Patients' and caregivers' perspectives of the atopic dermatitis journey.
J Dermatolog Treat
; 35(1): 2315145, 2024 Dec.
Article
em En
| MEDLINE
| ID: mdl-38387879
ABSTRACT
BACKGROUND:
Understanding the patient journey is important to optimize care for patients with atopic dermatitis (AD) and overcome challenges in diagnosis and management.OBJECTIVE:
To explore patient and caregiver perspectives regarding their experience with AD.METHODS:
Patients and caregivers of patients with AD completed a pre-meeting survey and were invited to join an advisory board meeting in their country (China, Hong Kong, Ireland, Japan and Lebanon) to discuss the survey results. Data were analyzed descriptively.RESULTS:
The survey included 31 participants (patients and caregivers) from Hong Kong (n = 7), China (n = 7), Ireland (n = 6), Japan (n = 6) and Lebanon (n = 5). The most challenging factors in the AD journey were management of symptoms before a confirmed diagnosis (68%), sudden recurrence of flares or worsening of symptoms (68%) and lifestyle changes (52%). In terms of overall AD management, 35% of participants indicated that AD was managed well, 23% had a clear treatment plan and 19% were generally satisfied with disease management. A collaborative relationship with healthcare professionals was favored.CONCLUSION:
A holistic assessment of AD includes understanding patient and caregiver preferences, needs, experiences and disease perceptions. Addressing the identified gaps may improve the management of AD.Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Cuidadores
/
Dermatite Atópica
Idioma:
En
Revista:
J Dermatolog Treat
Ano de publicação:
2024
Tipo de documento:
Article
País de afiliação:
Estados Unidos