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The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks.
Evangelista, Teresinha; Hedley, Victoria; Atalaia, Antonio; Johnson, Matt; Lynn, Stephen; Le Cam, Yann; Bushby, Kate.
Afiliación
  • Evangelista T; John Walton Muscular Dystrophy Research Centre and MRC Centre for Neuromuscular Diseases, Institute of Genetic Medicine, Newcastle University, Newcastle upon Tyne, NE1 3BZ, UK. teresinha.evangelista@ncl.ac.uk.
  • Hedley V; John Walton Muscular Dystrophy Research Centre and MRC Centre for Neuromuscular Diseases, Institute of Genetic Medicine, Newcastle University, Newcastle upon Tyne, NE1 3BZ, UK. Victoria.hedley@ncl.ac.uk.
  • Atalaia A; John Walton Muscular Dystrophy Research Centre and MRC Centre for Neuromuscular Diseases, Institute of Genetic Medicine, Newcastle University, Newcastle upon Tyne, NE1 3BZ, UK. Antonio.atalaia@ncl.ac.uk.
  • Johnson M; European Organisation for Rare Diseases (EURORDIS), Paris, France. matt.johnson@eurordis.org.
  • Lynn S; John Walton Muscular Dystrophy Research Centre and MRC Centre for Neuromuscular Diseases, Institute of Genetic Medicine, Newcastle University, Newcastle upon Tyne, NE1 3BZ, UK. steven.lynn@ncl.ac.uk.
  • Le Cam Y; European Organisation for Rare Diseases (EURORDIS), Paris, France. Yann.lecam@eurordis.org.
  • Bushby K; John Walton Muscular Dystrophy Research Centre and MRC Centre for Neuromuscular Diseases, Institute of Genetic Medicine, Newcastle University, Newcastle upon Tyne, NE1 3BZ, UK. kate.bushby@ncl.ac.uk.
Orphanet J Rare Dis ; 11: 17, 2016 Feb 24.
Article en En | MEDLINE | ID: mdl-26911987
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Texto completo: 1 Base de datos: MEDLINE Asunto principal: Enfermedades Raras Tipo de estudio: Guideline / Qualitative_research País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2016 Tipo del documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Base de datos: MEDLINE Asunto principal: Enfermedades Raras Tipo de estudio: Guideline / Qualitative_research País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2016 Tipo del documento: Article