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1.
Disabil Rehabil ; : 1-20, 2024 Aug 01.
Artículo en Inglés | MEDLINE | ID: mdl-39089328

RESUMEN

PURPOSE: The need for specialized rehabilitation considerations to address racial health disparities and optimize functional outcomes such as participation in daily life for Black people with traumatic brain injury (TBI) has been acknowledged. This study uses anti-racism as an entry point for addressing institutional racism by examining what the experiences of Black survivors of TBI, rehabilitation providers, and family caregivers tell us about imagined possibilities for rehabilitation to promote Black futures. MATERIAL AND METHODS: A constructivist-informed narrative inquiry using critical race theory and in-depth narrative interviewing was applied across ten women and four men. Reflexive thematic analysis within and across groups of participants led to conceptualizing two main themes and five sub-themes. RESULTS: Conceptualized themes captured requirements for TBI rehabilitations' investments in Black futures: (1) the need for critical information and specialized educational supports and particular requirements for supporting participation in meaningful life situations, and (2) responsibilities of delivering rehabilitation care for Black service users. CONCLUSION: TBI rehabilitation must be tailored to the realities of living while being Black, integrate personal values, beliefs, interests, and equitable supports to maximize optimal functioning and participation if the goal of rehabilitation is community integration for all persons living with the impacts of TBI.


Rehabilitation care that challenges institutional racism is fundamental to meeting the unmet functional and participation goals of Black people living with traumatic brain injury.At the individual-level, investments in anti-racist rehabilitation for Black traumatic brain injury service users require attention to clinical encounters between providers and patients and specifically the importance of the therapeutic relationship.Organizational level changes include critical information and education about intersections of race and traumatic brain injury, supporting participation in meaningful life situations, and particular responsibilities for Black and non-Black rehabilitation providers to inspire recovery.Knowledge of the rehabilitation professions requires racial consciousness of the practices, protocols, and guidelines underpinning care and how these bodies of documents reinforce racial health disparities which have implications for training and practice.

2.
Disabil Rehabil ; : 1-16, 2024 Jul 01.
Artículo en Inglés | MEDLINE | ID: mdl-38950599

RESUMEN

PURPOSE: Traumatic brain injury (TBI) is a chronic disease process and a public health concern that disproportionately impacts Black populations. While there is an abundance of literature on race and TBI outcomes, there is a lack of scholarship that addresses racism within rehabilitation care, and it remains untheorized. This article aims to illuminate how racism becomes institutionalized in the scientific scholarship that can potentially inform rehabilitation care for persons with TBI and what the implications are, particularly for Black populations. MATERIAL AND METHODS: Applying Bacchi's What's the Problem Represented to be approach, the writings of critical race theory (CRT) are used to examine the research about race and TBI rehabilitation comparable to CRT in other disciplines, including education and legal scholarship. RESULTS: A CRT examination illustrates that racism is institutionalized in the research about race and TBI rehabilitation through colourblind ideologies, meritocracy, reinforcement of a deficit perspective, and intersections of race and the property functions of whiteness. A conceptual framework for understanding institutional racism in TBI rehabilitation scholarship is presented. CONCLUSIONS: The findings from this article speak to the future of TBI rehabilitation research for Black populations, the potential for an anti-racist agenda, and implications for research and practice.


Critical race theory contributes to a comprehensive understanding of racism in the literature about race and traumatic brain injury (TBI) rehabilitation by asking how racism operates in the scholarship, including methods, analyses, interpretations, and conclusions.Applying a critical race theory lens in TBI rehabilitation has the potential to inform antiracist scholarship that holds important implications for critical rehabilitation research, practice, professional training, and policy.Implications for rehabilitation practice include opening up opportunities to address how race and racism shape rehabilitation outcomes to imagine different possibilities, programs, and futures for Black people with TBI with various communities of practice.

3.
BMC Health Serv Res ; 24(1): 834, 2024 Jul 24.
Artículo en Inglés | MEDLINE | ID: mdl-39049041

RESUMEN

BACKGROUND: Over two decades of research about traumatic brain injury (TBI) rehabilitation emphasized the persistence of racial health disparities in functional outcomes that disproportionately impact Black populations without naming or addressing racism as the root problem. Further, the experiences of Black people with TBI have yet to be documented and accounted for in scientific scholarship from the perspectives of Black persons in Canada. PURPOSE: This study intended to examine the rehabilitation narratives of Black TBI survivors, family caregivers, and rehabilitation providers and use critical race theory as a conceptual framework to understand how anti-Black racism manifests in those experiences. METHODS: Through critical narrative inquiry informed by a critical constructivist paradigm and a critical race theory lens, in-depth narrative interviewing were conducted with seven survivors, three family caregivers, and four rehabilitation providers. Data were analyzed using reflexive thematic analysis within and across groups of participants to conceptualize themes and sub-themes. FINDINGS: Themes captured how racism becomes institutionalized in TBI rehabilitation: (1) the institutional construction of deficient Black bodies, (2) the institutional construction of rehabilitation access, (3) the institutional investment in resisting and approximating whiteness in rehabilitation practice, and (4) the institutional construction of deficient Black futures. CONCLUSION: Study findings point to the dire need to ensure rehabilitation programs, services, and the delivery of care are not determined based on inequitable practices, racial biases and assumptions about Black people, which determine who deserves to get into rehabilitation and have opportunities to be supported in working towards living a full and meaningful life.


Asunto(s)
Lesiones Traumáticas del Encéfalo , Racismo , Humanos , Lesiones Traumáticas del Encéfalo/rehabilitación , Lesiones Traumáticas del Encéfalo/psicología , Lesiones Traumáticas del Encéfalo/etnología , Femenino , Masculino , Racismo/psicología , Adulto , Persona de Mediana Edad , Canadá , Disparidades en Atención de Salud/etnología , Investigación Cualitativa , Entrevistas como Asunto , Población Negra/psicología , Cuidadores/psicología , Narración , Negro o Afroamericano/psicología
4.
Trauma Violence Abuse ; 24(3): 1254-1281, 2023 07.
Artículo en Inglés | MEDLINE | ID: mdl-34915772

RESUMEN

Objectives: This novel critical transdisciplinary scoping review examined the literature on integrated care pathways that consider Black people living with traumatic brain injury (TBI). The objectives were to (a) summarize the extent, nature, and range of literature on care pathways that consider Black populations, (b) summarize how Blackness, race, and racism are conceptualized in the literature, (c) determine how Black people come to access care pathways, and (d) identify how care pathways in research consider the mechanism of injury and implications for human occupation. Methods: Six databases were searched systematically identifying 178 articles after removing duplicates. In total, 43 articles on integrated care within the context of Black persons with TBI were included. Narrative synthesis was conducted to analyze the data and was presented as descriptive statistics and as a narrative to tell a story. Findings: All studies were based in the United States where 81% reported racial and ethnic disparities across the care continuum primarily using race as a biological construct. Sex, gender, and race are used as demographic variables where statistical data were stratified in only 9% of studies. Black patients are primarily denied access to care, experience lower rates of protocol treatments, poor quality of care, and lack access to rehabilitation. Racial health disparities are disconnected from racism and are displayed as symptoms of a problem that remains unnamed. Conclusion: The findings illustrate how racism becomes institutionalized in research on TBI care pathways, demonstrating the need to incorporate the voices of Black people, transcend disciplinary boundaries, and adopt an anti-racist lens to research.


Asunto(s)
Negro o Afroamericano , Lesiones Traumáticas del Encéfalo , Atención a la Salud , Disparidades en Atención de Salud , Calidad de la Atención de Salud , Racismo Sistemático , Humanos , Lesiones Traumáticas del Encéfalo/terapia , Vías Clínicas , Prestación Integrada de Atención de Salud , Estados Unidos , Racismo Sistemático/etnología , Accesibilidad a los Servicios de Salud , Disparidades en Atención de Salud/etnología , Disparidades en el Estado de Salud , Atención a la Salud/etnología
5.
PLoS One ; 17(3): e0264116, 2022.
Artículo en Inglés | MEDLINE | ID: mdl-35239715

RESUMEN

Traumatic brain injuries (TBI) and mental health or substance use disorders (MHSU) are global public health concerns due to their prevalence and impact on individuals and societies. However, care for individuals with TBI and MHSU remains fragmented with a lack of appropriate services and supports across the continuum of healthcare. This systematic review provided an evidence-based foundation to inform opportunities to mobilize and adapt existing resources to integrate care for individuals with TBI and MHSU by comprehensively summarizing existing integrated activities and reported barriers and facilitators to care integration. MEDLINE, EMBASE, PsycINFO, CINAHL, Cochrane Central Register of Controlled Trials, Sociological Abstracts, and Dissertations & Theses Global were independently reviewed by two reviewers based on pre-determined eligibility criteria. Data on the integration activity, level and type of integration, reported barriers and facilitators, and the strategies aligning with the World Health Organization's (WHO) Framework on Integrated Person-Centred Care were extracted to form the basis for a narrative synthesis. Fifty-nine peer-reviewed articles were included, describing treatments (N = 49), programs (N = 4), or screening activities (N = 7). Studies discussing clinical integration at the micro- (N = 38) and meso- (N = 10) levels, service integration at the micro- (N = 6) and meso- (N = 5) levels, and functional integration at the meso-level (N = 1) were identified. A minority of articles reported on facilitators (e.g., cognitive accommodations in treatment plans; N = 7), barriers (e.g., lack of education on cognitive challenges associated with TBI; N = 2), or both (N = 6), related to integrating care. This review demonstrated that integrated TBI and MHSU care already exists across a range of levels and types. Given the finite and competing demands for healthcare resources, cognitive accommodations across treatment plans to facilitate integrated TBI and MHSU care should be considered. Multidisciplinary teams should also be explored to provide opportunities for education among health professionals so they can be familiar with TBI and MHSU. Trial registration: Prospero Registration: CRD42018108343.


Asunto(s)
Lesiones Traumáticas del Encéfalo , Prestación Integrada de Atención de Salud , Trastornos Relacionados con Sustancias , Lesiones Traumáticas del Encéfalo/terapia , Personal de Salud , Humanos , Salud Mental , Trastornos Relacionados con Sustancias/terapia
7.
Syst Rev ; 9(1): 124, 2020 06 01.
Artículo en Inglés | MEDLINE | ID: mdl-32482171

RESUMEN

BACKGROUND: Current understandings of the etiology of traumatic brain injury (TBI) and the trajectory of care significantly lack consideration for the inclusion of Black populations. The global prevalence of TBI is increasing, particularly in North America and Europe where approximately 65 million people are affected every year. Although community integration is an ultimate goal of rehabilitation post injury, persons with TBI, particularly Black populations continually face challenges with regards to unmet needs along the continuum of care including meaningful participation and vocation, resulting in occupational deprivation. While integrated care is seen as an appealing approach to service delivery, little is known about what this means for Black people with TBI. This protocol produces the first critical transdisciplinary (CTD) scoping review mapping the extent, range, and nature of integrated care pathways for Black people experiencing TBI. METHODS: CTD provides an analytical tool with a health equity lens that will be applied as both a methodology and theory for undertaking this review. Under the methodological guidance of Arksey and O'Malley, CTD will be used to map the literature and better understand the elements of integrated care pathways for Black people experiencing TBI. To identify the published literature, several databases will be searched including MEDLINE, EMBASE, Cochrane Central Register of Controlled Trials, CINAHL, PsycINFO, and Sociological Abstracts. DISCUSSION: The application of CTD compels health-care providers, administrators, clinician-scientists, rehabilitation specialists, and scholars in the field of TBI and integrated care to re-examine hidden assumptions about racism, racialization, and Blackness that are often embedded in current visions of health for all. The health equity lens of CTD asks about who is accounted for in the research and clinical literature and who is absented. It is anticipated that applying the health equity lens of CTD will provide a critical examination of the literature and illuminate significant implications for integrated care for Black persons experiencing TBI. SYSTEMATIC REVIEW REGISTRATION: Not applicable.


Asunto(s)
Lesiones Traumáticas del Encéfalo , Prestación Integrada de Atención de Salud , Negro o Afroamericano , Europa (Continente) , Humanos , América del Norte , Literatura de Revisión como Asunto
8.
Ecotoxicology ; 16(8): 551-5, 2007 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-17879161

RESUMEN

Using indicator species to monitor the effects of oil pollution was thought to be useful to assess whether local desert reptiles and their insect prey could fulfill such a role in an area damaged in the second Gulf War (1990). Polluted sites with apparently different degrees of contamination (namely tar mat, soot, and clear sites) located at Kuwait's Greater Al-Burgan oil field were compared with control areas outside this region in study conducted in 2002. Five Acanthodactylus scutellatus lizards from each study and control site were humanely killed and stored in a freezer at -20 degrees C until analysis. Ants from the same sites were also collected and treated in a similar manner. Lizard and ant whole body tissues were subjected to gas chromatography-mass spectrometry (GC-MS) to determine concentrations of petroleum hydrocarbons (HCs). The study concentrated on sixteen polycyclic aromatic hydrocarbons (PAHs), EPA priority pollutants used as indicators of petrogenic HC contamination. There were significantly different concentrations of total PAHs in lizards and ants among all four study sites. Of the 16 PAHs, phenanthrene, fluoranthene, and benzo[a]anthracene were present in both lizard and ant samples from the Greater Al-Burgan oil field sites irrespective of the apparent degree of pollution but were undetectable in materials from the control sites. The range of total PAHs in lizards was 26.5-301 ng g(-1) and it was 6.7-82.1 ng g(-1) in ants. Concentrations increased progressively along an expected contamination gradient. Total PAHs were detected in biota even in an area (clear site) that did not appear, virtually, to contain petroleum soil pollution which supports the value of indicator biota species. For all three sites where PAHs were found in biota, the ratio of total PAHs in ants to lizards was consistently 3.3-3.4. These data show that, although 12 years have passed since the Kuwait oil spill catastrophe, all sites are still contaminated with PAHs. Use of lizard and ant materials in monitoring such desert locations seems to be an effective strategy.


Asunto(s)
Hormigas/metabolismo , Contaminación Ambiental , Industria Procesadora y de Extracción , Lagartos/metabolismo , Hidrocarburos Policíclicos Aromáticos/metabolismo , Contaminantes del Suelo/metabolismo , Animales , Femenino , Cadena Alimentaria , Kuwait , Masculino
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