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Adults with cystic fibrosis: spiritual coping with lifelong disease.
Grossoehme, Daniel H; Cole, Adam G; Lewis, Katrina; Stamper, Sophia M; Teeters, Alexis; Joseph, Patricia M.
Afiliação
  • Grossoehme DH; Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, OH, USA.
  • Cole AG; Division of Pulmonary Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
  • Lewis K; Department of Internal Medicine, College of Medicine, University of Cincinnati, Cincinnati, OH, USA.
  • Stamper SM; Department of Pulmonary, Critical Care and Sleep Medicine, University of Cincinnati Medical Center, Cincinnati, OH, USA.
  • Teeters A; Division of Pulmonary Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
  • Joseph PM; Division of Pulmonary Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
J Health Care Chaplain ; 26(2): 45-57, 2020.
Article em En | MEDLINE | ID: mdl-32172686
Cystic fibrosis (CF) is a chronic life-shortening disease requiring significant coping. Spiritual belief relates to treatment behaviors. Little is known about spirituality's role in adults diagnosed as children, nor how it compares with adults diagnosed as adults. Adults over 18 years, diagnosed as children completed a questionnaire; some were randomized to also participate in an interview or daily phone diary to measure adherence. Qualitative analyses of 25 adults are presented. Participants reframed their disease as part of a Divine Plan, in which Divine assistance was conditional upon adherence. Linear regression models of spiritual constructs on airway clearance, nebulized medication, and exercise are presented. Adults diagnosed as children related spirituality to CF in ways both consistent and different from adults diagnosed as adults. Spiritual beliefs were related to adherence determinants and intentions. Increased understanding of the relationship between spirituality and health behaviors is important to providing person-centered care.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Religião e Psicologia / Adaptação Psicológica / Fibrose Cística / Espiritualidade Tipo de estudo: Clinical_trials / Qualitative_research Idioma: En Revista: J Health Care Chaplain Ano de publicação: 2020 Tipo de documento: Article País de afiliação: Estados Unidos

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Religião e Psicologia / Adaptação Psicológica / Fibrose Cística / Espiritualidade Tipo de estudo: Clinical_trials / Qualitative_research Idioma: En Revista: J Health Care Chaplain Ano de publicação: 2020 Tipo de documento: Article País de afiliação: Estados Unidos