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Designing rare disease care pathways in the Republic of Ireland: a co-operative model.
Ward, A J; Murphy, D; Marron, R; McGrath, V; Bolz-Johnson, M; Cullen, W; Daly, A; Hardiman, O; Lawlor, A; Lynch, S A; MacLachlan, M; McBrien, J; Ni Bhriain, S; O'Byrne, J J; O'Connell, S M; Turner, J; Treacy, E P.
Affiliation
  • Ward AJ; National Rare Diseases Office, Mater Misericordiae University Hospital, Eccles St, Dublin 7, Ireland.
  • Murphy D; National Rare Diseases Office, Mater Misericordiae University Hospital, Eccles St, Dublin 7, Ireland.
  • Marron R; National Rare Diseases Office, Mater Misericordiae University Hospital, Eccles St, Dublin 7, Ireland.
  • McGrath V; Rare Diseases Ireland, Carmichael House, North Brunswick St, Dublin 7, Ireland.
  • Bolz-Johnson M; European Organisation for Rare Diseases (EURORDIS), Paris, France.
  • Cullen W; Division of Urban General Practice, School of Medicine, University College, Dublin, Ireland.
  • Daly A; European Organisation for Rare Diseases (EURORDIS), Paris, France.
  • Hardiman O; Academic Unit of Neurology, Trinity Biomedical Sciences Institute, Trinity College, Dublin, Ireland.
  • Lawlor A; Department of Neurology, Beaumont Hospital, Beaumont, Dublin, Ireland.
  • Lynch SA; 22Q11 Ireland, North Brunswick Street, Dublin, Ireland.
  • MacLachlan M; Clinical Genetics, Children's Health Ireland (CHI) at Crumlin, Dublin, Ireland.
  • McBrien J; School of Medicine, University College Dublin, Dublin, Ireland.
  • Ni Bhriain S; Disability Services, Health Service Executive, Dublin, Ireland.
  • O'Byrne JJ; Psychology and Social Inclusion, Assisting Living and Learning Institute, Maynooth University, Maynooth, Ireland.
  • O'Connell SM; Department of General Paediatrics and Neurodisability, CHI at Temple Street, Dublin, Ireland.
  • Turner J; Office of the National Lead for Integrated Care, Health Service Executive, Dr. Steeven's Hospital, Dublin, Ireland.
  • Treacy EP; School of Medicine, University College Dublin, Dublin, Ireland.
Orphanet J Rare Dis ; 17(1): 162, 2022 04 11.
Article in En | MEDLINE | ID: mdl-35410222
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Full text: 1 Database: MEDLINE Main subject: Critical Pathways / Rare Diseases Type of study: Guideline Country/Region as subject: Europa Language: En Journal: Orphanet J Rare Dis Year: 2022 Type: Article Affiliation country: Ireland
Fulltext
Add to My VHL
Print
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PubMed Links
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Full text: 1 Database: MEDLINE Main subject: Critical Pathways / Rare Diseases Type of study: Guideline Country/Region as subject: Europa Language: En Journal: Orphanet J Rare Dis Year: 2022 Type: Article Affiliation country: Ireland