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Co-Design of a Neurodevelopment Assessment Scale: A Study Protocol.
Masi, Anne; Azim, Syeda Ishra; Lam-Cassettari, Christa; Dadds, Mark; Mendoza Diaz, Antonio; Henry, Georgina; Karlov, Lisa; Lin, Ping-I; Mallitt, Kylie-Ann; Montgomery, Alicia; Strnadová, Iva; Whitehouse, Andrew; Eapen, Valsamma.
Affiliation
  • Masi A; School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia.
  • Azim SI; School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia.
  • Lam-Cassettari C; School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia.
  • Dadds M; Academic Unit of Child Psychiatry, South Western Sydney Local Health District and Ingham Institute, Liverpool, NSW 2170, Australia.
  • Mendoza Diaz A; School of Psychology, Faculty of Science, The University of Sydney, Sydney, NSW 2006, Australia.
  • Henry G; School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia.
  • Karlov L; Academic Unit of Child Psychiatry, South Western Sydney Local Health District and Ingham Institute, Liverpool, NSW 2170, Australia.
  • Lin PI; Cerebral Palsy Alliance Research Institute, Faculty of Medicine & Health, The University of Sydney, Sydney, NSW 2006, Australia.
  • Mallitt KA; School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia.
  • Montgomery A; Academic Unit of Child Psychiatry, South Western Sydney Local Health District and Ingham Institute, Liverpool, NSW 2170, Australia.
  • Strnadová I; School of Psychiatry, Faculty of Medicine, The University of New South Wales (UNSW Sydney), Sydney, NSW 2052, Australia.
  • Whitehouse A; Academic Unit of Child Psychiatry, South Western Sydney Local Health District and Ingham Institute, Liverpool, NSW 2170, Australia.
  • Eapen V; Mental Health Research Unit, South Western Sydney Local Health District and Ingham Institute, Liverpool Hospital, Liverpool, NSW 2170, Australia.
Article in En | MEDLINE | ID: mdl-34886563
Neurodevelopmental disorders are a heterogeneous group of conditions with overlapping symptomatology and fluctuating developmental trajectories that transcend current diagnostic categorisation. There is a need for validated screening instruments which dimensionally assess symptomatology from a holistic, transdiagnostic perspective. The primary aim is to co-design a Neurodevelopment Assessment Scale (NAS), a user-friendly transdiagnostic assessment inventory that systematically screens for all signs and symptoms commonly encountered in neurodevelopmental disorders. Our first objective is to undertake development of this tool, utilising co-design principles in partnership with stakeholders, including both those with lived experience of neurodevelopmental disorders and service providers. Our second objective is to evaluate the face validity, as well as the perceived utility, user-friendliness, suitability, and acceptability (i.e., 'social validity'), of the NAS from the perspective of parents/caregivers and adults with neurodevelopmental disorders, clinicians, and service providers. Our third objective is to ascertain the psychometric properties of the NAS, including content validity and convergent validity. The NAS will provide an efficient transdiagnostic tool for evaluating all relevant signs, symptoms, and the dimensional constructs that underpin neurodevelopmental presentations. It is anticipated that this will maximise outcomes by enabling the delivery of personalised care tailored to an individual's unique profile in a holistic and efficient manner.
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Full text: 1 Database: MEDLINE Main subject: Caregivers / Neurodevelopmental Disorders Type of study: Diagnostic_studies Language: En Journal: Int J Environ Res Public Health Year: 2021 Type: Article Affiliation country: Australia

Full text: 1 Database: MEDLINE Main subject: Caregivers / Neurodevelopmental Disorders Type of study: Diagnostic_studies Language: En Journal: Int J Environ Res Public Health Year: 2021 Type: Article Affiliation country: Australia