated care setting addresses some of the barriers to accessing care faced by LGBTQI+ migrants.


Assuntos
COVID-19 , Prestação Integrada de Cuidados de Saúde , Reabilitação Psiquiátrica , Migrantes , Humanos , Acessibilidade aos Serviços de Saúde
12.
Psicol. Estud. (Online) ; 28: e54151, 2023.
Artigo em Português | LILACS, INDEXPSI | ID: biblio-1521379

RESUMO

RESUMO. A pandemia da Covid-19 levou ao isolamento social grande contingente populacional no Brasil e no mundo. Conforme as mais altas autoridades de saúde internacionais, entre elas a Organização Mundial da Saúde (OMS), os idosos fazem parte do denominado 'grupo de risco' para a doença. Portanto, foram exigidos mais rigor e cuidado entre as pessoas com idade mais avançada, incluindo o isolamento social. Apesar da indiscutível importância dessa medida, os idosos em situação de isolamento social ficaram mais vulneráveis a uma série de agravos, principalmente os de ordem psíquica. O objetivo do presente trabalho é apresentar propostas de atenção psicossocial ao idoso em situação de sofrimento ou vulnerabilidade decorrente do isolamento social. As propostas buscam estimular a memória, a cognição e a psicomotricidade por meio de narrativas, recursos artísticos, Tecnologias da Informação e Comunicação e objetos autobiográficos como, por exemplo, realizar videochamadas, ler, ouvir músicas, contar e relembrar histórias. Em geral, as atividades propostas podem ser coordenadas por profissionais e familiares e adaptadas conforme as características de cada idoso.


RESUMEN. La pandemia de COVID-19 llevó a un gran número de personas en Brasil y en todo el mundo al aislamiento social. Según las principales autoridades sanitarias internacionales, entre ellas la Organización Mundial de la Salud (OMS), las personas mayores forman parte del denominado 'grupo de riesgo' de la enfermedad. De esta forma, se requería más rigor y cuidado entre las personas mayores, incluyendo el aislamiento social. Como es sabido, a pesar de la indiscutible importancia de esta acción, las personas mayores aisladas socialmente fueron más expuestas a una serie de enfermedades, principalmente relacionadas con problemas psíquicos. El objetivo de este trabajo es presentar las propuestas de atención psicosocial para los ancianos en situación de sufrimiento o discapacidad debido al aislamiento social. Las propuestas buscan estimular la memoria, la cognición y la psicomotricidad a través de narraciones, recursos artísticos, tecnologías de la información y comunicación y objetos autobiográficos, como videoconferencias, lectura, escucha de música, narración y recordación de historias. En general, las actividades propuestas pueden ser coordinadas por profesionales y miembros de la familia y adaptadas según las características de cada persona mayor.


ABSTRACT. The COVID-19 pandemic drove a large population contingent in Brazil and worldwide into social isolation. As reported by the highest international health authorities, including the World Health Organization (WHO), the elderly people are part of the so-called 'risk group' for the disease. Thus, more rigor and care were required among elderly people, including social isolation. It is well known that, despite the undeniable importance of this action, elderly people in social isolation were more exposed to a series of illnesses, mainly related to psychic problems. The goal of this paper is to propose psychosocial care for the elderly in a situation of distress, or vulnerability due to social isolation. The ideas seek to induce memory, cognition and psychomotricity through narratives, artistic resources, Information, Communication Technologies and autobiographical objects, such as video calls, reading, listening to music, storytelling and recalling. In general, the proposed activities can be coordinated by professionals and family members and adapted according to the characteristics of each elderly person.


Assuntos
Isolamento Social/psicologia , Idoso/psicologia , Reabilitação Psiquiátrica/psicologia , COVID-19/terapia , Arteterapia , Desempenho Psicomotor , Cognição , Vulnerabilidade a Desastres , Tecnologia da Informação , Pandemias , Angústia Psicológica , Memória
13.
Psicol. ciênc. prof ; 43: e255126, 2023. graf
Artigo em Português | LILACS, INDEXPSI | ID: biblio-1440787

RESUMO

Este artigo pretende compreender as concepções de profissionais da gestão e dos serviços do Sistema Único de Saúde (SUS) sobre Educação Permanente em Saúde (EPS), bem como seus desafios e potencialidades. Utilizou-se de grupo focal para coleta, seguido de análise lexical do tipo classificação hierárquica descendente com auxílio do software Iramuteq. Os resultados delinearam quatro classes: a) EPS - entendimentos e expectativas; b) entraves à EPS; c) ETSUS e EPS por meio de cursos e capacitações; e d) dispositivos de EPS: potencialidades e desafios. Os participantes apontaram equívocos de entendimentos acerca da EPS ao equipará-la à Educação Continuada (EC) voltada à transferência de conteúdo, com repercussões negativas na prática de EPS. Discute-se o risco em centralizar o responsável pela concretização dessa proposta, que deveria ser coletiva e compartilhada entre diferentes atores. Reivindica-se, portanto, uma produção colaborativa, que possa circular entre os envolvidos, de modo que cada um experimente esse lugar e se aproprie da complexidade de interações propiciadas pela Educação Permanente em Saúde.(AU)


This article aims to understand the conceptions of professionals from the management and services of the Unified Health System (SUS) on Permanent Education in Health (EPS), as well as its challenges and potential. A focus group was used for data collection, followed by a lexical analysis of the descending hierarchical classification type using the Iramuteq software. The results delineated four classes: a) EPS - understandings and expectations; b) obstacles to EPS; c) ETSUS and EPS by courses and training; and d) EPS devices: potentialities and challenges. Participants pointed out misunderstandings about EPS, when equating it with Continuing Education (CE) focused on content transfer, with negative repercussions on EPS practice. The risk of centralizing the person responsible for implementing this proposal, which should be collective and shared among different actors, is discussed. Therefore, a collaborative production is claimed for, which can circulate among those involved, so that each one experiences this place and appropriates the complexity of interactions provided by Permanent Education in Health.(AU)


Este artículo tiene por objetivo comprender las concepciones de los profesionales de la gestión y servicios del Sistema Único de Salud (SUS) sobre Educación Continua en Salud (EPS), así como sus desafíos y potencialidades. Se utilizó un grupo focal para la recolección de datos, seguido por un análisis léxico del tipo clasificación jerárquica descendente con la ayuda del software Iramuteq. Los resultados delinearon cuatro clases: a) EPS: entendimientos y expectativas, b) Barreras para EPS, c) ETSUS y EPS a través de cursos y capacitación, y d) Dispositivos EPS: potencialidades y desafíos. Los participantes informaron que existen malentendidos sobre EPS al equipararla a Educación Continua, con repercusiones negativas en la práctica de EPS, orientada a la transferencia de contenidos. Se discute el riesgo de elegir a un solo organismo como responsable de implementar esta propuesta colectiva, que debería ser colectiva y compartida entre los diferentes actores. Se aboga por un liderazgo colaborativo, que pueda circular entre los involucrados, para que cada uno experimente este lugar y se apropie de la complejidad de interacciones que brinda la Educación Continua en Salud.(AU)


Assuntos
Humanos , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Sistema Único de Saúde , Gestão em Saúde , Educação Continuada , Inovação Organizacional , Objetivos Organizacionais , Equipe de Assistência ao Paciente , Gestão de Recursos Humanos , Atenção Primária à Saúde , Prática Profissional , Psicologia , Política Pública , Garantia da Qualidade dos Cuidados de Saúde , Qualidade da Assistência à Saúde , Instituições Acadêmicas , Recursos Audiovisuais , Tecnologia Assistiva , Controle Social Formal , Seguridade Social , Sociologia Médica , Especialização , Análise e Desempenho de Tarefas , Ensino , Tomada de Decisões Gerenciais , Estratégias de Saúde Nacionais , Vigilância Sanitária , Infraestrutura Sanitária , Terapias Complementares , Cultura Organizacional , Educação em Saúde , Enfermagem , Pessoal de Saúde , Gestão da Qualidade Total , Reforma dos Serviços de Saúde , Serviços Comunitários de Saúde Mental , Conhecimento , Equidade em Saúde , Currículo , Programas Voluntários , Educação Médica Continuada , Educação Continuada em Enfermagem , Educação Profissionalizante , Reeducação Profissional , Serviços Médicos de Emergência , Humanização da Assistência , Planejamento , Instituições de Saúde, Recursos Humanos e Serviços , Governança Clínica , Fortalecimento Institucional , Comunicação em Saúde , Integralidade em Saúde , Reabilitação Psiquiátrica , Desempenho Profissional , Práticas Interdisciplinares , Esgotamento Psicológico , Governança Compartilhada de Enfermagem , Educação Interprofissional , Condições de Trabalho , Conselho Diretor , Administradores de Instituições de Saúde , Política de Saúde , Promoção da Saúde , Administração Hospitalar , Capacitação em Serviço , Aprendizagem , Serviços de Saúde Mental
14.
Pathol Oncol Res ; 28: 1610391, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35721327

RESUMO

Follow-up includes ongoing contact with and health education of the patient, surveillance and control of the adverse effects of surgery, oncological therapies or radiotherapy, screening of metachronous cancers, and comprehensive (physical, psychological and social) patient rehabilitation, which may be enhanced by a healthy lifestyle. Primary attention should be paid to early detection and, when needed, curative treatment of local/regional tumour recurrences. Similarly, with the hope of curative solution, it is important to recognize the entity of a low-mass and relatively indolent recurrence or metastasis (oligometastasis); however, there is still no need to investigate distant metastases by routine diagnostic imaging or assess tumour markers. Below there is a list of possible sources of support, with respect to adjuvant hormone therapy continued during long-term care, social support resources, pivotal points and professional opportunities for physical and mental rehabilitation. Individual solutions for specific issues (breast cancer risk/genetic mutation, pregnancy) are provided by constantly widening options. Ideally, a complex breast cancer survivorship programme is practised by a specially trained expert supported by a cooperative team of oncologists, surgeons, breast radiologists, social workers, physiotherapists, psycho-oncologists and psychiatrists. The approach of follow-up should be comprehensive and holistic.


Assuntos
Neoplasias da Mama , Sobreviventes de Câncer , Reabilitação Psiquiátrica , Neoplasias da Mama/diagnóstico , Neoplasias da Mama/terapia , Feminino , Seguimentos , Humanos , Oncologia , Recidiva Local de Neoplasia/diagnóstico
15.
J Pediatr Hematol Oncol Nurs ; 39(1): 49-59, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35722869

RESUMO

Background: Diagnosis and treatment of cancer and blood disorders in childhood, adolescence and young adulthood has a significant impact on patients and families. The Psychosocial Standards of Care project, initiated in 2012, resulted in 15 Psychosocial Standards (PSS) that guide the care patients and families receive throughout treatment. As members of the multidisciplinary psychosocial care team, music therapists play an important role in the advancing the PSS. Most surveys have focused on other commonly provided services (e.g., social work, child life), leaving gaps in our understanding about the availability and use of music therapy services to advance PSS. This paper offers an initial description of how music therapy services contribute to the provision of care under these Standards. Methods: We analyze how music therapy services promote PSS through synthesis of a music therapy clinical practice survey, published literature, and scope of practice documents. A brief overview of music therapy services structure, PSS that music therapy services currently address, and two clinical program descriptions are included. Results: Music therapy services address 9 of the 15 PSS and are well integrated within the larger program of psychosocial care. Findings suggest integration of music therapy services can help ensure personalized, comprehensive care and efficient use of often-limited psychosocial care resources. Discussion: Nurses, as members of the psychosocial and medical teams are uniquely positioned to identify patient and family care needs and refer patients for services. Understanding how music therapy services address PSS and most importantly, the needs of patients and families, will optimize their care.


Assuntos
Doenças Hematológicas , Musicoterapia , Reabilitação Psiquiátrica , Adolescente , Adulto , Criança , Família , Humanos , Oncologia , Musicoterapia/métodos , Inquéritos e Questionários , Adulto Jovem
17.
PLoS Negl Trop Dis ; 16(1): e0010132, 2022 01.
Artigo em Inglês | MEDLINE | ID: mdl-35061673

RESUMO

BACKGROUND: Lower limb disorders including lymphoedema create a huge burden for affected persons in their physical and mental health, as well as socioeconomic and psychosocial consequences for them, their families and communities. As routine health services for the integrated management and prevention of lower limb disorders are still lacking, the 'Excellence in Disability Prevention Integrated across Neglected Tropical Diseases' (EnDPoINT) study was implemented to assess the development and delivery of an integrated package of holistic care-including physical health, mental health and psychosocial care-within routine health services for persons with lower limb disorders caused by podoconiosis, lymphatic filariasis and leprosy. METHODOLOGY/PRINCIPAL FINDINGS: This study was part of the first of three phases within EnDPoINT, involving the development of the integrated care package. Focus group discussions and key informant interviews were undertaken with 34 participants between January-February 2019 in Awi zone, Ethiopia, in order to assess the draft care package's feasibility, acceptability and appropriateness. Persons affected by lower limb disorders such as lymphoedema experience stigma, exclusion from families, communities and work as well as physical and financial hardship. Beliefs in disease causation inhibit affected persons from accessing care. Ignorance was a barrier for health care providers as well as affected persons. Training and education of affected persons, communities and caregivers is important in improving care access. It also requires time, space, materials and financial resources. Both top-down and grass roots input into service development are key, as well as collaboration across stakeholders including charities, community leaders and "expert patients". CONCLUSIONS/SIGNIFICANCE: This study highlighted the need for the EnDPoINT integrated care package and provided suggestions for solutions according to its three aspects of integrated care (integration into routine care; integration of mental health and psychosocial care; and integration of care across the three diseases), thereby giving support for its feasibility, acceptability and appropriateness.


Assuntos
Prestação Integrada de Cuidados de Saúde/métodos , Filariose Linfática/epidemiologia , Elefantíase/epidemiologia , Hanseníase/epidemiologia , Linfedema/psicologia , Adulto , Elefantíase/psicologia , Elefantíase/terapia , Filariose Linfática/psicologia , Filariose Linfática/terapia , Etiópia/epidemiologia , Feminino , Grupos Focais , Serviços de Saúde , Saúde Holística , Humanos , Hanseníase/psicologia , Hanseníase/terapia , Extremidade Inferior/patologia , Linfedema/epidemiologia , Linfedema/terapia , Masculino , Pessoa de Meia-Idade , Reabilitação Psiquiátrica , Estigma Social , Adulto Jovem
18.
Integr Cancer Ther ; 20: 15347354211052520, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34663123

RESUMO

BACKGROUND: The goal of this pilot randomized controlled trial was to examine the feasibility and acceptability of delivering group-based psychosocial care via videoconference (ie, Zoom) to women with lung cancer undergoing treatment. METHODS: At baseline, women indicated their typical computer and internet use and were then randomized to a group-based intervention that either focused on mindfulness training or psychoeducation. Participants completed 1 Zoom "practice run" prior to starting the 5 group sessions (1 per week). After the last session, they evaluated their experiences with the intervention and its delivery. RESULTS: With a consent rate of 68%, 54 women (mean age = 66 years; 69% non-Hispanic White; 48% with stage IV disease) were equally randomized. Attendance was high in both arms (session mean, mindfulness = 4.38; education = 4.75; 85% attended all sessions). Across arms, all women rated the program as useful; most preferred group-based delivery (67%) and remote delivery (50%) or had no preference. Although the sample's typical computer use was relatively low (eg, 19% said that they rarely or never use a computer), most women (76%) indicated that Zoom was "very easy" or "easy" to use. After only 0 to 1 attempts, 56% felt comfortable but 26% stated that they never felt comfortable with the technology. CONCLUSIONS: It seems to be feasible to deliver group-based psychosocial interventions via videoconference in women with lung cancer undergoing treatment. Challenges regarding scheduling the group sessions and familiarizing older rather than infrequent computer users with the technology were encountered but resolved over the course of the trial.


Assuntos
Carcinoma Pulmonar de Células não Pequenas , Neoplasias Pulmonares , Reabilitação Psiquiátrica , Idoso , Carcinoma Pulmonar de Células não Pequenas/terapia , Estudos de Viabilidade , Feminino , Humanos , Neoplasias Pulmonares/terapia , Projetos Piloto , Comunicação por Videoconferência
19.
Curr Treat Options Oncol ; 22(7): 64, 2021 06 07.
Artigo em Inglês | MEDLINE | ID: mdl-34097142

RESUMO

OPINION STATEMENT: Successful management of adolescent and young adult patients with Hodgkin lymphoma (HL) requires a multidisciplinary approach to care with special attention paid to the unique medical, logistical, and psychosocial challenges faced by this group. The emotional and social changes and big life transitions that occur between the ages of 15 and 39 result in a broad scope of supportive care needs that differ from children or adults in similar circumstances. Currently, care of adolescent and young adult (AYA) patients with HL may be fractured across the pediatric-adult cancer care continuum resulting in this group being less well studied than pediatric or adult patients in general. In order to optimize outcomes, these patients need access to medical oncologists and radiation oncologists, advanced practice providers (APPs), psychologists/social work, financial support services, fertility specialists, survivorship care, and advocates with AYA expertise that can help navigate the healthcare system. A strong AYA support system established early with targeted education and resources may influence treatment compliance and likelihood of long-term follow-up. Surveys of the AYA cancer population have identified areas of opportunity for the healthcare team to collaborate to identify needs, design interventions to meet them, and ultimately develop evidence-based guidelines that will enable us to offer AYAs with HL the quality care they deserve.


Assuntos
Doença de Hodgkin/terapia , Adolescente , Adulto , Doença de Hodgkin/mortalidade , Doença de Hodgkin/psicologia , Humanos , Medicina Integrativa , Equipe de Assistência ao Paciente , Reabilitação Psiquiátrica , Recidiva , Padrão de Cuidado , Adulto Jovem
20.
Psychiatr Hung ; 36(2): 187-208, 2021.
Artigo em Húngaro | MEDLINE | ID: mdl-33870905

RESUMO

INTRODUCTION: In Hungary, the use of music in rehabilitation is a scarcely researched area. In this study we aimed to examine the structure, purpose, and role of music activities conducted at the Department of Psychiatry, University of Szeged. We studied the rehabilitation programs of psychiatric patients and the role of music activities in healing and reintegration. All of this has been compared to the structure, timing and effectiveness of music therapy methods used worldwide. METHODS: The 10-person sample consisted of patients participating in the rehabilitation program of the department, who agreed to attend music sessions there over a two-week interval. During the first and last interventions, we mea - sured patient satisfaction with life, perceived social support, and levels of depression and trait anxiety. In addition, we measured changes in anxiety during a single music session, and a short structured interview was completed with each patient at the time of the last session. RESULTS: Our results show that patients' perceived social support increased (t[9]=-3,61, p< 0,01) during the intervention period - especially regarding the family dimension (t[9]=-2,57 , p=0,03). The level of anxiety decreased (t[9]=2,42, p=0,03), and the level of depression also showed a marginally significant decrease (t[9]=2,11, p= 0,06). No significant differences were found in the changes of life satisfaction and the immediate anxiety-relieving effect of music practice. The content of the interviews however confirmed that there is indeed an immediate anxiety-relieving effect of a single music session. DISCUSSION: To summarise the quantitative and qualitative data, it can be stated that the music activities of the department are several points in line with the international practice, and operate with low risk and high efficiency. The work done here has confirmed that music activities can be an effective method along with the clinical treatments and play an important role in the rehabilitation process.


Assuntos
Musicoterapia , Música , Reabilitação Psiquiátrica , Ansiedade , Humanos , Hungria
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