Common criteria among States for storage and use of dried blood spot specimens after newborn screening.
Ann Ist Super Sanita
; 48(2): 119-21, 2012.
Article
en En
| MEDLINE
| ID: mdl-22751553
ABSTRACT
Biological samples collected in biobanks are a resource with significant research potential. The Italian Joint Group CNB - CNBBSV (National Committee of Bioethics - National Committee for Biosecurity, Biotechnologies and Life Sciences) published a document reporting recommendations on storage and use of dried blood spot (DBS) and on the development of a National Network of Regional Newborn Screening Repositories for collection of residual DBS. Several ethical questions (about consent, possible use of genetic information, unanticipated possible usages for research purposes) rise from residual newborn screening specimens collections. Moreover, legal and ethical controversies are accentuated by the conflicts between the interests of sample donors, biobank holders, researchers and the public. To overcome these difficulties the identification of a few criteria for storage and research usage of DBS is crucial.
Texto completo:
1
Base de datos:
MEDLINE
Asunto principal:
Conservación de la Sangre
/
Recolección de Muestras de Sangre
/
Pruebas Genéticas
/
Tamizaje Neonatal
/
Bancos de Muestras Biológicas
/
Exámenes Obligatorios
/
Privacidad Genética
Tipo de estudio:
Diagnostic_studies
/
Prognostic_studies
/
Screening_studies
País/Región como asunto:
America do norte
/
Europa
Idioma:
En
Revista:
Ann Ist Super Sanita
Año:
2012
Tipo del documento:
Article